Friday 18th September 2020

Share Your Snaps #3. 15/51. #LifeThisWeek. A Love Story. 30/2020.

Share Your Snaps #3. 15/51. #LifeThisWeek. A Love Story. 30/2020.

In July 2018 I met the members of the Central Coast Head and Neck Cancer Support Group at the first Soup for the Soul event in Gosford Hospital’s Central Coast Cancer Centre. That day was the first time I met other people who had been diagnosed with a head and neck cancer. I was “still” toothless but was made very welcome. Interesting isn’t it that it took me a year to get out to meet anyone at all in a setting like this. My surgeries and treatments for my head and neck cancer were all in Sydney. I had no idea of what support there was where I was now living until that month, close to World Head and Neck Cancer Day 2018, when I was invited by Lisa Shailer the Nurse who oversees and assists all head and neck (and lung)cancer patients who receive diagnosis and treatments at the centre to attend. I met many of the members, and it was good to share our stories where we could.

The couple I will now introduce, with what I have named  ‘A Love  Story’ are Stuart and Jill.

Stuart shares the story now after some questions for this post. Thank you Stuart and Jill for sharing.

We are Stuart and Jillian (Jill) Garfatth.  We have been  living in the Central Coast town of Toukley for the last 6 1/2 years.

 

How did head and neck cancer affect your lives?

The cancer had a very significant effect on both of us, of course, more so Jill than I.   It has completely changed our outlook on our lives, we realise how incredibly lucky we are to be living in Australia,  particularly the Central coast, because the treatment Jill was able to have has left us in no doubt that it is the best in the Western world, both medically and the people who cared for Jill in her time of need, of course the financial cost was virtually nil, which was a great help in eliminating that particular stressful component of treatment. We both have a vastly different outlook on life, we do things that we normally would not do,  get out and about, travel internationally much more than we normally do, and enjoy every minute of it!

 

 

How long have you both been members of the Central Coast Head and Neck Cancer group?

We have been members of the Central Coast Head and Neck Cancer group since August 2015, and it has benefited both of us a great deal, particularly the knowledge that we are not alone is a major factor of our membership of the group.

 

 

Do you have any particular stories to tell from your involvement there?

We don’t have any particular stories as such, but we always look forward to the meetings, gaining and sharing information about a great range of subject matter pertaining to Jill’s and everybody’s treatment and experiences. Of particular note presentations by people who are at the ‘coalface’ of research and treatments, they just reinforce the value of on-going research regarding advances in cancer treatment, very heartening indeed!

 

 

There is a story about your motorbike, and why it is special, can you share more?

Yes, there’s a bit of a story about my Sterling Autocycle motorbike. In April 2016, my twin brother rang me and suggested I get on the internet and have a look at a rather unique motorcycle, built to order by The Black Douglas Motorcycle Co. in their workshop in Melzo, just south of Milan, Italy. The company is registered in the U.K. but each bike is hand made, taking about 200 hours per bike, and no two are exactly alike, given differences in overall colour and applied finishes, like pinstriping, and other materials used in their construction.
I told my brother that I thought they were rather nice, and certainly ‘different’ to what is being mass produced by the very large manufacturers, but I could not see me buying one as they were a little ‘pricey’, and I didn’t see a need for me to have one. He replied, “Well, I’m buying two, one with a 230cc motor, and the other with a 125cc motor, and you can have the smaller one”.
“WHAT!, you’re paying for both?!,  I was stunned to put it lightly. Well, after getting over the surprise, I contacted the company founder, Fabio Cardoni, and set the wheels in motion to import the first two Sterlings into Australia.

Can you share more please…I know there IS more! 

As my brother is not on the internet, everything fell to me about liaising with all the relevant Authorities, both in Australia and Italy, little did I know what was to come!. Our greatest stroke of luck came about when I contacted the owner of Ballina Motorcycles, Joe Fisher, who has over 44 years experience in the industry,  he proved to be fundamental to the successful outcome, that took 3 years to bear fruit, and have our bikes registered to ride in Australia, his tenacity and unflagging determination, despite some very serious setbacks, was incredible, but for his efforts, our two bikes would never have been imported and registered here, his honesty and dedication to the task was incredible to see, we cannot thank him enough.

There is a down side to the whole saga though.  Our bikes landed  Australia June, 2016, and after a minor delay, we took delivery and put them into Joe Fishers hands, and he started what turned out to be a 2 year process of getting them legal for road use, and boy, what a story that was! Then towards the end of November 2016, the company ceased trading, it was bankrupted by some new owners who thought they could do better than its founder, Fabio Cardoni, so our two Sterlings are now the only two in Australia, and ever will be.

 

 

Please tell more about how the ribbon for Head and Neck Cancer (named for Jill) came about.

The head and neck cancer ribbon I have put on at the front of each side of the petrol tank came about when I soon realised that when the bike was out in public, it attracted a lot of attention,  many many photographs  taken, many questions are asked,  I was even videoed  once whilst riding, so this got me thinking.  I had the ribbon professionally designed and applied, so that whenever an image of the bike was taken, and published, particularly on the internet, the public profile and awareness of head and neck cancer could grow, which it has, as the image has been seen in the U.K., Europe, North America and Canada.

 

 

What else would you both like to add to this love story?

I had Jill’s name applied within the ribbon for two reasons. One, the bike is unique and very pleasing to the eye, and two, so is Jill!

As my bike is the only one on this planet with such unique livery, and Jill is the only Jill also on this planet, I felt it fitting that I should pay my homage to Her by naming my Sterling after her, and ever it will be.

 

Thank you Stuart and Jill for sharing the story of love, as I named it. I know you won’t argue there. I trust that there are many more days to come, sharing the bike, its story and the head and neck cancer ribbon…once we get through the challenges our country is in now thanks to the COVID19 pandemic.

This was a Share Your Snaps with a difference, and I am glad I saved the photos and story till Easter. We all need a lift in spirits I think and with this story I know I was smiling as I compiled it.

To Love…and Stuart and Jill.

 

Denyse.

In writing here,  partly in my role as a Community Ambassador for Beyond Five, the organisation which helps raise awareness of head and neck cancer which is Australia’s 7th highest, I acknowledge Stuart and Jill are also raising awareness with their bike and meeting attendance at the Central Coast Head and Neck Cancer Support Group. Coming up in July, it’s unlikely there will be a Soup for The Soul at the Cancer Centre as in 2018-2019 – sorry Stuart, who enjoys serving the soups with Jill and sampling them too, so it’s vital we continue as individuals and groups to share the knowledge we have about our head and neck cancer stories.

 

 

Life This Week. #184.

Life This Week. Link Up #184.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 16/51 I Heard 20.4.2020

You are invited to the Inlinkz link party!

Click here to enter

 

 

 

 

 

 

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Share Your Snaps #2. 10/51. #LifeThisWeek. 20/2020.

Share Your Snaps #2. 10/51. #LifeThisWeek. 20/2020.

Welcome to the second in the series that comes along every 5th week here. “Sharing Your Snaps” as an optional prompt grew from a need to have some less-wordy posts and more photos to share! This one though is, like me, wordy.

Now: before you start….I am absent from the blog for now. As this is published I am either still on my way to Sydney: specifically Parramatta Eye Hospital and Day Surgery to have the first of my two cataracts removed OR in the place itself. My dear husband is the kind chauffeur, picker-upper from after surgery and the one charged with caring for me on our overnight stay. No idea of how I will be but know I am a good recoverer…because after Tuesday, we have a night at home, then back down the M1 on Wednesday for the left eye to be done. We go home that evening as my opthalmologist/ surgeon is happy for me to present to the Morriset rooms for check up on Thursday. This surgery has been coming for a couple of years and now, sigh, it is necessary. I will be back here when I can and am ready to do so in a semblance of being able to read still as my eyes will be a bit sore I am told. 

When I was in Sydney, specifically the suburb of Camperdown, I decided it might be a good idea to do a “day of cancer check” post.

“Sharing the Snaps and The Words!”

Missenden Road (just off the Great Western Hwy) is where the main arm of this major Sydney teaching Public Hospital is and it’s called R.P.A. or Royal Prince Alfred Hospital. On one side of the road too, is Sydney University with its residential colleges and more. “MY” hospital, as regular readers know is called Chris O’Brien Lifehouse, and is just 6 years old. The building replaced an older part of the R.P.A. complex I believe. It is opposite a part of R.P.A., St Andrew’s Residential College and just down the inner road,  is Gloucester House, where my 96 year old Dad had a ‘melanoma’ removed…not a melanoma so good news!

Here’s my day: Tuesday 3 March 2020.

Left home around 2 hours prior to appointment. Drove myself. This has been the case since early 2018 for me. Happy to do so.

The trip is via the M1 or Motorway 1 which is a dual lane highway with speed limits of up to 110 kmh but two sections which are 80 kmh because of continued road works. I usually do not need a loo stop these days…go me…and wait till here for that.

I generally enjoy the drive via the M2 then over the Harbour Bridge (been driving over it since 1967 as a licence holder)  and along the Western Distributor until I turn left at the Sydney Fish Markets and up via Pyrmont Bridge Road and across the highway into Missenden Road. When we first visited Chris O’Brien Lifehouse, my husband drove (I was way too caught up with my day-old cancer diagnosis) and then as we came down for surgeries and then checks after surgeries he came too. We stayed twice in apartments shown here, and at 6.00. a.m. meandered up Missenden Road in winter-morning light for one surgery and daylight for another.

And, then here’s why I am here! Chris O’Brien Lifehouse is named for the visionary person, who died far too young, Professor Chris O’Brien. It was his vision, and drive which eventually saw the Federal Govt and State come together to fund this place. He did not see it happen. His wife, Gail has been there for every part of the journey. Every. Day.

Do come in. Take care first and welcome. This is why I love this place….it does not have the cold feel of any hospital I have visited. Music is heard, people chatting, creating art and just taking time to rest, look around and wonder. I still do.

Here’s my favourite sweet treat and great coffee. People watching too. Some medical and surgical people catching up. Patients brought down by a friend or family from their room and those of course, who are maybe waiting and wondering. It IS a cancer hospital I need to remember…..I have only just started being comfortable with enjoying this time for a snack since October 2018..teeth were in by then.

Oh, is that the time? Almost 1 p.m. Time for taking myself to the Clinic on Level 2.

I do prepare for a bit of a wait but last week it was around 10 minutes. Glad to have a 1 p.m. appointment booked always so I have a good trip home.

Kisses, hugs, smiles and gifts of little cakes and brownies. Oh, yes, and a cancer check up too. I can never forget that. I know once I tried to vanish it as a thought and my Prof said “Denyse I am a cancer doctor”. Yes. I know. After a great (but short as I try not to over step my time) catch up, proper examination by viewing and feeling – the glands around my neck and chest, he declared “see you in 6 months”. Wow. So good to hear. Delighted. Will be having a CT scan before that visit. Photos, please! Time for an updated one or two.

My Professor is the Chairman of Beyond Five, the organisation where I am a head and neck cancer community Ambassador and he and his surgical nurse assistant Cate were delighted to hear of the event on Saturday 7 March held on the Central Coast where I will speak and all funds will go to Beyond Five.

The drive home was good. In fact I was home without a stop in under 2 hours. I found it a challenge (but I was good) not to use my phone at all in the car as NSW is now having random cameras catching drivers (and I heard passengers..cannot confirm) using their phones. 5 points and a heavy fine. My phone, once I started its audiobook, sits inside the console where no-one can see it.

I hope you found My Day of interest. I hope to be back to comment when and if I can…and to read but I shall have to ‘see’ how I go.

Denyse.

Link Up #179.

Life This Week. Link Up #179.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 11/51 My Neighbourhood 16.3.2020

You are invited to the Inlinkz link party!

Click here to enter


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We Made It! 52/52.#LifeThisWeek 2018.134.

We Made It! 52/52.#LifeThisWeek 2018.134.

Thank you all.

Yes, we made it. Each Monday to come here and read, join in with a blog post link up and comment.

Some of my blogging friends have had big changes in their lives: I know there have been travel experiences far and wide around this world of ours. I do also know that some of the bloggers have struggled through life transitions of job changes, moving house, starting new courses, having health issues to overcome and losing loved family members. Sadly.

There is no doubt in my mind, this community here, and ones where I also join in here, are living, breathing and caring ones and I am very grateful for the connections. Always. In 2018 a much loved link up ceased…so I for one am hoping these lovely link ups continue into 2019.

Open Slather with Alicia http://onemotherhen.blogspot.com.au on Mondays and Mummy Mondays with Kelly http://allmumsaid.com.au

Midlife Share the Love Linky on Wednesdays with Leanne: http://crestingthehill.com.au Sue:  http://www.sizzlingtowardssixty.com.au

Lovin Life Linky hosted on Thursdays with Leanne http://deepfriedfruit.com.auand friends

 

Now, for the round-up of blog posts for 2018 on Mondays for Life This Week. I was going to use my teacher-voice and call it an award…but it’s not. I looked at the posts from each month and checked the comment numbers as an indication of higher engagement via the comments…as you know Denyse Whelan Blogs To Connect!

January 2018.

Intention or Word for 2018. 16 links.

Sign Above Where I Blog.

February 2018.

Taking Stock 1. 17 links.

Night before 3rd surgery I walked up to COBLH.

March 2018.

Out My Window I See. 15 links.

HAPPY me, with a smile I almost recognise…in my art room.

April 2018.

School Holiday Memories. 11 links.

The signpost…to where we used to live 1971-1972. House is gone.

May 2018.

My Biggest Fear. 16 links.

Writing this in the sand did not reduce my fear but it did make me think about why I was/am fearful at times.

 

June 2018.

What I Will Never See Again. 14 links.

Loved my art-ing times with my pre-school aged grandkids

 

July 2018.

Taking Stock. 23 links.

Spreading the news of Beyond Five & Head & Neck cancer awareness with my local Federal MP.

 

August 2018.

Famous People I’ve Met. 18 links.

Photo with then NSW Governor Marie Bashir. Taken by former NSW Premier, Barrie O’Farrell.

September 2018.

Have You Ever? 12 links.

Excited not only to be part of #celebratingwomen but to be quoted in the book!

 

October 2018.

What I Have Learned Lately. 15 links.

What a wonderful experience it was to be able to smile again!

 

November 2018.

Share Your Snaps. 15 links.

Waves. The Beach!

 

December 2018.

Taking Stock. 18 links.

My ‘word’ for 2018.

Thank you all for visiting, commenting, reading, viewing, following and linking up in 2018.

#LifeThisWeek starts for 2019 on Monday 7 January:

1/51. Hello Again. 7/1/19

2/51. “Word/Intention/Nothing” 2019.. 14/1/19

In the meantime I will be making up some new prompts.

The GOOD news is Share Your Snaps will continue every 5th week

And, good old Taking Stock, around each 9th week.

See you there!

Denyse.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Joining Alicia here for Open Slather and Kell here for Mummy Mondays.

Next Year’s Life This Week commences on Monday 7 January with: Hello Again, as the optional prompt.


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