Wednesday 12th May 2021

Joyful. 17/51. #LifeThisWeek. 51/2021.

Joyful. 17/51. #LifeThisWeek. 51/2021.

The last Aussie-based link up is HERE!

I started this 5 years ago this coming September picking up Mondays when my friend Kirsty stopped blogging. There was a link up on Wednesdays until last year with Sue and Leanne called MidLife Share The Love and one on Thursdays for a long time called Lovin Life with Leanne.

Now, it’s me. This one. I remain committed to keeping the link up happening FOR sure until the end of 2021. After all, I have done the 51 optional prompts!

But for me this link up is MORE than a place for bloggers to share their posts. It’s a space for connecting with others. The one reason I began blogging in late 2010 was the same. So, I appreciate you:

who link up, and

those who also read,

and comment because that  is the way to connect.

The link up is not too much hard work at all for me. I thrive on it. I am hopeful that bloggers from Australia, the U.S.A. and Canada along with further flung places will continue to find a place which care about them, their posts and how they are going.

Let me know your thoughts in the comments!

Thank you all. Denyse.

Today’s post is about fewer words and more photos.

It’s the date of my late grandmother’s birthday. She was a war bride  from World War 1, leaving her home in England to sail to Australia to marry her Andy. My Dad’s dad. It’s a sad tale. I have shared it here. However I like to think she was joyful in her early years of love for him and their first two children. Pity I cannot find the image. In the meantime, maybe she was a little bit joyful at my Christening in 1950.

Off to see Dad at Dee Why today, so will be commenting later when I am home

Gran is on the left

“Sometimes your joy is the source of your smile, but sometimes your smile can be the source of your joy.” ― Thich Nhat Hanh

So pleased I have my smile back and it’s a joy to help others.

I believe as I am ageing, now 71, that I take more time to notice what makes me feel joyful. Sometimes I do not seek it, but there it is and I will say WOW. Julia Baird’s book Phosphoresence talks of finding moments of awe and wonder. I see these for me as joyful moments too. I remember them and I smile as I recall.

The look of joy on my face on receiving this amazing gift for my 70th

I cannot ever forget the joy I felt when I saw the image I captured….

This too is what I see when I am out: joy in nature, shapes, colours and more.

I was very joyful to get my smile back on 21 August 2018 after my cancer surgeries and reconstruction. I never take that joyful feeling for granted.

The Before and After of “Teeth Day” 21 Aug

I am also joyful that the Women of Courage series is making a comeback with some very interested & interesting women volunteering to share their stories. If you did not get a chance to do that in 2019 and 2020, let me know in the comments and I will share the information with you.

And the man who tells me his life is filled with one joyful moment after another…this is why he is my hero and star. He has taught me all I need to know about living in the moment. I call him my husband.

The man who said “Smile” is your word

Where do you find joy?

What or who makes you feel joyful?

Denyse.

Link Up #237

Life This Week. Link Up #237

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: Taking Stock. #2 3 May 2021.

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How This Trip To The Dentist Changed Me. 43/2021.

How This Trip To The Dentist Changed Me. 43/2021.

ABOUT Head and Neck Cancer Australia First! 

Before I proceed, I ended up, after a long time. finding out I had cancer in my gums and under one lip. No dentist nor G.P. had even thought of this as being the case. This was not, in many ways, a fault or failing of them and their knowledge and skill set.

I have a “rare of rare” cancer as my Professor told me. I am now an Ambassador for Head and Neck Cancer Australia and continue to share the ways in which this rare cancer can manifest itself. This link, to Head and Neck Cancer Australia, formerly Beyond Five, will take you to the page about diagnosis. This is a highly reputable and facts-based and checked website. Its content undergoes regular and thorough reviews by professionals in the field.

One of whom is Professor Jonathan Clark AM – my head and neck surgeon who is also Chair & Founder of Head and Neck Cancer Australia.

Visual inspection by Jonathan  as Surgical Assistant and HNC Nurse Cate records my visit.

Back to my post.

Going to the dentist had been a regular thing for me from the age of 3.

I am now 71.

Going every 6 months as suggested.

Going in between when issues arising in my mouth needed fixing.

In some of my blog posts about head and neck cancer, I have outlined the role played by my now (and he was then) dentist in the discovery of oral cancer in my gums.

Before My Upper Prosthesis Went In: July 2018. My Dentist and My Dental Nurse.

I also wrote with detail last week for Part 2 of 2 about the time 2016 to 16 May 2017.

Allow me, here though, to outline exactly how that one trip, on 6 April 2017 changed me FOR the BETTER.

When I was learning about how to deal with areas of my life where I felt fearful…travelling and getting to see people were distinctly challenging because my Irritable Bowel Syndrome (I.B.S) was so unpredictable I just stayed anchored to home. Safe. My then Psychologist who knew I really wanted to overcome this suggested I learn about Exposure Therapy and over time, she taught me that it could be done in stages.

Yet: I still couldn’t see HOW I could do the hard things like drive to the dentist, and see other professionals when I needed to…etc.

Until I literally HAD to!

Message to me before my first surgery

Backstory.

Reading through my blog posts, as some of you have, you will note that my anxiety about I.B.S. and being anxious about travel in particular escalated. This was NOT me being the me I knew and wanted to be …..until I had enough.

Enough of trying to find out what the heck was going on in my very sore mouth

Enough of thinking I was the cause of all the issues because that was how sometimes I was made to feel

Enough of waiting for things to get better

ENOUGH….but first, this is what had to happen.

  • A scaffolding of how I might get to the dentist to have the all the teeth that were part of my bridge removed
  • A new G.P. who offered me a drug (endep) to help slow my gut and prevent some I.B.S. issues
  • A determination within me to get this done…

No Matter What! Self-care helped!

 

On Wed 5 April 2017 I was nervous about the upcoming dentist trip I did go out & do things but the “enormity” of what was ahead overwhelmed me

  • I broke down & just couldn’t see how I could deal with it
  • B was good at listening but I knew that despite the dread & worry & fear IF I didn’t go through with it it would be :
  1. Avoiding
  2. Would make it worse
  3. I’d not get my mouth fixed

So I took steps to make sure I got there:

  1. 1/4 Valium in arvo & then at night helped reduce the internal rumblings
  2. I told myself it was a positive to be getting it done as it’s troubled me for so long I couldn’t let it go on & on
  3. I needed to tell myself the outcome & process had to happen. I stopped thinking there was doubt or other I needed to own this
  4. I ate small because I was scared of IBS but that’s not
  5. I knew I could take imodium if there was a reason
  6. I used the hypnosis from audible in a big way
  7. I had B taking me & he agreed to do it anything to make it work

Straight after the removal of the bridge, I had this denture put in. It was a very painful time and over time, did not improve…

 

How Did It All Work Out?

I did it.

Together with my dear husband, and the team above in the first photo.

I recovered slowly as it was quite a shock to my system, physically and emotionally

I learned that my determination was a quality I had and could call on again (again and again as it panned out!)

I knew too, that I OWNED my actions and thoughts and that I could, over time, even with fears and reservations deal with anything else that was to come.

And I have and do.

On 6 April 2021 I posted this…with pride and gratitude for all I could do…and need to do now when faced with challenges. 

Always Grateful For My Courage.

And, some three and a half years later, getting a check up of how my upper prosthesis was going (great) as in covid times I couldn’t see my prosthodontist and my dentist also looks after my 8 actual and remaining teeth with a regular check and clean every six months. And I am no longer scared about going to the dentist and thanks to my rectopexy surgery and meds, I have not had (touch wood) I.B.S. for over 6 months.

 

How do you feel about going to the dentist?

I admit, that before I had the bridge extracted my dentist already know how anxious I was about all that was going on in my mouth and between him and his lovely nurse I was very well cared for. Now, he and I have a lot of laughs more than anything and he is as grateful as I am that my cancer was found and has been treated as well and my care for my upper prosthesis is excellent.

Do go to the dentist…and do tell him/her if you are worried or anxious. It is always better to do rather than avoid.

And please, check the symptom list at the beginning of the story….and come back to it anytime.

Denyse.

Linking up here with Leanne for Lovin Life Linky

Joining with Natalie here for Weekend Coffee Share.

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My Stories About Ageing: My New Blogging Category Is Here! 5/2021.

My Stories About Ageing: My New Blogging Category Is Here! 5/2021.

This image of me: Left: Jan 2006. Right: July 2020. Same person loving the elements. But ageing is definitely showing!

Why this?

Why Now?

It’s time.

I have been considering writing stories about ageing from my perspective and experience for a while.

Back Story.

I am now 71. I still find that hard to believe! It could be because my Dad, at 97 is still well and I am ‘still his daughter’. But…no, it cannot be that I am a kid and he is the adult. He, my friends, is elderly, I am ageing. Oh, who am I kidding!

The catalyst may have been this: a photo of us aged 21 on our Wedding Day in 1971 and a re-creation image in 2015 when we were 65 (me) and 66 (B)….as we ready ourselves aged 71 to share our Golden Wedding Anniversary (50 years of marriage) on 23 January 2021.

Or, it may have been this past year because events took hold of me health-wise in a big and somewhat confronting (for me) way:

  1. I found I had to dig deep into my emotional capacity, and remember how I managed my inner emotional health recovering from head and neck cancer, to do this.
  2. I also found the ‘reasons’ for my rectal prolapse surgery very hard to accept and share.
  3. I now know, of course, I am better without the physical problem and that whilst I waited a long time to admit to needing the surgery, it was a lack of shared knowledge from other women that was part of my resistance.

 

Onto the reasons why I will post about Ageing and Stories About It from Me.

From my perspective: Denyse at 71!

On my 71st Birthday, 30 November last year, I posted this collage of me at 68,69,70 & 71,  and in fun, a ‘this is 71’ photo was taken by my husband (at my request) too.

Groups. People On and Off Social Media. For Me? Not For Me?

  • I love to be social on-line. It is easier for me to be on-line and meet up virtually with a range of people than it is to go out and find a group.

 

  • Before I go on. I did have a social group of sorts when I was in education.However, these were often work-based and even though friendships stayed firm at work, they tend to peter out at retirement time and when moving schools.

 

  • When I first retired I became a volunteer and was engaged in some interesting but mundane work and felt my skills could be better used in a leadership role.

 

  • I found one of those easily and was welcomed with open arms. It was not, however, long lasting as the intent of the volunteer group clashed with my educator’s values.

 

  • I started a small group for colouring mindfully. There was a lot of interest initially until it came time to attend. Very few did. It stopped. Sad to say, the same thing happened just 3 years ago too.

 

  • I am not a sport player nor hobby-mad really and do what I can at home to get my creative ‘fix’ now. I joined a group learning crochet but left as no-one had any idea how to teach an ambidextrous person how to crochet.

 

  • I even joined, not for long sadly, a local community group for women only. It spoke of meeting for coffee and brunches. I liked that idea. I went, I joined in but alas the ages were not close to mine, and again, sadly, the cohort was almost all local to the area whereas we are ‘newish’ here.

My Observations as an Over 70s Person.

Getting older is, for many of us, a privilege we do not always appreciate.

I admit having a cancer diagnosis out of the blue in mid 2017 sure was a wake-up call to thinking “we are immortal” but I whilst never thought I was dying it gave me a new appreciation for health and recovery from cancer.

I know that I am very grateful now to receive a part-aged pension income, which added to my husband’s pensions gives us a reasonable life here as a couple who are renting.

I don’t mind even feeling somewhat invisible as an over 70s woman because it gives me a chance to be an observer and I like that!

What I notice, particularly now, is that on social media: groups on Facebook, communities and twitter and instagram, that I do not see (nor hear of ) people who are close to my age.

Even the groups geared to seniors, older Australians, retirees, generally cater for those from age 50 to say 65.

And, as I found out in COVID 19 times, now that my husband and I are 0ver 70 we are classed as:

  • elderly
  • vulnerable

Why Blog About It?

I feel somewhat left out!

  • By groups even for seniors and older people.
  • The starting age is now 21 years younger than I am.
  • I want to have a voice that matters to others who might want to hear/read stories of ageing….
  • ones that keep ageing  reality-checked to counter balance with the “promises of using certain products to stave off….”

I will continue to write more here.

  • I want to be included but I sense that in my particular social media setting I am definitely older or the oldest of a group’s cohort.
  • In fact many people I love to chat with and catch up with are indeed closer to my daughter’s age and she is turning 50 this year.

But, that is good for me too as I am flexible in how I interact….

Yet, I want to be the voice (here) of reality in ageing as I wish I had known more!

What Do You Think?

Have I gone too far?

Do you every imagine yourself actually ageing with significance?

Every decade I see people bemoaning the zero coming up.

Really?

OK, for some I imagine it is scary.

The unknown perhaps but since the internet is here, maybe “I” can be a better heard voice of wisdom, failures and experiences for turning:

40

50

60

70.

Am I opening up too much?

Would you like to know more about my experience of ageing?

How could my story help you, perhaps?

Maybe you might share your thoughts in the comments.

Thank you.

Denyse.

Joining with Leanne and friends here for Lovin’ Life Linky.

 

 

 

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Announcement. 2/51. #LifeThisWeek. 4/2021.

Announcement. 2/51. #LifeThisWeek. 4/2021.

Life This Week post for me is a series of announcements. 

  • Today is Monday 11 January and my father, here with me on my 71st Birthday, is 97. He has no idea why he is still around. But he is reasonably well, independent and now been a widower for almost 14 years. Interestingly he is a child of the Great Depression…around 6 when it started and he has known very tough times but his longevity is amazing. Mind you, given some of his limitations I have told him I hope I do not follow trend this myself! I am now visiting him today, under the COVID19 restrictions for Greater Sydney.

The two of us.

And about 69 years earlier…look “no smile”.

I Looked Back at My Previous Years’ Word of The Year And Thought…..

  • I really knew what I wanted to do and say for each of the years and set out with great intent but really, until I got to 2018 I felt like I just could not apply what it was I meant to do and be. In saying that, I did OK really but was not great in terms of my emotional health. I mentioned that in this post last week.

2015:  Acceptance

2016:  FEARless

2017:  Kindness

2018:  B.O.L.D. Be Brave Optimistic Loving Learning Determined Denyse

2019: Integrate: Head & Neck Cancer & Me

2020: Gratitude. For Life

2021: Smile

The Posts Where I Announced These.

2015 & 2016 posts are  now gone. I remember thinking those words would be ‘easy’. Nah. Not a chance.

Here is 2017. Kindness.

Then after that was, in my first full year as a person with head and neck cancer,

2018: B.O.L.D. Be Brave Optimistic Loving Learning Determined Denyse

My “message to me” bracelet.

2019. Integrate. This word emerged as I made efforts to see myself as whole person, not “just a patient with head and neck cancer”.

However I was not quite sure of what I wanted and as usual I wrote about this and here’s what emerged  this post. 

Last year’s word needed on many days, LOVE in between, and this year’s word. All where I could see them and be reminded. It really helps me.

What Did Having These Words ‘on my arm’ Do For Me?

  • I knew I liked something to distract me a bit when I was waiting for something to happen, say in an appointment or that I could touch and ‘play with’ in times of boredom, stress or a combination of the two.
  • Those little words on bracelets did so much more for me in 2018 and 2019.
  • They were talismen I carried on me at all times. OK, not into surgeries of course, but 24/7 when I could.
  • When I felt less than confident, less than brave and perhaps in need of a reminder in tougher times that I COULD put up with this, do this and so on, these tiny and relatively inconspicuous bracelets with their words did that.
  • I had to spend a lot of time…up to 4 hours in a dentist chair at the prosthodonist in 2018, less in 2019 and along with my ear buds in use with a story or music, I could when feeling more ‘over it’ reach down to my right wrist and touch the metal. It was (and still can be) soothing and a reminder that I CAN do hard things!!
  • 2018 memories…before my upper prosthesis was finally fitted, I had many, painstaking (but not painful) appointments here to get my mouth right!

And then in 2020 I chose Gratitude and I am announcing it’s coming into 2021 with me! 

Revisit the gratitude word from last year’s first post and know that I lead into the year with a whole month of gratitude leading up to my 70th Birthday at the end of November 2019. My bracelet about gratitude has on the back “for life” and that resonates. So, I am now wearing it on my left hand. I still need and will always, I believe, to remind myself of gratitude daily.

This post about my smile: very important for my self-esteem and progress with oral cancer recovery.

These are pretty average shots of my bracelet…it’s too awkward for my husband to undo and I sure cannot. Ooops.

I wear it above my Apple Watch which is on the right hand. I am a leftie so that suits me best. The other side marks ’50’ years of marriage in 2021 using “L” and then there is the Tree of Life representing us and our family.

 

As for my word in 2021, SMILE, I have this to say:

  • I like to smile but I won’t smile without feeling it….(small exception if it helps me through something that needs a smile more than a frown)
  • I won’t be told by anyone to “smile” unless it’s in good humour!
  • No-one can force us to smile, I think.
  • Smiles are universal
  • A gentle smile can start a kind conversation
  • A broad smile might get back another broad smile, especially in close and friendly/familiar situations
  • There is often something to smile about if we look with care
  • Smiling is from the heart

What about you?

What makes you smile?

So happy with my new avatar

 

Another Announcement! The Last One.

For the last few months I have wondered about continuing to post more than once a week.

Yes, I know many are reducing their blogging days.

Here’s a small statistic from my history of blogging: 2015 and into 2016:

1 Nov 2016 I stopped Blogging every day

At 671 posts from beginning of 2015

Those who have followed for a long time will remember we had a link up on Mondays, Tuesdays, sometimes on Wednesdays and Thursdays and one for the Weekend on Fridays. Many people have stopped blogging we know that, and some who ran link ups let them go over time.

I remain committed to mine each Monday for all of 2021.

But….one thing I am considering is adding a topic for posts for me.

  • You see, I believe I am one of the older bloggers in terms of age and years of blogging.
  • I have begun to feel alone within the various facebook groups and pages I follow.
  • Why? I am, from what I see, the one who is at least 5-10 years older than the groups’ cohorts.

So, I am thinking it’s time “I” contributed posts which may be of interest to others here about the realities, good news and not so about  the inevitability of  ageing.

Do you think there might be any interest?

I am going to do this anyway, because it’s time I had a voice that is heard in this area: Stories About Ageing. 

I will post something this coming week and link up and see how it is received.

And a footnote, I blogged last weekend and joined in the #sundaystills community. It was fun and I loved it. Looks like I am blogging more!!

Cheers,

Denyse.

Link Up 222.

Life This Week. Link Up #222

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: 3/51 Back To. 18 Jan.

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One Year Ago. Head & Neck Cancer. October 2019. 87/2020.

One Year Ago. Head & Neck Cancer. October 2019. 87/2020.

For the past two weeks, and now concluding this week, on a  Wednesday I am posting a ‘review’ blog post mostly to remind ME of how far I have come in terms of the changes brought about in my life thanks to the diagnosis of head and neck cancer on 17 May 2017. The whole story is here. 

Using some photos I am adding my memories from the time.

Here I go:

October 2019.

 

 

I was very well by this time one year ago. I did have a cancer check in September 2019 and all was good and I was told, see you in 6 months. That brought me to the early March 2020 appointment which was held in “just before COVID times locked down”.

 

 

I was getting myself ready to celebrate my 70th Birthday at the end of November 2019, and had a little look at young Denyse who began loving cake…waaaay back. Mum would have made this. She did not really enjoy eating sweet things but she knew how to bake them for the rest of us.

 

 

 

Just before October 2019 I found out about two other patients with head and neck cancers who also had the privilege of sharing the care and treatment of “my” Professor too. These people found me via formerly Beyond Five..now Head and Neck Cancer Australia, and then read my blog posts here. They reached out to me. One I got to meet in person. The other, another teacher, and I will catch up once we are on some kind of holidays at the same time. Head and Neck Cancer, is as I read recently a lonely disease. It is always good though to meet up with others who understand. The health professionals too as they get to see progress within us.

 

 

 

 

I did have a special and kind friend from my world of art die in early October 2019 and on the day of her funeral, I went to a favourite place of mine that she also loved me sharing, the ocean and thought of her and her family.

 

 

 

 

My gratitude for having an open space by the ocean is well-known. I have, since moving nearer the coast, found solace and a great sense of peace walking on the beach and in the water. The beach I loved doing this has, thanks to the ways of the ocean, become almost inaccessible to people who are older and with a compromised right leg (fibula-less) I won’t go there unless I can access it with ease.

 

I drove to Sydney’s Dee Why to visit Dad in his independent retirement unit in October. He must not have wanted a photo that day. Here I am before leaving home.

 

Later, I drove as I often do, past South Curl Curl beach and stopped to have a little walk. It was a magnificent day. And when I did see Dad in October 2020 he agreed to this photo! He turns 97 early next year.

 

What have I learned in doing this series?

That for me, things got better and better.

They also were very hard on some days to tolerate. Many of those days were long, boring, painful and challenging as so much depends on T I M E to heal.

Yes, that old adage is true…time heals all wounds.

So, as of NOW: October 2020, I am a very well person. Go me.

Actually, also ‘go my husband’ who has had to listen to ALLLL  of the stories from me.

On Saturday 17th October it was 50 years since we met. As this post goes live, we will have travelled to the north west of N.S.W. to the city of Tamworth where we met. We plan to have a couple of days going to towns that were of great significance in our early single, then married lives. There WILL be a post about that you can guarantee it. 

 

I have had a very challenging year in some respects in 2020 with – as for everyone:  COVID 19 and its various means of changing our lives….

  • specifically for me it has been a year of ‘getting more medical and surgical things’ done. I had to concentrate on head and neck cancer until late 2019 so in 2020 there are no more excuses.

 

  • In March 2020 I had both eyes cataracts removed and no longer need glasses for distance or driving. Still for reading but at a lower prescription and I need sunglasses out in the sun.

 

  • In July, and then into August 2020 I had a rectal prolapse surgery (planned) and hernia repair (unplanned). There was a wound healing complication after 5 weeks and I needed further surgery to debride the wound and then  T I M E and a VAC machine and wound changes till all finally healed by October 6. BEST news ever!

 

  • Well, there was more too! Early September, when I was still attached the the VAC machine, my husband drove me to my Cancer Check with my surgeon and nurse, and all was so darned good, I got the news that floored me…”see you in a year.” And….

 

  • On 15 October my prosthodontist checked out my upper prosthesis and declared I am maintaining the area very well indeed! I don’t need to return to see him till April 2021.

I love these images…me with my health professionals. I love that they agree to having their photos taken too.

Check Up with ColoRectal Surgeon

Head and Neck Cancer Surgeon & Me.

With My Prosthodontist

This is why I blog. It is so helpful to share with others and it is a great record for me and my progress.

Thank you for your interest, I appreciate it.

Denyse.

Joining Leanne and friends for Lovin Life Linky here. 

 

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Two Years Ago. Head & Neck Cancer. October 2018. 85/2020.

Two Years Ago. Head & Neck Cancer.  October 2018. 85/2020.

For this week, one week ago, and the next week on Wednesday I am posting a ‘review’ blog post mostly to remind ME of how far I have come in terms of the changes brought about in my life thanks to the diagnosis of head and neck cancer on 17 May 2017. The whole story is here. 

Using some photos I am adding my memories from the time.

Here I go:

October 2018.

 

Early October 2018 and I was off to Chris O’Brien Lifehouse with a LOT to smile about. I received the long-anticipated upper prosthesis of teeth on 21 August 2018 – some 14 months after surgery.

  • It was a cancer check day but also a chance to meet with Nadia from then Beyond Five – now Head & Neck Australia to discuss my prospective Ambassadorship as a volunteer.
  • Photo – top left. Then briefly caught up with then then Specialist Head and Neck Cancer Nurse (top right)  who had last seen me as a very raw new-to-head and neck cancer patient in July 2017. She was stoked! My cancer check went very well indeed (bottom left) with smiles and congratulations all-round.
  • How good it must be for the Professor (Jonathan Clark AM) and his Nurse Surgical Assistant and Consultant (Cate) to see a patient post surgeries…yes, all 4 they were part of…and my much anticipated S M I L E.
  • Last photo is me with Gail O’Brien, the late Professor Chris O’Brien’s wife whose vision it was to have this wonderful comprehensive cancer centre built and to tell her how much I appreciated the work and vision of her late husband…he was a head and neck surgeon too and my surgeon trained with him.

 

 

School holidays in October 2018 saw two visits from our Sydney-based family.

  • Much appreciated as always.
  • We entertain casually for lunch with their favourite snacks and foods and much chatter is heard.
  • Often we go outside for a play even though our yard is very small.
  • On this occasion the four younger kids (left pic) took home a special pot with some items planted and some crystals along with a few old fave toys from our Sydney house…and their younger days.
  • With the older group there is often some reminiscing and music too, particularly as the older grandson is a DJ.
  • I felt so much more at ease now I had the teeth in my mouth. It still took quite a bit of getting used to for eating but it was much better than before!

 

 

I was interested in attending a Look Good Feel Better Cancer Patient Workshop and once my ‘teeth’ were in I happily took part in a local event.

  • I did get some good advice and took away a swag of amazing free products.
  • What left me feeling somewhat disappointed was the fact that my cancer is so rare and not known.
  • These workshops were pitched at breast cancer patients more than anyone.
  • Some needed help with using wigs and scarves, others with how chemotherapy had changed their skin/hair.
  • I guess I need(ed) to be more grateful because I was/am doing well.
  • I wonder as I write this if these activities have now been stopped because of COVID and that is a shame because it was psychologically very helpful to us to be ‘seen as a woman, not a patient.’

 

 

It was, and still is, important for my mental health to have something creative to do most days.

  • I liked the idea of holding a mindfulness colouring class at the local library. I did get to have it, but it took so much box-ticking, I left it as a one-off.
  • However, I know I enjoyed being ‘teacher’ again.
  • My months of making bookmarks for the charity The Big Hug Box were always enjoyable and I must have contributed well over 500.
  • They were individually constructed by me and sent in batches to Lisa for adding to the boxes.
  • In November 2018 I took part in a packing boxes day at her house and met other cancer patients.
  • One got me to design some mandalas for a colouring-card idea she had. I was pleased to share my creations.

 

 

 

About eating. And drinking. I remember pre-upper prosthesis having all kinds of thoughts about what foods I might try with teeth in my top gums.

  1. I admit now, 2 years on, that some of those foods were just not a success.
  2. You see, as it was explained to me by my lovely Nurse, Cate, my mouth has more inside it than a ‘normal mouth’ and it cannot do all that it did.
  3. My prosthodontist had added a partial denture of a tooth on each side to hook into my remaining natural teeth on the bottom and this helps hugely.
  4. Some meals I tried and could eat (and still do) are  above, even though the hot meals are likely to be over 2 nights.

 

 

Keeping up appearances…was very important.

  • This trend went right into 2019.
  • In 2020 I do this occasionally.
  • But in between treatments, visits to Sydney for cancer checks and more, dressing well and with purpose was/is very important.
  • More important than everything was I was finally able to (and definitely wanting to) meet up with friends again. Yay.

There it is. Snapshots to help me remember what life as a head and neck cancer patient was like in October 2018.

Denyse.

Linking up with Leanne (whose image appears in this post!)  here for Lovin Life Linky.

 

 

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Three Years Ago. Head & Neck Cancer. October 2017. 83/2020.

Three Years Ago. Head & Neck Cancer. October 2017. 83/2020.

For this week and the next 2 weeks each Wednesday I am posting a ‘review’ blog post mostly to remind ME of how far I have come in terms of the changes brought about in my life thanks to the diagnosis of head and neck cancer on 17 May 2017. The whole story is here. 

Using some photos I am adding my memories from the time.

Here I go:

October 2017.

 

The way in which I recorded the times. My husband kindly took photos of me outside Chris O’Brien Lifehouse on the afternoon of our visit as a check-up in October 2017. It was the first time I had seen my head and neck surgeon since leaving hospital in July after the first major cancer removal and mouth reconstruction. Of course I brought cake! Cake is my appreciation gift to my medical and surgical professionals. What I see in ‘me’ is the way it was then. I had no way to smile and it was probably because of seeing photos like this that I finally went and brought properly fitted bras. Sigh. The photo of the drive back home over the Harbour Bridge is a great memory. One of relief too. However, glad I have this as we can no longer use iphones in cars without risk of huge fine.

 

 

 

Seriously I was gob-smacked at this image. WOW. My fibula, the shapes at the top, cut into 3 pieces and made into my new jaw by being attached with screws to under my cheekbone. The little dot-type images: one at the front, two on each side, five in all, are where the screws are embedded into my new jaw and which will, over time, hold the upper prosthesis I have now in place. This was so good to see however, as it showed just how clever my team is!

 

 

 

The first time I ventured down the M1 alone that October was for a very good reason. To meet up with my daughter and her two eldest daughters for morning tea at Hornsby Berkelouws. It is a favourite place to meet because it’s about an hour from our place and reasonably convenient for those who live in Sydney to meet up. I was still very new to what I might eat/drink but I managed a piccolo and a very small cake with icing. Lovely as always to see the family. I admit I was tired out. Pretty big deal only two + months since my big surgery.

 

 

 

Our daughter. Very proud of her. This lemon meringue pie – a firm family favourite – made ‘just for her’….to celebrate her completion of her Master of Education Teacher Librarianship. It’s pretty tough being a single mum to 4 and working generally full-time as a teacher and then teacher-librarian too. Not only that, she started a new school’s library. One book at a time. Many hundreds of times. Eventually to complete the last semester of the pretty gruelling regime to do a Masters on-line (and to keep her job) she took long service leave and “got the job done.” She and the four kids (3 are adults) joined her in the celebration of her achievement at Charles Sturt University Graduation Ceremony later in 2017.

 

 

 

In late October I decided I needed a ‘challenge’. A personal one. It seemed that I wanted to show off this new-to-me slimmer body and the enjoyment I was beginning to find in looking for clothes that actually fitted me. Of course, my weight loss was because 1. cancer and 2. I couldn’t eat properly but I was also not allowed to lose any more weight by my professional team. This instagram challenge took on a life of its own and over time I did this every.day. for many, many days as it helped me emotionally to see my improved look and demeanour despite the ravages of how my mouth had been reconstructed using part of my leg.

 

Glad to have shared this. I know long time readers may recall some of these images. Thanks for reading and commenting.

 

Denyse.

Joining Leanne and friends for Lovin Life Linky here. 

Joining here too: Esme’s Senior Salon link up.

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Self-Care Stories (#4) in COVID19 Times. 28/51 #LifeThisWeek. 56/2020.

Self-Care Stories (#4) in COVID19 Times.  28/51 #LifeThisWeek. 56/2020.

I went looking for my Self-Care Story #3 and found I did not write one! What?! No, it was because “I” decided to get another of my Telling My Story chapters published. So, even if I did not do #3, I am back to write what the latest is for me and self-care.

Self-Care: Regular Routines.

As many know, my routines post-head and neck cancer surgeries and treatments have been to help me re-connect with the world out there, socially and physically. This was something I began about 3 months post-operatively in 2017.

I was getting used to a different body. I had always hidden it as there was too much fat…my words. So, when anxiety and head and neck cancer helped me lose a lot of that fat, then I found C L O T H E S a very attractive way to spend my time…looking, trying on…and wearing.

It was a huge boost to my ego and generally to my health over all.

I coupled ‘getting dressed with purpose’ to going out for a daily coffee, where I would interact with others and despite no teeth on top for 14 months, I made friends where I went as I had conversations.

There is no way my reconstructed mouth was going to stop me talking!!

Then in 2020 Self-Care Got a Shock.

From around March, self-care the way I used to do this every day had to stop. The shock for me is that I wondered how I would deal with the restrictions that came with self-isolation, COVID-19 thank you not.

I was understanding cognitively what I had to do, like everyone else, and that was stay home most of the time and only go out for essentials. I remembered my shock as the first day of real change came because I went to my local shops for some groceries, and everything was being locked up, closed off, taped off….sad to see. Then I thought of all those people and their employment (sad) and of the people whose daily routine was to go to those shops and now they could not (sad again).

I also found, as time went on, that I needed to change my attitude and thinking about what was happening. Yes, we had a virus somewhere in the air that no-one could see or touch, and yes, it had to change the way we went about our daily lives. I recall that I got a shock/surprise at the restrictions placed upon us even to visit the chemist and the doctor. I needed time to process what was in fact, good safety measures.

Changing My Thinking During COVID19 Times Helps Self-Care.

So, over time, I built-in some new ways of integrating self-care for me with what we had and had not. These three quotes, source is in image, have probably best summed up how ‘life is now for me’.

 

Telling the Self-Care Stories in Images. March – June 2020.

How is your self-care these days?

Maybe you’d enjoy this 18 seconds…

Denyse.

Link Up #197.

Life This Week. Link Up #197.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt 29/51 Your Choice. Mine is: World Head & Neck Cancer Day. 20.7.2020

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