My Head & Neck Cancer 1st Anniversary. Pt 2. 2018.46.
I recently wrote Part One of the Anniversary of my cancer diagnosis here.
The second part is actually a bit harder to write.
I am grateful of course for my cancer being taken via surgery but I seriously had no idea that to recover and be implant-ready would be up to and well over a 12 month period. This is because, as I understand it, bodies heal in different ways and react like that too. I also know that this mouth reconstruction of mine necessitates a lot of work by the multi-disciplinary team of medical, allied health and dental experts.
I am ever-grateful for this team.

With Prof Clark & Cate Froggatt, Clinical Nurse Consultant & Surgical Assistant
I know that my Professor Jonathan Clark leads the Head & Neck team and he is also working with the training of other doctors just as he learned as a resident with the late Professor Chris O’Brien at Royal Prince Alfred (RPA) Hospital. From the Westmead Oral Sciences comes my Prosthodonist, Dr Suhas Deshpande and his colleagues including Dr David Leinkram & Dr Matthew McLachlan. Dr Deshpande’s Nurse, Ofelia has seen me through some emotional times and is a very kind person. Norma at the reception desk at Westmead Oral Sciences always has a smile for me and a welcome that’s bright.
- With Dr Deshpande: prosthodontist
- With Ofelia
- With Dr McLachlan & Dr D.
Associate Professor Ardalan Ebrahimi was the first person I saw on May 18 2017 and who examined me and put together, along with Professor Clark what would be my BIG surgery in July 2017. A/Prof Ebrahimi was kind enough to respond to my 2 detailed emails pre-surgery and saw me post-surgery in 2017 along with Justine Oates Head and Neck Nurse Practitioner who re-dressed my wounds and ensured continuity of care once we were back home on the Central Coast.
In my 10 days post Surgery #1, I was cared for by a number of professional nursing staff firstly in ICU with Dr Tim then on Level 9 North of Chris O’Brien Lifehouse where Jason was the NUM. I will single out registered nurse Roan as he cared for me most early mornings and made sure I got out of bed to get some sunrise shots!
- Sunrise over Sydney from my room.
- First sips of water!
- In the boot…made for walking.
From the Head and Neck team who were part of my first surgery was a team of doctors including Dr Laura Wang & Dr Rahaul Jayaram who saw me most days in hospital. Allied professional staff at Chris O’Brien Lifehouse were physiotherapist Leah ensured I could walk post July surgery after fitting my right leg with the boot, dietitian Jacqueline gave me lots of guidance for eating post mouth surgery and the speech therapist Emma made me drink a cup of water (ahh!) and speak ( not a hard task given my propensity to talking!) to ensure I was going well before leaving Chris O’Brien Lifehouse last July.
I thank the wonderful anaesthetists and anaesthetic nurses who ensured not only that I went to sleep but that I woke up with no dramas. One was Dr Murray Stoken and another is Dr Paul Goonan. On 16 May I was cared for by Dr Stephanie McInnes.
Of course I have the excellent and fabulous Cate Froggat, my Clinical Nurse Consultant & Surgical Assistant who is the gentle and smiling person looking out for me in the operating theatre and in post-op consultations.
How could I not mention Julie and Priscilla…a hug and smile each time I see them, those who keep all of us seeing Professor Clark organised with compassion and care.
Once I was home, as I have outlined before, I was also in the care of the Central Coast Public Health Community Nursing Team for around 2 months and Eileen was amazing with her knowledge and advice.
- I admit I could not look but B took pics for progress & reassurance.
- Getting better…
- And, no more nursing care after 11 weeks
My dentist Dr Alistair Brown saw me for a mouth check last October and to clean the remaining ((and oh so important to me) 8 bottom teeth. He was the person who initially referred me to Dr Stef Calladine, oral surgeon, who did the biopsy last May and broke the news to me over the phone that I had squamous cell carcinoma. I will always be grateful for her caring manner and more importantly for referring me to a place I had heard of called Chris O’Brien Lifehouse and to a specialist I had not, Prof Clark.
- The late Prof Chris O’Brien.
- Chris O’Brien Lifehouse. Missenden Rd Camperdown.
- Inside COBLH..from Level 2 where I see my H&N team
My GP. Dr Owen Greene. What a caring and understanding man he is. I saw him sometimes up to 4 times in a week when I was recovering from BIG surgery #1. He reassured, he checked on me and he continues to do so, letting me know you are doing really well. His office staff and pathology people ask how I am going too. If I pop into the chemist next door, Tim the pharmacist is always asking how I am going too.
- My first visit to the Dr – post surgery.
- With my GP
There are those that I cannot mention all by name but have been integral to my diagnosis, surgeries and recovery times:
- staff at the various Imaging places in Sydney and on the Central Coast
- staff at the Admissions Desk and Pre-Surgery Desk at Chris O’Brien Lifehouse
- the nursing staff pre- and post-op in the recovery areas
- my psychologist from the READ clinic in Erina saw me a couple of times and was most kind in her assertion that I was doing well without any more need for her services.
- the social media account for Chris O’Brien Lifehouse @chris_obrien_lifehouse & the art programs at COBLH @arterieatlifehouse (Instagram)
- those lovely people who welcome me to their coffee shops like Randa at Fibonacci Wyong and ask after me, along with my fabulous hairdresser Tiffany, our great podiatrist Sean who came to the house to treat me when it was easier for me, and our Property Manager, Naomi, who was delighted to see me recently. Kyla who makes the most delicious cupcakes always asks how I am going when we catch up. In fact, I won a generous voucher recently and as cupcakes are something I CAN eat, this is just the best!
- the Beyond Five Organisation: Nadia for her reaching out for me to help with publication of my story written by Kirsty. Check my photos here to see the fundraising ribbons. World Head and Neck Cancer Day in July 27. I wear my ribbon and blog about Head and Neck cancer because not many people know about this cancer. I do now!
- With Naomi from our real estate
- With Tiffany – so happy to find her! She ‘gets’ my hair. She is having a baby so I “may” have to find another hairdresser!
- Pondering the next steps
- Double shot!
- My view most Sundays (not always a man there!)
- Off to Dr Deshpande at Westmead. Mon 28.5.18.
- Beyond Five: ribbon to support Head & Neck Cancer.
- Proud to wear my H&N cancer ribbon.
- I wear this to remember I AM!
- Kyla at her Cakes By Kyla shop in Gosford
- Grateful: always to everyone here! Me: pre 4th surgery!
Then definitely NOT last nor least are my friends and family. Those who connect on-line too. My blogging friends, my instagram friends and those from Facebook and Twitter. I love connecting! To know of so much love, concern and care being out there for me after the diagnosis and through recovery in the year it’s been is marvellous. Thank you for reading my posts, checking out my Instagram pics and ‘liking’ the blog Facebook page.
Each day in 2018 I made a commitment to myself to do at least these three each day:
- get dressed in an #outfitoftheday and go out – for a coffee, a browse, a shop or just to look at a view
- go into nature or observe nature and then capture this in a photo
- make something creative, be it a mandala or a pattern or just so art fun.
- Progress in Mandalas I make
- This is the way I try to live now
- Patterns are mindful
- The week before #4 surgery
- Beach walking pre #4 surgery
- Post #3 surgery. Yes, I even dressed up & went out like this. I was not going to miss my coffee!
I cannot single any one person out from family and friends….other than this person:
My husband. There for everything for me. Always. Love IS what keeps us together…and has done for over 47 years.
Sending everyone my love and gratitude.
Denyse.
On Tuesday this posts links with Kylie here
On Wednesday this post links with Sue and Leanne here
On Thursday this post links with Leanne here.
Your Comments Are Appreciated & Read by Denyse Who Always Replies.