Thursday 25th February 2021

Announcement. 2/51. #LifeThisWeek. 4/2021.

Announcement. 2/51. #LifeThisWeek. 4/2021.

Life This Week post for me is a series of announcements. 

  • Today is Monday 11 January and my father, here with me on my 71st Birthday, is 97. He has no idea why he is still around. But he is reasonably well, independent and now been a widower for almost 14 years. Interestingly he is a child of the Great Depression…around 6 when it started and he has known very tough times but his longevity is amazing. Mind you, given some of his limitations I have told him I hope I do not follow trend this myself! I am now visiting him today, under the COVID19 restrictions for Greater Sydney.

The two of us.

And about 69 years earlier…look “no smile”.

I Looked Back at My Previous Years’ Word of The Year And Thought…..

  • I really knew what I wanted to do and say for each of the years and set out with great intent but really, until I got to 2018 I felt like I just could not apply what it was I meant to do and be. In saying that, I did OK really but was not great in terms of my emotional health. I mentioned that in this post last week.

2015:  Acceptance

2016:  FEARless

2017:  Kindness

2018:  B.O.L.D. Be Brave Optimistic Loving Learning Determined Denyse

2019: Integrate: Head & Neck Cancer & Me

2020: Gratitude. For Life

2021: Smile

The Posts Where I Announced These.

2015 & 2016 posts are  now gone. I remember thinking those words would be ‘easy’. Nah. Not a chance.

Here is 2017. Kindness.

Then after that was, in my first full year as a person with head and neck cancer,

2018: B.O.L.D. Be Brave Optimistic Loving Learning Determined Denyse

My “message to me” bracelet.

2019. Integrate. This word emerged as I made efforts to see myself as whole person, not “just a patient with head and neck cancer”.

However I was not quite sure of what I wanted and as usual I wrote about this and here’s what emerged  this post. 

Last year’s word needed on many days, LOVE in between, and this year’s word. All where I could see them and be reminded. It really helps me.

What Did Having These Words ‘on my arm’ Do For Me?

  • I knew I liked something to distract me a bit when I was waiting for something to happen, say in an appointment or that I could touch and ‘play with’ in times of boredom, stress or a combination of the two.
  • Those little words on bracelets did so much more for me in 2018 and 2019.
  • They were talismen I carried on me at all times. OK, not into surgeries of course, but 24/7 when I could.
  • When I felt less than confident, less than brave and perhaps in need of a reminder in tougher times that I COULD put up with this, do this and so on, these tiny and relatively inconspicuous bracelets with their words did that.
  • I had to spend a lot of time…up to 4 hours in a dentist chair at the prosthodonist in 2018, less in 2019 and along with my ear buds in use with a story or music, I could when feeling more ‘over it’ reach down to my right wrist and touch the metal. It was (and still can be) soothing and a reminder that I CAN do hard things!!
  • 2018 memories…before my upper prosthesis was finally fitted, I had many, painstaking (but not painful) appointments here to get my mouth right!

And then in 2020 I chose Gratitude and I am announcing it’s coming into 2021 with me! 

Revisit the gratitude word from last year’s first post and know that I lead into the year with a whole month of gratitude leading up to my 70th Birthday at the end of November 2019. My bracelet about gratitude has on the back “for life” and that resonates. So, I am now wearing it on my left hand. I still need and will always, I believe, to remind myself of gratitude daily.

This post about my smile: very important for my self-esteem and progress with oral cancer recovery.

These are pretty average shots of my bracelet…it’s too awkward for my husband to undo and I sure cannot. Ooops.

I wear it above my Apple Watch which is on the right hand. I am a leftie so that suits me best. The other side marks ’50’ years of marriage in 2021 using “L” and then there is the Tree of Life representing us and our family.

 

As for my word in 2021, SMILE, I have this to say:

  • I like to smile but I won’t smile without feeling it….(small exception if it helps me through something that needs a smile more than a frown)
  • I won’t be told by anyone to “smile” unless it’s in good humour!
  • No-one can force us to smile, I think.
  • Smiles are universal
  • A gentle smile can start a kind conversation
  • A broad smile might get back another broad smile, especially in close and friendly/familiar situations
  • There is often something to smile about if we look with care
  • Smiling is from the heart

What about you?

What makes you smile?

So happy with my new avatar

 

Another Announcement! The Last One.

For the last few months I have wondered about continuing to post more than once a week.

Yes, I know many are reducing their blogging days.

Here’s a small statistic from my history of blogging: 2015 and into 2016:

1 Nov 2016 I stopped Blogging every day

At 671 posts from beginning of 2015

Those who have followed for a long time will remember we had a link up on Mondays, Tuesdays, sometimes on Wednesdays and Thursdays and one for the Weekend on Fridays. Many people have stopped blogging we know that, and some who ran link ups let them go over time.

I remain committed to mine each Monday for all of 2021.

But….one thing I am considering is adding a topic for posts for me.

  • You see, I believe I am one of the older bloggers in terms of age and years of blogging.
  • I have begun to feel alone within the various facebook groups and pages I follow.
  • Why? I am, from what I see, the one who is at least 5-10 years older than the groups’ cohorts.

So, I am thinking it’s time “I” contributed posts which may be of interest to others here about the realities, good news and not so about  the inevitability of  ageing.

Do you think there might be any interest?

I am going to do this anyway, because it’s time I had a voice that is heard in this area: Stories About Ageing. 

I will post something this coming week and link up and see how it is received.

And a footnote, I blogged last weekend and joined in the #sundaystills community. It was fun and I loved it. Looks like I am blogging more!!

Cheers,

Denyse.

Link Up 222.

Life This Week. Link Up #222

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: 3/51 Back To. 18 Jan.

You are invited to the Inlinkz link party!

Click here to enter


 

 

 

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Two Years Ago. Head & Neck Cancer. October 2018. 85/2020.

Two Years Ago. Head & Neck Cancer.  October 2018. 85/2020.

For this week, one week ago, and the next week on Wednesday I am posting a ‘review’ blog post mostly to remind ME of how far I have come in terms of the changes brought about in my life thanks to the diagnosis of head and neck cancer on 17 May 2017. The whole story is here. 

Using some photos I am adding my memories from the time.

Here I go:

October 2018.

 

Early October 2018 and I was off to Chris O’Brien Lifehouse with a LOT to smile about. I received the long-anticipated upper prosthesis of teeth on 21 August 2018 – some 14 months after surgery.

  • It was a cancer check day but also a chance to meet with Nadia from then Beyond Five – now Head & Neck Australia to discuss my prospective Ambassadorship as a volunteer.
  • Photo – top left. Then briefly caught up with then then Specialist Head and Neck Cancer Nurse (top right)  who had last seen me as a very raw new-to-head and neck cancer patient in July 2017. She was stoked! My cancer check went very well indeed (bottom left) with smiles and congratulations all-round.
  • How good it must be for the Professor (Jonathan Clark AM) and his Nurse Surgical Assistant and Consultant (Cate) to see a patient post surgeries…yes, all 4 they were part of…and my much anticipated S M I L E.
  • Last photo is me with Gail O’Brien, the late Professor Chris O’Brien’s wife whose vision it was to have this wonderful comprehensive cancer centre built and to tell her how much I appreciated the work and vision of her late husband…he was a head and neck surgeon too and my surgeon trained with him.

 

 

School holidays in October 2018 saw two visits from our Sydney-based family.

  • Much appreciated as always.
  • We entertain casually for lunch with their favourite snacks and foods and much chatter is heard.
  • Often we go outside for a play even though our yard is very small.
  • On this occasion the four younger kids (left pic) took home a special pot with some items planted and some crystals along with a few old fave toys from our Sydney house…and their younger days.
  • With the older group there is often some reminiscing and music too, particularly as the older grandson is a DJ.
  • I felt so much more at ease now I had the teeth in my mouth. It still took quite a bit of getting used to for eating but it was much better than before!

 

 

I was interested in attending a Look Good Feel Better Cancer Patient Workshop and once my ‘teeth’ were in I happily took part in a local event.

  • I did get some good advice and took away a swag of amazing free products.
  • What left me feeling somewhat disappointed was the fact that my cancer is so rare and not known.
  • These workshops were pitched at breast cancer patients more than anyone.
  • Some needed help with using wigs and scarves, others with how chemotherapy had changed their skin/hair.
  • I guess I need(ed) to be more grateful because I was/am doing well.
  • I wonder as I write this if these activities have now been stopped because of COVID and that is a shame because it was psychologically very helpful to us to be ‘seen as a woman, not a patient.’

 

 

It was, and still is, important for my mental health to have something creative to do most days.

  • I liked the idea of holding a mindfulness colouring class at the local library. I did get to have it, but it took so much box-ticking, I left it as a one-off.
  • However, I know I enjoyed being ‘teacher’ again.
  • My months of making bookmarks for the charity The Big Hug Box were always enjoyable and I must have contributed well over 500.
  • They were individually constructed by me and sent in batches to Lisa for adding to the boxes.
  • In November 2018 I took part in a packing boxes day at her house and met other cancer patients.
  • One got me to design some mandalas for a colouring-card idea she had. I was pleased to share my creations.

 

 

 

About eating. And drinking. I remember pre-upper prosthesis having all kinds of thoughts about what foods I might try with teeth in my top gums.

  1. I admit now, 2 years on, that some of those foods were just not a success.
  2. You see, as it was explained to me by my lovely Nurse, Cate, my mouth has more inside it than a ‘normal mouth’ and it cannot do all that it did.
  3. My prosthodontist had added a partial denture of a tooth on each side to hook into my remaining natural teeth on the bottom and this helps hugely.
  4. Some meals I tried and could eat (and still do) are  above, even though the hot meals are likely to be over 2 nights.

 

 

Keeping up appearances…was very important.

  • This trend went right into 2019.
  • In 2020 I do this occasionally.
  • But in between treatments, visits to Sydney for cancer checks and more, dressing well and with purpose was/is very important.
  • More important than everything was I was finally able to (and definitely wanting to) meet up with friends again. Yay.

There it is. Snapshots to help me remember what life as a head and neck cancer patient was like in October 2018.

Denyse.

Linking up with Leanne (whose image appears in this post!)  here for Lovin Life Linky.

 

 

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