Wednesday 2nd December 2020

Healthy. 39/51. #LifeThisWeek. 78/2020.

Healthy. 39/51. #LifeThisWeek. 78/2020.

When I was blogging more frequently, health and mindfulness were a category for blog posts. These days, like many, my posts are limited to twice a week.

This is good for my health in some ways as I am not feeling too much pressure to perform, aka write posts, and can enjoy the writing of the two I do more.

About Me.

  • Being healthy is a relatively new idea for me…I was raised to be healthy and was…I am talking about lifestyle & choices
  • For many years I balanced my life …in a not so good way…with eating for comfort and doing less as I was quite worn out by life
  • I knew limited ways in which to care for myself because…as many do…I was too busy caring for others: at work, and in my family life.
  • I do much much better now in the self-care and health stakes as I have learned much in my years living following head and neck cancer.

Then I Was Diagnosed With Cancer.

Those who have followed me before and since this diagnosis know that I found out I had a head and neck cancer, specifically squamous cell carcinoma of the top gums (maxilla) and under the top lip. All about that, and many more posts outlining the years of surgeries and more are here: Head and Neck Cancer.

But Before Then.

My emotional health was at an all time low from 2013 into early 2017 for a number of reasons:

  • ageing and becoming somewhat disenchanted by some of its effects
  • retirement from all of my meaningful and paid work over this time
  • my weight was the highest it had been and with encouragement from my GP and my own determination, I lost some kilos over a year with greater awareness of why I ate, and ensuring I moved more
  • finishing up grandparent care at our house and actually being glad because I was finally tiring and becoming worn out by it
  • making a move from all I knew: Sydney, our family, friends….to the Central Coast
  • this move was one I thought I wanted (and still agree it was the right move) but my emotional health brought me down into spirals of anxiety and fear along with the dreaded Irritable Bowel Syndrome
  • the health professionals I saw then all said it was reactive depression and anxiety was part of the transitioning. Not a diagnosis of either. I do take a low dose anti-depressant now to help with IBS more than anything and getting off to sleep
  • I admit I am one of what is known as the “worried well”.

SO….in some ways I was not surprised that I had cancer diagnosed in May 2017 …I can see that others may have felt stress was a cause. That it is not a direct link, but from what I know about cancer, it is random.  Some people thought my immune system was down due to the appearance of my mouth. THAT,  was actually the beginning of cancer…but no-one thought that till April 2017 when I insister my dentist remove the bridge from my upper gums.

This quote sums cancer up. From an Australian surgeon:

Head and Neck Cancer Requires Frequent Checks.

From the diagnosis on May 18 2017, to the big reconstruction surgery on July 6 2017, through to further surgeries for skin grafts and checking inside my mouth, glands in neck area and many visits to the prosthodontist, I had:

  • post-surgery checks after a few days to a few weeks to see my head and neck surgeon and his surgical assistant, nurse specialist
  • three monthly checks for the first year
  • any time where I may have seen/felt an issue, such as additional skin forming, and my surgeon saw me within weeks
  • four monthly checks for the next year
  • weekly and fortnightly visits to the prosthodontist as he continued to work on the making of the upper prosthesis
  • then monthly to two monthly visits to him, until COVID. Last time I saw him was February 2020 and I am returning in mid October as he is now doing regular checks again
  • this year, the visits to Sydney’s Chris O’Brien Lifehouse were at 6 month intervals.
  • THEN, at my recent early September visit, after clear CT scans of my head, neck and chest, and after visual examination and more, I am now on:
  • a 12 month check up..so will not be back until September 2021.

“MY” Prof…as I call him, Professor Jonathan Clark AM recently became chair of a new program at Chris O’Brien Lifehouse and Sydney University where this grant will enable him and his team create software and 3D models for head and neck surgery on the spot. My surgery, over 3 years ago, meant a delay as my team here in Australia  and the software developers in Europe made the program for my surgery and the model for my  mouth which had to be flown in from Belgium. Here’s the announcement of the donation for the funding so this program goes ahead.

ALWAYS happy to have a photo….

How I Manage My Health Now.

Interestingly with greater ease, thanks to a limited ability to eat a lot and to a better attitude to moving more.

Photos tell that story too. It is a way of keeping myself accountable too.

However, I never feel that I am missing out either. I have a better understanding of my need to nourish this body and to also enjoy the treats when I can.

And Then I Had to Do These Things.

Have both of my eyes’ cataracts removed and lens replaced. This happened on the cusp of COVID restrictions and I was glad to be done. In Sydney, over 3 days. Then of course, I had recovery but my opthalmologist has rooms up here so visits for checks were OK. I was quite shocked that from one annual visit to the next, it was cataracts time. This turning 70 was not quite what I thought. Now 6 months on, I use readers of a lower strength and no glasses for driving. Love the clearer views everywhere.

Left Eye Cataract Done

After hiding FROM myself and my problems with rectal prolapse* and the ways in which it impacted my day to day life, in May 2020, I was forced to face the matter as I could no longer live in pretend land. I look at it this way though, in managing my recoveries – physical and emotional – from those years of head and neck cancer I could not face more investigations into what is wrong. But dear readers, there was a lot wrong. Google rectal prolapse and what it means. Let’s just say, I paid a small fortune for incontinence aids, and suffered a great deal from shame about this condition.

Grateful to be ‘out of’ another surgery.

Getting One of the Things* Above Fixed…and Added Complications. 

Again COVID changed a few things but from my GP’s referral to a colorectal surgeon who insisted on a colonoscopy “no cancer or polyps but def need rectal prolapse repair”…and then needed surgery I became resigned to what needed to be done. From early May to late July I waited for the  surgery called rectopexi. The surgeon did a great job, especially complicated by my inners where he also found (surprise) a hernia needing repair. This necessitated a horizontal incision AND, the best (not) news, a vertical incision. Meeting in an upside down T at the bottom of my abdomen. The surgery, has worked. He took the slack inner workings of my rectum and has stitched them to a bone low in my back. I have no prolapse and normal (for me) bowel movements for the….first time in perhaps a decade…and…

My recovery in hospital and at home was slow as expected but at my first post-op appointment he told me I was a star for recovering in exactly the way it was best. I liked that. Especially as I did not quite hit it off with him at my initial consult…I was scared.

Three weeks into post-surgery recovery I noticed a section of the upside T section of the wound was kind of not staying together. I showed my GP and he thought it would be OK. But take this anti-biotic and apply this cream…and let’s hope it resolves.

It did not.

Within 2 weeks of seeing my GP, I was ‘astonished to see and feel liquid forming over my nightie as I got up out of my chair. Eeek. Got an urgent appointment to the GP, who was ‘so sorry, Denyse’ but…It was called wound dehiscence and sometimes a wound will not stay together. My colorectal surgeon saw me the next day, and pronounced “can fix, back into hospital for wound debridement and we will put a VAC system on to help heal the wound over less time.”

Wound Debridement and the VAC. 

One month post first surgery for rectopexi I was back in the same hospital and cared for very well. Surgery was less than an hour. I stayed overnight so the surgeon and wound nurse could see I understood how to live with the VAC system. The best part of having paid for our private health insurance since the late 1960s it means either of us can get the best care, when and where we can. I know this is a two-part health system in Australia but I am very grateful.

Each week I was visited two days a week by the Wound Nurse. This was all covered under ‘Hospital at Home” care from our Teachers Health Program. A machine was supplied, each of the changes of dressings and the costs of visits from the Wound Nurse. This lasted just over 3 weeks.

Since then, our GP and his practice nurse is taking care of my wound dressing. The progress is amazing on the wound. I have so many photos, none of which I will add here but they give me and my husband (the photographer) updates. The medical and surgical teams appreciate my dated photo collages.

Is that IT?

I don’t know but I sure would like to be free of appointments for  the above. This is likely to occur in the next two weeks or so. At least I have no VAC on me and have full independence.

I am back to my prosthodontist in October but I am pretty sure my mouth care will be praised.

Emotionally I am getting there. I know I have gained a great deal of resilience through much of these past 3+ years but am looking forward to a some respite from health professionals for a while,

THANK you…if you got this far.

I hope you are healthy and well.

Stay that way!

Denyse.

Link Up 208

Life This Week. Link Up #208

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

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Share Your Snaps #5. 25/51 #LifeThisWeek. 50/2020.

Share Your Snaps #5. 25/51 #LifeThisWeek. 50/2020.

Dear Bloggers and Readers,

We are, almost, at the half-way mark of this year. What a year…as they say.

2 0 2 0

Happy Summer to my Northern Hemisphere readers….and Happy Shortest Day(s) of The Year to those of us in the South.

In Australia, we thought we were being battered as the long, hot and awful Summer of fires continued…without a break.

Smoky skies – even away from the fires.

Then sometime in February we also had, from memory, flooding rains. Good ole Australia.

Mid week locally. Some roads were cut. Lake at Gorokan.

But then…

None of us, worldwide, were well-prepared with what came from March 2020 onward in many countries: (and is still around and will be…till there is a vaccine)

C O R O N A V I R U S: COVID-19.

Post COVID-19 test – negative.

It was and IS the virus that stopped the world as we knew it being and doing what we knew….and we became enmeshed in various ways by sanctions, lockdowns, quarantines, and much more. Stories in the news can tell us what we felt. However, during this time, as I posted last week, we also noticed kindness and were heartened by that.

 

Today, I am showcasing a range of experiences visually….and may not be back to comment for a bit. Off to have a (wait for it…..) colonoscopy later today and given what I recall of the last one 10 years ago, I will be, ahem, incapacitated temporarily.

 

Onward: to photos!

Always a good idea. I also needed a trip down memory lane…of what it was like, to W A I T (and W O R R Y) before my first head and neck cancer surgery in July 2017.

These images, are from the ‘distractions by me photo collection’ as I waited for the news that surgery could go ahead on 6 July 2017.

The memories of that time are helping me as I write this, pre-Monday’s procedure that I have done this kind of thing before…and emerged with lessons from life, learned.

What do you do to distract yourself?

I know I like to do some of this:

Before Monday, on the most magical winter day, I visited the lake near Toukley. My favourite look from nature is the reflections. Here’s a short video….

…because, hey, I am getting better at Youtube.

Are you getting out and about more these days?

Denyse.

Link Up #194.

Life This Week. Link Up #194.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

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* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

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* THANK you for linking up today! Next week’s optional prompt.26/51 Best Time Of Day. (my post not on prompt) is a new Chapter of Telling My Story.)  29.6.2020

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Share Your Snaps. #4. 20/51 #LifeThisWeek. 40/2020.

Share Your Snaps. #4. 20/51 #LifeThisWeek. 40/2020.

Every 5th Week, We Share Our Snaps!

My recent weeks in photos and one retro photo too.

Three collages from examples of my ‘draw’ something every day challenge: 2nd lot of 30 days under COVID-19 life restriction. Started 9 March with  30 flowers (1 a day from 9 March) and began this one: inside same sized circles each day till 8 May)

Out into nature somewhere is my goal most days.

Then there is this….

Celebrating via facetime….Happy 21st to our second granddaughter…

What is next?

I wanted more colour in pots so spent a bit of time at Bunnings and now have this vista outside the back door.

 

Our street: night after supermoon. Just opened up my iphone 11 Max pro and it did the work.

 

LONGING….to be back at a table, enjoying a coffee, writing in my art journal...Come on Gladys… Hopefully I will have found a fave cafe open by the time this post is live! YES…I had my first double shot small latte in a glass in a cafe I had not visited for 8 week. I was so welcomed back!

 

Autumn arrived

Good News…on the eyes. 

It’s well over 2 months since I had both eyes’ cataracts removed and I got the go-ahead to get some reading glasses. I admit I am still getting used to ‘no glasses’ outside, driving etc (sunglasses back on my head as they used to be in my teens and 20s!) ….reading glasses to keep in my bag $5 at the cheap shop, but I am getting prescription ones for computer use and general reading. Glad OPSM opened up and should be good by end of May. Got them: one pair for the computer and one for general reading..so far OK!

Then this is an important one for me.

My way of marking 2 years of cancer diagnosis, surgeries x 4, treatments x 30+ at the prosthodontist and a LOT of driving up and down the M1 and time…patience required for healing.

3 years since my cancer diagnosis 17 May...wrote more last week…..and on Mother’s Day 2020, with the kind co-operation of my daughter and granddaughters, I got to re-create this:

Mother’s Day 2017: waiting for results from gum biopsy

Mother’s Day 2020: I am well…and relieved to be!

And then there was this. I drove to Dee Why to see Dad after almost 3 months. He is well but missing some of his usual routines which are slowly returning such as scoring at darts. He was happy for a hug on arrival….and asked for another before I left. Touch is what someone misses out on when they are left solo after many years of marriage. He was 94 in top pic: taken when I had just had 4th surgery inside my mouth. The stent pushing my lips out stayed for another 3 months. Dad is 96 and I am 70 now in bottom pic!

Onward….thanking my favourite nurses on International Nurse Appreciation Day.

Left: Lisa: head and neck & lung nurse & friend: Central Coast.

Right: Cate my head and neck surgery’s assistant & all-round awesome woman

Now counting the days till Index Card a Day (I.C.A.D.) starts on 1 June. This is my 7th year as a participant. Details here: 

How is your week shaping up?

Are you out and about more?

Is there a favourite place where you hope to sit for a meal/coffee/chat?

Tell me more!

Denyse.

Link Up #189.

Life This Week. Link Up #189.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! 21/51 Self-Care Stories. #3. 25.5.2020. 

I will be sharing another chapter in Telling My Story instead of self-care this coming week.

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Birth Stories. #1. An Occasional Series. 6/2020.

Birth Stories. #1. An Occasional Series. 6/2020.

Who doesn’t enjoy a birth story?

Oh, maybe that should read…would you enjoy reading some birth stories?

If YES… read on.

If NO…Thank you for reading so far. I will catch you back here soon I hope!!

Images of the most of the babies are photos from their first day/night of life. I have a framed photo collage of each of the 2 groups of 4 grandchildren. Very special memories.

The ‘last’ grandchild’s BIRTHday.

This (bad) photo taken at sunrise was when I drove to Sydney – around 90 minutes from our new place of residence on the Central Coast. I had been on “Grandma-standby” for a few days but with the birth now not expected till the following week, I got quite a shock/surprise to get the news that our son and his wife were on their way to the hospital and a neighbour was in the house while the siblings slept. That dear ‘breech’ baby wanted out of there and she was delivered naturally and both mother and baby were well. I waited at our son’s house with his sister (who had also been called to relieve the neighbour) till he arrived home with the news for us all…and with great relief, we left the family and went for a much-needed breakfast.

Here she is: 

Our daughter’s arrival. LONG time ago. 

So, this young, married, and pregnant teacher (me!) soon learned the hard way about being pregnant. I was going well. We lived outside a country town in north west N.S.W. in 1971. I saw the local G.P. for my check-ups and then… BOOM! “No, you won’t be having your baby here as you need specialist attention and that is urgent.”

Yikes. Way to scare a mother-to-be and the father too… yet he is not really scared of anything. So, chastened, worried (because I had gained a LOT of weight in a short space of time) we arrived at Tamworth, two hours from home,  to meet the Ob/Gyn. His examination ended up with me getting a diagnosis of then toxaemia, (pre-eclampsia) and taken straight to the hospital for bed rest and diuretics and keeping me and baby well. It was a LONG week I was there, confined and scared…because I knew nothing really. The treatment worked and my now Doctor let me home with the promise of returning in 2 weeks for induction AND (I never understood this, but obeyed) eat lots of lollies.

Dutifully, we returned one Wednesday evening and after admission, some induction strategies began. Pills and pessaries I think. Husband went home (2 hours away) as he had to teach at his one teacher school. No progress towards labour that night. All day Thursday still nothing much. Was transferred to labour ward that night and the Ob/Gyn visited and broke my waters. He was surprised to see some blood and explained it was likely to be a placenta previa partly covering the cervix that had been noted in a pelvic Xray (yes, of my baby and me)  but he showed no real concern. In this time nothing happened. Boring. Waiting. Boring but wait. It was Friday. Off to delivery suite. No idea why. BUT I did have some pains like periods. Nothing much given for pain other than some gas (mask). My husband called around 1 p.m. to be told “no she is not in labour don’t come down in this awful weather.”

Meanwhile, this pain which grew was in the back and more. A wonderful midwife was so kind. But still….I had no idea UNTIL around 4-4.30 I wanted to be sick (not like me ever) and I wanted to leave. Those who have given birth will know this is called transition. I did not but the pain escalated, as did my tightening of the poor midwife’s hand…and around 5-5.30 they called in the Ob/Gyn…he arrived in his whites. His squash gear! And by 6.35 p.m. I had delivered our little ray of sunshine. There were no pain meds. I was on a high. He even managed to stitch me and tell me 9/10. I thought it was my performance …later I found it was the baby’s APGAR.

The lovely Ob/Gyn then left the room but I could hear him on the phone “Mr Whelan you have a beautiful daughter”……and with that, my husband and his mate (my principal) got in the car and began the drive in the rotten winter night to meet his daughter.

But he could only see her through the glass. She was held to the glass for him to ‘meet’. Then he came to see me. “She has your fat cheeks and a dimple and my long fingers”. True. Back in those days no-one got to hold the baby except for the mother and nurses and it was not until we were discharged 6 days later that he got to hold his daughter and meet her properly.

Here she is in 1972 with “our bags” ready for me to go to school and her to daycare with my boss’ wife in the residence next door to school. So grateful for this!

Our first grandson’s arrival.

If you remember hot and stormy weather (oh yes, we have quite a bit of that lately!) then I can vouch for it early in the 2000s too. One very hot (up to 40s) Monday in mid January, our daughter was admitted to hospital for an induction for the birth of her 3rd child. She and her then husband were all for me being around  (this is the last Mum, so it’s fine if you want to be there). Once we knew that she was in her delivery suite, and the 2 siblings (then 4 and almost 2) were OK with my husband, Papa, I set off with camera(s) and ready to be there. But….I can now tell you truthfully, it was not the space for me.

Back then, despite thinking I could do this, my anxiety was quite high – because I was certainly not able to help in any way and it became confronting to be in the room where I was no help – my words. So, as my daughter laboured….and continued to resist epidural notion, I needed to be elsewhere…so went out for a walk around the wards. I passed an anaesthetist moving fast towards my daughter’s room as I had heard “get me the epidural” words….but alas, not to be. I then heard what was for me “loud noises” and tried to compose myself as I re-entered the room….and it turned out, that it was my grandson’s birth that had been the source of the sounds and there he was!!

He was so attentive I will never forget his engagement with me. The eyes! There was a bit of a kerfuffle I will call it though when her Ob/Gyn arrived, as the midwife had safely delivered B. He was asking why she hadn’t called him earlier. I remember her trying and it being constantly engaged. He was about 15 minutes drive from the hospital and it was school holidays. Before our grandson arrived and I heard the midwife trying to make these calls, we concluded it was probably not going through as back then only one phone line did the internet too. We reckoned it was his daughters!

Nevertheless the issue  settled.

But the weather did not that night. Around the time of B’s birth one of those raging southerlies arrived and with a hospital on top of a rise in Sydney’s north shore, we could feel its impact. When I left to drive home, around 8 p.m. everything outside the San at Wahroonga was dark. I wended my way through a tree-branch strewn carpark and drove slowly home via blacked out traffic lights and rain. We had tried calling my husband with the news but did not then know the phones were out too. My excited arrival home, in the dark, was chastened by “shush, I just got the girls to sleep, it’s been very scary”….and “oh” from me…then I told him of the news. I am afraid his tiredness meant a less enthusiastic response but the next day, we loaded up the brand new sisters and went to meet Mr Now Firelite DJ when he was one day old.

Here he is.

 

There are more stories to tell.

Like it says, this will be an occasional series.

I have deliberately kept all details as private as I can for those here.

Do you like to share stories like these?

I hope so but I do know that they do not appeal to all.

Denyse.

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends and on Fridays, it’s Open Slather here with Alicia.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

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Taking Stock #3. 27/51. Life This Week. 75/2019.

Taking Stock #3. 27/51. Life This Week. 75/2019.

My Soup for the Soul

For the last two years I have been recovering from cancer. Specifically a rare cancer in my upper gums and under the top lip. Oral cancer is part of the Head and Neck cancer group. It’s not well-known and this is WHY I have continued to spread the awareness news…and WHY I add the link to the fundraiser I have on-line to help the organisation Beyond Five where I am an Ambassador. To date, I now have wonderful donations bringing my current total to almost $300. Thank you. This the link to where you, should you choose, may donate.

Of interest to me is the Taking Stock I did just before my big cancer surgery in July 2017. Here it is...with many caring comments from friends I know here.

Taking Stock #3 : 2 years on! 2019.

Making: decisions about how much time I spend sharing my art time with and for others….and coming up with the response I need to do more that is just for me now.

Cooking: little cupcakes. I think I write this a lot. Cupcakes get me through tough days and having fewer teeth. The current group are tiny ones and being made for the Soup for The Soul event coming up at Central Coast Head and Neck Cancer Support group’s fundraiser.

Drinking: after water, double shot small lattes. Every day.

Reading: two items: The Sydney Morning Herald which we now have to go and buy as home delivery is becoming extinct here. The late Chris O’Brien’s memoir. He was a superb head and neck surgeon whose skills and vision saw people like my head and neck surgeon trained under him and my head and neck nurse practitioner. His idea too, after seeing comprehensive cancer centres in the US, was Australia needed these….

Wanting: to keep sharing the stories of Chris O’Brien Lifehouse because if not for Chris and his vision, I would not have had such a friendly, comprehensive cancer hospital for my surgeries and check ups and where I feel very welcomed.

Looking: at my Apple Watch. To see how my steps, standing and getting exercise circles (rings) join up.

Playing: for the third time, Boy Swallows Universe by Trent Dalton via Audible, in my car.

Wasting: too much time on thoughts that do not need chasing nor imagining into more/worse.

Wishing: I could achieve (gain?) contentment on a more regular basis instead of striving as much as my personality seems to dictate.

Enjoying: being back to ‘listening’ to books over and over. See above for Boy Swallows Universe.

Waiting: for some appointments where there is a bit of apprehension..one is with a new psychologist as I need to share how the grief of cancer along with ageing is confronting, and visit #38 or #39 with my prosthodontist to see ‘how my upper prosthesis’ is going.

Liking: just being ‘the two of us’. For all those years of a  household caring for kids, working long hours in busy and responsible jobs, caring for grandkids part-time….and part-time work…it’s just US being retired, yes some ageing is part of this, but it’s just us. Married for 48 years.

Wondering: how Dad’s health will continue to be so good for so long. He is 95.5 years!! Still very independent.

Loving: having time as best as I can make it work for me.

Hoping: that friends & family who need to find work/stay in work roles they enjoy can stay employed at the level they choose.

Marvelling: at people who understand anything ‘science- related.’

Needing: to ensure I do not obsess about how many steps I take…which are actually in competition with me…

Smelling: the sea when I get out of the car at The Entrance and always being taken back to January school holidays in the 1990s when we took family vacations there.

Wearing: clothes that I enjoy wearing and that I am much more (literally & figuratively) comfortable in – after some small “panics” about weight gain…which turned out for be good for my health. Who knew?

Following: people on twitter who make me think and also are prepared to have a decent and non-abusive conversation: I follow #education and #headandneckcancer mostly and make a contribution.

Noticing: there is a lot to be more grateful for which makes me actually notice more!

Knowing: I will forget some of my newer behavioural strategies to manage my reactions to potential stress…and give myself a break when I do.

Thinking: that I could do with less thinking…the one I am getting better at ‘over thinking’.

Feeling: Love – for and of others.

Bookmarking: every single page it seems where I save something on facebook. Best I review that.

Opening: my emails and seeing donations to the above cause. Thank you!

Smiling: every.single.day. because I MISSED my big smile for 14 months!

Do you ‘take stock’ regularly? Thanks Pip Lincoln for her original taking stock here.

Denyse.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

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Next week’s optional prompt: 28/51 Self-Care: Share Your Story #4 15/7/19

 

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Just For July #4. 2018.66.

Just For July #4. 2018.66.

The last Just for July. Gosh that did go quickly.

I had a few thoughts about ‘the last post’. Not the song. The post.

And this is what I came up with.

Facts About MY July.

  1. It is a month of ‘nothing much’ usually. Except for last year when I had a big cancer surgery.
  2. I never do “dry July: because.. I do not have a tipple. At all. Any more. I don’t mind one glass of champers and the last time I did that was possibly in January 2014 when Dad was 90.
  3. I considered “no buy July” for about a day…but then again, if you know me well, that was NOT going to happen.
  4. What I have bought to date: crystals (from China) because I really like the textures of them and connection to the earth, some lovely Skin Boss body oil from my friend Kirsten, some nail polish – it has been over  a year since I did anything ‘girly’ as paint my finger nails, and two Moleskin art journals
  5. Seems I have become a bit of a star-fundraiser (well, I was when I last looked) for my head and neck cancer charity Beyond Five because I am second in the individual total for funds-raised. Oh..still not too late! LINK HERE. TY
  6. We had a visit from 4 of our grandchildren. Such fun. So exhausted (for a good reason) when they left. Funny things kids say: from Miss 3 “will Papa take me fishing?” and from her to her five year old sister “don’t talk about my pencil grip”…and from Miss 8 looking at our spare room “Oh the bunks are there but you haven’t had time to make them up yet” Sadly Miss 8, we think overnight stays are done. Sorry.
  7. I set a record (for me) of sitting with a couple of 5 minute breaks in a dentist’s chair for 4 HOURS while he accurately, slowly and very very carefully adjusted parts of the inside of my mouth.
  8. I went and asked the local library if they would like me to run a class (as a volunteer of course) for adults to do mindful colouring and mandalas
  9. Getting dressed with purpose each day is still going strong thanks initially to Nikki Parkinson aka Styling You & her #everydaystyle on Instagram. BIG congratulations to Nikki on her 10th Birthday. Amazing lady who I have known since 2011!
  10. And lastly,  my seeking of places for coffee and is something to look forward to every day. Mrs Woog is a great believer of that. Do you listen to hers and Mrs Berry’s podcast “The Hot Flush”?

Now I am likely to keep these Thursday posts going.
Mmmm I do have to think of a catchy name.

Maybe August Thoughts

or Awesome August…

I shall see. No, I have decided I will continue and the title is Appreciation In August!

 Tomorrow is World Head and Neck Cancer Day. 27 July. Thank you to those who have supported my fundraiser for Head and Neck cancer awareness via my “virtual” Soup for the Soul. See above link.

Happy last week in July 2018 people.

Thanks for your kind responses to my new post topics and lightness here as well.

It’s good for me too!

Denyse x

Joining with the lovely Leanne and her crew for Lovin’ Life Linky on Thursdays.

 

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My Head & Neck Cancer 1st Anniversary. Pt 1. 2018.44.

My Head & Neck Cancer 1st Anniversary. Pt 1. 2018.44.

Writing this post I feel a surge of gratitude for my cancer diagnosis.

Weird?

Well, for me, BEFORE I knew that there was a nasty cancer called Squamous Cell Carcinoma in my upper front gums, I was anxious, fearful and this had been building up for the 3 years since just before we left Sydney to come and live on the Central Coast. My life was reduced to managing a sense of fear any time I needed to leave the house. Whilst it was not quite crippling, because I have a very determined edge to my nature, it was not how I liked feeling. AT. ALL. Blog posts here and here tell more:

In early May 2017 after a series of medical and dental examinations, CT scans, X-rays, a biopsy for gums that were not only NOT healing after the teeth and bridge had been removed  but were growing ….the news came through about WHY. The posts about my cancer can be found here.

Words are few but pictures tell much of my story. Away we go. Oh, and I AM someone who takes lots of pics and am grateful to have this record.

Part One.

In the lead up to the first Anniversary of my diagnosis I had thought this post could be a ‘thank you’ one.

I did not realised until late March that I would need a 4th surgery. However, I accept that the mouth still needs more work ….and I am trying not to whinge too much about the fact I will be having the ‘mouthguard/stent’ in for much longer AND another skin graft….because whingeing is not cool. This post is going live AFTER my 4th surgery on 16 May 2018.

I have accepted that there is no real END time with cancer.

I will be having checks until mid 2022. Then, as with most head and neck cancer patients, there is more to come, such as management of my implants over time. See this wonderful Australian-based  support site: BeyondFive here.

So, no “thank you and farewell post” for Part Two. Just more gratitude and let me show you who those people are and why I am grateful!

Part Two is scheduled to go live on Tuesday 29 May 2018.

Denyse.

In many ways I hope, that as I am a teacher AND a learner, anyone who knows someone with Head and Neck Cancer might find my posts helpful. It is one of the reasons I blog: to share, to learn and to connect! My page above has my other posts relating to my cancer story.

On Tuesday this posts links with Kylie here

On Wednesday this post links with Sue and Leanne here

On Thursday this post links with Leanne here.

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