Tuesday 24th May 2022

Cancer: Patients, Family & Carers.#ShareYourSnaps #6. 30/51 #LifeThisWeek. 91/2021.

Cancer: Patients, Family & Carers.#ShareYourSnaps #6. 30/51 #LifeThisWeek. 91/2021.

Cancer does not have a timeline.

It can just appear.

Often times there is NO reason nor cause.

Many who have been diagnosed with a cancer with known risk factors but none apply to them, will be puzzled.

I am one of those but I have also learned to let go…because as my wise husband says “in the overall scheme of things, does that matter or help?”.

This month, on the blog I am focussing on cancer: head and neck cancer, because it is the one I know best.

I WAS excited to announce a community-held event as a fund raiser for Soup For The Soul at my local cafe but, nothing can happen so, I changed to a VIRTUAL Soup For The Soul Fundraiser and this is my POST where there is a LINK directly for donations. Thank you in advance! 

It also is the month when World Head and Neck Cancer Day is held: 27 July.

This year, because of Covid Restrictions a lot of what we took for granted in getting our messages out there to the community have changed. But my blog is still here.

Sadly not much is happening fact to face right now, and I post this image when we were very hopeful we would be able to take the head and neck cancer message to Canberra. But again, that has been postponed.

This Sharing of My Snaps is About a Number of Subjects.

See below for blog disclaimer. 

Cancer Help.

There is, in Australia, a Government website here . 

Of particular interest to me is to find and share more of the cancer I have. Try it if you need to find out more.

https://www.canceraustralia.gov.au/affected-cancer/cancer-types/head-neck-cancer/what-head-and-neck-cancer

Head and neck cancer occurs when abnormal cells in the head or neck grow in an uncontrolled way. These cancers usually begin in the squamous cells that line the inside of the mouth, nose and throat.

Head and neck cancer is 1 of the 10 most common cancers in both men and women in Australia. I have heard it is rare. However now I realise it is not well-known at all. Perhaps my descriptor needs to change.

What are head and neck cancers?

Head and neck cancers occur inside the sinuses, nose, mouth and salivary glands down through the throat. Although these cancers are different, they are treated similarly, so are considered as a group.

It is estimated that there will be 4414 cases of head and neck cancers diagnosed in Australia in 2021. These figures include cancers of the tongue, gum, mouth, salivary glands, tonsils, pharynx, nasal cavity and larynx, but not cancers of the lip.

The five year survival rate is approximately 64.7%.

source: https://www.cancer.org.au/cancer-information/types-of-cancer/head-and-neck-cancers

 

Cancer Council has sites throughout Australia too.  Ours in New South Wales is found here. I have booklets from my local Cancer Council shop at Erina Fair to help me and anyone else with a cancer. These books are free and I highly recommend them.

There is the second volume of which is a series of stories co-ordinated by The Swallows on Facebook : found here.

The Swallows: Booklet

Other information about head and neck cancer found here too:

Julie McCrossin AM, Australian Ambassador for Head and Neck Cancer Australia has copies. Tell me in the comments if you would like one.

Beyond Five. 2018. Now HANCA. Julie McCrossin AM holding a radiation mask. Nadia Rosin CEO & Me.

Marty Doyle, fellow Head and Neck Cancer Australia Ambassador, also wrote this book about his experience with head and neck cancer. He is going well some 17 years post his diagnosis.

I also bought a compilation of cancer stories directly from the author as I wanted to read more stories of others’ going well post-cancer. And I include some other books which have helped me.

Now…some more information can be found here at Head and Neck Cancer Australia (formerly Beyond Five) where I am an Ambassador.

I have taken part in a video series on nutrition, shared my head and neck cancer story on this site, and that of Chris O’Brien Lifehouse where I had my surgeries.

For more information about the special aspects of treatment for those with any cancer, go here to Chris O’Brien Lifehouse. This is in Sydney and is a private hospital specialising in comprehensive cancer care. That is, all under one roof as was the vision of the late Professor Chris O’Brien AO. His daughter, Juliette O’Brien was a recent Woman of Courage. 

And now to this information and more from me, about cancer progress and living with the results of head and neck cancer. My posts are here. 

 

The book I am reviewing. Written by a Psychologist from Chris O’Brien Lifehouse.

Review is coming soon.

This story: The Big Hug Box.

I have written about my connections with Lisa Greissl who founded the Big Hug Box in 2018. She too, was a patient at Chris O’Brien Lifehouse and in recovery wanted to do something to both help cancer research (hers was a very rare cancer) and to give back something to those who saved her life. She knew, in recovery, a BIG hug was always appreciated but not everyone can give or get one in person as they recover from or go through cancer. Find the Big Hug Box here.

Lisa’s idea has moved forward and there is much happening locally in the Newcastle region of N.S.W. Companies raise funds to share Random Hugs of Kindness boxes to Cancer Centres in some states and cities. The latest news is found here. I got to know Lisa personally when I offered to make bookmarks for inclusion in the early versions of The Big Hug Box. I must have donated over 400. I also saw someone I know who received a Big Hug Box and she saw that she knew who made the bookmarks! Lisa has also shared her story as a Woman of Courage.

Whilst this is a much more wordy post for a Share Your Snaps, I wanted to give the space to what has helped me in terms of cancer so that readers and bloggers here may have better ideas and reference points.

This is an Australian based blog and all of my links are to places within Australia, other than The Swallows in the United Kingdom.

There are many places and site for help in the U.S.A. where Oral Cancer is often mentioned separately to head and neck cancer. World wide, the associations and professional bodies relating to all cancers do all they can to improve outcomes for patients.

And, I share my story learning to eat again here: from Head & Neck Cancer Australia. Made February 2020 just before Covid shut things down.

Thank you for reading and commenting.

Denyse.

Blog Disclaimer:

My stories and photos along with suggested links and websites must not be seen as medical advice.

I write this blog from my experience as a head and neck cancer patient.  Denyse Whelan. 2021.

Link Up #250

Life This Week. Link Up #250

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply. It’s a kind connection I value as a blogger! 

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials, sales and any that are overly religious or political or in any way offensive in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: 31/51 Question.

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Women Of Courage Series. #23. Lisa Greissl. 108/2019.

Women Of Courage Series. #23. Lisa Greissl. 108/2019.

A series of blog posts on Denyse Whelan Blogs to be found here from mid May 2019: Wednesdays: each week.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

Lisa Greissl, aged 35, and I met first on-line thanks to having our cancer treatments at the same place: Chris O’Brien Lifehouse and later when I became a ‘maker of bookmarks’ which I supplied over quite a few months in 2018 to be added to The Big Hug Boxes and Random Hug of Kindness Boxes. This woman has energy in her life propelled by her desire for spreading kindness and appreciation as well as the ‘joy of living’ post-cancer. Lisa’s story tells it better. However, I wanted to add, she is the most beautiful person inside and out, having met her family I can attest to much of the ‘why’ she needed to continue her life so fully post-cancer! Thanks Lisa. I do value your work and our friendship.

 

 

 

 What have you faced in your life where you have had to be courageous?

There have been many occasions requiring me to be courageous, but the most significant was just after the birth of my second daughter where I was sent by a midwife completing her home visit to myself and bub to get a scan.

Only 5 days after bub was born I was back in hospital after a blood clot was found in my main iliac vein and further investigations were to commence. Little did we know soon we would be calling on courage to get through the next year.

My family, friends and I were all left completely shocked as I was diagnosed surrounded by a group of around 10 specialists crammed into a little room saying that I had a rare form of cancer, a Teratoma on my spine.

We had no choice but to put on our courage cape and face this battle with everything we had. Even though I was the one facing the challenge I honestly believe during this time my family and friends had to be more courageous as they watched their loved one struggle through treatment and recovery whilst ensuring all the day to day tasks were taken care of. My husband in particular, had a two year old and a newborn to take care of whilst I was receiving treatment in Sydney.

 

 

How did this change you in any way? Please outline further if this has been the case.

In this circumstance, being courageous was not an option. I chose to embed a positive mindset and a promise to never give up. As I was to find out as treatment progressed, It also put into perspective on what nothing to lose really meant.

This has changed me in approaching new challenges where I have chosen to embrace requiring courage in a positive way of achieving my dreams which has seen me achieve things that I never thought possible.

 

Is there something you learned from this that you could recommend to help others who need courage?

Courage is not a switch on and switch off emotion. It is something embedded in all of us ready to be used when necessary, do not fear for the unknown but give yourself some peace in that when you need courage, you can and you will be able to use it.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

I now utilise courage often to believe in myself and what I can achieve.

Your mindset is a powerful tool to accomplish the what seems impossible and I continue to embed a mindset of “I can, I will”  which as mentioned I know is in within myself ready to be used in which I have surprised myself in what I can achieve. As a result of sharing stories and my mindset, I was able to create and become the Founder of the charity The Big Hug Box in 2018. Helping cancer patients find their courage through a giftbox filled with comforting and empowering products for patients facing cancer.

 

Is there any message you would give to others facing a situation where courage could be needed?

I would be lying if there were not times where I questioned if I really had the courage to attempt to achieve my big goals but from my previous experiences, I now understand that courage multiplies courage.

I also understand the impact of the saying that “Hope is stronger than fear” and mindset is everything to assist in enduring the toughest of challenges, when we are at the most challenging point.

But also to add to this, courage is not just required in tough and difficult times, courage can be used when you have a goal and to add to the saying above that hope is greater than fear is that on the other side of hope is the uncapped magnitude to achieve your dreams, and that this is in the ability of everyone.

 

 

Lisa story is amazing and we have met. I offered to make bookmarks to be included in the Big Hug Boxes in 2018 and then as Lisa’s ideas spread to Random Hugs of Kindness Boxes I was part of a ‘packing team’ at her house further up the coast from mine. I met her family and friends, and one very special friend Tracy who was the first Ambassador for The Big Hug Box. Tragically Tracy’s cancer could not be tamed and she died after a life lived fully earlier this year. Lisa teaches me that resilience is important and to adjust your life to make the most of it. As a runner with a now-damaged leg from her surgery, Lisa turned to a new fitness activity and that is rowing. Her zest for life is infectious. Recently I sent a Big Hug Box to Tracey whose story was published recently. If you would like to share kindness with someone you know who has cancer, please click on the links and find out how.

Packing Random Hugs of Kindness Boxes. 2018.

Thank you for sharing, Denyse.

Social Media:

Blog/Website: www.thebighugbox.com

Facebook Page: The Big Hug Box

Instagram: @thebighugbox

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends and on Fridays, it’s Open Slather here with Alicia.

Copyright © 2019 denysewhelan.com.au – All rights reserved.

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