Sunday 26th June 2022

What Am I Reading/Listening To For ‘What’s On My Bookshelf’ May 2022? 33/2022.

What Am I Reading/Listening To For ‘What’s On My Bookshelf’ May 2022? 33/2022

 “What’s On Your Bookshelf?”

Thanks to Jo, Deb, Sue and Donna who host this.

What Am I Reading/Listening To Lately?

Quite a mix but then again on careful analysis, the topics and themes of my reading/listening are quite similar.

I am curious about life and its many challenges, how we age and human behaviour generally, so this is my update.

And this time round, I have included links to podcasts that are related to the books as they have been an integral part of my experience.

My reading/listening habits:

  • every day some listening is in the car thanks to Audible and any CDs I have for a book
  • every day, usually in the time between evening meal and doing to bed, I put on a podcast as I create something art-wise
  • every night, at the end of my TV/Netflix/DVD viewing or social media, I take a page or three and read it from one the books here beside my bed.
  • Comfortable with Uncertainty by Pema Chodron is SUCH a challenge but I am really softening in my acceptance and understanding. With 108 (same numbers as on a counting necklace or string in some buddhist traditions) there are 1-2 pages of tightly but well said words to challenge and take in. I first read this BEFORE my cancer diagnosis in 2017 and struggled but now, some 5 years on, coupled with my own practices, I am better attuned to the teachings.
  • Trusting the Gold by Tara Brach is a dip in and dip out little book of wisdom gleaned from her life experiences. She tells of all her perceived human failings and understanding in a self deprecating way but with self compassion. Tara’s voice is a favourite of mine from her other books which of course I have! And she is now hosting some meditations and sleep stories on Calm.

I like variety and that I can choose!

Atlas of the Heart. Brene Brown.

Atlas of the Heart.

Well..here’s the thing, I have the book, I have the Audible version and I have listened to podcasts with Brene Brown and others.

I am overwhelmed .

I thought I could tandem read and listen.

No. I thought I could just listen…not really. I think it’s partly to do with how HUGE this content is and it would be Brene herself who would admit to it.

I have become a Binge (pay tv) subscriber just to watch the series she made for US on HBO. So far, one episode in, and she is in teaching mode with an audience and I like it a lot.

I now feel over time, it will be more like a dip in and out of experience for me..and the book is freaking heavy to hold!!

Oprah’s SuperSoul:

Atlas of the Heart with Brene Brown

https://open.spotify.com/episode/0tc4spLul60Bh1eTtXOe2W?si=2L7Z7yguSiSglUlYdUIInA

Watching in Australia:

https://binge.com.au/shows/show-brene-brown-atlas-of-the-heart!14634

 

The Space Between The Stars by Indira Naidoo.

I enjoyed this book but it was not a huge new life lesson for me. The story, told eloquently by Indira, a well-known ABC Australia figure, as part love story to her sister and family, and how nature, particularly one tree in Sydney’s Botanic Gardens helped her immensely, was a light read in many ways with some great lessons for love, dying and appreciation of the green, nature and trees all around us. I admit, I saw trees differently after starting the book.

 

With The End in Mind and Listen by Dr Kathryn Mannix.

I freely admit it, I am a huge fan of Dr Mannix’s work. We have connected via social media too. Her work history as a doctor in the UK, eventually took her down the career path into palliative care and following her retirement she went onto help more people.  Now in a career helping train others and be a counsellor in CBT: Cognitive Behaviour Therapy, she IS the doctor I would love caring for me or a family member.

Whilst that cannot happen, her words, so generously share on this podcast as great indicators that the world of those who are facing end of life, and death are being cared for much better as a result of this person’s work and that of many. In no way is this work done, but the conversations (Listen is an EXCELLENT book for any challenging conversation, not all about death/sickness)

I started with these books on Audible and now have the actual copies to refer to (see my ‘post its’ and book mark! Dr Kathryn Mannix is on Facebook too.

In finding her on this podcast (highly recommend it too) I have added links to both of her chats with Andrew G Marshall.

The Meaningful Life Podcast. Andrew G Marshall

Dr Kathryn Mannix with Andrew G Marshall

With the End In Mind

https://open.spotify.com/episode/1DYFG8fc9u0RgLh6n34OV7?si=cf53d51198c644f4

The Meaningful Life

Dr Kathryn Mannix with Andrew G Marshall

Listen

https://open.spotify.com/episode/29ichQxYdBvDZt4r3M1jfj?si=78fec487852240ab

 

 

The Inner Work of Age. Shifting from Role to Soul. Dr Connie Zweig.

Now, regular readers know I am doing what I can to learn more about ageing…for me to accept the inevitabilities and to enjoy some of the riches it brings and self-discovery. I first found Dr Connie Zweig’s work by accident or maybe I was meant to…and first listened to her words via Audible. It is via a podcast with Andrew G Marshall I found her work of even greater interest and have now bought the physical book.

I will be reading it over a fairly lengthy period I think as there are activities to do to delve more deeply into the ‘inner me’. Might even be a blog post one time as well.

Role to Soul: Dr Connie Zweig with Andrew G Marshall

https://open.spotify.com/episode/5U4L77vQp5RQ6fFGwux3Ye?si=dd7025da63804196

 

Ten Steps To Nanette. Hannah Gadsby.

 

Now, I am just learning more about Hannah Gadsby through listening to her book. What a listen. And a huge number of life challenges have certainly occurred for Hannah. Rather than me share more, I have included a clip from the promotion for her show “Nanette” which is still on Netflix and explains so much about “her story” and its title. I have also included one podcast where Hannah is in conversation with Glennon Doyle.

Hannah Gadsby with Glennon Doyle

We Can Do Hard Things

https://open.spotify.com/episode/6cVlrd5mRHdx5AlFJyXRAG?si=ec00322afca64866

From Netflix:

And for this month…that’s it! Photo following is of me in front of our family room bookshelf..made by my dear husband.

What have you been reading, and/or listening to in May?

Denyse.

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Taking Stock.#5. 48/51. #LifeThisWeek. 128/2021.

Taking Stock.#5. 48/51. #LifeThisWeek. 128/2021.

This is the last taking stock  in 2021 and may not be another when in 2022.

So, as this could be the “last one” I am going to share here about my life as it is on the eve of my 72nd birthday.

And as Pema Chodron says here…..

I am grateful for all who have made a difference in my life. Not all people are represented here because I may not have had an image. So, here goes, using images to ‘match’ a word. And using my alphabetical list.

 

Admiring: those people who are the trained professionals in all allied health, surgery and more, and have cared for my health.

Becoming: a part of a family, grateful for the love, care and kindness of parents and grandparents since 1949!

Curious: about life and learning….always! 

Delighted: to meet up with on-line friends when I can.

Excited: that we will get to celebrate my birthday…..out for morning tea! It suits us both to do this…here’s a memory from 2018. If the rain stays away we will be going here again: a local nursery.

 

Feeling: that time is moving way too fast….that seems to happen after 70!

Goingto my Dad’s sometime in December to share some meals and treats. He’s certainly been the constant in my life…known me for more than 72 years!! This from my 71st birthday when I am not sure who was helping who stay on their feet. 

Helping: Head and Neck Cancer Australia as an Ambassador. I have held this volunteer role for 3 years and as I said to the CEO recently, “you got me for life“.

Imploring: people to keep an eye on anything (related to Head and Neck cancer* symptoms)  that might be not healing or increasing in pain. size and so on…and ensuring if a GP or dentist, doesn’t take it seriously, to seek out another option. *all cancers of course,  but these ones have no diagnostic tools.

Joking: No idea what was funny at Oxley lookout last year but this bloke is quite the joker….and this wife, is not always ready for his sense of humour! 

Keeping: this blog going into its 12th year is testament to my commitment but to the engagement of this blogging community even more! 

Loving: the freedom of days’ activities choice when retired. Sure, there is a routine of sorts, and yes, we get up by a certain time (not tellin’) …but no bosses!

Making: memories for me and others! By cards, photos and little albums. I love doing it too.

Next: I am too easily wanting to plan what is next yet, at the same time trying to stay in the present. The one thing for me is knowing where we will be living next year, and so far, the owners have agreed to us staying on. HOWEVER, the way real estate prices have risen here, houses in our street up by $200-300K in less than 4 years, we suspect we will get a rent rise. Sigh.

Observing: the places where I lived as a teen and older and having a deep appreciation for that time. 

 

Pleasing: to notice that I can continue to change some health habits slightly to be more health-aware in my ageing years.

Reading: the many and varied posts that YOU, my blogging friends, share here for Life This Week. We are, today, at #268 of the link up. And how I met some of my blogging friends two years ago.

Staying: on track with meditation. It will be 2 years without missing a session by end of 2021. I now do Daily Calm in the morning and another track in the evening. It still counts as one day! 

Trying: to remember all I am grateful for more than ever…not everyone gets the chance to continue living as I have post-cancer.

 

Understanding: that life is not static. Der. But sometimes when I don’t want things to change, I then remember that they change anyway so grasping to keep things are they are is not on. I have learned much about this thanks to meditation, and listening to a range of CDs from teachers of Buddhism and more. Very wise people..and we are all human. 

Viewing: old photos for this post and feeling the warmth of nostalgia but also heeding the point above! 

Welcoming: changes to Covid restrictions here in N.S.W. soon, with reduction of places where you need to sign in with QR code, and having the choice to wear a mask. We think, for now, we will continue to mask up if in a crowded shop or doctors’ surgery. Definitely needed recently at a Big Hug Box packing day. NB: hope with new strain variant, we will remain vigilent.

X- “X-tra grateful” to all of the women who shared their stories of courage. In the 3 years, more than 72 women shared their stories. Wow. I have included images of all who continue to blog and link up here fairly regularly. I “hope” I have you all in this group. Let me know, if I have missed you. 

Yes: to more plans to do ‘less’….and that sounds like a contradiction. In the meantime, here I am over decades of my life ‘doing’ what I most enjoy: connecting with those I care for and who love me. Perhaps a bit of a stretch re Former PM Julia Gillard, but she did thank me for my education roles. 

Z – Is there anyone else I need to show my gratitude and admiration for their part of my life? Yes, it’s an old image but the LOVE from this Papa to his only grandchildren cannot be surpassed. And the love we had for him is exemplified in my brother now being Papa to his 2 grandkids and that B became Papa when his eldest granddaughter couldn’t get her mouth around Grandpa, and out came “Pa-Pa” and it sure stuck.

Thank you all for reading, commenting and sharing your blog post today.

Take care,

Denyse.

 

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Life This Week. #268

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Head & Neck Cancer: “Beyond Five” Ambassadorship.2018.130.

Head & Neck Cancer:”Beyond Five” Ambassadorship.2018.130.

Last week I wrote a post called Farewell and Hello. It was pretty long so I stopped at Farewell promising to be back for Hello. Here we go!

Regular followers here know that I was diagnosed with head and neck cancer (squamous cell carcinoma) in my upper gums and under the top lip. The whole story is here, in posts, from the day I was told until the recent post on adjusting my eating requirements when I am out of the house.

Hello, I am now a Beyond Five Ambassador!

How this came about was partly after this day in October 2018 when I was back at ‘my’ hospital Chris O’Brien Lifehouse, but I had offered earlier this year if there was any way I could help spread the news about head and cancer awareness I would like to do so. I had already been sharing the work of Beyond Five here on the blog for World Head and Neck Cancer Day 2018.

Following that day, the Board of Beyond Five met, Sr Froggatt and Professor Clark are board members and Nadia Rosin is Manager, Business & Communications,  and I then received a formal letter of invitation to become a Beyond Five Ambassador.

Role of Community Ambassador

  • • Share your personal head and neck cancer story for use in Beyond Five communication e.g. website, social media portals etc.
  • • Raise awareness of Beyond Five through family, friends, other personal connections.
  • • Where possible, attend events e.g. patient support group meetings, education days to help raise awareness of Beyond Five.
  • • Support Beyond Five grant applications where relevant e.g. as a consumer representative.
  • • Provide feedback to Beyond Five to help us improve and develop the way we work.

About Beyond Five.

Background

Beyond Five was established in December 2014 and is Australia’s only not-for-profit organisation supporting patients with head and neck cancer, caregivers, family and health professionals.

Beyond Five was established to provide evidence based, comprehensive, easy to understand and easy to access information to everyone, regardless of where they live.

Beyond Five is the first organisation in Australia supporting patients and their families through their cancer journey, from diagnosis to treatment and life after cancer.

Mission

Beyond Five’s mission is to improve the quality of life of everyone affected by head and neck cancer through education and access to support and to raise awareness of head and neck cancer nationally. We are committed to working collaboratively with all specialties across Australia to achieve our mission.

 

I have joined the inaugural Ambassador, Julie McCrossin and Marty Doyle too. Their stories and mine, can now be found here on the Beyond Five site. There will be more ‘thinking time’ for my involvement and what form it may take as everyone is going to be on a break soon. We are getting together in February 2019. I look forward to helping where I can especially now I am post almost all of my cancer treatments and now in ‘check-up and check-in’ mode.

I know that I am keen and ready to help others learn more about head and neck cancer as it is not well-known. In fact I had no idea you could get squamous cell carcinoma inside your mouth (and other areas of the skin inside the head & neck region, till my day of diagnosis in May 2017.

And here we are sending Season’s Greetings.

I wish that no-one had cancer of any kind, of course, but the fact of life is we do. I want as many do, to help pay back the time and effort and research that has gone into the amazing surgeries and mouth reconstructions I had. That I can smile and eat well again is testament to the wonderful work of my team and their integration of allied professionals too. I have written posts about how many helped get me well again. Now, it’s onward….and to say I am glad to be an Ambassador for Beyond Five is an understatement. It is an honour and a privilege to be in this new role.

I want to do the role justice, and help others as I too have been helped.

Thank you to the Board of Beyond Five for entrusting me with this role as your Ambassador.

Denyse.

Joining with Sue and Leanne here for Midlife Share the Love and with Leanne here for Lovin Life link up.

 

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