Sunday 26th June 2022

Women of Courage Series. #64. Anne Howe. 89/2021.

Women of Courage Series. #64. Anne Howe. 89/2021.

In July 2021 The Women of Courage posts will be connected in some way to World Head and Neck Cancer Month (July) and the #WHNCD Day on 27 July 2021. Those who have followed my blog since 2017 know I was diagnosed with a rare Head and Neck Cancer in my upper gums and under the top lip. More here.

Two years ago….around this time of year, I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

Whilst Anne Howe, who is in her late 60s, and I have not met in real life, we have connected on-line via a very supportive facebook group for those affected by Head and Neck Cancer. The details are below. Anne’s story looks short yet it is incredibly full of courage from Anne’s words, taking the best chance you can as a human to survive a devastating diagnosis and allowing those who have your trust to do their best for you. Anne is a very determined woman, loved by her large family and often a carer to others. She has had more surgery since her post-HNC photo was taken and this has been, as best as it might happen, for her to have some teeth added inside her mouth.

Note from Anne:

 While I have had teeth made I am unable to wear them until I have had the screws implanted in my jaw and the bridging work made. Then its fingers crossed to hope my jaws don’t crumble due to the radiation. So still a way to go there.

I chose to use both images supplied by Anne as they do illustrate her words at the end of her story. I have, though, used her image before the surgeries for her Woman of Courage collage because it was then she needed to have all the courage she could muster to go through her many trials in her head and neck cancer journey.

Thank you, Anne. Let’s share your responses now.

 

 

 

What have you faced in your life where you have had to be courageous?

My moment of courage kicked in when I presented for surgery to remove a SCC (squamous cell carcinoma) tumour from my nose back in 2017.

I was nervous and terrified as anyone is when facing surgery but the full impact hit when my surgeon came to see me.

His first words when explaining my surgery really tore through me.

He could NOT give me informed consent.

I would have to trust him and he promised to do the very best he could for me.

At best he would remove the tumour and do his best to repair the damage but at worst I could just wake up with a hole in my face.

With a very shaking hand I signed on  the line but while doing it a very gentle hand covered mine and a gentle voice told me he would take good care of me.

I woke up to find I had lost most of my nose, my top lip up to the nose, some of my left cheek, my central upper jaw and part of the soft palate.

 

How did this change you in any way? Please outline further if this has been the case.

After my surgery I was informed by my surgeon that I was stage 4 and he didn’t think I would survive.

He had done his best to get me this far and I made up my mind to do whatever I needed to do to get through this which is exactly what I have done.

I knew I had a long hard road ahead with a lot of work to be done.

Over the last 4 years I have endured 11 surgeries on my nose and 30 sessions of radiation.

I still have further nasal surgery to have and also surgery on my mouth due to having lost part of my jaw. (this is some of  the surgery I mentioned in my introduction)

 

Is there something you learned from this that you could recommend to help others who need courage?

When I woke up from surgery and first  saw my face I thought that was it.

Never in my wildest imagination did I think it could be repaired to the stage it has.

I put my faith and trust in my surgeon which was the best thing I could ever have done.

The other thing that helped get me through was the love and support of my family and friends.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

I have learned from this experience that I am stronger than I ever thought I was.

I have often been told I am very brave but I disagree.

I have fears just like everyone else but to survive I just had to put on my big girl pants and do what was needed as the other option just didn’t bear thinking about.

It really was a live or die situation.

Over time my strength has just grown.

 

Is there any message you would give to others facing a situation where courage could be needed?

To anyone going through something that fills you with fear or concern my advice is to give everything you have because only then can you say you really tried.

Surround yourself with some people who will truly understand and accept you no matter what.

Sometimes I have needed to vent or just have a good cry to let those emotions out and that is important too.

Never give up.

 

My favourite saying through all this has been:

My face does not define me I am still the same person.

Anne, your courage and your story blow me away. What a great relationship you have with your surgeon. Trust is so much a part of it. I am so glad you are here, and looking after your family too…as you continue to recover. Thank you so much.

Denyse.

Note About Head and Neck Cancer Support on-line.

IF a family member or someone you know does have a diagnosis of a head and neck cancer or that person is a carer, the value of a good facebook group cannot be over-done. The friendly space that IS this group for eligible people to request membership is a good one. There are people from all over the world but the group is not huge so personal connections can be made. It is mainly made up of New Zealanders, and Aussies too…along with those from the U.S. There are questions to be answered to join and it IS strictly for those with a head and neck cancer. Link is here.

This is a link to Head and Neck Cancer Australia too. This is where I found information initially after my 2017 diagnosis and where I am now an Ambassador.

Joining with Natalie here for Weekend Coffee Share.

Copyright © 2021 denysewhelan.com.au – All rights reserved.

 

 

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Women of Courage Series. #63. Cosette Calder. 86/2021.

Women of Courage Series. #63. Cosette Calder. 86/2021.

In July 2021 The Women of Courage posts will be connected in some way to World Head and Neck Cancer Month (July) and the #WHNCD Day on 27 July 2021. Those who have followed my blog since 2017 know I was diagnosed with a rare Head and Neck Cancer in my upper gums and under the top lip. More here.

Two years ago….around this time of year, I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

Those of us who have been diagnosed with a head and neck cancer never feel quite alone when there are others we can share our stories and one such place is a special facebook group (private, but ask to join) here based in New Zealand. This is where I virtually met Cosette Calder, aged 46, and she was someone I reached out to share her story of head and neck cancer, and here she is. Thank you Cosette.

 

 

What have you faced in your life where you have had to be courageous?

  • In 2015 I was diagnosed with throat cancer.
  • I had a young family, full time job and life was busy.
  • Suddenly everything stopped and I had to undergo Chemo and Radiation Treatment to beat this cancer and have a chance to live.

 

How did this change you in any way? Please outline further if this has been the case.

  • I had a brutal cancer treatment.
  • I couldn’t eat food and had to have a tube inserted into my stomach.
  • For two months I only drank water and was tube fed.
  • I lost 8kgs and some of my hair fell out.
  • I really had to dig deep to get through this treatment.
  • I had a plastic mask made of my head and shoulders.
  • This mask was for the radiation treatment.
  • My head had to be perfectly still on the radiation table so the mask was bolted across my face to the table for 20 minutes a day during radiation treatment.
  • It is incredibly scary and claustrophobic.
  • I somehow managed it.
  • I am proud of myself for the courage of wearing the mask when I was so ill and feeling down.
  • I fought hard whilst being so unwell. I didn’t realise I could be so strong.

 

Is there something you learned from this that you could recommend to help others who need courage?

  • Keep putting one foot in front of the other.
  • Sometimes we can’t help what happens to us.
  • Keep moving on and keep trying.
  • Acceptance too helps.
  • By accepting my cancer diagnosis I was able to focus and keep moving ahead.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

  • I am stronger now.
  • I have been pushed to the limit and I know how lucky I am to be here.

 

Is there any message you would give to others facing a situation where courage could be needed?

  • You CAN do it!

 

Oh my, yes we do have brutal treatments don’t we?

However, in reading this of your experience as a head and neck cancer patient Cosette, and, now well-recovered, it is a tribute to your human qualities of strength and courage that you have recovered and now share your story. Thank you again. I am sharing the information below from the New Zealand Based Facebook Group for Head & Neck Cancers. Thanks to for all you do to share awareness!

Denyse.

Note About Head and Neck Cancer Support on-line.

IF a family member or someone you know does have a diagnosis of a head and neck cancer or that person is a carer, the value of a good facebook group cannot be over-done. The friendly space that IS this group for eligible people to request membership is a good one. There are people from all over the world but the group is not huge so personal connections can be made. It is mainly made up of New Zealanders, and Aussies too…along with those from the U.S. There are questions to be answered to join and it IS strictly for those with a head and neck cancer. Link is here.

This is a link to Head and Neck Cancer Australia too. This is where I found information initially after my 2017 diagnosis and where I am now an Ambassador.

Joining with Natalie here for Weekend Coffee Share.

Copyright © 2021 denysewhelan.com.au – All rights reserved.

 

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Women Of Courage Series. #54 Leanne @DeepFriedFruit. 73/2020.

Women Of Courage Series. #54 Leanne @DeepFriedFruit. 73/2020.

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week and now the series concludes today with this post. Over the next two weeks there will be a look back at those who have shared their stories. Actually 56 women. The link to all of those stories is here.

Here is the introduction to the series and each woman’s story.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

 

Leanne, also known by her blog’s name of Deep Fried Fruit, has been blogging FOR ever..no, not really. However, I believe she started for a significant ZERO birthday and now admits to being at the next decade. Not one to hide away from her celebrations of life, she calls her birthday a festival. In real life, and yes, we have met, this person is warm, funny, generous and very caring. In fact, she stopped off on her family’s trip to Queensland two years ago so we could meet up!

 

Let’s get on with Leanne’ story…and I admit, she has written more than was asked but all good. The more we get to know about the ‘why’ of this lady!

 

Background

  • I look back and think of all the things in my life that took great courage and I guess most things do.  Every new experience requires some amount of bravery.
  • I used to be timid and shy.  As an only child I found safety in the walls of my own home with my tiny family.  Then one day my mum was told she only had two weeks to live and suddenly my safety was about to be stripped.
  • Her bravery of fighting the disease and winning, changed who I ultimately became.  Being timid in life was no longer an option. I learned if you want to achieve results you have to stand up and take responsibility for your existence. You had to find courage.
  • As a result, I’m someone whose meta programming is set high on the “challenge” meter.  Some people take the path of least resistance in life, others take the path of most challenge. I’m the latter.

 

My favourite quote is by Sarah Henderson:

“Don’t wait for a light to appear at the end of the tunnel, stride down there and light the bloody thing yourself.”

That’s how I live my life. I spend a great deal of time striding down great big long tunnels to turn that bloody light switch on. Which means I need a fair bit of courage I suppose.  Although I don’t necessarily recognise it at the time.

 

What have you faced in your life where you have had to be courageous?

My mum’s leukaemia, backpacking overseas alone, buying my first home, completing my degrees, creating a career, marrying into a readymade family, having kids, dealing with fibromyalgia. The standard stuff.

 

I think there are some major milestones that took more courage than others though.

  1. “Retiring” from a well-established career at the age of 36 to concentrate on my family
  2. Becoming the creator/founder of several small business initiatives
  3. Deciding to self-publish my children’s book series
  4. Watching helplessly as cancer took our (my husband’s) eldest child
  5. Re-entering the workforce at the age many retire

While point number 4 is probably the one jumping out as the most challenging event anyone could possibly face, it’s still too hard to talk about.  So, I won’t be talking about the loss of a child today.

Instead, given it’s current, I’d like to chat about number 5.

 

Re-entering the workforce.

 

How did this change you?

  • For the past 15 years, skipping merrily outside the boundaries of the paid workforce as a sole trader and finder of cool projects, I’ve been striding through many tunnels turning on a shitload of Sarah Henderson-esque light switches.
  • You’d think that with all the results I’ve achieved when I was out there on my own, re-entering the workforce would be easy. I mean, I’ve done so much! I’m a force to be reckoned with, aren’t I?
  • I would have thought so too, but no.
  • Going back to work” has honestly been one of the hardest things I’ve had to do.
  • Why? Because I discovered something when I went back to work in corporate Australia.  I’m old!
  • I know right.  Shocking revelation.
  • I thought I could waltz right back in there and just be amazing. But it turns out I’ve got a bit to catch up on in the corporate world and apparently my brain isn’t quite what it used to be.

 

Re-entering the workforce changed me.  My confidence, resilience and emotions hit an all time low.

According to the numbers I am fifty years old, but my heart says I’m still a vibrant, intelligent and energetic 35-year-old who knows everything there is to know about everything. Hell, there are days I’ve got the mindset, energy and frivolity of a 20-year-old and the smarts of a 70-year-old Harvard professor.  Lingo and all.   Yet despite my love of life, my readiness to be challenged and the wealth of experience under my belt, the fact is, I’ve been out of the workforce for a bloody long time.

 

Is there something you learned from this that you could recommend?

  • Every single challenge in life presents an opportunity for growth.
  • While wallowing in self-pity, I realised I’d bumbled into this job without much thought nor planning.  Somebody needed me to fill a gap, so I filled it.  Then somebody else needed me to fill another gap and I filled that one too. That was my re-entry. I didn’t create my new work life; I simply fell into it.
  • It’s hard to stride down a tunnel with purpose when you’ve fallen into the tunnel.
  • So, I downed tools, re-wrote my resume, contacted recruitment and said, “hello world, here I am, and this is what I have to offer you”.  I took back control and started striding forward on my terms again.
  • I guess I’d like to say out loud for all to hear, if you find yourself in a job you aren’t enjoying, or that doesn’t suit you, or that makes you feel less-than, then do something about it.  Don’t stay there for staying sake.
  • I’m now focussing on my strengths, adding value where I know I can and not putting so much pressure on myself to be able to do everything.

 

I have decided to create my job, rather than have my job re-create me. Or more specifically, rather than have my job deflate me.

 

 

Do you think you are able to be more courageous now if the life situation calls for it?

  • Absolutely, 100%, without a doubt. Our challenges make us stronger.  My challenges have made me stronger.
  • Facing problems can be hard. At the time it can even feel like the end of the world.

But looking back at the times where courage has been required is a fantastic reminder that we do survive them, 100% of the time, because we’re still here!

 

Is there any message you would give to others facing a situation where courage could be needed?

 

  • When you’re younger you tend to put up with a lot more heartache in order to get your foot in the door, particularly when it comes to jobs and careers.  I know I did whatever it took to show my value. I worked hard from the ground up.
  • When I re-entered the workforce, I thought I’d waltz back in without that need to go back to grass roots, and it was quite a dent to my pride to discover I wasn’t as shit-hot a I thought I was; or perhaps as I used to be.
  • When I hit rock bottom, I thought “wow, does this mean I have to start again? Has my experience over the last 30 years meant nothing?”
  • No.  We don’t need to start again. Everything we’ve done previously is still part of us, only we’re even better off because we not only have that experience, we also have a proven track record of resilience, growth and acquired wisdom.
  • If like me you don’t like your job, and the light at the end of the tunnel is dimming, then just stride down there and light the bloody thing yourself.

 

Anything else to add?

  • This “being back at work” thing is new, and I am still finding my feet.
  • But if there is one thing I know for sure; I still have a good 15 years of work life left in me in which to create something that suits my strengths.
  • I may well create my dream job or a whole new career, or I may just decide that my current income generating activity is simply that, an income source.
  • The bottom line is, if the world feels dim, I’m now old enough and wise enough to know where to find the light switch.

Denyse offering me this WOC interview has been a fantastic exercise in recognizing where my inner lion has been needed in life and how I can apply it to my current situation.Thanks so much Denyse for this opportunity to reflect and to remind me where to find the light.

 

Thank you Leanne, you are an amazing friend and definitely a great woman of courage and it’s my privilege to share your story as the final one in the series over the past 2 years.

Thank you to all of the Women of Courage.

Over the next two weeks, there will be a farewell and appreciation for those who shared in 2019 and in 2020.

 

Denyse.

 

Social Media:

Blog/Website:  www.deepfriedfruit.com.au

Facebook Page: https://www.facebook.com/DeepFriedFruit

Instagram: @DeepFriedFruit

On Thursdays I link here for Lovin Life with Leanne and friends.

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Women Of Courage Series. #53. Yvonne McClaren. 71/2020.

Women Of Courage Series. #53. Yvonne McClaren. 71/2020. 

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week until the series concludes in 2020.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

Whilst I have not ‘met’ today’s Woman of Courage in real life, as they say, we have most certainly connected by the common (and not ever-welcomed) diagnosis of Head and Neck Cancer. Yvonne, who is 54, has shared her story below via the responses to the questions but to know even more about her and how she is facing life full-on these days, check out her links! Recently she appeared  too as part of the Beyond Five live video segment relating to food preparation and eating for those affected by head and neck cancer, particularly as in Yvonne’s case and others, relating to swallowing.

Dysphagia is the medical term for difficulty in swallowing. This includes problems with sucking, swallowing, drinking, chewing, eating, dribbling saliva, closing lips, or when food or drink goes down the wrong way.

The link to the video is at the end of this post.

Thank you Yvonne for sharing.

 

 What have you faced in your life where you have had to be courageous?

There are a few times in my life where I have had to reinvent myself both professionally and personally. I think my latest challenge with finding a large tumour on my left tonsil has been my greatest challenge.

There have been other life-threatening situations – involving motorbikes, but this was really out of my control. Once diagnosed I responded with ‘silence’ – I went into myself I realise now.

It was a difficult time as I had relocated countries, left my full time job to start a new life and career and had my heart broken all in the space of 8 weeks, then a cancer diagnosis.

Suffice to say, I had little time to grieve anything, it was get on with it and start the treatment. Everything was put on hold in terms of dealing with loss of income, loss of love and in some respects the loss of my beloved father a year earlier.

It’s only now, 18 months after diagnosis, that I am starting to mentally deal with some of the other issues going on in my life at that time.

 

How did this change you in any way? Please outline further if this has been the case.

I had no time to consider anyone or anything else really.

I was on my own and thankfully had my mum still in her own home where I could live whilst going through the treatment.

I had had a sore throat for many, many months and jokingly said to a friend “I think it’s cancer” not really believing it, turns out 6 months later I was right.

How has it changed me?

I listen to my body really closely now, I use to before, but this has made me very aware of what thoughts I have running through my head, what niggle is going on and why… it also made me realise that every second you spend worrying about some insignificant thing is wasted time.

Get on and do it and do it now. Whatever it takes.

I lost the last five kilos I couldn’t budge and then some, so that was great for me, not an ideal weight loss programme but it started me back on my fitness journey 15 kilos lighter.

I now have to learn how to eat again and for a foodie I have found this the most distressing, depressing and difficult side effect.

Food was/ is my world and I have had to retrain and rethink what that looks like now. It also made my fledgling idea about teaching culinary pursuits in a foreign country come to fruition.

 

Is there something you learned from this that you could recommend to help others who need courage?

 

You always have choices, for me, I sat with it and the implications and thought about the worst-case scenario.

I was also told by a well meaning nurse that my cancer treatment had not worked and there was nothing more they could do for me. That sort of puts things in a very stark perspective, it’s humbling and it’s frightening.

It’s also incredibly motivating when I discovered that was not the case.

Learning to manage emotions is something you also can practise and become the master.

I then figured well if that’s as bad as it gets (death / inability to function normally/ disability) then make the most of what you have now.

I also discovered that you lose “friends” along the way, whether they can’t handle the new you, or who you have become or are becoming is too hard for them I don’t know.

I have had to make an entirely new circle of friends and have reacquainted myself with ones I have not had much to do with for years.

What I can say is, you are innately very strong you just don’t know it yet.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Yes, I am doing things now that are very much out of my comfort zone, although some would say riding through Vietnam and Laos on the back of a motorbike during a typhoon is getting out of my comfort zone too, but this disease and its side affects have made me realise that everyone has a message and a story.

In many ways this disease has focused my life’s purpose, I had all the scaffolding ready but now I have the ‘reason’ to hoist the flag on top of the scaffolding.

 

Is there any message you would give to others facing a situation where courage could be needed?

Don’t spend time worrying about things that might happen, focus on the now and take it one step at a time.

There is literally  someone else worse off than you, I’d hate to be that person by the way whoever they are, I guess it’s all relative.

 

Do add anything else that you think would help others who read your post. 

 

My job as I see it now is to spend my time doing what I love, what I love is cooking and if I can help others with eating difficulties as a result of HNC and its treatment then that’s what I am going to do.

I come from a family of teachers so it is not surprising to me that ultimately, I want to use my skills to help others.

I have set up The Food Manifesto and Soup hug as a way to bring a community together that suffer from this debilitating side effect.

I like to think of myself as the food curator for dysphagia, the link between your dietitian and your kitchen.

 

What a story of resurgence here. I can say that because I did not know Yvonne until she found the friendly facebook group for Head and Neck Cancer Patients, Carers, Professionals and Families. It is here, too, where I ‘met’ another Woman of Courage Maureen whose story is here.   There is another Woman of Courage called Tara Flannery who shared about her head and neck cancer here.

And this Woman of Courage shared her story. She is Julie McCrossin AM, who is also a Community Ambassador for Beyond Five and is part of the webinar Yvonne appeared in below.

 

Thank you again Yvonne. I am so pleased you are doing all you can to be well and help others too.

This is the penultimate post in the Women of Courage series.

Denyse.

Beyond Five, where I am a Community Ambassador released this video live just before World Head and Neck Cancer Day 2020.

Please take some time to view…and see what Yvonne shares from her kitchen and share with others who may benefit.

Thank you.

Social Media Links for Yvonne:

Blog/Website:  www.thefoodmanifesto.com

Twitter: https://twitter.com/McclarenYvonne

Facebook Page: https://www.facebook.com/sustainablefoodandtravel/

Instagram: https://www.instagram.com/the_food_manifesto/?hl=en

 

On Thursdays I link here for Lovin Life with Leanne and friends.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

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