Monday 19th April 2021

Telling My Story.Chapter Twenty Two. 2016-16 May 2017. Part 1/2. 37/2021.

Telling My Story.Chapter Twenty Two. 2016- 16 May 2017. Part 1/2. 37/2021.

The backstory first:

Well over a hundred three years ago ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at Chapter Twenty Two. And as with other posts, I am making it Parts 1 & 2. 

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members. All of the stories to date found here.

And with this chapter, another photo…taken this year overlooking the harbour at Dobroyd near where I grew up.

Beginning 2016.

In my recent two-part Chapter 21 here and here, I outlined the emotional and physical health challenges I faced and was doing my best to both manage and understand.

This, for practical me, was very hard as the emotional roller coaster of my life often exacerbated the Irritable Bowel Syndrome and then that played into my negative thinking about myself …..and so on.

Not easy. For Me.

And of course, for my husband who was studying counselling part-time, working as a volunteer for two charities and doing renovations at his brother’s too. When I look at this, and he and I have chatted about it since, loneliness was sometimes part of the problem for me.

I made a change to this blog, and formalised the categories into one for each day, and launched Denyse Whelan Blogs, thanks to my dear friend Tanya and her patience and creativity along with my tech man, Craig. I was determined that staying connected and accountable every day to SOMETHING outside myself would in fact, help ground me in some ways.

It did.

Look, I am still here! And the categories are not used like this so much now but I liked how I got on with the changes! Back then too, there were around 4 weekly Australian based link ups!

A Few Celebrations And Not So Good Times.

We celebrated our 45 years of marriage with our family. Our adult children and their children. It was the first time we had all come together in around a year. That was very special.

We also heard awful news early in that same year that was both shocking and impactful on our family, particularly for two people we love very much. So much I cannot say and would not.

However, I did take it all pretty badly. That’s me. I feel. I was already rather anxious but this news did not help. I also felt conflict about it and used my time with my GP and psychologist to talk more.

Over time, of course, we continued to share the love and support within the family for those people but it still remained a wedge for a while for me. These years down the track as I write, things are better but will never be perfect. Life, hey.

We cared for grandkids on special overnight and holidays stays and whilst I loved it, my anxiety levels being high, I could not relax enough to enjoy things. The little people I had cared for back in Sydney were growing and changing and trying to keep myself well when they were there was fine but anticipation and afterwards would bring on bouts of nasty diarrhoea (thanks I.B.S.)

Travelling to Sydney for a first birthday was a mental struggle for me but we did it. I actually loved it and having time, again, with our grandchildren was always so special. However, there were undercurrents of things not being too well within the families and we tried to let those worries go. They eventually would be made known but not for some time. I cannot add any more than that. However, as I am writing now, matters are far more settled and at ease with us.

With birthdays and Christmas we tried as we could, to entertain during school holidays or a weekend and it was always good to see everyone, and for me, Grandma, to do her best with cakes and spoiling with gifts.

My Health….still a bother. 

All the time, with me, was a tension and anxiety I felt and knew, and even if I understood it, found it a challenge to live with but here’s what I am like. I do what I can, with what I can.

I read,

I studied,

I learned,

I did courses about I.B.S.,

Mindfulness, Self-Compassion, Art, Mandala-Making

and I got out most days (when I.B.S. was quiet) to take photos, walk on the beach and perhaps interact with people at the shops.

I saw my friendly G.P. regularly who tried, over time, with some different medications to help me but nothing did. She was a great cheerleader though and her encouragement was good.

I even wrote this on a community page: I was searching for people who might get what I was writing about and I did get loving support. However as I know too well, we do end up working things out for ourselves.

Long time commenter & poster but first time ‘admitting my troubles & needing some advice/support’ … thanks in advance for reading!

I’m 67, been retired from work (happily) & life ‘should’ feel better than this. I’ve been a pretty anxious person (worrier etc) all my life & at times Irritable Bowel Syndrome (IBS – Diarrheoa) has been part of life too.

Over 2 years ago, we sold our house in Sydney, paid out mortgage etc, found a rental house we like on Central Coast & left our much-loved adult families (g’kids too) behind. I also stopped all my work in education after 44 yrs.

Now, I “thought” I had nailed this! Yep. What we wanted to do. Freedom etc. My emotions disagreed & that’s where I have been falling down, picking myself up, x 10000 (it feels like) since Jan 2015.

I’ve got a fantastic listening hub who “gets me”, a great GP who helps me manage symptoms of IBS & a psychologist who is working with me on plans of ‘exposure’ therapy to learn to live with & accept IBS.

I am fortunate not have a diagnosis of either anxiety or depression but when IBS lurks (just about every week if not more frequently) then I get both sad & upset because of it. I take no medication other than imodium if I have to.

I do not know “who I am” any more because of my increasing fear to venture out to socialise, drive any distance on M1 or even have a cuppa somewhere.

Everything I read & understand about both anxiety-related conditions & IBS says I have to “accept” it and get on with life.

Right now, this seems hard.. too hard.. and I’m floundering. I do know I have determination & strength because I’ve rallied myself many times.

Do you know that around 20-25% of the population has IBS & it’s a functional condition & no treatment is available? I’m fortunate it is nothing more serious… I know.

What I wondered tonight, is anyone else out there like me and how can we help each other through some of these tough(er) times?

I am/was always searching for how to make me better to understand myself.

Weight loss: a mixed blessing. I was unwell.

Did What I Could To Help Myself.

I have all the books to prove it. And whilst all courses and speaking to professionals helped, the one thing that eluded me was how to live with irritable bowel syndrome and its unpredictability.

I tried writing.

I made hundreds of journal entries.

I did an on-line course twice to help understand IBS.

I read and completed a book with self-help ideas.

 

This List Was Something I Kept for Me in 2016.

Here are 20 things you can control:

1. Talking to yourself positively

2. The way you talk to those around you

3. The amount of physical exercise you give your body

4. The food you nourish your body with

5. Your level of honesty

6. Whether you are a listener or a talker

7. How often you smile every day

8. The time you spend worrying about irrelevant things

9. The amount of love you give your children

10. Whether you see the glass half empty or half full

11. How mindful you want to be

12. How you make other people feel about themselves

13. Having a generous heart

14. Allowing yourself to ask for help

15. Offering help in return

16. Whether you judge people or accept people

17. Having an open heart to receive true love

18. Whether you believe in yourself

19. Your words

20. Your thoughts

 

Self help, not helpless.

I was unwell yet wanted so much to be well. I was caught between being embarrassed about my anxious gut and self and wanting to get out and enjoy this life I had longed for in retirement.

Some things I tried (and still do!) were these:

Our Family Life At The Time.

As at the beginning of this year, things did not proceed comfortably for the remainder of 2016 and into 2017 due to changes in family dynamics and relationships. Again, I say no more. Other than this: my heart may be broken yet mended over time. This, fortunately, is true and for me…so grateful. But living with it and through it was something I found very disconcerting. We had limited contact with family members and I travelled far less to Sydney because of my health and anxiety about I.B.S.

Nothing “I” could do to change anything was a lesson I learn(ed) over and over again. Having some faith and trust that matters can be resolved and worked out did, over time, prove to be true but it took a serious illness (mine) for that to happen. More in the next part of the story. Mindfulness and the works of Pema Chodron, and Jack Kornfield and My Headspace app all helped. I did a lot of meditation outside and inside.

 

And What About That Sore Mouth?

It did not get better. I did all I was asked by my (new in early 2016) dentist. I was given instructions for better cleaning, managing so called candida, trying ideas for eating/drinking cooler food as mouth was red on the roof (palate). I am a compliant patient. Yet, some of the treatments were making my I.B.S. diarrheoa worse. Sigh. My G.P. did not have any more ideas. However, “I” must have because diary entries as the year went on towards early 2017 included:

  • I wonder if this is cancer
  • Sore mouth – gums and possible filling breaking. Know I will have to see gum specialist.
  • GP says “mouth inflamed but it’s not cancer”
  • Dentist: “In two months since I last saw you I see pus in overgrown gums over the bridge of teeth, so off to see gum specialist”
  • BUT I said, “back in early January 2017 I want to know what is under this bridge so can you take it out?”

His answer, in short, was conservative and no. It would as you will read in Part Two of this Chapter, happen.

Thank you for reading and commenting on these Telling My Story posts. Yes, they can raise some powerful emotions for me but I also am aware of how far I have come in this relatively short period.

Next time with be Part Two.

I will be taking over my Thursday posts with these now over the next months to enable me to get up to date.

Denyse.

Linking up here with Leanne for Lovin Life Linky

Joining with Natalie here for Weekend Coffee Share.

 

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