Wednesday 20th January 2021

Telling My Story.Chapter Nineteen. 2010-2012. 93/2020.

Telling My Story. 2010-2012. Chapter Nineteen. 93/2020.

About a hundred three years ago ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author (her story is here) that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at...Chapter Nineteen.

I admitted last chapter  it is getting harder in some ways to blog about the more recent times. I think it is because without using particular markers (i.e. deaths, births, engagements, marriages, break ups…) then it can be hard to recall.

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members.

I have a goal to continue to present at least one more of these chapters, after this one,   this year, have a break and be back in 2021.

All the posts are here if you would like to check them out.

Photo: #7 for Telling My Story.

2010, 2011, 2012.

The group of these three years are somewhat mixed up  for me in a chronological sense. I would possibly be making factual errors if I tried now to assign a month/year to an event or memory or significance. So, I will do this chapter with what were highlights, new and memories from this era.

No More Work in Schools.

I really knew when to go. In fact, I wrote last chapter by the time I got to 4th term of the year I turned 60 (2009) I was tired and ready to leave working in schools. Much had changed but much was also wearying. I no longer had the mental interest and physical stamina to be contributing member of a school staff. I also was aware that at my age and stage I did not want to be a negative influence either, so with grace and at the right timing for me, I retired to become:

Grandma (and Papa) Grandchild Carer.

As someone who actively resisted any call to stay at home for more than some months when I was a full time teacher seeking promotion, I had a different ‘take’ when it was about the offspring of those two of ours. This time around it would be our son’s two children – one a toddler getting to be a pre-schooler, and one a baby. We would begin care for up to 3 days a week for these two. Honestly, I have never been more physically tired but in such a good way.

It really was a fun time. The shops which sold kids and baby toys and more, did well out of me and we had an ideal set up for a child in a bed and one in a cot to be with us. I duplicated bottles, nappies and always had a ready supply of changes of clothes, along with a highchair, a stroller and much much more.

The two would be brought by whichever parent was coming our way in the mornings. Drop offs could be tricky. We did have tears a few times, even though we had practice stays but at time went on, things eased. We (the grandparents) got into our routine with the children too. There were stories with Papa while I did other things, and we convinced them for as long as possible that sleeps after lunch were mandatory because WE needed the break too.

 

The days of care changed from time to time and some days, as the children got older, we would also care for our daughter’s youngest. Honestly, 3 were hard work but we did it. For one term. One of these children is now in High School…and one goes next year, and the youngest in the group will be in primary school. What is it they say about time flying?

Denyse Needs Something Else To Do.

I have always been an early adopter. I had an on/off relationship with Facebook but twitter was my place to be and I met so many people there, and then via blogging from 2010 who continue to be friends and we have met up. I enjoyed the conversations on twitter that took me to new places, called blogs! So, by the end of 2010 – coming up ten years in December, I kicked off my foray into blogging.

Sadly I had to pay someone to set it up and then I had no real clue what to do other than post something. I did. Pretty sure I knew nothing about how to get others to read it. And then came (via twitter of course!) the information that there was going to be the First Ever Aussie Bloggers’ Conference. I hesitated thinking I was not really eligible and then with encouragement from the founder, I dived in. I attended the conference of two nights and one day in Sydney. This started me well on my way to…

Denyse Whelan Blogs.

So in the three years 2010-2012 the Australian (Mummy, then) Blogging Community grew and grew…there were events for bloggers run to help us understand sponsorship, brands and it was BIG learning for many of us and we then thought, a chance to MAKE some money from this thing called blogging….wow.

But not for many, in fact anyone like me did that happen. I did however, get some sponsorship to attend a Blogging conference in Melbourne – flights and accommodation. I was not really the demographic..in fact I was (still am) the oldest blogger in most cases. I was always made to feel welcome and enjoyed the connections. I think in 2011 I attended at least 4 blogging events and again a chance to learn and meet up with people.

From my previous career in schools I learned more about others and was no longer only about schooling and education. I have, as I said, made great friends via blogging and many I got to meet not only at the conferences but sometimes at sponsors’ events where I was invited to a promotion and with gifts of products (mine were often related to children’s learning) to blog about.

Over these years I did try a range of types of blogging and got my head around link ups and more. But what I needed was a blog developer and I got this in the form of meeting with the kind person who (still) looks after any aspects of my blog in a technical way. It took me some money and more understanding to get this blog thing something that worked for me. I then got on with all I could do and learn from others. Took me to Melbourne 3 times in that period.

Life Challenges and Great Memories Made With Young Grandkids.

In this three year period, my husband was not well. He has had a pretty tough road in terms of medical challenges because his body has many parts that do not work well…mostly related to his spine. He was medically retired from teaching aged 30. That is part of the story for year 1978.

Now, even more so at the time of writing he does have medical challenges….

However, back then, erroneously, he was diagnosed with Parkinson’s Disease by a specialist and the day that happened was the day he was forced by those words to stop driving, hand in his licence and basically given medications that she and his psychiatrist deemed appropriate for his now PD on top of spinal stenosis and chronic pain.

He, along with me, was devastated but, as we DID then, we went along with this awful news. The medications he was on affected him cognitively and it was not a great outcome for quality of life.

He did, however, always question the actual diagnoses and through his actions and those of  a new GP made great inroads into changes of medications. Eventually he sought a second opinion on the PD from a specialist neurologist who claimed he had only an essential tremor and as none of the PD meds had made  any difference, it was not Parkinsons disease.

The GP and my husband then worked on the plan to get his driver’s licence reinstated and that in itself was a costly experience – around $700 back then and a day in a rehab hospital. Honestly, the patience this man had. Anyway, he got it back. He tried to tell the first neurologist of her error but she was not interested.

What a shame. This is a prime example of why HE now is his own medical expert and his now health is kept in line with his conditions thanks to an excellent team of his GP and other specialist.

LOVE is….50 years together

Scenes with some of our grandchildren…who are, indeed, significantly older too. These are the best of times. Always. We may have been tired out physically but never emotionally.

Highlights of Significance From Family Life. 

  • Dad had found living in the original family home, alone, since Mum’s death 4 years earlier more and more of a challenge.
  • He decided to sell, and did in 2011. In a down market unfortunately. He helped us financially to be able to stay in our house for an additional 4 years.
  • He moved to a brand new Independent Retirement Place at Dee Why and almost 10 years later, remains there and as well as he can be for almost 97.
  • Our daughter was in a new relationship and with that person (now not together) sold her townhouse and with him, made plans to build and buy their own to live in with their extended family. This was OK for a while but from late 2012 things changed. No details, as I cannot share them nor do I want to.
  • Our son married his then partner and the two grandkids were ‘corralled’ by me for most of that long, hot day in the beautiful setting at Gunner Barracks.
  • We cared for the children for part of their honeymoon time too.
  • My husband’s dad, whose wife had died in 2009, sadly lost his life by the end of 2012.
  • I began some contract work with NSW Institute of Teachers as an External Observer and that took me, often by plane, to schools all over N.S.W. from 2012-2015.
  • Grandchildren were growing up and attending primary and high school. We had less to do with our eldest 3 then but they still had overnight stays from time to time. And we did have a pool!
  • Family functions continued: birthdays and the like.
  • Over time, Christmas became more complicated to try to ‘fit everyone’ in so we often compromised the the big Christmas Days of the past were gone.

More About Me.

Whilst I was busy, busy, busy, I did not do a lot of healthy self-care that helped me. Actually my version of self-care usually involved comfort eating, shopping and taking some time out for me. In fact, none of it really helped someone whose self-esteem was pretty low. I had a few reasons to be less than confident about myself I guess:

  • never measuring up (in my eyes) to my parents’ expectations
  • not finishing my job as a principal
  • taking comfort to deal with the worries from my life as a wife, mother and grandmother
  • trying my best to be the confident me in public…and doing that well…but the inner me needed soothing

I was aware my weight was at a not-great level for my on-going health. I also did not want to talk about it or do anything about it much. I had a couple of tries at losing weight over my lifetime and wrote about that here.

I had some health issues that included Irritable Bowel Syndrome (diarrhoea) which let me know when my emotions were not in balance and I had a bout of pancreatitis a couple of years earlier which I did not want to repeat. Nevertheless, I did my best to ‘look OK’ even though when I see the images now, I am very overweight.

I have a great deal of concern and sadness for me, the Denyse then, as I believe(d) I was doing the best I could.

Self-compassion, as I write this in 2020 in evident now.

Nothing like perspective and personal growth (the mental and emotional kind!)

In 2012 I met up with blogging friends and loved this connection! Still have that here and in real life as well as social media. Very grateful.

And, there are a few more memories from this period.

And that ends the memories from this era.

I will be back!

Chapter Twenty is 2013-2014 will go live before the end of this calendar year.

Thanks for your kind words about Telling My Story, too!

Anyone notice I have changed the image for this group?

Here’s all I have used since starting Telling My Story.

Photo (#1) For Telling My Story.

Photo (#2) post major cancer surgeries.

Photo (#3) After getting my upper prosthesis.

Photo (#4)Post: retirement medal presentation late 2018.

Photo #6. Mother’s Day 2020

Denyse.

Joining with blogging friend Leanne and others here too. Thanks for the link up!

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Cancer Is Always ‘There’. 2018.84

Cancer Is Always ‘There’. 2018.84

It is rare these days for me to compose a post and publish it immediately. I have planned posts, scheduled posts and draft posts. Today is different.

I need to write out my truth and my feelings based on recent, significant events for me: a Cancer Patient.

What Do I Mean “Cancer is always ‘there’?”

  • Once diagnosed with cancer I held onto the belief, rightly or wrongly, that my surgery would eliminate the cancer in my upper gums and behind one side of my top lip.
  • It did. In terms of reports back from the many lab results, biopsies at the time of the major surgery in July 2017, and the reassurances from my professional team.
  • However, I do, like many others who have been diagnosed with cancer, “know” that it could come back in another way or form….and also that the reason for my four surgeries has been because I had/have cancer.
  • The many (22 now) visits to Westmead Oral Sciences to have treatments and checks for the progress of my mouth healing, stent wearing and health of my gums is because of cancer.
  • This came home to me yesterday, ONE week after re-gaining what I thought I wanted most: my smile, when it appears that the top lip (cancer site) is tightening again and I need to do some exercises to help it gain more suppleness.
  • There I was, thinking (albeit naively) that the cancer thing was almost gone.
  • Nope, no and not at all really. Check ups, doctor’s visits, mouth checks …..it is not gone nor over by a long way.

Explaining My Mixed Emotions and Responses/Reactions via My Photos.

 

Thank you for reading.
I wonder if any readers who have cancer/had cancer might identify with this.
I am a relative newbie (only 15+ months since diagnosis) yet it feels like I have had cancer forever.
I guess I do.

Cancer is always ‘there’.

Denyse.

Linking with Sue and Leanne here for MidLife Share The Love linky.

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Reality Bites. Part One. 2017.96.

Reality Bites.Part One. 2017.96.

Today, 6 August 2017, as I write, it is exactly ONE month since my cancer surgery on 6 July 2017.

I am calling this post ‘Reality Bites’ as the consequences of the diagnosis of cancer, the pre-op visits and treatments and then the ultimate ‘reality’…. the complex and major surgery in my mouth and on my right leg have truly ‘bitten’.

I am writing it out so I can honestly tell you, my readers, that I am NOT doing so well in that emotional sphere at the moment.

This is despite my previous posts where I appeared to be going so well. I was/am in a physical sense.

Readers who want to read more about what this surgery was about can go here:

my diagnosis….my updatesmy grateful post #1my grateful post #2.

Reality has bitten in the form of a heightened emotional response (and IBS frequency) to what has happened to me…my feelings are catching up with what I have been through – from date of diagnosis 17.5.17 till now. (less than 3 months!)

Here is how it is for me NOW as I recall memories that are not great and are affecting me somewhat even though I know things will get better over time.

  • Wow, it’s been one month since the huge operation which I  knew was going to (hopefully) take all of the cancer out of my mouth and leave me with a reconstructed mouth using tissue and bone from my right leg.
  • I recall my feelings of being totally overwhelmed when the surgeons began to describe how they would ‘fix’ this cancer in my mouth only one day after I found out I HAVE cancer.
  • I got through the drive home after that with my hub on my least favourite road (M1) as I tried to wrestle the past 24-48 hours into some sort of sense for me. It was surreal.
  • At home I ‘tried’ to go on with ‘normal life’ but that is impossible when the word C A N C E R shone like a red light in my mind constantly.

“last smiles” were/are treasured but under those false teeth it’s cancer

  • I made  plans and prepared for hospital,  making meals for later,  and making sure I had sufficient clothes and activities ready to take to the hospital but it was surreal. I was doing this BECAUSE I have cancer. It still did not make sense to me.
  • I know that I saw my GP and psychologist about the surgery and what is meant to have cancer and yes, I cried sometimes but other times I was just numb. THIS could not be happening to me!?
  • My mouth and its discomfort and smell were the source of the cancer and I began to ‘hate’ it.
  • I also knew this surgery was going to take away 3 things that were and are precious to me: smiling, communicating and eating. Made me sad and quite stressed.
  • I was resigned to what the operation was but I truly had no idea of how it would impact me because it was like I was somewhat detached.
  • I knew that the surgery would be within 4-6 weeks of our consultation with the surgeons but oh how those weeks dragged on as I wanted to surgery to be over…but I also did not want to have it. So horrible. It  ended up being 7 weeks after diagnosis.
  • It took me weeks to finally get out the hospital forms and complete them. I just couldn’t before. I had to make myself do them. Filling them out meant, of course, I HAVE cancer and HAVE to do something about it. 
  • I made a decision to stay in a ‘cheap place’ the night before surgery and I so regret this as we were uncomfortable and I spent some of the time ‘feeling guilty and responsible’ because I have cancer. 
  • On the day of surgery, at 6.00 a.m. we  presented yourselves at Chris O’Brien Lifehouse, and then once ‘checked in’  I undressed and got into the paper gown which meant THIS is about to happen. O.M.G. 
  • I said goodbye to my husband and was off….the journey into the unknown…the operating theatre.

I’ve written two posts (see above) which described how things went for me in hospital so I will not outline any more here today.

The next post will outline what happened emotionally in hospital and then my homecoming. I have chosen to write about it all from an emotional perspective as life as a cancer patient post-surgery is affecting me and writing it out is to help me.

At home in my first weeks.

Have you had cancer?

Do you have an experience of having a life-changing event for you where things caught up with you later on?

I appreciate your comments and support. I am not looking to ‘get advice’ as I think that in recognising what is happening to me and letting it happen is probably the healthiest way I know how.

Thank you for your support!

Denyse.

Joining with Kylie and friends here for I Blog On Tuesdays and here with Leanne and friends on Thursday for Lovin’ Life linky.

 

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