Tuesday 11th May 2021

Note To Denyse Before Head & Neck Cancer From Denyse Now. 53/2021.

Note To Denyse Before Head & Neck Cancer From Denyse Now. 53/2021.
Dear Denyse of 4 years ago,
It sure was a worrying time. I know you had to be very courageous & have the teeth & upper bridge removed 3 weeks ago.
.
You sure needed to know WHAT lurked under there to cause that pain & overgrowth.
.
But still you don’t know and this is your face trying best self-care you knew then.
.
Being kind but also very worried… what WAS the issue because it sure was still growing & this new temporary denture was very uncomfortable….
.
It will still be another couple of weeks before you show your former GP what it looks like under that denture & you will be shocked that she threw her hands to her face in reaction to what she saw.
.
You know then, it IS serious & thank goodness your dentist is finally back from holidays & he sees the gums – the smelly, flappy, sore gums & says:
.
The oral surgeon needs to biopsy this & you get that done: despite your intense anxiety & IBS because you are also getting CT of face & OPG done then too….
.
And then the results are initially OK but you ARE puzzled on how on earth your gums can heal/improve.
.
And on Wed 17 May 2017 at 9.25 a.m. your oral surgeon rings to say further testing shows it’s Squamous Cell Carcinoma….and you cry but with a sense of knowing what IT is.
.
And four years from this photo, you will know as I tell you, you are WELL & you can overcome more than you EVER thought possible.
❤️from 4 years on Denyse.
May be an image of 1 person and text that says "This is.... ON THIS DAY 28 Apr 2017 Anxiety, fear what if..."
FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

How This Trip To The Dentist Changed Me. 43/2021.

How This Trip To The Dentist Changed Me. 43/2021.

ABOUT Head and Neck Cancer Australia First! 

Before I proceed, I ended up, after a long time. finding out I had cancer in my gums and under one lip. No dentist nor G.P. had even thought of this as being the case. This was not, in many ways, a fault or failing of them and their knowledge and skill set.

I have a “rare of rare” cancer as my Professor told me. I am now an Ambassador for Head and Neck Cancer Australia and continue to share the ways in which this rare cancer can manifest itself. This link, to Head and Neck Cancer Australia, formerly Beyond Five, will take you to the page about diagnosis. This is a highly reputable and facts-based and checked website. Its content undergoes regular and thorough reviews by professionals in the field.

One of whom is Professor Jonathan Clark AM – my head and neck surgeon who is also Chair & Founder of Head and Neck Cancer Australia.

Visual inspection by Jonathan  as Surgical Assistant and HNC Nurse Cate records my visit.

Back to my post.

Going to the dentist had been a regular thing for me from the age of 3.

I am now 71.

Going every 6 months as suggested.

Going in between when issues arising in my mouth needed fixing.

In some of my blog posts about head and neck cancer, I have outlined the role played by my now (and he was then) dentist in the discovery of oral cancer in my gums.

Before My Upper Prosthesis Went In: July 2018. My Dentist and My Dental Nurse.

I also wrote with detail last week for Part 2 of 2 about the time 2016 to 16 May 2017.

Allow me, here though, to outline exactly how that one trip, on 6 April 2017 changed me FOR the BETTER.

When I was learning about how to deal with areas of my life where I felt fearful…travelling and getting to see people were distinctly challenging because my Irritable Bowel Syndrome (I.B.S) was so unpredictable I just stayed anchored to home. Safe. My then Psychologist who knew I really wanted to overcome this suggested I learn about Exposure Therapy and over time, she taught me that it could be done in stages.

Yet: I still couldn’t see HOW I could do the hard things like drive to the dentist, and see other professionals when I needed to…etc.

Until I literally HAD to!

Message to me before my first surgery

Backstory.

Reading through my blog posts, as some of you have, you will note that my anxiety about I.B.S. and being anxious about travel in particular escalated. This was NOT me being the me I knew and wanted to be …..until I had enough.

Enough of trying to find out what the heck was going on in my very sore mouth

Enough of thinking I was the cause of all the issues because that was how sometimes I was made to feel

Enough of waiting for things to get better

ENOUGH….but first, this is what had to happen.

  • A scaffolding of how I might get to the dentist to have the all the teeth that were part of my bridge removed
  • A new G.P. who offered me a drug (endep) to help slow my gut and prevent some I.B.S. issues
  • A determination within me to get this done…

No Matter What! Self-care helped!

 

On Wed 5 April 2017 I was nervous about the upcoming dentist trip I did go out & do things but the “enormity” of what was ahead overwhelmed me

  • I broke down & just couldn’t see how I could deal with it
  • B was good at listening but I knew that despite the dread & worry & fear IF I didn’t go through with it it would be :
  1. Avoiding
  2. Would make it worse
  3. I’d not get my mouth fixed

So I took steps to make sure I got there:

  1. 1/4 Valium in arvo & then at night helped reduce the internal rumblings
  2. I told myself it was a positive to be getting it done as it’s troubled me for so long I couldn’t let it go on & on
  3. I needed to tell myself the outcome & process had to happen. I stopped thinking there was doubt or other I needed to own this
  4. I ate small because I was scared of IBS but that’s not
  5. I knew I could take imodium if there was a reason
  6. I used the hypnosis from audible in a big way
  7. I had B taking me & he agreed to do it anything to make it work

Straight after the removal of the bridge, I had this denture put in. It was a very painful time and over time, did not improve…

 

How Did It All Work Out?

I did it.

Together with my dear husband, and the team above in the first photo.

I recovered slowly as it was quite a shock to my system, physically and emotionally

I learned that my determination was a quality I had and could call on again (again and again as it panned out!)

I knew too, that I OWNED my actions and thoughts and that I could, over time, even with fears and reservations deal with anything else that was to come.

And I have and do.

On 6 April 2021 I posted this…with pride and gratitude for all I could do…and need to do now when faced with challenges. 

Always Grateful For My Courage.

And, some three and a half years later, getting a check up of how my upper prosthesis was going (great) as in covid times I couldn’t see my prosthodontist and my dentist also looks after my 8 actual and remaining teeth with a regular check and clean every six months. And I am no longer scared about going to the dentist and thanks to my rectopexy surgery and meds, I have not had (touch wood) I.B.S. for over 6 months.

 

How do you feel about going to the dentist?

I admit, that before I had the bridge extracted my dentist already know how anxious I was about all that was going on in my mouth and between him and his lovely nurse I was very well cared for. Now, he and I have a lot of laughs more than anything and he is as grateful as I am that my cancer was found and has been treated as well and my care for my upper prosthesis is excellent.

Do go to the dentist…and do tell him/her if you are worried or anxious. It is always better to do rather than avoid.

And please, check the symptom list at the beginning of the story….and come back to it anytime.

Denyse.

Linking up here with Leanne for Lovin Life Linky

Joining with Natalie here for Weekend Coffee Share.

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Self Care Stories #2. 14/51 #LifeThisWeek. 42/2021.

Self Care Stories #2. 14/51 #LifeThisWeek. 42/2021.

Every 7th Week on Mondays.

Who is the 71 year old woman behind this smile?

She is Denyse.

She is ageing.

She is also a thinker, a doer and someone who likes to learn.

She is seeking answers to her age-old question about HER. Her relationship with herself. Her belief in herself. In fact, yes, it’s about Denyse exploring what she is learning via self care and more.

Why the third person?

In learning to place some distance between me and my thoughts, I now know using my own name draws my attention to what I want to do but doesn’t suck me in as much as using the personal pronoun. I learned this, and have put it into action recently, via the book I highlight below called Chatter.

https://www.ethankross.com/chatter/

In Chatter, acclaimed psychologist Ethan Kross explores the silent conversations we have with ourselves. Interweaving groundbreaking behavioral and brain research from his own lab with real-world case studies—from a pitcher who forgets how to pitch, to a Harvard undergrad negotiating her double life as a spy—Kross explains how these conversations shape our lives, work, and relationships. He warns that giving in to negative and disorienting self-talk—what he calls “chatter”—can tank our health, sink our moods, strain our social connections, and cause us to fold under pressure.

Loss of Confidence in Myself. Recently.

Life is not linear although that might appear to be the case. I have found since late January 2021 that some of my usual confidence has waned. I could feel it and as yet another medical test came up, I began to identify with it as

fear of something else going wrong for me

What Happened?

I needed a gastroscopy and iron infusion in early February. They went well. Iron levels from 11 to 225! Who knew.

But any little twinge, ache or whatever had me seeking medical advice. Always assured and re-assured.

Still not that convinced.

Body Image And  What I Saw Not Being True.

Long time readers here would know that way before my cancer was diagnosed, I was on a long journey to losing weight but in a not healthy way. It was via anxiety and I.B.S. However, one by-product was that I was over 30kg less in weight than my heaviest back in 2013. I tried to convince myself that right now, I seemed to look OK but of course I remain overweight but….

I

am

healthy.

I listened to this book, website below, in some parts and found it of interest. I stopped hating my body (and me) as much because I could acknowledge what it had done for me and that being overweight (technically I am) was not a sin, nor something I needed to be ashamed of…and actually for me , it meant I was healthier post cancer than most times of my life.

https://thebodyisnotanapology.com/

The Body Is Not An Apology is an international movement committed to cultivating global Radical Self Love and Body Empowerment. We believe that discrimination, social inequality, and injustice are manifestations of our inability to make peace with the body, our own and others. Through information dissemination, personal and social transformation projects and and community building, The Body is Not An Apology fosters global, radical, unapologetic self love which translates to radical human love and action in service toward a more just, equitable and compassionate world.

The Evidence Was In. Need to Believe.

Just recently I spoke to my main G.P. and my other one, along with my husband, about how I was viewing myself. I had begun to worry about the numbers on the scales. I saw this as a pattern from my past and felt helpless to let it go. I needed and asked for confirmation from others that I was OK, at this weight, and doing well. I had to see myself as a well person. I was to stop weighing myself.

I am on my way to better self-belief and acceptance of this is both who I am now and how well I am.

In fact my female G.P. stressed just a week ago “Denyse, you are WELL, enjoy yourself”.

Truth in that. I think, given that I overcame my head and neck cancer, and then endured a pretty stressful and traumatic series of tests & surgeries in 2020 too, I have only just now, realised this too.

Thankful, indeed!

More Help For Handling Emotions. 

I remain dedicated to my Daily Calm: meditation both day and night.

I go outside every day.

I seek to interact with others somewhere in my day.

I am seeing a psychologist for a few sessions just to re-calibrate!

I saw one, last week who asked, amongst her listening to my stories, “when do you rest?”. Umm. Not much at all. Made me think.

I have a loving husband.

I am well physically.

I know how to care for my eating via nutrition and food enjoyment.

This: Written at my most “difficult & searching for peace within” time of my recent life:

Early February 2017 TRYING to show confidence.

What Do I Really want My Life to Look like Now?

  1. I act with ease & no trouble at all
  2. I smile, I exude joy & peace
  3. People want to be around me
  4. I want to be around them
  5. I want old barriers of ‘excessive & always there’ fear to be reduced so it only surfaces for “real” reasons
  6. I will be comfortable in my skin
  7. I will be happy to be the age & stage I am in
  8. My contentment & ease will continue to bring me closer to my husband & family
  9. I will seek new & other social networks & people when I want to connect
  10. I will be energised & confident to go anywhere & with anyone

I see so much of the above is how I am living my best life now. Who’d a thought that’s what cancer would bring.

Four Years Later. Confidence is there…believing it a challenge at times

 

Emotional Agility.

https://www.susandavid.com/

Psychologist Susan David shares how the way we deal with our emotions shapes everything that matters: our actions, careers, relationships, health and happiness. In this deeply moving, humorous and potentially life-changing talk, she challenges a culture that prizes positivity over emotional truth and discusses the powerful strategies of emotional agility. A talk to share.

Susan David’s Ted Talk: Emotional Agility

What does your self-care consist of?

Do you get enough rest?

Can you think of yourself with kindness?

Share how things are for you.

Denyse.

Link Up #234

Life This Week. Link Up #234

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: 15/51 Share Your Snaps #3. 12 Apr.

 

 

You are invited to the Inlinkz link party!

Click here to enter


 

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Telling My Story.Chapter Twenty Two. 2016-16 May 2017. Part 2/2. 40/2021.

Telling My Story.Chapter Twenty Two. 2016-16 May 2017. Part 2/2. 40/2021.

The backstory first:

Well over a hundred three years ago ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at Chapter Twenty Two. And as with other posts, I am making it Parts 1 & 2. 

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members. All of the stories to date found here.

And with this chapter, another photo…taken this year overlooking the harbour at Dobroyd near where I grew up close to Manly N.S.W.

I had a sore mouth.

It was often sore. I had to find a new dentist and did in early 2016. His initial view was that my upper bridge was causing some irritation and maybe I was drinking things too hot. He gave me some ideas over time which he thought, as he saw me regularly that year, and with issues that arose, offered possible remedies: fungalin, for candida. Guess what it did? Exacerbated gut and made I.B.S. worse.

I cannot stress enough how much “I” thought this was about me, lack of good health, mouth care and more. I felt judged and I hated that I was so often impacted by this awful anxiety and then I.B.S. that I could not plan to go anywhere.

“Looking like I was OK but I was not”. Last photos of me with original bridge at top of my mouth.

Anxiety Ramps Up.

In my journal I see entry after entry of me trying to get to appointments to my various professionals and suddenly that morning with an episode of diarrhoea it was impossible. Lucky for me they were very understanding.

I did not want anyone other than immediate family visiting us as it made me very self-conscious if I had to run to the toilet. I was not eating well. In fact, losing weight had never been easier. But it was not healthy.

I made myself meet up with a friend at a cafe but the preparation I made in advance …was there a toilet there, could I just have a biscuit with my coffee…was as I now see it over the top but I had to have reassurance.

It was the worst ever for me in very early January 2017 when, after seeing M1 awful accidents on the news, I decided I could not dare visit Dad for his birthday in Sydney just in case I had to use a toilet and I was stuck in the car. It was awful. I felt the pull of the ‘have to’ and the push of the ‘can’t’.

It worsened over time to the point I could not even drive out to the M1, which was the road to my dentist down at Ourimbah, without the feeling drowning me. I would need to make a few of those trips as it turned out in March, April and May 2017 and I had to take medication, know where the toilets were and allow time to get there.

Finally, after 4 months, and having had the teeth out (the best exposure therapy ever) I drove myself to Sydney to see Dad.

Doing What I Could To Help Myself.

On the eve of my 67th Birthday, late 2016,  I am feeling both reflective and grateful.

This image, selfie on my 67th Birthday, “trying my best to look OK” was used for my first series of Telling My Story.

Dad told me earlier tonight that my birth time was around 4.15 a.m. and that Mum put off going to the hospital until around 11p.m. Brave woman!

I’ve also made a mandala* which notes each of my decades of life and it’s been confronting and satisfying.

  1. I was so fortunate to be born to my parents who loved each other very much and were delighted to become parents.
  2. I was born into a caring extended family and always, always felt safe, secure and loved.
  3. Whilst Mum had some health issues in my early years with deafness and eye sight, these were rectified and I always knew my mum was there for me as a stay at home parent while Dad worked in his profession as an accountant.
  4. Our home was comfortable and we really wanted for nothing. My brother and I were well-fed, cared for and given many opportunities to be part of sporting and cultural groups as we grew up.
  5. When we left our Wollongong home for new adventures in Sydney at Balgowlah Heights I felt both the excitement and the nervousness but knew it would be good.
  6. It was and we moved to a great place, a new school and a whole new group of friends. Life was good!
  7. I got to play sport, learn to surf and swim, join the Guides, become a voracious reader and loved to talk.
  8. My early interest in helping little kids and enjoying playing with them started my interest in becoming a teacher.
  9. I got to be part of the school leadership team in primary school and loved organising events and social times too.
  10. My years at high school were a great and heady mix of new friendships, socialising with the boys from the local school and church groups, going to the beach and more.

  1. Learning to drive was a huge step in my independence and mum was happy to lend me her car when she could.
  2. I enjoyed great freedom to be out with friends and for them to come to our place and some of those friends parents became friends with mine.
  3. I was so fortunate to grow up as a teenager close to Manly Beach, particularly North Steyne, where I could catch a bus from home and stay on the sand or in the surf all day.
  4. Of course we met up with boys there too. It was all part of the fun in the sun.
  5. I eventually got some part time work when I was in my final school year and it continued into my 2 years at teachers college.
  6. It was good working at the jewellers on the Corso, three shops away from the beach and my employer gave me and my future husband good discounts on my engagement ring and our wedding rings.
  7. Teaching as part of my pracs in Sydney schools was great. I taught at my old primary school (even in the old classroom from Year 5) and also at Mona Vale, Neutral Bay and because I got excellent grades in prac, I went to the North Sydney Dam School too.
  8. My social life was awesome and centred on events from my then boyfriend’s Uni mates so we went to lots of parties, 21sts and Formals as well as Balls.
  9. Graduation as the first cohort to do the Higher School certificate was good too. Guinea Pigs in one way though as I am sure the NSW Dept of ed was winging it for a while there!
  10. Once I was 18 going to have a drink in the city hotels and bars was never a problem, as part of the time I was there anyway because I had to find work after HSC and the ABC was where I scored an office job.

  1. Hoping to get to teachers’s college didn’t happen on the first round, but by the second round I was ‘bye ABC, hello kids in classrooms.’
  2. I must have had the knack of teaching because as a late arrival at teacher’s college with only days before first prac, I did very well. I knew I had it in me!
  3. So pleased to have the training that BalmainTC provided but I knew I didn’t want to stay in Sydney after graduation so applied for the Bush.
  4. I was appointed to Barraba Central and independent life commenced!
  5. Shared a house with other teachers and I had to learn fast about sharing. I had been quite a ‘princess’ till then!
  6. My first class. K/1. A classic country town group but I knew what to do most of the time and loved being part of a large school staff.
  7. What fun we had on weekends and after hours with meeting at the Golf Club and Saturday Night dinners.
  8. My boyfriend from Sydney days broke up with me as he was unwell and I was free but a little sad.
  9. Not for too long though as by the time October that year arrived, I had met the LOVE of my life and fallen head over heels with a young male teacher who was a one teacher school.
  10. Our whirlwind romance was exactly that. In love (and lust) and determined to be wed as soon as we could because we were too far apart physically where we each lived.

  1. Luckily our department bosses looked after me, and after we married, I was transferred to a two teacher school just up the road from my now husband’s,
  2. But I was also pregnant. Yep. from carefree single teacher in a country town, to  married mum to be in a small community within 12 months.
  3. I won’t deny that it was hard being pregnant after some words of judgement and unkindness from my parents before we married but we went ahead with their blessing and some days those words still stung. In fact they did for some decades. Something about shame in that I think and my mum and her upbringing.
  4. Our daughter came into the world and brightened all who loved her very much. I loved little kids but was at quite a loss with a baby and being left along all day on a country property did not go well for me.
  5. I needed to salve my emotions and I began to eat for comfort and I know this has been what I do to numb myself and continues on and off now.
  6. Back to school for me was the better plan particularly when we could leave our lovely girl right next door to where I taught with my boss’ wife! She was also her godmother. Win!
  7. After two years, it was time for my hub to find a new position as a teacher in charge as his school was closing and we were keen to get teacher housing.
  8. Off to the Riverina area we went and found what we loved for the next 3 years. A great house for us, where we added a pool, a teaching position for me in the next big town and child care for our daughter.
  9. Social life was amazing, with new friends from the teaching and farming community and we were part of a drama society and entertained most weekends.
  10. Infertility was ironic after falling pregnant so easily with our daughter and for the time there and our next place, I was sad and resigned to never having another child. So sad.

Our first born with a first born Mum and fifth born Dad.

More of the stories about what happened next are found here: Telling My Story

The decades of the mandala*. I put it on social media once and found that it was far too personal to share because a follower told me how she could expand it to read. Oops. I have it somewhere here at home but it’s very personal. And mandalas helped me through all of the times before (and since) my anxiety and pre-cancer diagnosis days.

My Update: April 2016

  • We chose to move to a cheaper rental place in November last year as one of the factors in the stressors I was feeling was the place we lived in was too expensive, very uncomfortable and the community connection non-existent.
  • Happily for us, we found that the northern end of the Central Coast suits us more and the house (a home now that familiar to us from the sold Sydney house) is great.
  • A significant event occurred around this time too when I decided to end all connections with my education work places, including my consultancy. From a career commenced in 1970 to now this was another reason to grieve.
  • I still ‘struggle’ with aspects of remaining relevant! Who am I if I am not a teacher?
  • Nature continued to beckon in terms of photography, beach walks and I added growing flowers in pots to this mix. Nothing like having ‘something’ to grow.
  • The kitchen at this house is more conducive to cooking and making meals for the freezer and treats has been a good sign I am liking life again!
  • Meditation has been the one consistent event every single day. Yes. 10-15 minutes since end of March!
  • Learning more, much more about what it is to have some anxiety (I have not been diagnosed with anxiety nor depression) and sadness because of the significant effects of Life Transitions for me.
  • Reading more books, still can’t find a fiction one to satisfy, is great as is the range of newspapers I love. It is so good to have time for this!
  • Making sure I am well-nourished. I do find this hard some days as I mostly solo cook and eat because my hub has special food needs. But, looking after me shows I am caring well for me.
  • I’ve been increasing my knowledge of my reasons for anxiety and IBS and using Acceptance Commitment Therapy techniques via a number of sources including my counsellor and various authors who use this for clients.
  • This has meant a shift in my thinking and some movement towards letting my life move forward with whatever issues arise.
  • I remain a ‘wip’ a ‘work-in-progress.

My Update: April 2017.

  • My mouth continues to be bothersome: sore, and gums were beginning to grow over the teeth of the bridge.
  • My dentist tried a few ideas ….that I went along with until NO. Sorry, I need to know what is UNDER this bridge. The only way, as we both knew, was to remove (drill it out) the bridge, and the 5 teeth underneath.
  • He agreed and it meant I had the biggest physical and emotional challenge ahead. I needed all the support of my husband and my G.P. to do so.
  • Oh, and in the meantime, we were getting sick of the traipse back south to a G.P. and found one, our current one, in early April. JUST in time…for much, much more to come.

But first I had some exposure therapy in real life to manage.

This is information, after it came highly recommended by my then psychologist in 2016-17,  about what it was I needed (and still do at times) to follow to get myself to the dentist, have the extractions and recover from them

Exposure therapy is often essential if you are to overcome your anxiety disorder. The cognitive behavioural treatment of  conditions such as: panic with agoraphobia, simple phobias, social anxiety, obsessive compulsive disorder and post traumatic stress usually entails an exposure component.That is, you must subject yourself to the situations you are worried about in order to beat anxiety.

Although this sounds frightening, your therapist will give you the tools to cope with confronting your fears (e.g. rational thinking, slow breathing and isometric relaxation).

The guidelines for exposure therapy are that the sessions must be

  • graded
  • repeated and regular
  • prolonged

Why Getting Those Teeth Removed Was The Best Way To Know What I Could Do. 

  • Early April, I met my new G.P. who not only gave me the flu shot but the advice to help I.B.S. was to take an old fashioned anti-depressant as it slowed the gut down. Four years on, I still take it and whilst it is not perfect, this medication and my changed confidence in how to deal with anxiety about I.B.S. works.
  • I prepared for the long afternoon at the dentist knowing my husband would be in the room, reading a book, and that I could take some valium and immodium to manage myself.
  • I had my iphone with the lovely William McInnes narrating a very familiar tale into my ears, and that was it…
  • I was conscious the whole time and it took quite a bit of novocaine for me to have no pain in the palate area.
  • I was given the chance to have a ‘wee break’ and took it half way.
  • It was over before I realised and the dentist, pretty worn out by it, said he broke a few diamond drill heads.
  • But it was GONE. The bridge, those teeth…..and a temporary denture made the week before, was pushed into my numbed gums.

Whilst I declined the chance to take them home (I was told the Tooth Fairy owed me big time) I took the photo instead.

I DID IT. 

  • Yes it was painful as the anaesthetic wore off, but this anxious me had with all her lessons learned over time, managed what was to be a pivotal time.
  • I’d like to say, that’s that…..but no, it wasn’t.
  • The top of my mouth where the teeth had been continued to be smelly, flappy and  nasty.
  • The dentist seemed to think it was OK and would repair itself.
  • I put up with a very painful and sore top of my mouth for the next 5 weeks because he wanted to see how things went and then he went on vacation.

11 May – 16 May 2017.

  • Last trip back to my old G.P. to say good bye and thank you, and by the way “my gums are very sore”.
  • She raised her hands in horror when I took out the denture.
  • Tests for cancer: a C.T. scan for sinuses and upper mouth. Stat. And as I was seeing the dentist the next day, she knew he would likely order a biopsy.
  • Yes he did. STAT. Oh, this was getting to be familiar.
  • He did raise cancer as an idea but felt unlikely.
  • Off to next door where I booked a biopsy at the Oral Surgeon and she said, I can do that tomorrow, Friday.
  • CT scan and biopsy done on that day.
  • My nerves were….calmed by some valium but my goodness, this was serious stuff.
  • Weekend: waiting but not saying anything to family as it was Mother’s Day on 14 May and we had visitors.
  • Monday: results. CT: all good. Initial biopsy: inconclusive: likely candida. Can probably treat you at the surgery.
  • Tuesday 16th May. Nice day.

And that is where this Chapter ends.

If you have guessed where it’s going, then you are probably right.

I will be taking over my Thursday posts with these now over the next months to enable me to get up to date.

Denyse.

Next Chapter: Twenty Three: 17th May – April 2018.

Linking up here with Leanne for Lovin Life Linky

Joining with Natalie here for Weekend Coffee Share.

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Telling My Story.Chapter Twenty Two. 2016-16 May 2017. Part 1/2. 37/2021.

Telling My Story.Chapter Twenty Two. 2016- 16 May 2017. Part 1/2. 37/2021.

The backstory first:

Well over a hundred three years ago ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at Chapter Twenty Two. And as with other posts, I am making it Parts 1 & 2. 

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members. All of the stories to date found here.

And with this chapter, another photo…taken this year overlooking the harbour at Dobroyd near where I grew up.

Beginning 2016.

In my recent two-part Chapter 21 here and here, I outlined the emotional and physical health challenges I faced and was doing my best to both manage and understand.

This, for practical me, was very hard as the emotional roller coaster of my life often exacerbated the Irritable Bowel Syndrome and then that played into my negative thinking about myself …..and so on.

Not easy. For Me.

And of course, for my husband who was studying counselling part-time, working as a volunteer for two charities and doing renovations at his brother’s too. When I look at this, and he and I have chatted about it since, loneliness was sometimes part of the problem for me.

I made a change to this blog, and formalised the categories into one for each day, and launched Denyse Whelan Blogs, thanks to my dear friend Tanya and her patience and creativity along with my tech man, Craig. I was determined that staying connected and accountable every day to SOMETHING outside myself would in fact, help ground me in some ways.

It did.

Look, I am still here! And the categories are not used like this so much now but I liked how I got on with the changes! Back then too, there were around 4 weekly Australian based link ups!

A Few Celebrations And Not So Good Times.

We celebrated our 45 years of marriage with our family. Our adult children and their children. It was the first time we had all come together in around a year. That was very special.

We also heard awful news early in that same year that was both shocking and impactful on our family, particularly for two people we love very much. So much I cannot say and would not.

However, I did take it all pretty badly. That’s me. I feel. I was already rather anxious but this news did not help. I also felt conflict about it and used my time with my GP and psychologist to talk more.

Over time, of course, we continued to share the love and support within the family for those people but it still remained a wedge for a while for me. These years down the track as I write, things are better but will never be perfect. Life, hey.

We cared for grandkids on special overnight and holidays stays and whilst I loved it, my anxiety levels being high, I could not relax enough to enjoy things. The little people I had cared for back in Sydney were growing and changing and trying to keep myself well when they were there was fine but anticipation and afterwards would bring on bouts of nasty diarrhoea (thanks I.B.S.)

Travelling to Sydney for a first birthday was a mental struggle for me but we did it. I actually loved it and having time, again, with our grandchildren was always so special. However, there were undercurrents of things not being too well within the families and we tried to let those worries go. They eventually would be made known but not for some time. I cannot add any more than that. However, as I am writing now, matters are far more settled and at ease with us.

With birthdays and Christmas we tried as we could, to entertain during school holidays or a weekend and it was always good to see everyone, and for me, Grandma, to do her best with cakes and spoiling with gifts.

My Health….still a bother. 

All the time, with me, was a tension and anxiety I felt and knew, and even if I understood it, found it a challenge to live with but here’s what I am like. I do what I can, with what I can.

I read,

I studied,

I learned,

I did courses about I.B.S.,

Mindfulness, Self-Compassion, Art, Mandala-Making

and I got out most days (when I.B.S. was quiet) to take photos, walk on the beach and perhaps interact with people at the shops.

I saw my friendly G.P. regularly who tried, over time, with some different medications to help me but nothing did. She was a great cheerleader though and her encouragement was good.

I even wrote this on a community page: I was searching for people who might get what I was writing about and I did get loving support. However as I know too well, we do end up working things out for ourselves.

Long time commenter & poster but first time ‘admitting my troubles & needing some advice/support’ … thanks in advance for reading!

I’m 67, been retired from work (happily) & life ‘should’ feel better than this. I’ve been a pretty anxious person (worrier etc) all my life & at times Irritable Bowel Syndrome (IBS – Diarrheoa) has been part of life too.

Over 2 years ago, we sold our house in Sydney, paid out mortgage etc, found a rental house we like on Central Coast & left our much-loved adult families (g’kids too) behind. I also stopped all my work in education after 44 yrs.

Now, I “thought” I had nailed this! Yep. What we wanted to do. Freedom etc. My emotions disagreed & that’s where I have been falling down, picking myself up, x 10000 (it feels like) since Jan 2015.

I’ve got a fantastic listening hub who “gets me”, a great GP who helps me manage symptoms of IBS & a psychologist who is working with me on plans of ‘exposure’ therapy to learn to live with & accept IBS.

I am fortunate not have a diagnosis of either anxiety or depression but when IBS lurks (just about every week if not more frequently) then I get both sad & upset because of it. I take no medication other than imodium if I have to.

I do not know “who I am” any more because of my increasing fear to venture out to socialise, drive any distance on M1 or even have a cuppa somewhere.

Everything I read & understand about both anxiety-related conditions & IBS says I have to “accept” it and get on with life.

Right now, this seems hard.. too hard.. and I’m floundering. I do know I have determination & strength because I’ve rallied myself many times.

Do you know that around 20-25% of the population has IBS & it’s a functional condition & no treatment is available? I’m fortunate it is nothing more serious… I know.

What I wondered tonight, is anyone else out there like me and how can we help each other through some of these tough(er) times?

I am/was always searching for how to make me better to understand myself.

Weight loss: a mixed blessing. I was unwell.

Did What I Could To Help Myself.

I have all the books to prove it. And whilst all courses and speaking to professionals helped, the one thing that eluded me was how to live with irritable bowel syndrome and its unpredictability.

I tried writing.

I made hundreds of journal entries.

I did an on-line course twice to help understand IBS.

I read and completed a book with self-help ideas.

 

This List Was Something I Kept for Me in 2016.

Here are 20 things you can control:

1. Talking to yourself positively

2. The way you talk to those around you

3. The amount of physical exercise you give your body

4. The food you nourish your body with

5. Your level of honesty

6. Whether you are a listener or a talker

7. How often you smile every day

8. The time you spend worrying about irrelevant things

9. The amount of love you give your children

10. Whether you see the glass half empty or half full

11. How mindful you want to be

12. How you make other people feel about themselves

13. Having a generous heart

14. Allowing yourself to ask for help

15. Offering help in return

16. Whether you judge people or accept people

17. Having an open heart to receive true love

18. Whether you believe in yourself

19. Your words

20. Your thoughts

 

Self help, not helpless.

I was unwell yet wanted so much to be well. I was caught between being embarrassed about my anxious gut and self and wanting to get out and enjoy this life I had longed for in retirement.

Some things I tried (and still do!) were these:

Our Family Life At The Time.

As at the beginning of this year, things did not proceed comfortably for the remainder of 2016 and into 2017 due to changes in family dynamics and relationships. Again, I say no more. Other than this: my heart may be broken yet mended over time. This, fortunately, is true and for me…so grateful. But living with it and through it was something I found very disconcerting. We had limited contact with family members and I travelled far less to Sydney because of my health and anxiety about I.B.S.

Nothing “I” could do to change anything was a lesson I learn(ed) over and over again. Having some faith and trust that matters can be resolved and worked out did, over time, prove to be true but it took a serious illness (mine) for that to happen. More in the next part of the story. Mindfulness and the works of Pema Chodron, and Jack Kornfield and My Headspace app all helped. I did a lot of meditation outside and inside.

 

And What About That Sore Mouth?

It did not get better. I did all I was asked by my (new in early 2016) dentist. I was given instructions for better cleaning, managing so called candida, trying ideas for eating/drinking cooler food as mouth was red on the roof (palate). I am a compliant patient. Yet, some of the treatments were making my I.B.S. diarrheoa worse. Sigh. My G.P. did not have any more ideas. However, “I” must have because diary entries as the year went on towards early 2017 included:

  • I wonder if this is cancer
  • Sore mouth – gums and possible filling breaking. Know I will have to see gum specialist.
  • GP says “mouth inflamed but it’s not cancer”
  • Dentist: “In two months since I last saw you I see pus in overgrown gums over the bridge of teeth, so off to see gum specialist”
  • BUT I said, “back in early January 2017 I want to know what is under this bridge so can you take it out?”

His answer, in short, was conservative and no. It would as you will read in Part Two of this Chapter, happen.

Thank you for reading and commenting on these Telling My Story posts. Yes, they can raise some powerful emotions for me but I also am aware of how far I have come in this relatively short period.

Next time with be Part Two.

I will be taking over my Thursday posts with these now over the next months to enable me to get up to date.

Denyse.

Linking up here with Leanne for Lovin Life Linky

Joining with Natalie here for Weekend Coffee Share.

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Calm Days And Calm Nights. 2/2021.

Calm Days And Calm Nights. 2/2021.

Yes I now have these: days and nights of calm.

I have found the secret to inner peace…forever and ever.

Actually that is so not true …..do read on!

Waaaay back in 2015 I was in transition. From my former to life to the life we had chosen. From work, family near by, security of home (until end of 2014) to retirement, no family nearby and no home other than a house to rent. It was not great YET it was the life we chose to have after turning 65.

 

My husband, above, who is of a much different disposition to me, was fine. In fact, he LOVED the change, except for the awful house we selected to rent, and was busy studying counselling on-line, doing volunteer work with Lifeline and building projects at his brother’s.

Me? I missed company, some work,  friends, going out for coffee and yet…..I knew that I could not get my old life back.

We HAD moved on.

When I get to write Chapter  Twenty One of Telling My Story for 2015 there will be much more revealed but right now, I am leading up to what started to make a difference for me….

Meditation.

I first found it in person, at a Buddhist Centre, in the first months of 2015, and then via an app called Headspace. This helped me from 2015 until into 2018 when I changed my meditation app to Calm. Now I am a life time subscriber and what a difference it makes for me:

EVERY

SINGLE

DAY

& NIGHT.

In 2019 I shared more about Calm and its help for me over here.

These thoughts and views are formed by me, over time, as I changed and grew to understand what I was doing….I was practising meditation. I was practising being still and I was/am continuing to do this every day and each night. It’s called Meditation Practice for a good reason.

What Meditation Is Not.

  • a clearing out of your thoughts
  • a way to get to inner peace easily
  • a place & way of being seated to best meditate
  • perfection found
  • silence

What Meditation Is.

  • a regular 10-12 minutes in my morning, and then in my evening which is just for this.
  • lying in my bed…yes, not sitting nor kneeling, because I can still concentrate, relax and take in what I need to being comfortable on my back with my hands by my sides.
  • a gift to my inner health
  • a space & time which I value that is MINE
  • something I can come back to over and over again
  • being curious about myself
  • learning something a new and refreshing my previous learnings.

How Did I Get Here?

Even before 2015 I was seeking help and information on how to help me calm myself inside and accept more readily what “life” is about. As a teacher and always a lifetime learner I sought much information, learning and help and got it via CDs, courses on-line and podcasts. I have added some images of some of my kept resources.

The first real introduction I had to becoming mindful and helping with the sadness I was feeling, even though I was not clinically depressed was this book and I still listen to it from time to time. These two men, Mark Williams and Danny Penman, are pioneers (after Jon Kabat-Zinn) of Mindfulness for Wellness and Using Mindful Practices for Stress Release.

Some were purchased on-line directly from Sounds True, others via my (then) favourite book selling site, Book Depository. Others I found directly on-line or at my local books sellers.

Some of the authors who helped me “get me” are:- are found here and in my messy but lovely photos of my books and CDs. On display for easy reading….for you, the reader.

Pema Chodron  Tara Brach    Jack Kornfield    Brene Brown  Sharon Salzberg  Clare Bowditch     

Elizabeth Gilbert   Andy Puddicombe  John O’Donohue   Jeff Foster  Judson Brewer

Megan Devine    Martin Seligman     Steve Peters    Andrew Fuller   Kristin Neff    Glennon Doyle

Rick Hanson   Christopher Germer    Lori Deschene    Paul Gilbert  Claire Weekes  Anne Lamott 

Yes, that IS a list and yet, not the end of it. The reason each of these people helped ME and form part of many meditation practices that I know of is that they mention common ideas:

there is only one moment: now

that we can only control one person, us

that we forget the above two often so we need to practise

AND, that it’s human to be like this.

This image is my iphone locked screen.

Calm Days And Calm Nights. What Is This About?

Regular readers of this blog know I was diagnosed with a form of head and neck cancer back in 2017. Full series of blog posts here. I learned so much about myself then, about what I could cope with, about how I could, with support and practise, learn to deal with hard things. I wrote a post or two about exposure therapy as I learned I HAD to do after seeing a psychologist back in 2016.

Changing from Headspace Meditation to Calm Meditation for me was about just that…change. It did turn out to go well for me in 2018 I was offered a great price for a lifetime subscription and being on a pretty fixed and low income that helps a lot.

I liked and still do the ways in which I can pick and choose the meditation for a particular reason*, for example, if  I sense I am being overly self-critical I will choose to do the series on that to learn and learn again (practise remember) the various ways in which I can pull myself up in terms of self-talk and gently guide myself forward.

Each day now, at the time of waking…and in retirement days this can vary from 8.00 am to 9.00 am and I LOVE that luxury, I open the Calm App and settle back in bed (loo stop first) for my morning Daily Calm. Following it, I reflect via the suggestions and may choose to keep and share the quote and image of the day. Then I get on with my day.

Oh, I do not write about Calm because I was asked to or I was paid to do so. I just like to share what works for me.

At the end of the day, again in bed, when I am ready to settle for the night, I select a meditation via need*. It does not matter if I have done this one before, there is always something new to learn and focus on.

If by the end of this one, I am still wide awake – not often – I may choose a Sleep Story. They are awesome and have great narrators and stories to share. It’s much better for me than music.

As we know and admit, we are all “works in progress” and I decided to share my thoughts in this first week of blogging 2021 with you and in joining a couple of link ups.

  • May you find peace.
  • May you be content.
  • May you be well.

When I am here…I am the most mindful I can be outside of practising meditation!

And may you never stop learning!

Denyse.

Joining with Leanne and friends here for link up called Lovin Life.

Now on the weekend I am joining here with Natalie and friends for a Coffee Catch Up.

 

 

 

 

 

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Word Of The Year. 1/51 #LifeThisWeek. 1/2021.

Word Of The Year. 1/51 #LifeThisWeek. 1/2021.

W  E  L  C  O  M     E    V   E   R   Y   O   N  E    2   0   2   1

Welcome to Life This Week in 2021. I am so glad you are joining us. Every Monday for 51 weeks this is the place to connect, to share, to add, to comment and to meet-up virtually with many! Love this community. Thank you for being one very important part. If you are new here, extra big welcome. The optional prompts for the weeks ahead are found on the home page. Denyse.

 

For the past three years I set a word of the year for me to live by. I admit I found this both a blessing and a curse. Ha! It was more the former than the latter. I did say to myself in November:I think I will leave trying to live with a word of the year in 2021′

Then on 30th November for my 71st Birthday my dear husband wrote this to me on the card’s envelope:

There it was. A word to live with and by, and as many who read here know I do love having my smile. So now you know!

 

Why “SMILE”?

  • A smile is a valuable form of communication and connection.
  • I know for some people smiles can be hard to manage depending on the time and circumstances and not everyone is a ‘smiler’. That is what makes the world go round, we are all different.
  • I too do not like being told “smile!!”. Umm. No, unless I have the emotions that warrant a smile, I may be able to slightly fake it but truly I prefer the genuine smile.
  • I know there are many more muscles used in the face to frown and far fewer to smile and that can be a suggestion as a mood lifter.
  • In fact, the old adage of ‘fake it till you make it’ can work as a psychological tool at times. Try it.

Some Thoughts on Smiling.

“A simple smile. That’s the start of opening your heart and being compassionate to others.”

– Dalai Lama

– Thich Nhat Hanh

“Don’t cry because it’s over, smile because it happened.”

– Dr. Seuss

“The greatest self is a peaceful smile, that always sees the world smiling back.” – Bryant H. McGill

“https://www.keepinspiring.me/quotes-about-smiling/ecause of your smile, you make life more beautiful.”

My Friends Shared Here About Smiles and Smiling After This Request From Me.

  • Reading random acts of kindness
  • My dog Lucky makes me smile all the time
  • You make me smile. Especially now with your beautiful new smile x
  • At this moment in time, seeing (and hearing) the delight as my 2 year old granddaughter experiences the beach. It starts as we prepare, then as she sees the water in the distance and then peaks as she plays in the water. Her pure happiness and joy at life in general makes me smile.
  • My adult kids, watching them live their lives makes me smile x
  • Snowflakes Music Ice cream Love Energy
  • Babies laughing
  • My garden

 

The Story of My Smile.

It’s said we often don’t know how much we appreciate something until it’s gone. I agree.

Regular readers here will know that I was diagnosed with a form of head and neck cancer in the top area of my mouth and this page tells the whole story.

The loss of what I counted on as something unique to me and special, oh so special, my smile was something that I came to terms with over time. I had to.

However, the length of time it took for me to get my smile back was fourteen long, arduous, surgery and treatment filled months.

The day I got to see what  my new  smile would look like nearly brought me to tears. It was like being reunited with an old but changed new friend.

Under each of the photos here I have added some commentary connecting the word S M I L E to:

  • why I smile(d)
  • the story behind the smile
  • what can make me smile
  • appreciation for my team who gave me back my smile

 

That’s the story of my smile and why I chose the word for 2021. Actually I now think the word chose me. In a way, it was from my husband’s compliment and then this. I found a letter he never sent but he sure did proudly share with me and I have permission to share now here.

From B about my smile: written in 2018.

ABC Recording Studio, William St., SYDNEY.

I would dearly love to record a song for my wife of 48 years. I first encountered her at the Tamworth RSL Club where we were attending a Teacher’s Conference. Seated at the same table that evening, I was immediately struck by her smile. Since then, we have combined to produce two great children and eight adorable grandchildren.

Two years ago that smile was seriously threatened by a most unusually rare squamous cell cancer in her mouth. However, thanks to the brilliant intervention of an unusually rare surgeon at Chris O’Brien Lifehouse in Camperdown, Prof Jonathan Clark, she now has a new palate hewn from leg flesh and bone. Now that unusually rare smile has returned even more vibrant than before.

So, the song I would like, with your wonderful help, to dedicate to her is the Carpenters’ “Sweet Sweet Smile”!

 

Of course, smiling is contagious and I do this as much as I can when I am out and about to show my appreciation for others.

It is made harder by the addition of the mask thanks (no thanks) to COVID19 but I will still smile with my eyes and use words of appreciation where I can.

I hope your year has begun well.

Do you choose a word for the year?

I will review the word I had for 2020 in a future post.

Thanks for being here!

Denyse.

Link Up 221.

Life This Week. Link Up #221

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt is Announcement. 11/1/2021

You are invited to the Inlinkz link party!

Click here to enter


FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Telling My Story. Chapter Twenty Five*. 2020. Pt.2/3. 51/51. #LifeThisWeek.102/2020.

Telling My Story. Chapter Twenty Five*. 2020. Pt.2/3. 51/51. #LifeThisWeek.102/2020.

Well over a hundred three years ago ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author (her story is here) that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at...Chapter Twenty Five*. Part Two of Three.

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members.

 

*Rightio…how DID I jump from my last chapter..Telling My Story which was Chapter Twenty to here?

No, I did not secretly write the posts and then not publish them.

But I did have a brainwave…do 2020’s chapter while it is fresh in my mind.

So, here I am with the second four months of “THAT” year we won’t forget in a hurry: 2020. Last Wednesday I published the first four months here.

This is the last post of #LifeThisWeek I will publish the final one of Telling My Story 2020 on Wednesday 23rd December.

Then, over time in the first months of 2021 I will write:

Chapter Twenty One (2015),

Chapter Twenty Two (2016- mid May 2017),

Chapter Twenty Three (later in May 2017 – 2018),

Chapter Twenty Four (2019)

In this, the last post for Life This Week, I want to thank each of you who has linked up, read and commented this year. You are very much valued as a part of this community. I am posting again this Wednesday to conclude this series (the Chapter for 2020 I mean!) and will be back on board for:

MONDAY 4 January 2021. 1/51 Word of The Year. Optional Prompt.

 

Part Two of Three. Chapter 25. 2020.

Now, on with the months of May, June, July and August of 2020.

I have to warn you whilst there are no gory photos there may be some details of the ailments I had that are not pleasant to read. Nor, of course, were they pleasant to have!

MAY 2020.

Family.

Our second granddaughter turned 21 in the early days of May. On the same weekend when the Premier of NSW announced, during a COVID update,  that families could visit each other in their houses, S had her ‘lockdown ISO’ party which she shared with us,  around 2 hours away, via facetime. Her Mum, boyfriend and siblings made it a special night and I am told, she got the cake cooked by her mum as was requested! Congratulations, S!

We actually saw her and the family the very next weekend as it was Mother’s Day and my daughter invited us to her house for Morning Tea. That was the first time we had ventured to Sydney since March. It felt strange being on the M1 and it was not too crowded. Delighted of course to see our family. It was lovely.

On the Tuesday afterwards I drove back down again, in a different direction, to see my Dad on the northern beaches. I had not seen him for at least 3 months as we were being very cautious in making contact with such an older person in an independent retirement place. I took all precautions and they had strict protocols for me and paperwork. I admit, I did give Dad a few hugs. He had missed human  contact other than generally on the phone.

 

My Self Care In May.

My emotional health took a bit of a battering as COVID struck with all its limitations, rules, changes and moving of goal posts. I am not great with change but do accept it’s needed and so I offer myself more kindness, easier inner talk and times out (if possible) by myself in the car and to possibly enjoy a coffee. I was delighted to find a takeaway stall on one of my Sunday drives, and then over time, with limitations some of my fave coffee places which had stayed open, could have a small number of people sit for coffee.

I kept up my art and craft practices and set myself small goals and got immersed in fulfilling those. With the Index Card a Day Challenge starting in June I was ready for that. I did some treat cooking for me and for my local GP practice as the doctors and front office staff went through a LOT in terms of dealing with the regulations and patients!

I continued with drives over to the water once COVID regulations about exercise meant you could walk where you went. I did. Sort of. To take photos. Noticing things in nature always helps me and I really needed it because I had health matters to deal with that were significant.

I also acknowledged that it was 3 years on 17 May 2020 since my oral cancer diagnosis. Important to remember, reflect and be grateful.

Health Matters. May, June, July and August.

I will do my best to use short and helpful sentences..and as my husband suggested: dot points.

MAY:

  • I needed to finally, and actually rather urgently see my female G.P. about the bothersome rectal issues. When I saw her, it was “do this, go here, see him” and “YOU have your whole life ahead of you” Get this sorted. She “IS” that kind of doctor and I love her for it but that day I got a bit scared.
  • She sent me to the Colo Rectal Surgeon and to my embarrassment (not his) I was very reluctant to go through with what he suggested first. A colonoscopy. Why? Rectal bleeding and obvious (he saw, not me, I just knew) rectal prolapse.
  • THIS was a condition I had lived with, tried to anyway for well over 2+ years, and I KNEW it was not good. I blamed IBS for my sometimes incontinence and ageing..but as I have found out no, it was the rectum being very lax and ‘falling out’. Sorry to write that.
  • Off home with the news, and the Colonoscopy pack. It was mid COVID restrictions at private hospitals and I opted for mine at the place 5 minutes up the road. No can do. Till June.
  • Waaahh. That is me who does not like to wait.

JUNE:

  • OK, people, with me it was nerves and more that put me off the colonoscopy but I also knew that without doing that nothing would change.
  • Facing up to it, hating the preparation and the aftermath at home, my dear husband took me to the private hospital up the road and left me.
  • The nurses were kind, the prep sure had done its work and….
  • The outcome, as told to me by the surgeon, was no cancer..but a pretty awful rectal prolapse which he strongly suggested needed repair and to come see him very soon.
  • We did, it was very helpful to have my husband there. The surgeon explained how he would perform an abdominal rectopexi. He would go in via my very old hysterectomy scar, pull up the rectum and sew it onto bone low on my spine near the coccyx.
  • Recovery would be in hospital for at least 4 nights and he predicted success. I was ready to trust him.

JULY:

This post tells something of what was to come for me.

  • Testing, testing. Bloods needing for the major abdominal surgery coming up.
  • Then to the private hospital in COVID times for booking in. In actual fact, it was a phone pre-op consultation but I needed to attend the hospital some 45 minutes away for ECG and pick up pre-operation info and prep. No not the awful prep. Phew.
  • I admit the nerves did play up a bit but I have dealt with 4 cancer surgeries AND I trusted this doctor and his goal for me and my GP too.
  • On a freezing late July morning my husband drove me – bag packed with nighties, all I needed for entertainment i.e. phone & ipad, and loose pants – because coming home my abdomen would be swollen & tender.
  • I was literally dropped off because of COVID.
  • Interestingly the prep I had to take at home before surgery was a drink of electrolytes and I had to have an all over shower body wash with their particular sterilising skin liquid.
  • The worst part for me …is always the waiting before going into theatre but this time was made worse as my surgeon insisted on a series of enemas. OMG. Not happy, in fact I got teary with the kindly nurse. She understood but the back and forth in a gown to the loo…made little better by being on a bed close to it. Sigh.
  • Anaesthetist was very thorough with his questions and also had to give me a spinal. Not impressed by the anaesthetic nurse who was very stressed about my veins. Shout out to him: not good to show frustration in front of patient who is already nervous.
  • Then I was GONE. Out like the proverbial.
  • Recovery: very aware of the pressure boots keeping my legs active, the fact that I could not feel from my waist down, catheter in and to be honest, felt well because “it’s over”.
  • Hiccup in communication between staff in recovery – it was busy – COVID restrictions were easing for capacity – meant I stayed in recovery about 2 hours longer than needed…grrr. Could have been in my room.
  • Something unexpected as my surgeon told me the morning after: he did the horizontal cut as planned but when opening me up, there was a hernia which would need repairing. It required a vertical cut to access it, from the first cut to my bellybutton. All stitching was internal with tape holding the outside wounds. I literally had an upside down T wound area.
  • Fast forwarding: I had an OK time recovering but not comfortable at all. My eating was hampered by my mouth and whilst I could have anything to eat, I was worried about …diarrheoa. Trust me, it didn’t happen but I needed reassurance and my surgeon was prepared to let me go home a day early even before bowel movement because I was needing home. He was lovely. Still is!
  • Saw him at a check up about a week or so later and he told me I was a star patient. Oh, I needed to hear that.
  • No driving, but that was OK. I was just so relieved that all was well  and miracle of miracles, no incontinence. Yay. Unreal.

AUGUST:

  • But. It was not to continue as a star recovery.
  • Around 2 to 3 weeks post-recovery, and I was still not able to drive, there was some redness appearing on the surface near my bellybutton. Husband took me to GP who advised ‘could be a ‘haematoma’ …we’ll keep an eye on it. I did, with photos. BUT….the area of the upside down T was needing greater cleaning by me. At shower time. Sigh. OK.
  • Whilst I am not great with complications, I also understand they occur. Even with ‘me’ doing everything right. I wrote here about what happened.
  • Then I wrote in detail here of the timeline, the circumstances and why it took me till October 2020 to be fully recovered!

 

What a Four Months That Was! 

But wait, there is MORE.

Daily Life with COVID19.

No, we did not have it..phew and all that. But we had to, like everyone, live around its restrictions and rules, and to be safe. For us, who are pretty conservative and intelligent people in their every day lives, it was fine. Really. You see, due to our health matters and not much income, it was never on our agenda to have overseas holidays, or even interstate ones so, unlike many, being home-bound in some ways did not bother us.

I made it work for me, the person who enjoyed her daily outings, by varying what I did at home and combined with my cooking/baking mojo returning, I found I could enjoy a coffee and treat at home some days. I also re-discovered reading the women’s mags. I did! Some got ditched soon after buying, but I have been reasonably surprised by the quality reading in the Australian Women’s Weekly so I buy that now. We gave up our physical paper delivery ages ago and get the Sydney Morning Herald as a digital subscription. All the local newspapers, which I used to love, are gone to digital land…except for one free community paper each week. I still enjoy something physical to read.

I continue my audible subscription each month and listen to some books in the car, and others at night in bed. I have taken to reading along in some cases with the physical book when accents become too hard for me to fathom which character is who!

My art is always here for me. I have, as many know, a dedicated area near my computer for all things creative. Making designs and mindful mandalas is the g0-to for me when I need to ‘concentrate’ or be mindful on just one thing!

Cooking now has a rhythm for a meals each week and we tend to use our batch-cooked meals a couple of times a week, and eat meals made from scratch on others. My dad is the recipient of some of the frozen home cooked meals.

Head and Neck Cancer Awareness and Support.

In the weirdest year ever…. COVID …to date…all things meeting-wise and catch ups were off the table. Therefore the organisation for which I volunteer had to re-think what it did to get messages and support out there for patients, families, carers and professionals.

The June Patient forum at which I was to speak was cancelled and morphed into an on-line program over many days and weeks. My part, on line as recorded by me here, was to respond to my psychological reactions to and management of having head and neck cancer.

The usual fundraising event for Beyond Five was Soup for the Soul and the physical events were not happening, nor were there any of our local Central Coast meet ups. Nevertheless, we worked on getting messages out there via You Tube, and of course, Zoom Meetings. I was not great at zoom so not that involved but as mentioned last time, my interview was on line about nutrition.

More from COVID Year 2020 for Me To Remember!

Apart from hospital homecomings… THIS was a big day and much needed..our son and his four kids came for lunch. Ahhh that’s better!

Grateful for Family Visits.

Thank you for reading..if you got this far. I am incredibly grateful to my readers and commenters.

Denyse.

Link Up 220

Life This Week. Link Up #220

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Have a great break from now till the New Year. May You Be Well! 
The next link up will be Monday 4th January 2021. Optional Prompt: Word of The Year.

You are invited to the Inlinkz link party!

Click here to enter


FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest