Wednesday 27th October 2021

Cancer: Patients, Family & Carers.#ShareYourSnaps #6. 30/51 #LifeThisWeek. 91/2021.

Cancer: Patients, Family & Carers.#ShareYourSnaps #6. 30/51 #LifeThisWeek. 91/2021.

Cancer does not have a timeline.

It can just appear.

Often times there is NO reason nor cause.

Many who have been diagnosed with a cancer with known risk factors but none apply to them, will be puzzled.

I am one of those but I have also learned to let go…because as my wise husband says “in the overall scheme of things, does that matter or help?”.

This month, on the blog I am focussing on cancer: head and neck cancer, because it is the one I know best.

I WAS excited to announce a community-held event as a fund raiser for Soup For The Soul at my local cafe but, nothing can happen so, I changed to a VIRTUAL Soup For The Soul Fundraiser and this is my POST where there is a LINK directly for donations. Thank you in advance! 

It also is the month when World Head and Neck Cancer Day is held: 27 July.

This year, because of Covid Restrictions a lot of what we took for granted in getting our messages out there to the community have changed. But my blog is still here.

Sadly not much is happening fact to face right now, and I post this image when we were very hopeful we would be able to take the head and neck cancer message to Canberra. But again, that has been postponed.

This Sharing of My Snaps is About a Number of Subjects.

See below for blog disclaimer. 

Cancer Help.

There is, in Australia, a Government website here . 

Of particular interest to me is to find and share more of the cancer I have. Try it if you need to find out more.

https://www.canceraustralia.gov.au/affected-cancer/cancer-types/head-neck-cancer/what-head-and-neck-cancer

Head and neck cancer occurs when abnormal cells in the head or neck grow in an uncontrolled way. These cancers usually begin in the squamous cells that line the inside of the mouth, nose and throat.

Head and neck cancer is 1 of the 10 most common cancers in both men and women in Australia. I have heard it is rare. However now I realise it is not well-known at all. Perhaps my descriptor needs to change.

What are head and neck cancers?

Head and neck cancers occur inside the sinuses, nose, mouth and salivary glands down through the throat. Although these cancers are different, they are treated similarly, so are considered as a group.

It is estimated that there will be 4414 cases of head and neck cancers diagnosed in Australia in 2021. These figures include cancers of the tongue, gum, mouth, salivary glands, tonsils, pharynx, nasal cavity and larynx, but not cancers of the lip.

The five year survival rate is approximately 64.7%.

source: https://www.cancer.org.au/cancer-information/types-of-cancer/head-and-neck-cancers

 

Cancer Council has sites throughout Australia too.  Ours in New South Wales is found here. I have booklets from my local Cancer Council shop at Erina Fair to help me and anyone else with a cancer. These books are free and I highly recommend them.

There is the second volume of which is a series of stories co-ordinated by The Swallows on Facebook : found here.

The Swallows: Booklet

Other information about head and neck cancer found here too:

Julie McCrossin AM, Australian Ambassador for Head and Neck Cancer Australia has copies. Tell me in the comments if you would like one.

Beyond Five. 2018. Now HANCA. Julie McCrossin AM holding a radiation mask. Nadia Rosin CEO & Me.

Marty Doyle, fellow Head and Neck Cancer Australia Ambassador, also wrote this book about his experience with head and neck cancer. He is going well some 17 years post his diagnosis.

I also bought a compilation of cancer stories directly from the author as I wanted to read more stories of others’ going well post-cancer. And I include some other books which have helped me.

Now…some more information can be found here at Head and Neck Cancer Australia (formerly Beyond Five) where I am an Ambassador.

I have taken part in a video series on nutrition, shared my head and neck cancer story on this site, and that of Chris O’Brien Lifehouse where I had my surgeries.

For more information about the special aspects of treatment for those with any cancer, go here to Chris O’Brien Lifehouse. This is in Sydney and is a private hospital specialising in comprehensive cancer care. That is, all under one roof as was the vision of the late Professor Chris O’Brien AO. His daughter, Juliette O’Brien was a recent Woman of Courage. 

And now to this information and more from me, about cancer progress and living with the results of head and neck cancer. My posts are here. 

 

The book I am reviewing. Written by a Psychologist from Chris O’Brien Lifehouse.

Review is coming soon.

This story: The Big Hug Box.

I have written about my connections with Lisa Greissl who founded the Big Hug Box in 2018. She too, was a patient at Chris O’Brien Lifehouse and in recovery wanted to do something to both help cancer research (hers was a very rare cancer) and to give back something to those who saved her life. She knew, in recovery, a BIG hug was always appreciated but not everyone can give or get one in person as they recover from or go through cancer. Find the Big Hug Box here.

Lisa’s idea has moved forward and there is much happening locally in the Newcastle region of N.S.W. Companies raise funds to share Random Hugs of Kindness boxes to Cancer Centres in some states and cities. The latest news is found here. I got to know Lisa personally when I offered to make bookmarks for inclusion in the early versions of The Big Hug Box. I must have donated over 400. I also saw someone I know who received a Big Hug Box and she saw that she knew who made the bookmarks! Lisa has also shared her story as a Woman of Courage.

Whilst this is a much more wordy post for a Share Your Snaps, I wanted to give the space to what has helped me in terms of cancer so that readers and bloggers here may have better ideas and reference points.

This is an Australian based blog and all of my links are to places within Australia, other than The Swallows in the United Kingdom.

There are many places and site for help in the U.S.A. where Oral Cancer is often mentioned separately to head and neck cancer. World wide, the associations and professional bodies relating to all cancers do all they can to improve outcomes for patients.

And, I share my story learning to eat again here: from Head & Neck Cancer Australia. Made February 2020 just before Covid shut things down.

Thank you for reading and commenting.

Denyse.

Blog Disclaimer:

My stories and photos along with suggested links and websites must not be seen as medical advice.

I write this blog from my experience as a head and neck cancer patient.  Denyse Whelan. 2021.

Link Up #250

Life This Week. Link Up #250

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply. It’s a kind connection I value as a blogger! 

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials, sales and any that are overly religious or political or in any way offensive in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: 31/51 Question.

You are invited to the Inlinkz link party!

Click here to enter


FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Women Of Courage Series. #23. Lisa Greissl. 108/2019.

Women Of Courage Series. #23. Lisa Greissl. 108/2019.

A series of blog posts on Denyse Whelan Blogs to be found here from mid May 2019: Wednesdays: each week.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

Lisa Greissl, aged 35, and I met first on-line thanks to having our cancer treatments at the same place: Chris O’Brien Lifehouse and later when I became a ‘maker of bookmarks’ which I supplied over quite a few months in 2018 to be added to The Big Hug Boxes and Random Hug of Kindness Boxes. This woman has energy in her life propelled by her desire for spreading kindness and appreciation as well as the ‘joy of living’ post-cancer. Lisa’s story tells it better. However, I wanted to add, she is the most beautiful person inside and out, having met her family I can attest to much of the ‘why’ she needed to continue her life so fully post-cancer! Thanks Lisa. I do value your work and our friendship.

 

 

 

 What have you faced in your life where you have had to be courageous?

There have been many occasions requiring me to be courageous, but the most significant was just after the birth of my second daughter where I was sent by a midwife completing her home visit to myself and bub to get a scan.

Only 5 days after bub was born I was back in hospital after a blood clot was found in my main iliac vein and further investigations were to commence. Little did we know soon we would be calling on courage to get through the next year.

My family, friends and I were all left completely shocked as I was diagnosed surrounded by a group of around 10 specialists crammed into a little room saying that I had a rare form of cancer, a Teratoma on my spine.

We had no choice but to put on our courage cape and face this battle with everything we had. Even though I was the one facing the challenge I honestly believe during this time my family and friends had to be more courageous as they watched their loved one struggle through treatment and recovery whilst ensuring all the day to day tasks were taken care of. My husband in particular, had a two year old and a newborn to take care of whilst I was receiving treatment in Sydney.

 

 

How did this change you in any way? Please outline further if this has been the case.

In this circumstance, being courageous was not an option. I chose to embed a positive mindset and a promise to never give up. As I was to find out as treatment progressed, It also put into perspective on what nothing to lose really meant.

This has changed me in approaching new challenges where I have chosen to embrace requiring courage in a positive way of achieving my dreams which has seen me achieve things that I never thought possible.

 

Is there something you learned from this that you could recommend to help others who need courage?

Courage is not a switch on and switch off emotion. It is something embedded in all of us ready to be used when necessary, do not fear for the unknown but give yourself some peace in that when you need courage, you can and you will be able to use it.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

I now utilise courage often to believe in myself and what I can achieve.

Your mindset is a powerful tool to accomplish the what seems impossible and I continue to embed a mindset of “I can, I will”  which as mentioned I know is in within myself ready to be used in which I have surprised myself in what I can achieve. As a result of sharing stories and my mindset, I was able to create and become the Founder of the charity The Big Hug Box in 2018. Helping cancer patients find their courage through a giftbox filled with comforting and empowering products for patients facing cancer.

 

Is there any message you would give to others facing a situation where courage could be needed?

I would be lying if there were not times where I questioned if I really had the courage to attempt to achieve my big goals but from my previous experiences, I now understand that courage multiplies courage.

I also understand the impact of the saying that “Hope is stronger than fear” and mindset is everything to assist in enduring the toughest of challenges, when we are at the most challenging point.

But also to add to this, courage is not just required in tough and difficult times, courage can be used when you have a goal and to add to the saying above that hope is greater than fear is that on the other side of hope is the uncapped magnitude to achieve your dreams, and that this is in the ability of everyone.

 

 

Lisa story is amazing and we have met. I offered to make bookmarks to be included in the Big Hug Boxes in 2018 and then as Lisa’s ideas spread to Random Hugs of Kindness Boxes I was part of a ‘packing team’ at her house further up the coast from mine. I met her family and friends, and one very special friend Tracy who was the first Ambassador for The Big Hug Box. Tragically Tracy’s cancer could not be tamed and she died after a life lived fully earlier this year. Lisa teaches me that resilience is important and to adjust your life to make the most of it. As a runner with a now-damaged leg from her surgery, Lisa turned to a new fitness activity and that is rowing. Her zest for life is infectious. Recently I sent a Big Hug Box to Tracey whose story was published recently. If you would like to share kindness with someone you know who has cancer, please click on the links and find out how.

Packing Random Hugs of Kindness Boxes. 2018.

Thank you for sharing, Denyse.

Social Media:

Blog/Website: www.thebighugbox.com

Facebook Page: The Big Hug Box

Instagram: @thebighugbox

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends and on Fridays, it’s Open Slather here with Alicia.

Copyright © 2019 denysewhelan.com.au – All rights reserved.

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Appreciation In August. #5. 2018.85.

Appreciation In August. #5. 2018.85.

Five weeks of Appreciation posts are concluding today with a list of people and businesses I wanted to share my appreciation for in my life and to spread the word to my readers and fellow bloggers. I have not been, as they say, sponsored nor paid for my post, I just tell things as they are. Enjoy!

The Big Hug Box

I first heard of the Big Hug Box and its founder, Lisa, via social media. Lisa tells her story on the website here and as a cancer survivor (from a rare cancer) she wanted to raise funds to give back to research. Lisa is a wife and an energetic Mum of 2 from Newcastle , who admired my hand-made book marks when she saw them.  I offered a suggestion of these as an inclusion in the gifts especially for those newly diagnosed with cancer & Lisa said “yes, please”. I love that my art can be made into bookmarks by me for others to use.

Thank you Lisa. I know we are yet to meet but I do know how kind and supportive you are. Lisa’s blog post about me recently.

https://thebighugbox.com/

Colour Me Well

Social media, specifically Instagram, was where I first saw the development of a colouring calendar from Sharon, at Colour Me Well. This is based on her experience as a cancer survivor where during her treatment she started making boxes on a page representing the treatment days, and colouring them to remind herself of how far she had come.

The calendar comes in a presentation box with a tin of quality pencils. Here’s my little story of becoming involved. Sharon was considering a new product, a greeting card/small gift with a message of kindness, connection and hope and she saw that a mandala would be an ideal mindful colouring pattern on the front.

I liked the idea, of course…mandalas..and set about designing specific once for Cards. Of the 6 designs available, four have been drawn by me. I have no payment for these. I did these out of love for helping others and again, of giving back!

https://www.colourmewell.com.au/

 

Fight Cancer Water Bottle

This is another venture by a cancer survivor who is Sharon too. As I watched the Instagram posts of @fightcancerwaterbottle I soon realised we lived in a similar area. When we met one day by “happy accident” this snap was taken and since then we have been out for a coffee. To read the story of this special water bottle and where the funds from one purchased ends up, it is all on the website.

https://www.fightcancerwaterbottle.com.au/

 

My Blogging Friend and C0-Owner of Skin Boss Australia is Kirsten.

Around the same time she and her husband started this unique business, I was in hospital recovering from my first BIG surgery. Via the kindness of many on a social networking group & this new business I was sent, among other items, Skin Boss Get Up and Glow and Skin Boss Sleep On It. (aren’t the names great?). To read more of the Skin Boss story…and to order some oils of your own as I have (the Body Oils were added recently ) go to the website. I did have to wait a while (some months actually) before I could regularly use the oils on my face as my skin was numb and tender. But now, it is a routine: day and night.

https://www.skinboss.com.au/

Little Blue Wren

I first heard of Jen (little blue wren) as she is a local Newcastle person helping develop products which help skin, specifically the lips. This product is part of the Big Hug Box. I also bought two of her lip balms and one sits on the desk where I am typing, the other on the desk where I create. They are lovely.

1 x Citrus and Peppermint Lip Balm – made locally here in Newcastle by Little Blue Wren. It’s blend of Citrus and Peppermint has been made with the highest quality “Young Living” Oils. (from The Big Hug Box site)

Find her products on Instagram.

https://www.instagram.com/little.blue.wren_/

 

Reading This. Listening to This Book.

I was drawn to this book by Megan Devine after following her Facebook page called Refuge in Grief. Her story as both a counsellor and someone who had the love of her life die in front of her is compelling.

I know that having a cancer diagnosis can feel like a death. Of the life that was an is no more. It is not something I dwell on much as I would rather not be consumed but I do know that listening to Megan read her book (I am a car listener) had me throwing out what were my beliefs about grief.

 

Kindness of “Strangers” ….the people in my Instagram Feed...you know what I mean!

I have followed a delightful and generous woman who I will call Linda…because THAT is her name! I really cannot recall exactly “when” we started to know each other via the usual social media channels but I do know I lucked in with her as a friend. She is one of my “cheerleaders” and I love her for this more. Recently after arriving home from yet another trip to Westmead a LARGE and somewhat weighty packed was on the kitchen bench. I smiled, when I saw the sender…and then I laughed and laugh/cried when I saw the contents. An amazing and beautifully hand crafted crocheted blanket that almost covers my king-size bed…in MY favourite combination of colours AND with a mandala in the middle. Swoon. It is the BEST. As is she!

 

 

Now, as you already know, if you have come this far, that my skin has been problematic for more than a year. My lips especially. I needed something very very dense and something well-known as a salve for skin.

Lanolips was it. I messaged them and told them of my situation and within a week or so, I got some mail! I was sent three types of their product and the bigger one is used just before I go to sleep. It really really helps.

Here is where to find them: http://lanolips.com They are a wholly Australia product. On Instagram: @lanolips

Mindfulness and Meditation.

I have had more than 3 years taking time each day (or night) for some specific meditation activities. For 3 years I paid for a Headspace subscription  and with a 30 days of Cancer program found that really helpful in my early months after diagnosis. Mid year, I changed tack and now have the Calm App as my meditation (and sleep stories) as a great find. Then just last week I became a founding member of Buddhify (they have a free app too) because I wanted to have more variation and one to listening to during the day.

I have found of course, just going outside and being in nature helps as does creating but if you are looking at apps for yourself, there are 0nes I have appreciated and enjoy.

Beyond Five.

I have known about Beyond Five since my cancer diagnosis in May 2017 but I was not really in a ‘space’ to take on much of its important information about Head and Neck Cancer until I was further into my understanding of “my cancer’. Squamous cell carcinoma. More about all of that here in my page.

Back to Beyond Five, which is a charity wanting to spread the message of early and timely diagnosis of all Head and Neck Cancers. From May this year until World Head and Neck Cancer Day on 27 July 2018 Beyond Five ran its first fundraising venture called; Soup for the Soul. I joined in with a Virtual Soup for the Soul event and over $400 was raised just by that. In total, $28,000 was raised. Most work and spreading of messages is via Head and Neck cancer support groups of which I am a member as well as on social media.

Some ways in which I appreciate the work is to tell more people of its purpose, including meeting my Federal MP to let her know more. Find Beyond Five here: 

My Dressing With Purpose, Art Journalling and Coffee.

Long time readers and followers know that I dress, with purpose, each day (and have done, with few exceptions) for almost 10 months now. Every. Single. Day. I generally go out by myself to have a coffee somewhere locally (I am up to 17 places now!) and I take time to reflect in my art journal. I find if I do not, for any reason, get to do this on one day, I am really, really ready for it the next day. The wonderful and sharing Styling You, Nikki Parkinson, has an amazing website and blog here, recently celebrating 10 years of helping women make the most of themselves….well, that has worked for me as I often share my daily photo on the facebook group and have won a weekly prize of Nikki’s book called Unlock Your Style.

 

The best is saved for last. This person. With me.

Words are inadequate for the depth of love and appreciation I have for the man, my husband, who had held me, comforted me and told me to use my skills in re-framing my thoughts and oh-so-much more…and who kind of forgives me for not measuring up to his cleaning standards…especially in the kitchen! 

This is the first photo of us…for a LONG while…where I can smile fully and it was taken by our 6 year old granddaughter on Sunday. Thank you Miss E.

Who or what are you appreciating today?

Denyse.

Joining here with Leanne for Lovin’ Life Linky.

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest