Wednesday 23rd June 2021

How This Trip To The Dentist Changed Me. 43/2021.

How This Trip To The Dentist Changed Me. 43/2021.

ABOUT Head and Neck Cancer Australia First! 

Before I proceed, I ended up, after a long time. finding out I had cancer in my gums and under one lip. No dentist nor G.P. had even thought of this as being the case. This was not, in many ways, a fault or failing of them and their knowledge and skill set.

I have a “rare of rare” cancer as my Professor told me. I am now an Ambassador for Head and Neck Cancer Australia and continue to share the ways in which this rare cancer can manifest itself. This link, to Head and Neck Cancer Australia, formerly Beyond Five, will take you to the page about diagnosis. This is a highly reputable and facts-based and checked website. Its content undergoes regular and thorough reviews by professionals in the field.

One of whom is Professor Jonathan Clark AM – my head and neck surgeon who is also Chair & Founder of Head and Neck Cancer Australia.

Visual inspection by Jonathan  as Surgical Assistant and HNC Nurse Cate records my visit.

Back to my post.

Going to the dentist had been a regular thing for me from the age of 3.

I am now 71.

Going every 6 months as suggested.

Going in between when issues arising in my mouth needed fixing.

In some of my blog posts about head and neck cancer, I have outlined the role played by my now (and he was then) dentist in the discovery of oral cancer in my gums.

Before My Upper Prosthesis Went In: July 2018. My Dentist and My Dental Nurse.

I also wrote with detail last week for Part 2 of 2 about the time 2016 to 16 May 2017.

Allow me, here though, to outline exactly how that one trip, on 6 April 2017 changed me FOR the BETTER.

When I was learning about how to deal with areas of my life where I felt fearful…travelling and getting to see people were distinctly challenging because my Irritable Bowel Syndrome (I.B.S) was so unpredictable I just stayed anchored to home. Safe. My then Psychologist who knew I really wanted to overcome this suggested I learn about Exposure Therapy and over time, she taught me that it could be done in stages.

Yet: I still couldn’t see HOW I could do the hard things like drive to the dentist, and see other professionals when I needed to…etc.

Until I literally HAD to!

Message to me before my first surgery

Backstory.

Reading through my blog posts, as some of you have, you will note that my anxiety about I.B.S. and being anxious about travel in particular escalated. This was NOT me being the me I knew and wanted to be …..until I had enough.

Enough of trying to find out what the heck was going on in my very sore mouth

Enough of thinking I was the cause of all the issues because that was how sometimes I was made to feel

Enough of waiting for things to get better

ENOUGH….but first, this is what had to happen.

  • A scaffolding of how I might get to the dentist to have the all the teeth that were part of my bridge removed
  • A new G.P. who offered me a drug (endep) to help slow my gut and prevent some I.B.S. issues
  • A determination within me to get this done…

No Matter What! Self-care helped!

 

On Wed 5 April 2017 I was nervous about the upcoming dentist trip I did go out & do things but the “enormity” of what was ahead overwhelmed me

  • I broke down & just couldn’t see how I could deal with it
  • B was good at listening but I knew that despite the dread & worry & fear IF I didn’t go through with it it would be :
  1. Avoiding
  2. Would make it worse
  3. I’d not get my mouth fixed

So I took steps to make sure I got there:

  1. 1/4 Valium in arvo & then at night helped reduce the internal rumblings
  2. I told myself it was a positive to be getting it done as it’s troubled me for so long I couldn’t let it go on & on
  3. I needed to tell myself the outcome & process had to happen. I stopped thinking there was doubt or other I needed to own this
  4. I ate small because I was scared of IBS but that’s not
  5. I knew I could take imodium if there was a reason
  6. I used the hypnosis from audible in a big way
  7. I had B taking me & he agreed to do it anything to make it work

Straight after the removal of the bridge, I had this denture put in. It was a very painful time and over time, did not improve…

 

How Did It All Work Out?

I did it.

Together with my dear husband, and the team above in the first photo.

I recovered slowly as it was quite a shock to my system, physically and emotionally

I learned that my determination was a quality I had and could call on again (again and again as it panned out!)

I knew too, that I OWNED my actions and thoughts and that I could, over time, even with fears and reservations deal with anything else that was to come.

And I have and do.

On 6 April 2021 I posted this…with pride and gratitude for all I could do…and need to do now when faced with challenges. 

Always Grateful For My Courage.

And, some three and a half years later, getting a check up of how my upper prosthesis was going (great) as in covid times I couldn’t see my prosthodontist and my dentist also looks after my 8 actual and remaining teeth with a regular check and clean every six months. And I am no longer scared about going to the dentist and thanks to my rectopexy surgery and meds, I have not had (touch wood) I.B.S. for over 6 months.

 

How do you feel about going to the dentist?

I admit, that before I had the bridge extracted my dentist already know how anxious I was about all that was going on in my mouth and between him and his lovely nurse I was very well cared for. Now, he and I have a lot of laughs more than anything and he is as grateful as I am that my cancer was found and has been treated as well and my care for my upper prosthesis is excellent.

Do go to the dentist…and do tell him/her if you are worried or anxious. It is always better to do rather than avoid.

And please, check the symptom list at the beginning of the story….and come back to it anytime.

Denyse.

Linking up here with Leanne for Lovin Life Linky

Joining with Natalie here for Weekend Coffee Share.

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I Am Grateful Today. Cancer Surgery #1. Part Two. 2017.94.

I Am Grateful Today. Cancer Surgery #1. Part Two. 2017.94.

Two weeks ago I wrote “I Am Grateful Today. Cancer Surgery #1 Part One. Here is the link as it is the ‘back story’ to this post.

Where did those two weeks go? I did say I would write Part Two last week for I Blog on Tuesdays and Loving’ Linky on Thursday but a hiccup called anti-biotic reaction in my gut  s l o w e d  me down!  Add to that a  ‘foggy post-anaesthetic’ brain and needing to rest more, time got away!

Here I go, outlining some of the features I was grateful for during my stay on Level 9 North Room 16 at Chris O’Brien Lifehouse. I arrived on the ward late Sunday afternoon from ICU and the delight at seeing the V.I.E.W. from my bed made the wait worth it!

I was in my private  room from Sunday 9 July until Saturday 15 July – day of discharge.

Warning: I have added a few photos of myself as I was recovering. In some ways this was very helpful for me to see progress. Scroll on by if you would prefer not to look. 

The arrival in a room of my own brought me some independence even though I still needed some initial assistance to get up for the ‘loo. I was grateful, oh so grateful for my relative independence.

I was still on nil by mouth – liquid food via a naso-gastric tube  ( I tolerated it and guess I was grateful because the nutrition, along with the drip feed of fluid was keeping me alive (LOL) …just disliked the feeling on the fluid  tube feed inside me. 

I stayed in a hospital gown because..I was messy…no details but a fair bit of me in the head/neck area was cut into and then stitched back so there were… messy fluids. I was grateful for a warm quick wash in bed and a change of gown daily. It also meant my nice Sussan nighties stayed in the bag until later in the week.

I have mentioned elsewhere that I had some amazing nurses caring for me and I struck up conversations with them all. Often my chats were to ask them about their career choice and how they liked their working lives, and with only one exception all agreed (from young ones to older ones) that this is a vocation for them. I am incredibly grateful to those who choose nursing and who remain dedicated to it as I saw first-hand how rushed off their feet they could be. I often said to them “I hope you have had a meal and a bit of a break today/tonight”.

The night nurse I had 4 nights in a row who clicked with me was Roan and I know I featured him in a post recently  about how we shared a passion for  photography. He was the one who invited me to get up and onto the balcony for sunrise pics. I am so grateful for his genuine care.

As the week progressed I was grateful to see some of the surgeons’ team arrive each day to check on me (and the flap inside my mouth to see it was still ‘lub dubbing’. I was ALWAYS grateful to hear that sound from the doppler! 

I had excellent care from three allied professionals and I am oh so grateful for their advice and help.: the physio who got me into my boot and walking with some trepidation but I eventually could walk unaided. The speech therapist whose job it was on Day 6 post surgery to see if I could speak well (derrr. who was ever going to stop me!) and to drink my first glass of water…as sips! It was GOOD. So grateful for that drink for sure. The dietitian had lots of advice and seemed well-versed in IBS issues and I was grateful for my first day of clear fluids on the 7th day post surgery. But I never wanted to try the soup again after the third time! I tolerated the jelly and the apple juice well. On the last day in hospital I was on smooth soft foods but there was little for me to choose from (that I liked!) but I was grateful to have some mashed potato and some baked tomato – which I had to smash up for it to ‘go down.

Each day brought me something to be grateful for. I was told by every medical professional just how amazingly well I was progressing. I had no measure for this but they obviously did and when I asked the Professor quite cheekily did he think I could go home on the weekend (I hoped Saturday) he said words to the effect ” keeping on going the way you are and I see no reason why not”. How grateful I was that I would be discharged in the minimum time (I was told initially 10-14 days and I went home on day 10!) And check me out with NO more tubes down the nose or up the nose..oh so grateful for that day! 

The person I am also incredibly grateful to is the anaesthetist who put drips and cannulas in 3 different places ( he said to ensure that if one stopped working in the marathon 11 hour surgery, he has a spare to use!). I might bruise easily, and now 3 weeks post-surgery my bruises have gone. They did not hurt me much. I was grateful for relatively little pain in the mouth and just a bit from the leg’s various sites where flesh and bone were harvested. From day two I only ever needed panadol – drip version first, then  liquid version as swallowing too challenging with the swelling inside my mouth.

There are many quiet and lonely times in hospital once evening comes and I was so grateful for my iphone for messages, texts and emails (as well as IG, twitter and FB) and my new Ipad for games, music and more. I also took my art things but the one I did enjoy the most was making mandalas each evening. The meditative effect for me was so for helpful in mitigating missing my husband and home.

I was grateful for the kindness of friends who understood my request for no visitors other than my husband and my daughter. Our son could not make it in. I had many, many well-wishes and some surprises dropped into my room for me. I did feel grateful for this. It is a distraction and a way in which to reinforce how we need to connect with our fellow humans!

 

On Saturday 15 July, after the minor (which led to some not great complications for my gut later at home) infection  was noted in an area of my leg & treated,  my husband arrived…I was already dressed (keen much?) then he had to pack up the bag and more. It was done with ease and I was grateful to leave my room of shelter, health recovery and protection  to be put in a wheelchair and taken to our car.

I am grateful if you have read to the end. It was interesting trying to recall events chronologically and without the photos to help me I would have struggled. This weekend ( as I write) I am feeling less and less foggy-brained and the gut is settling from the nasty antibiotics.

Have you ever had major surgery?

How was your recovery?

What were you grateful for?

Denyse.

3 weeks post-surgery. On our way home from post-op check up.

 

Joining Kylie Purtell for I Blog on Tuesdays here and Leanne at Deep Fried Fruit for Loving’ Life here on Thursday.

 

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