Tuesday 29th September 2020

Share Your Snaps #3. 15/51. #LifeThisWeek. A Love Story. 30/2020.

Share Your Snaps #3. 15/51. #LifeThisWeek. A Love Story. 30/2020.

In July 2018 I met the members of the Central Coast Head and Neck Cancer Support Group at the first Soup for the Soul event in Gosford Hospital’s Central Coast Cancer Centre. That day was the first time I met other people who had been diagnosed with a head and neck cancer. I was “still” toothless but was made very welcome. Interesting isn’t it that it took me a year to get out to meet anyone at all in a setting like this. My surgeries and treatments for my head and neck cancer were all in Sydney. I had no idea of what support there was where I was now living until that month, close to World Head and Neck Cancer Day 2018, when I was invited by Lisa Shailer the Nurse who oversees and assists all head and neck (and lung)cancer patients who receive diagnosis and treatments at the centre to attend. I met many of the members, and it was good to share our stories where we could.

The couple I will now introduce, with what I have named  ‘A Love  Story’ are Stuart and Jill.

Stuart shares the story now after some questions for this post. Thank you Stuart and Jill for sharing.

We are Stuart and Jillian (Jill) Garfatth.  We have been  living in the Central Coast town of Toukley for the last 6 1/2 years.

 

How did head and neck cancer affect your lives?

The cancer had a very significant effect on both of us, of course, more so Jill than I.   It has completely changed our outlook on our lives, we realise how incredibly lucky we are to be living in Australia,  particularly the Central coast, because the treatment Jill was able to have has left us in no doubt that it is the best in the Western world, both medically and the people who cared for Jill in her time of need, of course the financial cost was virtually nil, which was a great help in eliminating that particular stressful component of treatment. We both have a vastly different outlook on life, we do things that we normally would not do,  get out and about, travel internationally much more than we normally do, and enjoy every minute of it!

 

 

How long have you both been members of the Central Coast Head and Neck Cancer group?

We have been members of the Central Coast Head and Neck Cancer group since August 2015, and it has benefited both of us a great deal, particularly the knowledge that we are not alone is a major factor of our membership of the group.

 

 

Do you have any particular stories to tell from your involvement there?

We don’t have any particular stories as such, but we always look forward to the meetings, gaining and sharing information about a great range of subject matter pertaining to Jill’s and everybody’s treatment and experiences. Of particular note presentations by people who are at the ‘coalface’ of research and treatments, they just reinforce the value of on-going research regarding advances in cancer treatment, very heartening indeed!

 

 

There is a story about your motorbike, and why it is special, can you share more?

Yes, there’s a bit of a story about my Sterling Autocycle motorbike. In April 2016, my twin brother rang me and suggested I get on the internet and have a look at a rather unique motorcycle, built to order by The Black Douglas Motorcycle Co. in their workshop in Melzo, just south of Milan, Italy. The company is registered in the U.K. but each bike is hand made, taking about 200 hours per bike, and no two are exactly alike, given differences in overall colour and applied finishes, like pinstriping, and other materials used in their construction.
I told my brother that I thought they were rather nice, and certainly ‘different’ to what is being mass produced by the very large manufacturers, but I could not see me buying one as they were a little ‘pricey’, and I didn’t see a need for me to have one. He replied, “Well, I’m buying two, one with a 230cc motor, and the other with a 125cc motor, and you can have the smaller one”.
“WHAT!, you’re paying for both?!,  I was stunned to put it lightly. Well, after getting over the surprise, I contacted the company founder, Fabio Cardoni, and set the wheels in motion to import the first two Sterlings into Australia.

Can you share more please…I know there IS more! 

As my brother is not on the internet, everything fell to me about liaising with all the relevant Authorities, both in Australia and Italy, little did I know what was to come!. Our greatest stroke of luck came about when I contacted the owner of Ballina Motorcycles, Joe Fisher, who has over 44 years experience in the industry,  he proved to be fundamental to the successful outcome, that took 3 years to bear fruit, and have our bikes registered to ride in Australia, his tenacity and unflagging determination, despite some very serious setbacks, was incredible, but for his efforts, our two bikes would never have been imported and registered here, his honesty and dedication to the task was incredible to see, we cannot thank him enough.

There is a down side to the whole saga though.  Our bikes landed  Australia June, 2016, and after a minor delay, we took delivery and put them into Joe Fishers hands, and he started what turned out to be a 2 year process of getting them legal for road use, and boy, what a story that was! Then towards the end of November 2016, the company ceased trading, it was bankrupted by some new owners who thought they could do better than its founder, Fabio Cardoni, so our two Sterlings are now the only two in Australia, and ever will be.

 

 

Please tell more about how the ribbon for Head and Neck Cancer (named for Jill) came about.

The head and neck cancer ribbon I have put on at the front of each side of the petrol tank came about when I soon realised that when the bike was out in public, it attracted a lot of attention,  many many photographs  taken, many questions are asked,  I was even videoed  once whilst riding, so this got me thinking.  I had the ribbon professionally designed and applied, so that whenever an image of the bike was taken, and published, particularly on the internet, the public profile and awareness of head and neck cancer could grow, which it has, as the image has been seen in the U.K., Europe, North America and Canada.

 

 

What else would you both like to add to this love story?

I had Jill’s name applied within the ribbon for two reasons. One, the bike is unique and very pleasing to the eye, and two, so is Jill!

As my bike is the only one on this planet with such unique livery, and Jill is the only Jill also on this planet, I felt it fitting that I should pay my homage to Her by naming my Sterling after her, and ever it will be.

 

Thank you Stuart and Jill for sharing the story of love, as I named it. I know you won’t argue there. I trust that there are many more days to come, sharing the bike, its story and the head and neck cancer ribbon…once we get through the challenges our country is in now thanks to the COVID19 pandemic.

This was a Share Your Snaps with a difference, and I am glad I saved the photos and story till Easter. We all need a lift in spirits I think and with this story I know I was smiling as I compiled it.

To Love…and Stuart and Jill.

 

Denyse.

In writing here,  partly in my role as a Community Ambassador for Beyond Five, the organisation which helps raise awareness of head and neck cancer which is Australia’s 7th highest, I acknowledge Stuart and Jill are also raising awareness with their bike and meeting attendance at the Central Coast Head and Neck Cancer Support Group. Coming up in July, it’s unlikely there will be a Soup for The Soul at the Cancer Centre as in 2018-2019 – sorry Stuart, who enjoys serving the soups with Jill and sampling them too, so it’s vital we continue as individuals and groups to share the knowledge we have about our head and neck cancer stories.

 

 

Life This Week. #184.

Life This Week. Link Up #184.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

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* THANK you for linking up today!

Next Week’s weekly optional prompt is: 16/51 I Heard 20.4.2020

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My Neighbourhood. 11/51. #LifeThisWeek. 22/2020.

My Neighbourhood. 11/51. #LifeThisWeek. 22/2020.

My observations are personal. They are about my thoughts and experiences of living where we do now. I have used some photos but because  I try not to give out too much personal information on the blog they have few identifiers. Nevertheless I am mentioning areas that may be familiar to some readers.

We first thought of moving to the Central Coast in 2014. As the need to change how and where we were living in Sydney became evident through my uneasy health status (sad and a bit anxious) and my husband’s disenchantment with Sydney’s traffic, we sold up and with thoughts of Central Coast holidays here we went to find a place to rent. We moved to and lived at the southern end of the Central Coast. January 2015 – November 2015.

I Live Here.

 

This is a quiet and relatively new part of suburban blocks and community developments in the northern part of the N.S.W. Central Coast region. On a map, it is around here. Just north of Wyong and about 10 minutes drive from the M1 at Sparks Road exit.

When we moved to what I describe as the quieter end of the coast, at the end of 2015, it was for a few reasons.

  • Our first choice, post-Sydney life, was the southern end of the Central Coast.
  • We thought we knew the area better.
  • Turns out we knew some physical aspects but not some of the in-built social ones.
  • In short, we were relatively poorer (i.e. paying far too much in rent) and more disappointed by the closed-off community which often wrote about ‘Western Sydney refugees’ arriving to spoil their places. Hmmmm. Not great attitude is it?

We settled easily into our next rental house that it felt like one we had sold. It was a  bit older but we made it home. From November 2015 until April 2018. Here’s some of the story from living in THIS neighbourhood. We were made very welcome by the property management too. It makes such a difference.

We would have stayed at this house but the owners wanted to move into it. Turned out sometime things work out well. Our real estate property management did all they could to help us secure a new rental place. Our two priorities: on one level and ducted air. They found it. Yes it was more expensive to rent but still way under the atrocious rent in 2015.

Here we still are: from early April 2018….and have already got another year till 2021 sorted as tenants here.

Some of the reasons we like living here.

  • not far from a big shopping centre
  • less than an hour from Newcastle where I have attended some recent events
  • close to a Westfield Shopping Centre
  • about one hour’s drive to Wahroonga…end of the M1. Then if it is a visit to my dad on the northern beaches, it’s another 45 minutes, similarly to the city for head and neck cancer checks and also to Westmead for my prosthodontist checks, and around the same to see family where we used to live.

Our medical needs are catered for very well. We both like our GP and find the service at the centre is excellent. Wyong hospital is literally up the road and less than 5 minutes away. We are bulk-billed and can make appointments. I have a local dentist (many stories about him in the head and neck sections) who has seen me before head and neck cancer in my mouth and since. Bunnings is about 10 minutes up the road for my husband. And I have found more than twenty places where I enjoy my daily coffee.

Our street is a bit busy but we have excellent neighbours and even though the yard is small, the only time it is really noticeable is when the grandkids come up and a soccer ball easily flies over the fence.

BUT…whilst we do love being here, the sad news is that whenever we do get to buy a place of our own, this area is already out of our league. Many people here commute to Sydney. And houses in our estate are selling for well over $600K up to $900K. We will, as they say, cross that bridge when we come to it.

So, that’s my neighbourhood story in words and pics!

Did you write about that today too?

Tell me if your neighbourhood is where you want to stay forever…

Denyse.

Link Up #180.

Life This Week. Link Up #180.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 12/51 Out & About. 23.3.2020

You are invited to the Inlinkz link party!

Click here to enter


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