Tuesday 24th November 2020

Out & About: Head & Neck Charity Ball 12/51 #LifeThisWeek. 24/2020.

Out & About: Head & Neck Charity Ball 12/51 #LifeThisWeek. 24/2020.

Regular readers and followers know I was diagnosed with a head and neck cancer in May 2017. Posts are here.

Then, in 2018 I was invited to become a Community Ambassador for Beyond Five. More about that here.

In my role helping share awareness of head and neck cancer facts and more via social media, this blog and in person, I really find it satisfying to give back:

  • to offer my skills and experience as an educator
  • and to feel and stay connected with other patients and their families/carers with a head and neck cancer,
  • attending meetings on-line and off relating to head and neck cancer support
  • to be part of social network head and neck cancer groups
  • to assist professional teams including my professor, speciality nursing staff and allied health professionals by sharing my experience on-line and in person
  • a recent interview for a Beyond Five project on nutrition
  • and then this……

Attending The Head and Neck Charity Ball at Avoca Hosted by Four Amazing Junior Doctors on Saturday evening 7 March 2020.

 

Here is the post from Beyond Five: the organisation to benefit from all the fund raising from attendance and silent auctions:

Beyond Five

Last Saturday night Caitlin Frede, Grace Swain, James Shannon and Catherine Zil, a dedicated team of junior doctors working within Central Coast Health hosted a #HNC Charity Ball https://buff.ly/37Aiejn at the Avoca Surf House in NSW to help raise awareness of #HNC and funds to support Beyond Five.

Over 100 people attended including Caitlin’s family, who lost her father Peter Frede to #HNC in 2015, and healthcare professionals from the Central Coast Cancer Centre.

Caitlin shares the stark and moving story of her father here. Thank you Caitlin for sharing your perspective in this cancer which has cost your family the presence of a husband and father…and a wonderful human being….

Dinner guests listened to powerful speeches from Caitlyn and former patient, Central Coast resident and Beyond Five Community Ambassador, Denyse Whelan who talked about her treatment for #HNC. Dr Puma Sundaresan, Radiation Oncologist at Western Sydney Health and Beyond Five Director also spoke about the need to raise awareness of #HNC and the importance of early detection.

Thank you to everyone who supported this fabulous event, helping to raise over $4,000 for Beyond Five. We are incredibly grateful!

My social media recount of the evening. 

A glorious evening at Avoca beach hosted by a group of junior doctors currently working on Central Coast to raise funds for @beyondfiveorg

As a head and neck cancer patient I know information shared helped me.

This is why I am privileged to be a Community Ambassador for @beyondfiveorg

Tonight I shared part of my story with over hundred guests many of whom were in

health medical dental allied health fields.

My thoughts during and after this event.

  • How fortunate we were as a group to be able to come together as this preceded the coronavirus restrictions, even though at this time, everyone was become familiar with what would be our future without handshakes and hugs. I was so honoured to be asked to speak about my head and neck cancer experience and meeting with Caitlin for coffee as part of her planning I was even more impressed with her initiative of that of her colleagues. They are working on the NSW Central Coast as part of their medical training.

 

  • Lisa Shailer, pictured above, is the Head and Neck (and Lung) Cancer Nurse who oversees new and on-going patients at Central Coast Cancer Centre at Gosford Hospital. She, along withe some head and neck cancer patients, started the Central Coast Head and Neck Cancer Support Group. Lisa is the person who ‘found me’ via my article on-line with local MP Emma McBride and invited me to attend the inaugural Soup for the Soul event at Gosford in July 2018. Since then I have been an active member of the group, in my role as an Ambassador for Beyond Five.

 

  • Dr Puma Sundaresan and her husband attended the event and whilst Puma represented the board of Beyond Five, she was there for sentimental reasons as she was a radiation oncologist on the Central Coast before taking up her current roles in Sydney. She spoke about the fact that the rise of head and neck cancers in younger people is becoming greater and there is a connection with HPV. She outlined too, that the Central Coast has a high rate of head and neck cancer cases relating in many cases to smoking and drinking.

 

  • For me it was an evening where I felt privileged to be amongst people who cared about head and neck cancer and getting the messages out there. One person came up to me and told me she is a dentist in the practice where I attend and where, along with my dentist, I first was told we were looking for cancer. What is was we did not know, but I am very grateful she showed support as does her workplace.

 

The future is bright. 

Yes I said that! We are, at the time of writing, in a pandemic state thanks to coronavirus or COVID-19 of course. I know there are going to be more restrictions imposed on many of us soon, For some, travellers and others, some cannot even get home. But I know, with the air of care, professionalism, hope and generosity I witnessed on this evening with the focus on helping others with head and neck cancer support, we have excellent people in our health professions. These times ahead are going to test them. However, if they can remain true to themselves using the skills, talents and more I was privileged to witness the future will be bright.

Notes on the fundraising experience.

These next months are going to see no gatherings for meetings and fundraisers for any cause.

Head and Neck cancer charity Beyond Five usually hosts a Soup for the Soul Fundraiser in July.

Whilst we do not know what that month will bring for getting together we may assume, like the Head and Neck Patient and Family Forum now moved from June to October, there may be flexibility in fundraising.

Maybe like my last two years, a virtual Soup For the Soul!

Recent update from the Head and Neck Charity Ball is that $4.400 was deposited into Beyond Five’s account. Yay.

Lastly….

What a beautiful scene from this event place at Avoca Beach N.S.W.

Take time to notice nature is always calming…and for  many of us in uncertain times, this can help.

Go gently and stay well everyone.

Denyse.

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