Tuesday 15th June 2021

Telling My Story. Chapter Twenty Five*. 2020. Pt.2/3. 51/51. #LifeThisWeek.102/2020.

Telling My Story. Chapter Twenty Five*. 2020. Pt.2/3. 51/51. #LifeThisWeek.102/2020.

Well over a hundred three years ago ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author (her story is here) that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at...Chapter Twenty Five*. Part Two of Three.

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members.

 

*Rightio…how DID I jump from my last chapter..Telling My Story which was Chapter Twenty to here?

No, I did not secretly write the posts and then not publish them.

But I did have a brainwave…do 2020’s chapter while it is fresh in my mind.

So, here I am with the second four months of “THAT” year we won’t forget in a hurry: 2020. Last Wednesday I published the first four months here.

This is the last post of #LifeThisWeek I will publish the final one of Telling My Story 2020 on Wednesday 23rd December.

Then, over time in the first months of 2021 I will write:

Chapter Twenty One (2015),

Chapter Twenty Two (2016- mid May 2017),

Chapter Twenty Three (later in May 2017 – 2018),

Chapter Twenty Four (2019)

In this, the last post for Life This Week, I want to thank each of you who has linked up, read and commented this year. You are very much valued as a part of this community. I am posting again this Wednesday to conclude this series (the Chapter for 2020 I mean!) and will be back on board for:

MONDAY 4 January 2021. 1/51 Word of The Year. Optional Prompt.

 

Part Two of Three. Chapter 25. 2020.

Now, on with the months of May, June, July and August of 2020.

I have to warn you whilst there are no gory photos there may be some details of the ailments I had that are not pleasant to read. Nor, of course, were they pleasant to have!

MAY 2020.

Family.

Our second granddaughter turned 21 in the early days of May. On the same weekend when the Premier of NSW announced, during a COVID update,  that families could visit each other in their houses, S had her ‘lockdown ISO’ party which she shared with us,  around 2 hours away, via facetime. Her Mum, boyfriend and siblings made it a special night and I am told, she got the cake cooked by her mum as was requested! Congratulations, S!

We actually saw her and the family the very next weekend as it was Mother’s Day and my daughter invited us to her house for Morning Tea. That was the first time we had ventured to Sydney since March. It felt strange being on the M1 and it was not too crowded. Delighted of course to see our family. It was lovely.

On the Tuesday afterwards I drove back down again, in a different direction, to see my Dad on the northern beaches. I had not seen him for at least 3 months as we were being very cautious in making contact with such an older person in an independent retirement place. I took all precautions and they had strict protocols for me and paperwork. I admit, I did give Dad a few hugs. He had missed human  contact other than generally on the phone.

 

My Self Care In May.

My emotional health took a bit of a battering as COVID struck with all its limitations, rules, changes and moving of goal posts. I am not great with change but do accept it’s needed and so I offer myself more kindness, easier inner talk and times out (if possible) by myself in the car and to possibly enjoy a coffee. I was delighted to find a takeaway stall on one of my Sunday drives, and then over time, with limitations some of my fave coffee places which had stayed open, could have a small number of people sit for coffee.

I kept up my art and craft practices and set myself small goals and got immersed in fulfilling those. With the Index Card a Day Challenge starting in June I was ready for that. I did some treat cooking for me and for my local GP practice as the doctors and front office staff went through a LOT in terms of dealing with the regulations and patients!

I continued with drives over to the water once COVID regulations about exercise meant you could walk where you went. I did. Sort of. To take photos. Noticing things in nature always helps me and I really needed it because I had health matters to deal with that were significant.

I also acknowledged that it was 3 years on 17 May 2020 since my oral cancer diagnosis. Important to remember, reflect and be grateful.

Health Matters. May, June, July and August.

I will do my best to use short and helpful sentences..and as my husband suggested: dot points.

MAY:

  • I needed to finally, and actually rather urgently see my female G.P. about the bothersome rectal issues. When I saw her, it was “do this, go here, see him” and “YOU have your whole life ahead of you” Get this sorted. She “IS” that kind of doctor and I love her for it but that day I got a bit scared.
  • She sent me to the Colo Rectal Surgeon and to my embarrassment (not his) I was very reluctant to go through with what he suggested first. A colonoscopy. Why? Rectal bleeding and obvious (he saw, not me, I just knew) rectal prolapse.
  • THIS was a condition I had lived with, tried to anyway for well over 2+ years, and I KNEW it was not good. I blamed IBS for my sometimes incontinence and ageing..but as I have found out no, it was the rectum being very lax and ‘falling out’. Sorry to write that.
  • Off home with the news, and the Colonoscopy pack. It was mid COVID restrictions at private hospitals and I opted for mine at the place 5 minutes up the road. No can do. Till June.
  • Waaahh. That is me who does not like to wait.

JUNE:

  • OK, people, with me it was nerves and more that put me off the colonoscopy but I also knew that without doing that nothing would change.
  • Facing up to it, hating the preparation and the aftermath at home, my dear husband took me to the private hospital up the road and left me.
  • The nurses were kind, the prep sure had done its work and….
  • The outcome, as told to me by the surgeon, was no cancer..but a pretty awful rectal prolapse which he strongly suggested needed repair and to come see him very soon.
  • We did, it was very helpful to have my husband there. The surgeon explained how he would perform an abdominal rectopexi. He would go in via my very old hysterectomy scar, pull up the rectum and sew it onto bone low on my spine near the coccyx.
  • Recovery would be in hospital for at least 4 nights and he predicted success. I was ready to trust him.

JULY:

This post tells something of what was to come for me.

  • Testing, testing. Bloods needing for the major abdominal surgery coming up.
  • Then to the private hospital in COVID times for booking in. In actual fact, it was a phone pre-op consultation but I needed to attend the hospital some 45 minutes away for ECG and pick up pre-operation info and prep. No not the awful prep. Phew.
  • I admit the nerves did play up a bit but I have dealt with 4 cancer surgeries AND I trusted this doctor and his goal for me and my GP too.
  • On a freezing late July morning my husband drove me – bag packed with nighties, all I needed for entertainment i.e. phone & ipad, and loose pants – because coming home my abdomen would be swollen & tender.
  • I was literally dropped off because of COVID.
  • Interestingly the prep I had to take at home before surgery was a drink of electrolytes and I had to have an all over shower body wash with their particular sterilising skin liquid.
  • The worst part for me …is always the waiting before going into theatre but this time was made worse as my surgeon insisted on a series of enemas. OMG. Not happy, in fact I got teary with the kindly nurse. She understood but the back and forth in a gown to the loo…made little better by being on a bed close to it. Sigh.
  • Anaesthetist was very thorough with his questions and also had to give me a spinal. Not impressed by the anaesthetic nurse who was very stressed about my veins. Shout out to him: not good to show frustration in front of patient who is already nervous.
  • Then I was GONE. Out like the proverbial.
  • Recovery: very aware of the pressure boots keeping my legs active, the fact that I could not feel from my waist down, catheter in and to be honest, felt well because “it’s over”.
  • Hiccup in communication between staff in recovery – it was busy – COVID restrictions were easing for capacity – meant I stayed in recovery about 2 hours longer than needed…grrr. Could have been in my room.
  • Something unexpected as my surgeon told me the morning after: he did the horizontal cut as planned but when opening me up, there was a hernia which would need repairing. It required a vertical cut to access it, from the first cut to my bellybutton. All stitching was internal with tape holding the outside wounds. I literally had an upside down T wound area.
  • Fast forwarding: I had an OK time recovering but not comfortable at all. My eating was hampered by my mouth and whilst I could have anything to eat, I was worried about …diarrheoa. Trust me, it didn’t happen but I needed reassurance and my surgeon was prepared to let me go home a day early even before bowel movement because I was needing home. He was lovely. Still is!
  • Saw him at a check up about a week or so later and he told me I was a star patient. Oh, I needed to hear that.
  • No driving, but that was OK. I was just so relieved that all was well  and miracle of miracles, no incontinence. Yay. Unreal.

AUGUST:

  • But. It was not to continue as a star recovery.
  • Around 2 to 3 weeks post-recovery, and I was still not able to drive, there was some redness appearing on the surface near my bellybutton. Husband took me to GP who advised ‘could be a ‘haematoma’ …we’ll keep an eye on it. I did, with photos. BUT….the area of the upside down T was needing greater cleaning by me. At shower time. Sigh. OK.
  • Whilst I am not great with complications, I also understand they occur. Even with ‘me’ doing everything right. I wrote here about what happened.
  • Then I wrote in detail here of the timeline, the circumstances and why it took me till October 2020 to be fully recovered!

 

What a Four Months That Was! 

But wait, there is MORE.

Daily Life with COVID19.

No, we did not have it..phew and all that. But we had to, like everyone, live around its restrictions and rules, and to be safe. For us, who are pretty conservative and intelligent people in their every day lives, it was fine. Really. You see, due to our health matters and not much income, it was never on our agenda to have overseas holidays, or even interstate ones so, unlike many, being home-bound in some ways did not bother us.

I made it work for me, the person who enjoyed her daily outings, by varying what I did at home and combined with my cooking/baking mojo returning, I found I could enjoy a coffee and treat at home some days. I also re-discovered reading the women’s mags. I did! Some got ditched soon after buying, but I have been reasonably surprised by the quality reading in the Australian Women’s Weekly so I buy that now. We gave up our physical paper delivery ages ago and get the Sydney Morning Herald as a digital subscription. All the local newspapers, which I used to love, are gone to digital land…except for one free community paper each week. I still enjoy something physical to read.

I continue my audible subscription each month and listen to some books in the car, and others at night in bed. I have taken to reading along in some cases with the physical book when accents become too hard for me to fathom which character is who!

My art is always here for me. I have, as many know, a dedicated area near my computer for all things creative. Making designs and mindful mandalas is the g0-to for me when I need to ‘concentrate’ or be mindful on just one thing!

Cooking now has a rhythm for a meals each week and we tend to use our batch-cooked meals a couple of times a week, and eat meals made from scratch on others. My dad is the recipient of some of the frozen home cooked meals.

Head and Neck Cancer Awareness and Support.

In the weirdest year ever…. COVID …to date…all things meeting-wise and catch ups were off the table. Therefore the organisation for which I volunteer had to re-think what it did to get messages and support out there for patients, families, carers and professionals.

The June Patient forum at which I was to speak was cancelled and morphed into an on-line program over many days and weeks. My part, on line as recorded by me here, was to respond to my psychological reactions to and management of having head and neck cancer.

The usual fundraising event for Beyond Five was Soup for the Soul and the physical events were not happening, nor were there any of our local Central Coast meet ups. Nevertheless, we worked on getting messages out there via You Tube, and of course, Zoom Meetings. I was not great at zoom so not that involved but as mentioned last time, my interview was on line about nutrition.

More from COVID Year 2020 for Me To Remember!

Apart from hospital homecomings… THIS was a big day and much needed..our son and his four kids came for lunch. Ahhh that’s better!

Grateful for Family Visits.

Thank you for reading..if you got this far. I am incredibly grateful to my readers and commenters.

Denyse.

Link Up 220

Life This Week. Link Up #220

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

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* THANK you for linking up today! Have a great break from now till the New Year. May You Be Well! 
The next link up will be Monday 4th January 2021. Optional Prompt: Word of The Year.

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Telling My Story. Chapter Twenty Five*. 2020. Pt.1/3. 101/2020.

Telling My Story. Chapter Twenty Five*. 2020. Pt. 1/3. 101/2020.

Well over a hundred three years ago ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author (her story is here) that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at...Chapter Twenty Five*. Part One of Three.

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members.

My 7th image for Telling My Story.

 

*Rightio…how DID I jump from my last chapter..Telling My Story which was Chapter Twenty to here?

No, I did not secretly write the posts and then not publish them.

But I did have a brainwave…do 2020’s chapter while it is fresh in my mind.

So, here I am with the first four months of “THAT” year we won’t forget in a hurry: 2020.

Posts to date are here.

Next Monday for the last post of #LifeThisWeek I will publish the next part & then probably the final one on Wednesday 23rd December.

Then, over time in the first months of 2021 I will write:

Chapter Twenty One (2015),

Chapter Twenty Two (2016- mid May 2017),

Chapter Twenty Three (later in May 2017 – 2018),

Chapter Twenty Four (2019)

JANUARY 2020.

On the gratitude path. I chose ‘gratitude’ as my word of the year. I love the idea and have a small bracelet I wear, glancing at it most days where is said ‘gratitude’ on one side, and ‘for life’ on another. I do follow through with what I say and writing this now in mid December I can tell you some days it was harder to find and feel gratitude but I managed it.

The Weather.

From October 2019 most of Australia was already in Bushfire Season. So much of the Eastern side, where we live, was as they say, tinder-dry and ready to start a bush fire. Over the time from then well into January 2020, we (Australians) lived with the actual or almost threat of fire taking property nearby or being affected in some ways. The temperatures outside were high. It was very unpleasant to go outside due to smoke which had arrived thanks to the winds also bringing black, fire-damaged leaves.

We did not see clear skies for many weeks. Fortunately, the amazing work of rural fire services, and of those who live in the communities affected went OK for those of us locally. Other places, including rural & coastal South Coast NSW and parts of Victoria did not with massive evacuations of crowds of holiday makers needing to get safely out of there. Some went literally into the water, others stayed to fight fires and some, in long carparks on single lane highways made their way home. It was awful.

Late January. No blue skies to be seen.

Family.

We have 3 January birthdays in the family. All male from my father who turned 96 on the 11th to our son and his nephew our grandson on the same days later in the month. We did not catch up to celebrate but as is usual sent greetings. I know I would have visited Dad sometime that month for sure. We had a grandson start high school, and other grandchildren go back to school or work as applicable.

Dad is 96. OLD…he agrees

Health.

It was time for my annual eye examination and that occurred pretty early at the local OPSM where the ‘on the ball’ optometrist picked up changes that were likely cataract-based and that his recommendation was to see my opthalmologist I see annually as well. This visit to Castle Hill, where we used to see her, also took me in Castle Towers shops some 5 years after my last visit, and like any stranger in town, I was gobsmacked at the changes, many made because of the light rail. Met my daughter and two granddaughters for lunch before the opthalmologist.

Well. That was a bit of news. Yes, I needed the surgery for cataract removal. Both eyes. Yes my husband was right, health stuff happens more after turning 70…And, yes, she would kindly bulk bill us but we would need to come to Parramatta Day Surgery. Check. Booked. Early March 2020.

Finances.

Without going into details, finances are always tricky in January for us and it is not related to spending from Christmas nor birthdays…it’s CARS! When we sold the house in Sydney in January 2015, we immediately bought new vehicles…the other ones were literally falling apart…and so, that means now annually the cost of CTP insurances x 2. Still, we are safe in our two vehicles and we are both independent having two.

Love my Nissan XTrail

And as always when January draws to a close this happens:

1. We celebrate our Wedding Anniversary. 49 years in 2020.
2. Australia Day happens.
3. Teachers and Kids in the family return to school & one grandson started high school.

The end of January is ALWAYS like this and I often feel it should be me too! Old habits and all that.

FEBRUARY 2020. 

This of course, made 2020 different!

After the awfulness of the fires and the altered ways in which families were forced to find housing, let alone anything they owned, there was on the news something about a virus from China called then CoronaVirus. There were half-hearted jokes relating the beer brand and to be honest, not much attention was paid other than..”oh, that seems pretty awful”…and “hope it stays away from us”. Of course, we hoped that.

The Weather Changed.

After the drought…comes the flooding. Of course. Massive rain fronts and more saved some of the land and its inhabitants from the awful threat of the fires. Still, it did not help the many, many animal casualties and deaths. So much was lost. There is a lot of bush regeneration happening. And we saw blue skies again, eventually, after the rain.

Birthdays.

A most important person has his birthday this month and he is my husband. He does not go all out to celebrate so I do that for us both! He did not do anything at all for his 70th last year so this year, we had a small family get together and his wish for a chiming clock came true.

 

Head and Neck Cancer Support Group Meeting.

2020 is my third year of being part of this group of head and neck cancer patients, their carers and sometime guest speakers. I attend in a dual capacity. I am a patient and the Ambassador for Beyond Five. More about ‘that role’ further on in my memoir.

It’s always good to gather with this crew. We are located here on the Central Coast and our commonality is having a head and neck cancer or being a carer/family member. It’s an open type of meeting and all sure are welcome. We usually share our stories and health updates and at times we have a guest speaker as we did at the first meeting for year in February.

Self-Care Rules. 

My routine for self-care has been mentioned in my regular posts via the Life This Week link up, and I note here what continued into 2020.

Most days I dress with purpose and go somewhere for a coffee. I do this too after I have been to the meetings in Erina, often taking time to drive around the Terrigal area as we now live much further up the coast. I was glad I did this on that February afternoon, and stopped for a coffee and cake at Long Jetty because none of us knew what was coming.

Getting Confident Again.

The persona that was Denyse some years back…way back into say the early 2000s to around 2013…loved to get out and about. To go to the theatre, the movies, meet up with friends. Have lunch, have a coffee. Getting together with friends and family was really important to me. BUT, over time, in this memoir of mine you will see the start of how my mood and other issues affected me. It started here. There will be more to come about the not-great-years-for-me of 2015, into 2016 and the early parts of 2017 in 2021. However, this is me recounting 2020 and I became more inclined to say YES to ideas like this…instead of usually NO, thank you.

Tickets to a Show and Driving to Newcastle and Back – Evening Time.

I have found that with my declining confidence what I needed to do was to challenge myself. In fact, that IS the essence of the theory called Exposure Therapy which I reluctantly took on board in 2016. More about that in posts here and here. Yes, some of it was related to potential IBS and some to ‘I cannot eat outside the home’ because of my mouth’s limitations but more than anything I HAD to give things a go.

I did.

I drove to Newcastle, about 45 minutes away, late afternoon in February, found a secure park in the street near the Civic Theatre (I already knew the place from 2019 attendance at Newcastle Writers Festival) and wandered over, then inside to be part of the audience for Chat 10 Looks 3 with Annabel Crabb and Leigh Sales. It was great. I talked to people next to me. I found the car safely in the night time streets, and drove home the coast road way in the rain. So pleased with myself too!

 

Head & Neck Cancer News.

I had an excellent visit to my prosthodontist in February and he declared all was well with my upper prosthesis and that was it. See you in May he said. Sure thing said I. Neither of us know of course..what was to come! OK..we know it was COVID but let’s  not get ahead of ourselves.

Ambassador Role.

As a patient of Chris O’Brien Lifehouse and of Professor Jonathan Clark AM, Head and Neck Surgeon, it is always a privilege to ‘give back’ in a way to help others. I was invited to be part of a new video series that would be made at “my hospital” as I call it, and I would be interviewed about nutrition following head and neck cancer diagnosis and surgeries. I was initially reluctant but when encouraged by the CEO of then Beyond Five, I said yes. It meant a day at Chris O’Brien, and lots of waiting around for film segments to be completed. However, I got to meet some special people, including two other head and neck patients, and dietitians too. My interview went well after an initial  false start. It can now be found here.

MARCH. 2020. A huge month!

The very next week I was back at Chris O’Brien Lifehouse for my then 6 month check up with my surgeon. I took the chance to do quite a tour of the place as I was not in a rush. In fact, it was the first time, in a formal setting, I saw pamphlets about COVID 19 and restrictions of entry into the hospital and of course, that made sense. Those signs had not been there the WEEK before. Things were moving faster. There were sanitisers at the door as well.

My visit was awesome. See you in 6 months! I got to say good bye to Deb who was leaving the art program I had supported, and I drove home. I did not know I would be back in 6 months but under far stricter protocols….that needs to wait till part 3/3.!

Remember the Confidence Growth?

I was invited to be the guest speaker at a fund raiser for head and neck cancer, hosted by young doctors in training on the Central Coast. One doctor, Caity, knew of me from my Beyond Five story and she too had a story there. Her father, only in his 40s, had died from a head and neck cancer. Knowing the importance of awareness raising and the importance of sharing the messages via the Beyond Five site, there was an evening function – a charity ball they called it- on a delightful, balmy evening at Avoca Beach. I was happy to share my story and to help share my information at my little table where I was talking to various attendees about head and neck cancer.

Little did any of us know, on this first weekend in March, that this would be the end of events such as these, thanks no thanks COVID. Feel really fortunate this went ahead and they raised some thousands of dollars. I remain in touch with Caity and colleagues too.

It was a big boost for my confidence. I used to speak off the cuff as a principal many times, and once I had that mic in my hand it was fine. I did have to find something suitable to wear and I did…and to drive myself from one end of the coast to the other. I did.

Eating remains an issue. But I am OK with that.

What I couldn’t do…was actually eat anything there. I did not pay to attend. I could drink water and that was it. You see, despite my normal appearance eating anything other than some cake with coffee, eating anywhere other than home is problematic.

And Now…Cataract Surgeries. Yes, x two in 3 days!

As a couple we had a rhythm for driving together to Sydney for my cancer treatments initially and then I became Ms Independent and as kids say “I can do it myself.” But not for this.

Monday 9 March 2020.

My dear husband drove us to Parramatta for my midday arrival at the Day Surgery. We were booked to stay just down the road at a new to us Meriton apartment. Fortunately he could access the room, and bring up our food supplies and clothes. Meanwhile I had a LONG wait as many people were there for similar types of eye surgeries. On this day it was my right eye. There were some COVID type precautions including questions about where I had been. No restrictions on other people being with waiting patients.

It is a LONG wait with weird stuff in your eyes but eventually I was ushered in to the next room, given a shower cap, no change of clothes, and onto a trolley. Saw the anaesthetist and his nurse. All checked out OK. His wife is my opthalmologist. I don’t know what he gave me but I have no memory of seeing her or the surgery but waking up, cover over my eye and for some reason I took a lot of selfies. Husband collected me, back into the apartment. Rested up and finally ate something and slept until the next morning when we needed to go back to the Day Surgery for check and drops. Then off home! Yay. Thank goodness for sunglasses (as recommended) because EVERYTHING was bright.

Wednesday 11 March 2020.

Despite having a successful outcome on Monday, for this day trip I was anxious. Maybe my mind is remembering what surgeries are about. Nevertheless with a confidence boost chat to my GP and a wee bit of valium on board, we went. This time the only place my husband could ‘hang out’ was at Westfield Parramatta as I was going home the same day. On arrival, only 2 days post the first surgery, the protocol was already ramped up thanks to COVID. More questions on arrival and a temperature check. Settled down to wait “after the drops in the eyes” and then BOOM..OK, what is that? Oh. A Fire Alarm and no it’s not a practice. Evacuate the building.

Down some 3 flights of stairs, in single file, I admit I started to remember what 9/11 people had done only SO much worse. Outside on the street, we were guided away from the building and waited. The firies came. In an engine and we waited. I was pre-op and whilst the anaesthetists was already there, his wife, my surgeon, arrived just as we were all coming onto the driveway near the Ferry Terminal. So, all we could do was wait. Eventually, thanks to my phone I texted my husband from a concrete set of steps where I sat and we waited. Probably about 45 minutes. Then, all clear. A faulty something or other and we traipsed up the stairs again. Lift was out for a time. The wait was not too bad and I was called in, and this time, saw my surgeon and even “saw some of the coloured lights” as she was inserting the lens. Wow I said. She said “no talking”. So I didn’t. No silly selfies, husband got me and off back up the M1 we went. The next day checks were at rooms closer to our house.

Updates on my eyes. As of December 2020. I see very well for distance and no longer need glasses for driving. Yay. I use a much weaker script in glasses for reading. At the shops I use a $2 plastic pair with 2 vision. I have had a recent check and despite some issues that annoyed me as I already have itchy eyes at times my opthalmologist says all is looking good and these should last me 10 to 15 years. Grateful too that she bulkbilled for these surgeries.

COVID19  GETS SERIOUS. 

On the weekend after my two surgeries above, there were a number of changes to how we here in Australia, and in our state, would now lead our lives. The Prime Minister, used Sunday 15th March to announce a raft of new rules on how we would live and interact day to day and why. He was often flanked with the then Federal Health Person,  and in our state, Premier with her Health head honco, Minister for Health and Police.

It began very seriously from Monday 16 March.

I am using some calendar reminders here!

  • I know that I needed to have both food supplies in for us and I admit it, toilet paper was a high priority.
  • I think I went, as carefully as I could, probably wearing a mask and gloves – whatever we had here at the time – to local supermarkets
  • I could not always get what I sought nor what we wanted
  • I remember feelings of insecurity in me that I may not be able to cook all the meals – for us and the freezer – to have on hand.
  • I know I felt the weight of responsibility

Meanwhile my husband was negotiating seeing his GP and going through medication changes and it was not easy. In fact, it was tough. Even though he could talk to the GP on the phone, some things are far better managed in person.

Our eldest granddaughter has come to stay indefinitely with her other grandparents who also live on the Coast as she has an autoimmune condition so did not want to be at her Mum’s. Mum is a teacher and going to school at that point each day was a risk that she, and her youngest had to take. It got a bit worrying. She popped up to see us…and for a much needed hug…just because she needed to as did we to see her.

Of course, we know now that schools did an amazing job of being flexible and eventually on-line learning worked..hard as it was…and teachers need congratulating along with their leaders.

So we did OK really I guess. I found it hard initially that my practice of going out each day for a coffee was curtailed but I found alternative solutions at home with a strong coffee and my ISObaking  took off!!

Dear Miss Five. 

Our youngest granddaughter, born five years ago at almost the end of March spent her fifth birthday….having her broken arm re-set. It was one of those small accidents but when it’s a little person it is always hard. Staying with her Dad, along with her siblings, when it happened, she was driven to the local public hospital where, as our son said, they could not have been kinder. Her Mum met up with them there. They stabilised her arm, she came back to her Dad’s to open the presents from us and share a facetime even though it was pretty hard…and then next morning, her actual birthday, she went back in to find the nurses had remembered her birthday and she was treated very well indeed. She was fine, and is fine. And as her Dad told her, you just wanted to be the same as me when I was four. True!

April 2020.

We became accustomed to daily updates on COVID numbers of cases in our state and country. NSW was not doing well. Sadly it was where older people lived such as in Nursing Homes that things went downhill rapidly. Each day seemed to bring worse news and added restrictions. Already we knew there would be no Royal Easter Show. Definitely no-one going anywhere on the roads except for essential reasons: work, medical or supermarket.

I find change hard but did my best with this one because we had to do the right thing. Even going for a casual drive to nowhere..or the beach was BANNED and police could pull you up to ask where you were going.

I did immerse myself in busy stuff for my mind, like blogging, art, craft and cooking. I had my cooking/baking mojo back. In general too I was able to source ingredients and do my best to cook for us to have a meal stash in the freezer. Toilet paper was OK. We celebrated Miss 8’s birthday via facetime. I was able to attend some ancillary medical appointments in person. That was a relief…my feet needed it.

Eventually too, my hairdresser was back in a very limited way when they got the OK to do so and my usual 4 weekly hair cut had blown out to 8 weeks but I lasted and I was very relieved to have my back to normal look.

And then on a Friday at the end of the month…oh, there were no ANZAC days services or ceremonies anywhere either…I got slight sore throat and a mild temperature so rang the COVID hotline and my GP and both said, report to local COVID test centre. It was in local hospital grounds 5 minutes away. Not much of a wait. Test was OK. Mask on from the get go….and back home to self isolate. I got my test Friday afternoon and result in wee hours of Sunday morning.

COVID COLLAGE.

And that is that.

2020. Part One of Three.

Denyse.

Did you read it all? Wow. Thank you.

Joining here with Leanne and friends for what I guess will be the last Lovin Life Linky in 2020.

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Kindness In Covid19 Times. 24/51. #LifeThisWeek. 48/2020.

Kindness In Covid19 Times. 24/51. #LifeThisWeek. 48/2020.

None of us can deny Covid19 – Coronavirus – has changed much in our lives since the news of it emerged and then, over time, it affected many (if not all) of us directly and indirectly.

In wanting to recount some of the better aspects of life in Covid19 times, I chose to use this week’s prompt Kindness to hunt out examples from people I know and some from me.

Kindness in Covid19 times as observed by me…and an example too!

  • In the early days of the virus’ grip and the newness of what the restrictions around it meant to us all here in Australia, I noted the smiles and kind words of those who waited as the supermarket entrance to welcome but also ensure we were well enough to enter and to have a clean basket or trolley at the ready. I admit too, that their smiles were returned and a kind word added from me because it has been reported they did not always have the best of times dealing with an often panicked member of the public.

 

  • Moving around the supermarket in those early weeks meant ‘get in and out fast’ but then there was the disappointment of some needed products not being available. When I saw this and others too, we often smiled wryly and then said a few words with resignation  and got on with trying to source something different. One supermarket chain even had needed items behind the counter, kindly asking at the checkout if we needed: toilet paper or paper towels.

 

  • Our pharmacist quickly ramped up their services and offerings to help during those awful early days and made it very easy to have a free delivery of our prescriptions. I did, however, note when I visited one day soon after that the staff were incredibly stressed as not every person they saw understood the need for restrictions so I made sure, where I could, to enquire after them when I was back there. I hope someone got a smile back as a result.

 

  • People out walking…when everyone was confined to home for work/school…were always up for a smile or a quick hello if we happened to be out the front. There was a shared spirit of connection and ‘we can do this.’

 

Later in the Covid19 times:

  • I started my return to coffee places for a takeaway and I was told how grateful they were I had returned and thanked me for my support. How kind!

 

  • Later, I got to return to actually sit for my coffee at one of my favourites and when I asked about a ‘special size’ salad to suit my eating ability and needs, it was no trouble. In fact, it was something the owner was happy to provide me with.

 

  • Taking time to chat and ask how they were faring was something I did at each cafe. I listened to the stories. Often they had operated at a loss in the hope keeping open they would continue to help customers. I returned to one of those places more as a result.

 

And When I Asked Facebook Friends About Kindness They Wrote:

  • When I was still working at the start of the pandemic, a kind person started a list of people who would be willing to pick up groceries and do other messages for the elderly to enable them to stay at home and out of danger. Immediately there was a long list and a roster was made up. This has become a huge success with new life friendships being made. J.J.

 

  • My neighbour drops a hot coffee at my door every so often as she knows I’m WFH. Another neighbour put a huge box of stationery downstairs for kids in the building to collect to make crafts. A girlfriend called my kids to make sure they had something organised for Mother’s Day as I’m a single mum. K.A.

 

  • A friend (through Rotary connections) lives in a town near my MIL and offered to go and see her during the restrictions as we were unable to travel. MIL is an independent 89 year old who lives alone, out of town without any transport options nearby and is used to being on her own, but being vulnerable she was unable to get into town to do her usual shopping. Our friend not only offered to visit her but ended up helping with shopping and doctors appointments and even made her a cake for her birthday. She has been so kind to my MIL and kept us in the loop during recent health issues and she expects nothing in return. We are in her debt! D.H.

 

  • My neighbours (a working couple in their 30’s) delivered a note offering to do shopping or other errands, together with a bottle of wine and the offer of a chat any time. We live in an apartment. I believe the note was dropped into all 32 letterboxes. We know these neighbours very well. It was touching to see such thoughtfulness and practicality! A.H.

 

  • Our neighbors down the hall from us are both ER doctors & just had a baby in February. While the mom stayed home with the baby, her husband worked tirelessly in the ER with COVID cases. During the worst of the pandemic here in NYC they baked cookies for everyone on our floor to cheer all of US up!!! Incredibly caring & kind family. P.D.

Kindness IS personal. I guess for me, the first person I need to be kind to (in words especially) is me. Dropping the inner critic’s voice to a whisper rather than a shout! I am getting better. How about you?

I have written about Kindness before on the blog: here and here.

And last week I changed my blogging links area on right hand side of the blog to show my appreciation for groups of bloggers who do link up for our community called Life This Week AND for those who come here to comment at other times. Do link up a post, old or new, any Monday and if your blog and name is not (yet) there..I will add it. Let me know in the comments I am very grateful for this blogging community!

 

I am aware that each reader and blogger here has experienced the restrictions and rules of COVID19 differently according to their place of living. However, I did want to bring something of an element or quality we can all share:

K     I     N    D    N    E    S    S

What do you recall, in COVID19 times, of kindness? Maybe something you did or had happen to you.

Denyse.

Link Up #193.

Life This Week. Link Up #193.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt. 25/51 Share Your Snaps #5 22.6.2020

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I Heard. 16/51 #LifeThisWeek. 32/2020.

I Heard. 16/51 #LifeThisWeek. 32/2020.

In this period around the world because of the pandemic known as COVID-19 much of what we, the citizens of Australia and so many other countries, can do has been taken from us….to:

  • keep us safe at home
  • keep us coronavirus-free
  • stop the spread of the virus
  • enable some control over the spread of the virus
  • and more, I am sure!

So, what does this have to do with what I heard?

I am writing about a snapshot day: Easter Sunday. There is not much to say I heard except this:

  • the noise emanating from the lawnmower as my husband mowed the back lawn
  • the noise the whipper snipper makes too
  • the sound coming from the Dyson stick vacuum as I did my share of the house cleaning
  • our conversations once we were together to and from our activities
  • my audiobook playing in the car, as I am listening to the last of Tom Hanks’ narration of the Dutch House
  • the oh-so quiet large shopping centre still playing some musak
  • the conversation I had with the person as I collected my book: The Dutch House (obsessed now!)
  • the quietness inside the Woolworths store as I quickly sourced what I needed….and then, WIN…the bonus purchase I had not expected
  • the somewhat ‘annoying’ overheard words between a couple as I attempted the 1.5m between us and they were choosing chocolate. Oh. It was Easter Sunday
  • from the open door to our backyard, I heard the noises of a person attempting some garden renovation. It sounded pretty big and busy
  • the talking, briefly, over a quick Facetime chat with our daughter and two of our grandkids
  • the whirring of the mixer as I decided the only way to beat COVID boredom was more to eat
  • the hum of the oven’s fan as it cooked the biscuits
  • the satisfying crunch of the biscuit and slurp of my cup of tea.
  • the music from Downtown Abbey as we watched a 20 minute segment of the Movie
  • the tip tap tapping as I write this.

I had not intended to go here: local Westfield but for click & collect I did. Hand sanitiser out at both Big W & Woolies.

Before we got ‘locked down’ I knew I would enjoy seeing something bright each day and here it is…on the back verandah.

The recipe is one of my late Mum’s.

Peanut Biscuits.

  • 125gm butter or marg. (I used butter, and slightly melted it first, sorry Mum!)
  • 1/2 cup sugar
  • 1 egg
  • 1.5 cups SR flour (yes, I had some!)
  • 3/4 cup raw peanuts
  • I added a teaspoon of vanilla

(I threw in all the slightly salted peanuts I had left in packet…and I also doubled the recipe)

To make the chocolate version, I halved the double mix and added 2 tablespoons of cocoa.

Cream butter and sugar, add egg and beat well. Mixed in flour and peanuts .

It’s quite a wet mix so I used a spoon to drop amounts on a baking paper covered tray, the slightly flattened with a fork.

Cook in a fan forced oven at about 160-165C. Mum’s was in Fahrenheit 325-375.

I did keep an eye on the tray and turned them once, Probably took around 10-15 mins (everyone’s oven is different)

Cooled them on a rack and ate some for afternoon tea. As I doubled it, made at least 48 biscuits.

What have you heard lately?

Did you find Easter was very quiet where you were?

Are you missing being able to go where you want to?

Tell me in the comments!

Denyse.

And,  the next series of optional prompts is here and on the Home Page.

22/51 I Saw 1.6.2020

23/51 Life Stories #2. 8.6.2020

24/51 Kindness 15.6.2020

25/51 Share Your Snaps #5 22.6.2020

26/51 Best Time Of Day. 29.6.2020

27/51 Taking Stock #3 6.7.2020

28/51 Self-Care Stories. #4. 13.7.2020

29/51 Your Choice. (World Head & Neck Cancer Prompt for Me) 20.7.2020

30/51 Share Your Snaps #6 27.7.2020

 

Link Up #185.

Life This Week. Link Up #185.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 17/51. Life. 27.4.2020.

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My Neighbourhood. 11/51. #LifeThisWeek. 22/2020.

My Neighbourhood. 11/51. #LifeThisWeek. 22/2020.

My observations are personal. They are about my thoughts and experiences of living where we do now. I have used some photos but because  I try not to give out too much personal information on the blog they have few identifiers. Nevertheless I am mentioning areas that may be familiar to some readers.

We first thought of moving to the Central Coast in 2014. As the need to change how and where we were living in Sydney became evident through my uneasy health status (sad and a bit anxious) and my husband’s disenchantment with Sydney’s traffic, we sold up and with thoughts of Central Coast holidays here we went to find a place to rent. We moved to and lived at the southern end of the Central Coast. January 2015 – November 2015.

I Live Here.

 

This is a quiet and relatively new part of suburban blocks and community developments in the northern part of the N.S.W. Central Coast region. On a map, it is around here. Just north of Wyong and about 10 minutes drive from the M1 at Sparks Road exit.

When we moved to what I describe as the quieter end of the coast, at the end of 2015, it was for a few reasons.

  • Our first choice, post-Sydney life, was the southern end of the Central Coast.
  • We thought we knew the area better.
  • Turns out we knew some physical aspects but not some of the in-built social ones.
  • In short, we were relatively poorer (i.e. paying far too much in rent) and more disappointed by the closed-off community which often wrote about ‘Western Sydney refugees’ arriving to spoil their places. Hmmmm. Not great attitude is it?

We settled easily into our next rental house that it felt like one we had sold. It was a  bit older but we made it home. From November 2015 until April 2018. Here’s some of the story from living in THIS neighbourhood. We were made very welcome by the property management too. It makes such a difference.

We would have stayed at this house but the owners wanted to move into it. Turned out sometime things work out well. Our real estate property management did all they could to help us secure a new rental place. Our two priorities: on one level and ducted air. They found it. Yes it was more expensive to rent but still way under the atrocious rent in 2015.

Here we still are: from early April 2018….and have already got another year till 2021 sorted as tenants here.

Some of the reasons we like living here.

  • not far from a big shopping centre
  • less than an hour from Newcastle where I have attended some recent events
  • close to a Westfield Shopping Centre
  • about one hour’s drive to Wahroonga…end of the M1. Then if it is a visit to my dad on the northern beaches, it’s another 45 minutes, similarly to the city for head and neck cancer checks and also to Westmead for my prosthodontist checks, and around the same to see family where we used to live.

Our medical needs are catered for very well. We both like our GP and find the service at the centre is excellent. Wyong hospital is literally up the road and less than 5 minutes away. We are bulk-billed and can make appointments. I have a local dentist (many stories about him in the head and neck sections) who has seen me before head and neck cancer in my mouth and since. Bunnings is about 10 minutes up the road for my husband. And I have found more than twenty places where I enjoy my daily coffee.

Our street is a bit busy but we have excellent neighbours and even though the yard is small, the only time it is really noticeable is when the grandkids come up and a soccer ball easily flies over the fence.

BUT…whilst we do love being here, the sad news is that whenever we do get to buy a place of our own, this area is already out of our league. Many people here commute to Sydney. And houses in our estate are selling for well over $600K up to $900K. We will, as they say, cross that bridge when we come to it.

So, that’s my neighbourhood story in words and pics!

Did you write about that today too?

Tell me if your neighbourhood is where you want to stay forever…

Denyse.

Link Up #180.

Life This Week. Link Up #180.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 12/51 Out & About. 23.3.2020

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