Monday 13th July 2020

Self-Care Stories (#4) in COVID19 Times. 28/51 #LifeThisWeek. 56/2020.

Self-Care Stories (#4) in COVID19 Times.  28/51 #LifeThisWeek. 56/2020.

I went looking for my Self-Care Story #3 and found I did not write one! What?! No, it was because “I” decided to get another of my Telling My Story chapters published. So, even if I did not do #3, I am back to write what the latest is for me and self-care.

Self-Care: Regular Routines.

As many know, my routines post-head and neck cancer surgeries and treatments have been to help me re-connect with the world out there, socially and physically. This was something I began about 3 months post-operatively in 2017.

I was getting used to a different body. I had always hidden it as there was too much fat…my words. So, when anxiety and head and neck cancer helped me lose a lot of that fat, then I found C L O T H E S a very attractive way to spend my time…looking, trying on…and wearing.

It was a huge boost to my ego and generally to my health over all.

I coupled ‘getting dressed with purpose’ to going out for a daily coffee, where I would interact with others and despite no teeth on top for 14 months, I made friends where I went as I had conversations.

There is no way my reconstructed mouth was going to stop me talking!!

Then in 2020 Self-Care Got a Shock.

From around March, self-care the way I used to do this every day had to stop. The shock for me is that I wondered how I would deal with the restrictions that came with self-isolation, COVID-19 thank you not.

I was understanding cognitively what I had to do, like everyone else, and that was stay home most of the time and only go out for essentials. I remembered my shock as the first day of real change came because I went to my local shops for some groceries, and everything was being locked up, closed off, taped off….sad to see. Then I thought of all those people and their employment (sad) and of the people whose daily routine was to go to those shops and now they could not (sad again).

I also found, as time went on, that I needed to change my attitude and thinking about what was happening. Yes, we had a virus somewhere in the air that no-one could see or touch, and yes, it had to change the way we went about our daily lives. I recall that I got a shock/surprise at the restrictions placed upon us even to visit the chemist and the doctor. I needed time to process what was in fact, good safety measures.

Changing My Thinking During COVID19 Times Helps Self-Care.

So, over time, I built-in some new ways of integrating self-care for me with what we had and had not. These three quotes, source is in image, have probably best summed up how ‘life is now for me’.

 

Telling the Self-Care Stories in Images. March – June 2020.

How is your self-care these days?

Maybe you’d enjoy this 18 seconds…

Denyse.

Link Up #197.

Life This Week. Link Up #197.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt 29/51 Your Choice. Mine is: World Head & Neck Cancer Day. 20.7.2020

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Changes For The Good: Head & Neck Cancer & Me: Eating. 15/2020.

Changes For The Good: Head & Neck Cancer & Me: Eating. 15/2020.

Next week, I have been asked to be a patient-participant in a video being made for Beyond Five on nutrition. As many of you know I have been a Community Ambassador for Beyond Five – the Face of Head and Neck Cancer – since late 2018.

Announcement of My Ambassador Role.

I was enthusiastic to take part in this video initially…then had a small crisis of confidence (for the want of a better expression) and began doubting my relevance. I was, and still am, firmly encouraged by both the CEO of Beyond Five and my husband that I do have that quality! Thank you.

There is a back-story to this and I am going to share it briefly before making my points about the GOOD that has come for me in terms of changes from a diagnosis of Head and Neck Cancer.

Denyse and eating…before Head and Neck Cancer. 

From early days in my teens and twenties I would self-soothe with lollies, chocolate and whilst I did not over-eat significantly, I did establish a pattern of eating for comfort. None of this was ever really a secret (certainly I did not have any kind of eating disorder, for which I am grateful) but it still was something I would not admit to doing (except me) and then over time, it probably began the life-time (decades rather than all of my life!) of eating for reasons other than hunger or to nourish myself. The bigger picture (pun intended) was first written about here and then, as I became more accountable for my past behaviours around eating, I updated here. Blogging is so good for this!

The above posts show that I acknowledged my eating and what it was doing to my appearance, general well-being and health. Yet, the ‘same amount of weight’ that would come off over a few decades (3 times at least) would also go back on.

What was I missing?

  1. Probably other ways in which to see food.
  2. Or maybe the maturity (even though I was mature in years) to see through the hard yards.
  3. But maybe none of this.
  4. I think as a serial dieter/eater/non exerciser and one who ate emotionally I just did what I did.

A Breakthrough of Sorts: Not Great Though.

From 2013 onwards, I acknowledge how serious my weight had become as a result of eating and less movement when my GP challenged me to try to reduced weight or she would be sending me for a Glucose Tolerance Test as I was becoming pre-Diabetic 2 in my test results. I managed to do as asked and my weight reduced enough to see progress. Yay.

Then from 2014, my anxiety ramped up (we were about to sell our house to pay out the mortgage as I needed to stop work at almost 65), and Irritable Bowel Syndrome re-entered my life after a few decades absence. From then I found I literally could not eat as I did before without the effects of mostly explosive diarrhoea. Yes. Unpleasant and socially restrictive.

Over the time of our move to the Central Coast, and some of my emotionally challenging times to adapt to life’s transitions, this continued to be a pattern and without ‘any real effort’ my weight slowly reduced.

I did, however, raise with my doctors, that I might have had cancer. I did look pretty gaunt. No, they said. OK. I did feel anxious almost all the time.

My Diagnosis of a Rare Oral Cancer: 17 May 2017, and How That Changed Me.

My story is told here on this page: Head and Neck Cancer.

This is a little reminder for me of what I went through back then. I was told on 18 May 2017 that where my cancer was located (upper gums and under top lip) I would require a compete removal of the top half of my mouth. THAT took a while for me to get over, in terms of the shock. Then I went home with my husband and thoughts raced in my mind. One was, if this is making me stressed, then how can I self-soothe or calm if my well-ingrained practices had been to eat something sweet, salty, crunchy or whatever. It was a rhetorical question. I had 7 weeks to wait for surgery and I was so anxious, eating was not high on my list.

Early Days And Getting Hangry! 

Following my 11 hour surgery, 3 days in ICU I was transferred to a room at Chris O’Brien Lifehouse and added to the regime of drips was, via my naso-gastric tube,  some nutrition. The liquid kind. It was, for me, yucky but in one way that was my aversion to milk-type drinks. However, as each feed slowly dripped into my very, very empty stomach I had to change my attitude towards this feed. I started by telling myself “it is healing me and nourishing me” as I get well. I know I was going well as each time my professional team dropped by, they told me so. BUT…even when I finally got to try to oh so good nectar of WATER orally, I began to feel hangry (cranky when hungry!). By Day 8 I was allowed some clear fluids. Hallelujah. Broth, jelly, and then over time until my day of departure: Day 10 a few more soft food choices. No teeth, except for 8 bottom ones AND a very stitch-filled mouth!

And then I Came Home. Lots of Eating Ahead? Maybe.

Before I left hospital I was visited by the dietitian who was incredibly helpful with guidelines for me, and offers of samples of food-in-a-bottle and that she would follow up my progress at home via phone calls. I remember her words “now, you need to put on weight”. WHAT? No-one ever had told me that. It was a complete revolution in terms of instruction. I now know that yes, head and neck cancer patients need to keep weight on but no-one has ever really revealed why. Note to self: ask at next visit to my team.

My return to eating caused a great deal of distress in me because diarrhoea came back with fury as my emptied stomach  rebelled with a strong anti-biotic inside. I did not, as I thought I had to do, follow the dietitian’s advice but that of my local GP who had already seen me through diagnosis and now post-operatively. His words were “eat what you are up to and can keep you going.” Drink water as much as you can. With that, I did share the news with the dietitian when she called and I appreciated her services on offer but has to do this ‘my way.’

What I Did Then. 

My mouth did restrict my intake of food but I learned to adapt and seek foods that were both nourishing and pleasurable in texture/ taste. Mind you, my reconstructed mouth was quite a barrier to a variety of tastes but it was important for me psychologically to eat normal food. But also the words from the dietitian echoed and to “add value to food”. This meant a tiny lemon cupcake would have some dairy added to it: yoghurt, custard, ice cream. I became well-versed in the inner conversations re “fun to eat but also eat to heal”.

None of this food preparation or meal decisions came really easily and it required patience on my behalf as I was normally the meal-maker and my right leg’s giving up of its fibula, skin and flesh for my mouth, meant I could not stand for long…nor did I have much energy. But, my patient husband (and then full-time carer including grocery shopper) would help me as he could. I might not have been able to bite into some vegemite toast but I could savour the flavour and add some slices of avocado for nourishment. There are posts here, and  here about eating in those days.

Before I became affected by the anti-biotic, this was what I ‘could’ eat. Soft, slippery and full fat foods.

And Over Time, I Made Changes as My Mouth Healed. 

From July 2017 until August 2018 I had only 8 teeth in my mouth. It is amazing however, that humans can adapt! Mind you, I also add, THIS human had to become creative in her eating as boredom set in quickly and a sense of resentment about what head and neck cancer brought to my now lifestyle. I did make the effort to feel more grateful and appreciative of all that had been done for me. There were 3 more surgeries too, inside my mouth, to prepare it for an upper prosthesis of teeth.

Creativity included:

  • value adding to sweet foods like small cakes which were easy to swallow AND made me feel less deprived
  • making up some small plates of foods that would have me feeling like I was not missing out
  • inventing dishes for me: crustless pies, taco-less tacos
  • finding more and more ways with mince. Thank you to my A/Prof who advised mince would be a good food and my iron levels did slightly improve
  • allowing foods like small pieces of milk chocolate to melt on my tongue
  • iceblocks and paddlepops eaten with a spoon – my mouth did and still does love cold

Weight Was Good  Healthy…. Then I Got Teeth!

Notice my crossing out of good.

This is a judgement I have made like many over many years about eating. I now see, and have learned to see that my weight can be HEALTHY even if the numbers have increased. I was incredibly excited to get the upper prosthesis attached permanently to the abutments in my jaw. I remember fantasising about crunching food, chewing food and more. Well….that is what it was… a fantasy.

A reconstructed mouth is a blessing alright in terms of appearance and function for sure. But it does not do all that my mouth could do, so again, I have needed to adapt.

Adaptation took some tearful routes where my disappointment in not being able to eat something was palpable. I know I tried various foods including crunchy chips and they were/are a huge disappointment as they sting inside my newly re-skinned mouth and I could not swallow them. Onward to crunching into a piece of apple. Actually no. But I can eat small pieces or even better if I grate it.

I could add many more adaptations and they will form a new post in the future.

What I want to write about now is my weight, self-images and stories that can be untrue.

Changes in Me For the Good. Health and Head and Neck Cancer.

From August 2018 until February 2019 my weight from the rather steady figure of around 69kg increased by around 5 kg. I could feel it but I also LOVED feeling well and having more food choices. I was somewhat disappointed for a bit that some of my clothes were more snug…then I said to myself “that was because you could not eat much nor as well as you can now”. It was to be an on-going inner conversation (of self-judgement) for a while.

When I realised what I looked like (one aspect of me) was HEALTHY I began to accept that this was a good thing.

  • In fact, I knew it was. I did however let the old weight-centred thoughts creep back.
  • I started to believe I might get back to the much more heavy person I had been in 2013-14.
  • I was scared but the clothes and the scales did not lie. I stayed around the same.
  • For many months, and now it’s a year. It has not happened.
  • In fact, I am a little less on the scales than a year ago.
  • I use my clothes now as a measure of how I am going.
  • Very steadily and the scales are used rarely but they are telling me what I feel it true. So, no more stories!

My Appearance on the Beyond Five Video on Nutrition.

I now look forward to helping present the patient’s perspective on what I have learned personally about nutrition and how to nourish my soul as well as my stomach and mouth. I can honestly say I eat for both pleasure and health yet in a different way from any other time in my life.

This is why I am grateful for my diagnosis of head and neck cancer.

I have learned to sooth myself through meditation, talking with my husband, using my journal, art and going out for coffee. This is one important strategy in my every day self care. In fact, the more I self care, the less I even think of a need to soothe with food. How grateful I am for that.

Each time I go out, or plan a meal or snack at home I often have to re-think from the old familiar paths of pre- head and neck cancer.

  • Quantities are very different. That’s fine.
  • I make mall dishes I can freeze.
  • I carry small packs of biscuits in my bag to have with a coffee.
  • I know too that I can manage certain soft sweet foods with my coffee and will often ask for a bag to take half home.
  • I have still not ventured out for a ‘real meal’ but neither of us are that interested.
  • We had had lunch with family and entertained here.
  • I am less self-conscious of my eating these days.
  • I do always have a small bottle of water nearby.

 

I Am Going Well! 

This is my stock standard answer when I am asked how I am. It’s true. I am indeed. I am glad to have seen the good that head and neck cancer has been for me and my eating. This is me on Thursday 20 February enjoying being back near the water after attending the Central Coast Head and Neck Cancer Group Meeting..and catching a treat of a small iced cupcake with a coffee on the way home.

There will be some updates after the making of this video but already, just writing out what was making me feel less than my normal confident has done me good.

Onward!

Denyse.

 

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Self-Care Stories. #1. 7/51 #LifeThisWeek. 13/2020.

Self-Care Stories. #1. 7/51 #LifeThisWeek. 13/2020.

 

Welcome to the first in the series for 2020.

This optional prompt pops up every 7 weeks or so.

Today here’s mine!

Before kicking off: I have made two changes to my daily routine which is helping me:

One is to consider what I am grateful for each day. I tend to think about something or someone through the day and by even thinking that way I notice a change within. I blogged about it here. I am doing an instagram post each day here: @denysewhelan_blogs and no longer have my account private. I still have @denysewhelan going and no longer private...look at me taking a risk

Two is I am listening to Calm meditation app twice a day. One session, the Daily Calm, before I get up from bed and last thing at night a session of whatever I need at the moment. I have just listened to 10 or so day of “relationship with self.”. Calm is free initially and then you can decided to buy. I got a lifetime price as a bargain in 2018 and am never sick of it. Sleep stories are ace too on nights when I am less than sleep-ready.

What Have I Been Doing?

  1. remembering to follow my daily routine: get up, have breakfast, get dressed and go somewhere for a coffee….come home, blog, read, relax, cook, sleep…
  2. this was, for the most part, pretty well kept.
  3. however and it may have been something that affected others too, I became more anxious than usual when we had extremes of threats:
  • Bushfires
  • More fires
  • High temperatures
  • Continued fires
  • And then it rained.
  • Rainfall was excessive in some places and caused:
  • Flooding
  • Electricity to be cut
  • And NONE of this directly affected me.
  • Mmmmmm.
  • so I was most fortunate to have an in-house counsellor (aka my husband) but also that my previous years of learning how to self-care via means at my disposal actually helped..a great deal.
  • but being an avid follower of social media there were signs that my emotional health was being impacted when I stayed on news and updates for fires/disaster sites for long periods.
  • I realised even before I was “told” by my husband to stop. That was a good self-care measure in itself.

 

Why Have I Needed to Do This?

  1. I know I thrive on being informed and also caring about and for others….BUT there has to be a limit placed.
  2. I do this now by asking myself “what is it I can do that will help this person/those people etc?” If there is nothing really, I do send out a message of empathy where it’s appropriate and I might even do this.
  3. The loving kindness messages are always a way for me to feel a greater connection with others.
  4. I recalled with some hyped and stressed memories of the 5 days of the 2015 East Coast Low when we first moved to the Central Coast and I needed to talk a few of those memories through.
  5. Once I had done that I also knew I am in (and still am in) a much better headspace some 5 years later thanks to all the work I have done to achieve greater emotional health.

Loving Kindness (Metta) can be said silently for yourself, for another or for many. These words above are just one group.

How Do I Integrate This Into My Life?

  1. I continue to follow my routine as much as possible allowing for days (there were a couple!) where to go out of the house meant to be on unsafe roads in flooding rains so I stayed home
  2. I managed to fill in those particular days with little and varied projects of mine.
  3. I automatically come to my art desk when I need to zone out and concentrate on ONE thing and that worked well. In fact it has been something I have done before as well.
  4. I love the variety of activities I now have at my disposal and made use of exploring more of the media too.
  5. My husband was well-occupied with his in-house hobbies and some cabinet making in the garage so with no power lost, we really did well!

 

Afterwards. Onwards.

  1. Self-care is on-going and it can change in its focus for me, depending on how I am.
  2. This week (in fact today!) I am at Westmead seeing my prosthodontist for an update on my upper mouth. I used to get quite stressed about these visits “what will he see that I cannot” and last week I said “STOP”.
  3. I had been living in fear that had no justification.
  4. It was shifting the relaxed mood in our house (and relationship) to tense because I was experiencing some mouth pain (it IS always there, it just seemed worse)
  5. I changed how I approached the pain. I stopped focussing on it by not mentioning it. I also took panadol as instructed.
  6. Self-care is pretty well an on-going matter and recently on Bev Aisbett’s Facebook page (Living with “IT” Anxiety) she posted this, with permission to share:

Recently I took this selfie looking back to  Norah Head Lighthouse in the background, the huge seas reaching the shore…to remind me of how well I am, grateful for all in my life and how far I have come. More to come too, of course!

How is your self-care going?

What do you notice if you are not keeping up your self-care practices?

I look forward to catching up with the comments after I am back from Westmead!

Denyse.

Link Up 176.

Link Up #176. Life This Week.

You can link up something old or new, just come on in.

* Please add just ONE post each week!

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to by leaving a comment because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar.

*Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 8/51 Unusual 23/2/2020

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How Am I Grateful? 2/2020.

How Am I Grateful? 2/2020.

It’s an interesting question!

One I find hard to answer in summary except that I will do what I can here now!

In the first blog post of 2020 I wrote this:

It was a long read…which I did intersperse with photos to illustrate my message – teacher-me!

However, I know that for some gratitude seems ‘oh so on trend’ and what might be next.

Well, I am going to say whilst I do not mind being up with the trends, gratitude has been around for far longer than I have…and any other influencer..(joke).

And gratitude, just like any mindful practice does need to be practised and noticed and felt. Every Day.

 

But what about this? 

As I write this post, it’s Saturday 4 January 2020 when it seems more than I can imagine of Australia is burning. Fires are consuming towns, rainforests, fields, mountains, grassy slopes and all in its path. That path has included a number of people (some not yet accounted for), hundreds of dwellings, millions of animals and more. It is 43 degrees outside here and around 3 streets away the power is out. So far our house is not affected and the air-con is running.

I do not find this a comfortable place to be in my mind and in my body. I made this meme ages ago to remind me that this is what I have to do. If I cannot, then I am fighting an unwinnable fight.

How on earth do I ‘sit with this?’

  • I noticed that my mind was starting to go down the path of ‘what ifs’ and ‘o. m. g.’ and my body started to tighten.
  • I felt teary and a little out of control of my emotions.
  • I knew that I could cry, tell my husband, seek answers to the unanswerable….but what then?

So, I took notice of my mind and body’s signals and did a few things I know that can help.

  • I am better when I am just painting some lines or strokes…on a page…it seems that in itself for me that is calming
  • I did just that on a large page
  • I came here, to share some of my words. The blog is good for that!
  • I told myself that it is OK to feel scared as these times are frightening
  • However, I also told myself that the evidence is here that I am safe, well and cool.

Strategies which work(ed). For me.

I have just told my husband – the one who would have had to help me through in the past – and of course he is pleased I can see life and its challenges better these days. I am grateful that he was patient enough in the past years to help me see/feel/be grateful even when I had no real idea.

Now, I feel better physically.

I will do some more art.

In fact, I used some of that energy I needed to dissipate and cooked some meals for me, my husband and dad.

And I will realised that I can send out loving kindness messages to people who really are doing it tough today, no matter where they are.

I am grateful that I know this practice and it works for me too.

For you! And you too….sending loving kindness.

I now know, it is not about ‘the actual words’ but the intent. The sharing of our messages of well-being, hope and love for each other.

The human connections.

What are you grateful for today…and every day?

Denyse.

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends and on Fridays, it’s Open Slather here with Alicia.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

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Self-Care Stories #7 48/51 #LifeThisWeek.117/2019.

Self-Care Stories #7 48/51 #LifeThisWeek.117/2019.

Dear Readers,

We have finished the series for 2019 for Self-Care. However, “I” know how much it means to me to continue the practice of caring for the self…and so it will return as a regular prompt in 2020.

 

My approach for self-care in recent weeks.

Daily. Every Day.

I’ve long been the fan of my morning ritual of:

  • dress with purpose
  • go out to a coffee shop, shopping centre, cafe….
  • order my small, latte, double shot in a glass…..
  • open my current art journal and see where I am at..or what I want to share today
  • and often have two of these little biscuits

IF I do not get to do this because of being unwell or in Sydney for an appointment I really, really miss it so as best as I can, it’s the next day for me.

About the journal.

  • all pages are art-paper – heavy-ish quality
  • all are blank
  • sometimes I prep a page layout with paint at home
  • I write a bit
  • I might add a list- for example, what went well
  • I write to get stuff out…usually helpful and always something I need to do and work on
  •  I add in little patterns and designs
  • I make one if these little babies last me about 2-3 months if I can because they are expensive
  • I used a changing range of unipin black pen (0.5 or 0.8) for writing, outlining and some mixed media for colour

Something to read.

Only recently, when I found this little book, have I read something in this special self care time. This book has given me so many insights and I find myself nodding in agreement. It has confirmed lots of what I have been learning in these recent years and it’s done in such a great, easy-to-follow way.

Author: Ashley Davis Bush

This excerpt is from: Enjoy Your Non-Toothache.

The wise Vietnamese spiritual leader Thich Nhat Hanh talks about gaining inner peace via the path of noticing what you don’t have. His classic is to enjoy your “non-toothache”. If you’ve ever had toothache you will know (as I do well!) it causes a bit of pain..ok, a lot of pain. All you do when you have it is notice it, thinking about it…..you’d give anything not to have a toothache.

However when the toothache is gone, you quickly forget about the pain and immediately begin to focus on other issues or concerns.

For this equanimity practice write a list of ten things that, for today, you are currently NOT experiencing, but would definitely be unpleasant if you were. In other words, write a list of “it could be worse” items.

The author’s list:

  1. I enjoy not being homeless
  2. I enjoy not being in hospital
  3. I enjoy not vomiting
  4. I enjoy not have a migraine
  5. I enjoy not declaring bankruptcy
  6. I enjoy not going blind
  7. I enjoy not being caught outside in a blizzard
  8. I enjoy not losing my electricity
  9. I enjoy my car not having a flat tyre
  10. I enjoy not having a serious illness.

Here’s my list as of time of writing

  1. I enjoy not being in pain
  2. I enjoy not being employed as a principal
  3. I enjoy not being worried about my job
  4. I enjoy not have issues with IBS today
  5. I enjoy not having a deadline for anything
  6. I enjoy not needing to do Christmas shopping
  7. I am really enjoying not having to prepare family meals each night
  8. I am enjoying not feeling pressured for any reason to be anywhere
  9. I am enjoying not being in treatment for head and neck cancer
  10. I am enjoying not being in debt

How is your self-care?

Meeting up with friends is a really important part of my self-care and I am so glad to have people I know to do so!

On  a recent Monday Kirsty  and I met for coffee and a good old catch up. Kirsty is one busy lady and I am glad to see her role helping educators and parents better understand kids with special needs is taking off. Kirsty can be found here.

 

Sanch and I caught up recently when we met for coffee! Wishing my blogging friend all the best in her new job AND new place of living.  Her blog is here. I shall miss her presence in my life on the Central Coast! I am sure we will catch up again though!!

Excellent Self-Care on 18 November with Sanch!

Self-caring and sharing with my blogging & social media friends recently for my 70th Birthday! 

L-R. Me, Sam, Veronica, Grace & Kimba

 

I hope your self-care is going well!

Tell me more in the comments.

Denyse.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next Week’s optional prompt is: 49/51 Taking Stock #5 9/12/19

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Self-Care Stories #6. 42/51#LifeThisWeek. 105/2019.

Self-Care Stories #6. 42/51#LifeThisWeek. 105/2019.

In the past of this series I have written about daily routines, helpful strategies and learning about self-care for me. I have referenced people who have helped me in my quest. Some of my posts can be found here, here and here.

This week’s is different.

Read on to see why.

Where Do I Start?

Not at the beginning in this case! I start with what I think was/is for me a big issue in terms of self-care.

Believing the stories I am telling myself even when there is no evidence nor reason.

What Do I Mean By That?

I’ve been making big progress in terms of my on-going wellness physically and emotionally, particularly related to head and neck cancer, and in every day life practices ….or so I thought until last week.

On Wednesday last week I had the worst headache I had ever experienced since getting migraines waaay back in my 30s and 40s. I woke with it and it was unrelenting. I ended up, most unusually for me, vomiting once. I did not want to eat, felt nauseous, nothing appealed and I spent a miserable night tossing and turning because “I was making up so many stories about what I HAD DONE to cause this to MYSELF”

On Thursday it has settled more but my mind continued to play that above “rubbish” in my head. In fact, my husband and a friend said “maybe you have a virus, or even the flu”. No, not me. I couldn’t accept that. Again….”what did I do to get this?”

On Friday, bit better but not right 100%, another example of my story-telling which came to mind. When I felt I needed to use a toilet quickly because of symptoms of IBS. I “blamed” my inability to manage my emotions and spoke to myself harshly. I won’t repeat the words.

but by the end of that Friday I was so, so ready to

SHUT

THAT

VOICE

UP

and then this is what happened.

  • I felt the feelings and did not like them but I did know why they stayed.
  • I had felt ashamed to admit my health vulnerabilities.
  • I used to think I did have something wrong (and that is true) but until I had a diagnosis from my GP or someone with a medical qualification I hid behind my stress.
  • It has been like this for me probably since I was young. No-one (as I see it) in the 1950s and 1960s brought their kids up to speak of emotions and be able to be heard. In fact, I don’t think our generation did a good job either. We may have been more understanding but I guess “we wanted a happy, not crying kid” too.
  • I made an appointment to see my GP next week. I then examined how my physical symptoms were and they matched either a virus or a form of the flu. At the time of writing they are still there but I am managing them better.
  • I chose to treat myself with compassion.
  • I told myself I had not CAUSED anything to happen. I relaxed and took care of myself with food and water and kind inner conversation.
  • But wait, there is more.
  • You see, the old old issue for me of shame and embarrassment around my bowel habits continued to be one where I took myself to task often. Add to this a rectocele I also need to manage and I started to ‘hate needing to go to the toilet or find one wherever I was’ and I blamed me.
  • I knew though that I needed to change that darned voice and SOON.
  • I did.
  • I wrote about it. In my on-line journal. It also helped to read it aloud to my husband.
  • It relieved my stress to such a level by that Friday night and into Saturday (time of writing) I have been:

A very pleasant person to be and to live with.

What a significant self-care story this turned out to be.

But of course, you just can’t turn a belief on its head like that…because our minds like to play with us.

IF I had not already done a lot of self-education about self-compassion, having courage and learning from Brene Brown, Kristin Neff and My Calm Meditation AND all the courses I have done, including seeing a psychologist ….and having a trained counsellor husband who has, ahem, talked me down from quite few heights of emotion…then I could not have done this.

Owning our story can be hard but not nearly as difficult as spending our lives running from it. Embracing our vulnerabilities is risky but not nearly as dangerous as giving up on love and belonging and joy—the experiences that make us the most vulnerable. Only when we are brave enough to explore the darkness will we discover the infinite power of our light.”

Brené Brown, The Gifts of Imperfection

Self-compassion involves acting the same way towards yourself when you are having a difficult time, fail, or notice something you don’t like about yourself. Instead of just ignoring your pain with a “stiff upper lip” mentality, you stop to tell yourself “this is really difficult right now,” how can I comfort and care for myself in this moment?

Kristin Neff, Self-Compassion.

So, I thank you for reading this far. I have felt a bit vulnerable in owning up to what was keeping me stressed in some areas of my physical health but I have done it.

Two images with quotes which have helped me grow as a person are shared here:

Denyse.

P.S. The story does not stop here. No. Unless I continue to practise and recognise my self-care and compassion, then my negative/default mind (it’s how all of our brains operate) will revert pretty darned smart. So, I will return to this book, where I began completing the pages. Sometimes it IS hard to look at yourself with a reality check. But I know this helps me. Onward….and away from old thoughts, memories of shame and embarrassment.

This is the book I use.

 

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next Week’s optional prompt is: 43/51 Your Favourite Book As a Child 28/10/19

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Self-Care: Share Your Story #5. 34/51 #LifeThisWeek. 89/2019.

Self-Care: Share Your Story #5. 34/51 #LifeThisWeek. 89/2019.

The past few weeks have been less about self-care and more about caring what others think and say.

I “know” that is not the ideal way to live my life going forward but in some ways I think it’s connected with a major life-experience which was about to occur at this time of year in 2002. I wrote about it here. I get to this time of year and ask myself ‘what’s wrong?’ when I have nothing much happening to make me feel a little less confident and emotional. Then I look at the date. So, knowing this helps and it reminds me to accept that I still have sad feelings about how I had to walk away from my principal’s role but that I also got on with my life as best as I could once the first 12 months of being treated for the effects had helped.

I have written about this in a series of posts last September if you would like to read them.

September Stories 1. September Stories 2. September Stories 3. September Stories 4.

I also used my story for my Women of Courage post, here.

Self-Care and What It Looks Like Now For Me.

Appreciation For The Support & Love. Moving On.

 

Doing this more. Getting Outside.

 

If I do not care for my mouth and prosthesis properly then I am not self-caring for my physical health. My daily routine.

 

This was something different. Very small pizza, takeaway. Two meals! Worth it? Not really but I gave it go.

 

Using some of my me-time for creating and liking the results.

 

My daily coffee, treat and using my mini art journal. Getting out every.single.day. whether I feel like it or not IS the best self-care I have.

 

Letting others know of my appreciation for them. Self-care is shared.

 

This was important to me from a self-care and love viewpoint. Top images this year, bottom ones a year ago. I was so pleased, despite some weight gain (with teeth!) I could still wear the clothes.

So I found some examples in the end. Thank goodness. I haven’t really lost the ability to self-care, it’s just a blip in the progress I am making and I am honest enough to share the reasons as I see why.

How is your self-care going?

What’s your best tip for when you are least feeling like being self-caring?

Denyse.

 

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

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Confidence is. 19/51.#LifeThisWeek. 50/2019.

Confidence is. 19/51.#LifeThisWeek. 50/2019.

I have TOO many “C” words on my mind. I have: cancer, confidence, contentment, courage….and YES, I write a post based on confidence rather than contentment…so, given it’s optional prompts here, I shall leave as is! Who gets her own prompt incorrect? Me! More on my mind that I thought. 

There is a part of me that is ‘fake it till you make it’ in terms of my outgoingness (is that word?) because I seem to be able to join in or initiate conversations with people I do not know or those I am getting to know.

Yet, behind this, can be a very self-critical voice telling me all kinds of nonsense and back in February 2019 I wrote here about the Big C(onfidence) and Me.

By the time I finished that post, I came up with this. I have re-written it here, with comments/photos, to indicate I now think I know for me, what:

Confidence IS.

From February 2019:

I know that putting these words here has helped me see that it’s my faulty thinking that has been affecting my self-confidence.

OK! How to change that?

  • Already I have in some ways as I now recognise this inner critic voice and her role.

 

  • My actions, my words and my inner life help me remember MUCH more about the confidence I like to have and know I can bring more to the fore.

Having fun smiling at my husband after his daily photo-taking of me for social media

  • Each time I dress and go out for coffee, I am embedding self-confidence.

 

  • My daily journal keeping can continue to be a ‘write it all down’ place and then review for evidence of this confidence tracking upwards not the downwards the inner critic can believe.

Out for a coffee, reviewing my new Ambassador role and journalling….

 

  • My on-line interactions with people from my various communities in education, blogging and head and neck cancer are ways in which I grow my self-confidence and also give back to others where I can and it is asked for.

Stopping to take Autumn tree photos and including me now!

  • Seeing myself as others do and may. It helps to believe that I am both good and doing good. This is something I have struggled with all of my life and want it to change. I can do this. I will remind myself more.

 

  • Maintaining practices of:

 

  • being in nature,
  • time-outs with my art journal,
  • chats with my husband, meditation each night,
  • helping my physical body to relax,
  • exercising within my limitations,
  • planning to eat well and doing the same without any deprivation,
  • cancer checks and better understanding of the fact that cancer actually never leaves but might take a back seat in my life,
  • taking time to make contact with family and friends,
  • exploring the local area’s beauty,
  • browsing at the shops,
  • reading,
  • keeping to a timetable of sorts each day for balance in my life.

Already I feel better!

Now “that” for me is Confidence!

I have days when I am ‘not as confident as I like’ but they are far fewer now.

Something to note for this week and next: as you read this on Monday morning 13 May I will be sitting in the prosthodontist’s chair  at Westmead after a few months without seeing him and H O P I N G all will be well inside my mouth. Then on Friday 17 May I will remember it was 2 years ago I heard from the oral surgeon that cancer was found in my gums…onto Tuesday 21 May and I am attending a meeting at Beyond Five as part of my new Ambassador role and then, drum roll…..seeing my head and neck surgeon for my 3 month (2 years done!) cancer check. Whilst I look forward to all of these events I do not know the outcomes so a little bit of unease can form yet I am confident in myself to deal with whatever comes up and to know I am in the best care possible. 

What about you?

Denyse.

Linking here on Mondays with Kell for Mummy Mondays.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next week’s optional prompt: 20/51.  Share Your Snaps.

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