Monday 23rd May 2022

What Is 17 May All About? #HNC. 5 Years. 32/2022.

What Is 17 May All About? #HNC. 5 Years. 32/2022.

It’s 17th May 2022 as I write.

I wasn’t planning a post but this date “made me do one”.

It’s because 17 May 2017 was a hugely significant day in my life, as it was the day I was told I had squamous cell carcinoma in my upper gums.

The story has been told in a few places, here for the first post,  by me, but today I want to use pictures more than words!

Marking the time I knew I had cancer.

 

My progress: 2017 into 2019

 

2019: 2 years ‘reward’

And going to Sydney to see Hamilton as my 4th year ‘reward’…very special:

 

Each May, I have both remembered and because of my relatively good progress with recovering from this form of cancer I had, I like to appreciate my teams and my healing body too. And to my husband and family and friends (on-line and off!) : you all help my healing with your kindness, love and care. Thank you.

And now: 5 years on.

I admit it feels somewhat surreal. Perhaps I couldn’t ever see it coming? No matter, it has arrived. I am here. I am very glad to be well. Here’s my photos from today: Tuesday 17 May 2022.

Special way to remember:

The word ‘heart’ means a great deal to me after using the song, Heart, as part of my self-care and courage building on my many, many drives to and from Westmead for long stays in the chair…and of course, heart is connection to those I love, and who love me…and the universal message of love is about caring.

My ‘gift’ to me is this: a bracelet with links of hearts and infinity symbol because love is forever….

Thank you to everyone from my heart.

Denyse.

17.05.2022.

Joining in with Natalie for Weekend Coffee Share later this week.

Thank you Natalie.

https://natalietheexplorer.home.blog/

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Confidence & Why I Need It. 29/2022.

Confidence & Why I Need It. 29/2022.

Quite some time ago, in late 2017 and into 2018,  I was recovering from a very invasive and nasty cancer which resulted in all of my upper mouth being removed (to make sure the cancer in both the jaw, gums and under top lip was gone…and it is!) and I needed to make myself a routine of sorts once I was back into more independent living.

From May 2017 until around late October that year I was fully present …in learning how to eat, drink and speak following my oral cancer diagnosis and treatments of surgeries, AND to be able to ensure I was OK to be well and truly independent outside the house.

I was so ready for this but in October, after seeing some posts relating to Outfit of the Day and Dressing With Purpose, I decided to adopt those plans and incorporate them into my day:

  • Get Up, Make Bed & Have Breakfast
  • Take some time to enjoy social media and blog and chat with my husband
  • Plan to go out somewhere for a coffee each day
  • Use this to Dress With Purpose
  • And show my self to the world via Instagram…..

I admit, it was so helpful for my mental health, and as the skinniest* I had been since early 20s, I did enjoy finally being confident enough to buy good fitting underwear and clothes for this new-to-me body.

The very first outfit shot. Off to hairdresser’s.

I use this term* with slight reluctance as I hate being defined by weight..life history is part of this. My need to show my body to the world had two motivations back then…1. I was going OK and 2. I could dress with some confidence again and took pride to be able to do so.

Now, as I write in May 2022, I see I looked ok but also getting well was a hard lot of work that I needed to let my body do.

What Happened Next.

Into 2019 I decided to stop the regular posts.

I think it was about not flooding the instagram account with same old same old…but now I think about it, I also was having some negative thoughts coming back into my inner life. 

Ones like:

  • Oh you can tell you have put on some weight
  • Are you sure you look OK…
  • I wouldn’t be sharing these as much as you will be noticed for negative reasons….

The Why and The What of 2020 into 2021.

Covid happened.

I got to have some surgeries…not cancer related and they had some challenges for me personally as recovery from the major abdominal one was complicated. I had some negative feelings about my appearance. That I was getting too fat and I became hooked on this negative thought.

Sigh.

I found my view was skewed. I had certainly added kilograms to my face and frame from those very early post cancer surgery days. Not eating much because you can’t will do that…. But I also knew that with some covid times, I ate more for comfort.

What did I do? I actually cut back some of the amounts of food without sacrificing nutrition or treats because I do not do deprivation! And over a few months a few extra covid kilos were shed and I was back to my days of 2018-19 weight wise. So, go me. And I am not scale dependent any more on how I feel about myself.

It was hard though to have reasons to dress with purpose during lockdown and then afterwards but just recently, with more confidence mustered I wrote this on facebook and instagram and received kind and positive responses.

My Facebook & Instagram Post. 1 May 2022.

Amazing what some confidence returning will do for a person.

I’ve been less than confident about my ‘appearance’ most of my life. But when my oral cancer diagnosis happened, and then surgeries x 4, I made myself #dresswithpurpose #takedailyphoto and get out into the ‘world’ for a walk, a catch up, a coffee and it didn’t matter that I had no upper teeth till August 2018.

I lost some confidence to continue this practice consistently thinking it had served its purpose for me: – letting people know I was doing OK – getting out and about – enjoying wearing ‘new for me’ clothes and styles.

Then came 2020 and into 2021 and now, we are one third of way into 2022. I needed to remember how confident it helped me feel in my “less than wonderful” days following surgeries and treatments, to dress well…and have a photo and go out.

Now, I have re-started it. Coming up to 5 years since my diagnosis on 17 May 2022 and I am using this month to celebrate my life, my changes and my health.

I am very grateful. Always.

Now I am putting me, the 72 year old version, out there again. And quite enjoying it. Even for a morning doing mundane things, it helps for me anyway, to look OK. Thanks for your support too friends and family. Always appreciated. The photographer is B who is not on FB. When I smile, it’s at him! That is LOVE!!

Why I Need Confidence Now.

I won’t be believing those intrusive and untrue thoughts any more

As an older woman I will continue to champion myself as I age.

I will, from time to time, add posts of my daily outfits on social media.

My budget may be tiny but I have a sense of colour and style so I will do well at making some good combinations.

I will remember this time in my life and appreciate that I can make changes for good.

Now, do you have confidence about your appearance?

Do you like to dress with purpose?

I am very interested in your comments!

Denyse.

Joining in with Natalie for Weekend Coffee Share later this week.

Thank you Natalie.

https://natalietheexplorer.home.blog/

 

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Being Me & The Month That Was April 2022. #WOTY. 28/2022.

Being Me & The Month That Was April 2022. #WOTY. 28/2022.

Word Of the Year Link Up Party.

Joining in with these kind bloggers:

hosted by friends Deb, Sue,  Donna and  Jo too.

You too can join in, clicking on one the above links:

Look for this image, and add your post.

 

April 2022: Being Me & The Month That Was. 

April started for ‘being me’  with less self confidence and some inner conflict.

I have been at odds with my perceived appearance (once a woman with overeating and overweight issues) that I could not shake. I needed evidence. Fortunately for me, and my current images, I now know my mind has been telling me stories. Who knew*? *sarcastic font.

And that was one of the reasons, lack of some self confidence,  I chose to make myself (and anyone who wanted to join in) a 30 Day Challenge via social media. Instagram specifically.

Being Self-Compassionate!

Dear Readers, I stopped the challenge at Day 20. I was getting little to no  engagement via my daily posts. And whilst I was wanting some likes and perhaps a comment, nothing happened. I like to engage with those who comment. So, I was a bit sorry that it did not happen. I was also taking part in a daily challenge from Fat Mum Slim about food, and using it to share knowledge and experiences from my head and neck cancer. And I stopped it at Day 20 as well.

 

Lesson learned: Perhaps I post too much and perhaps with an expectation of interest in what I post. But I can see, that having a private account, along with content that my on-line followers have seen enough of since 2017.

I am unlinking instagram from the blog as it truly was a nuisance with its updates. I am now just posting on Instagram when I have something I want to share. I have also unlinked Instagram from the Denyse Whelan Blogs facebook page. AND, in case you are not aware, I have deleted as many photos as I wanted to because Meta (owner of both FB and IG) own the images until you delete them. It takes a while to do it. But I didn’t want as much on line.

On Changing & Ageing…Being Me.

It’s all very well for people to say, “oh age is just an attitude”…and yes to an extent that is true but to deny the fact that we humans age in many ways (all different for each of us) but towards the common denominator called death, is for me and my husband, a non-realistic way to LIVE in the NOW, but keeping an EYE on our future.

What We Both Love About This Time Of Our Lives Is:

  • being together for parts of the day, week and so on
  • having some separate and private times
  • pursuing our differing interests and hobbies
  • coming together a few times each day, and at 9 p.m. to chat, laugh and listen
  • no one to answer to any more…no bosses!
  • lack of direct  responsibility for any other humans…those dear kids are in their 40s & 50s with our fast growing up grandkids as their responsibility
  • where we live now
  • having a limited but sufficient income with which to live our now modest lives

We went to Norah Head Lighthouse on Good Friday.

What We Accept Is Coming…one day…who knows when?

Our different and chronic health issues may impede some of our planning.

Already we have accepted that for two different reasons, both physical changes within us, we cannot travel or have a night staying anywhere. We both have eating and digestive issues that are managed with ease at home, and whilst we can venture to a cafe for morning tea or visit our family for a meal, that is it now.

My husband has a severely comprised spine – surgeries have helped him stay upright – and pain is with him 24/7 so he is most comfortable at home with all the needs met here. And of course, my reconstructed mouth means eating away from home is in fact, too hard!

I tend to want to know, research and read…(and listen if it’s via Audible) and “he” has learned so much in his University Counselling Degree and working as a Counsellor that he listens to me and nods ….because, dear Reader, is he WISE!

Mind you, we both do still learn from each other and he is understanding of my need to know and with my father’s age at 98 I have seen so much about ageing as it happens to him..I want to understand more about what it not only IS but what I can accept…so, learning for life me, learns! Here’s a few ways:

And this is truly BEing ME!

BEing Me.

Has changed considerably this year.

For the better.

I have, finally, taken stock of what was causing me some anxiety and worry and stopped being an always happy to say YES person.

I now have worked out whose health matters most, mental and physical and that is mine.

I know not everyone can see why I might now have changed but I have had to change.

I was being stressed over small matters that grew into big ones and they were, generally about people-pleasing.

It’s something I am more aware of now and seek to take a pause before I respond to something that perhaps I may have said yes to in the past.

On some occasions I wear my family circles but every day I wear this, a small heart within a heart to remind me of inner and self love.

Now, back to April: The Month That Was.

And some more:

I have visited Dad more often as the weather has brightened and he is needing company. I also bring little treats and food.

He no longer wants me to take photos of him but when he went to my brother’s for Easter, this image was taken and I love it….will be taking a copy “blown up” so he can see it next week. This is his youngest great grandchild and there is 97 years and 4 months difference in their age!

And that, my friends is April…..Word of the Year progress noted….and on Sunday it is May!

May, for many, can bring memories of Mother’s Days…and mothering, and grand mothering too if you get to do that.

It’s the month in which my oral cancer was diagnosed and my life changed from that time onwards.

Yes, there will be a post (or two) in May about it….

Take care,

Denyse.

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April Brings Autumn Memories. #Life’sStories. #LinkUp. 27/2022.

Welcome to Life’s Stories. I hope you enjoy my story and link up yours too for me and others to enjoy.

April Brings Autumn Memories. #Life’sStories. #LinkUp. 27/2022.

Some months and seasons make great memories.

Photos and stories shared.

This post looks quite a way back to the years 2012 to 2016.

And then to 2017. A very worrying time for me, personally. Cancer would be diagnosed in mid May 2017.

2018: that meant head and neck cancer recovery and moving to a new place.

Onto 2019, 2020 2021 for more stories…..

And finally, this Autumnal April 2022. 

April and Autumn.

Autumn is usually very pleasant and cool in the evenings with lovely days. This has NOT been the case always…as you will see. In April 2015, we were inundated by an ‘east coast low” weather pattern that left this:

and us with no electricity or phone (mobile could be used at times) for almost 5 days!

 

It has often been time for the Royal Easter Show in Sydney. A big tradition in my life, and I made it one for our children and grandchildren over the years. Once the venue moved to Homebush after the Sydney Olympics in 2000 it became a pleasure to visit because I could park the car close to a bus stop and we would travel directly to the Show on an all inclusive ticket. These images are from April 2014, the last time I went to the Show.

 

2012-2014 we were living in our family home in Sydney’s north west and caring for grandkids. Autumn leaf play in 2012 with 2 dear grandkids…

2015-2016 we had moved to the Central Coast of N.S.W. and some of the grandkids visited.

And on 25 April it is A.N.Z.A.C. Day. Remembering the sacrifice of men & women from Australia and New Zealand who helped keep us safe.

2015. Centenary of Australia & New Zealand at Gallipoli.

But I am never sick of searching for Autumn trees, leaves and even having a go at painting them!

April 2017.

The garden where we were living then had great Autumnal displays & I even painted the pansies:

 

And I loved getting this image from the local bridge area:

 

I had a very sore mouth as I had already been through the removal of the upper bridge and teeth and yet…nothing was better. In fact it was worse but…I smiled (uneasily) on….

April 2018. Moving House.

We were grateful to find a new, and more modern house where we still live. Moving still sucks…and with me in treatment for more processes of my mouth reconstruction it was a particularly stressful time for me. Highlights here were family birthdays and school holiday visits from grandchildren with their parents.

April 2019.

I went to Newcastle Writers Festival and was well into adjusting to my upper prosthesis. I continued to enjoy art. And we had some pretty flowers growing outside.

April 2020. Covid Is Here.

My first Covid test, we got our flu vaccinations. We had no idea of what was to come in terms of lockdowns and travel restrictions but we stayed put. One granddaughter visited briefly on her way to stay with other grandparents for some time.

April 2021.

Yes we had a reprieve of sorts from lockdowns and covid restrictions. This meant visits to us and we went to a special birthday picnic.

I also rose very early on A.N.Z.A.C. Day 2021 to see the sun rise on 25 April. I spent time reflecting on those brave souls who came onto the beach at Turkey to be…mostly killed. Vale those men.

April 2022.

This is the learning to live with Covid part of life now, and we had 4th vaccinations last week and will have flu vaccinations at the end of this week.

A different usual Easter for us. No family visiting and we stayed home. Whilst we miss seeing the grandkids and parents, life has moved on in many ways and the oldest 3 are adults with their own lives, and the younger 5 grandkids are with other parents or away on hols. We went for a drive and walk at Norah Head Lighthouse on Good Friday. After a lot of rain in past weeks, it was so good outside.

I also drove to Dee Why to see my Dad before Easter. He no longer wants his photo taken. We had a good chat and afterwards I re-visited some places from my life living near Manly.

I had this reflection after my time spent walking around…and I am honouring it with this image: I feel like I am HOME here.

 

And I couldn’t let Easter approach without sharing some goodies of appreciation with our local family G.P. clinic. We are so grateful for their care.

And sadly, we heard that a NZ friend who had a serious head and neck cancer had died. I visited my favourite place of contemplation to honour him.

A.N.Z.A.C. Day 2022.

Today, 25.4.2022,  is this special day of commemoration and paying tribute to those who died for us to live this life now.

It is the day the post goes live, so I thought it appropriate to end this post…..here.

 

And this poem, a moving one for me and many. I am reminded always of where my late paternal grandfather helped the wounded in France. Only to return to Australia and in 1935 to succumb to early death after a workplace injury. I wrote the poem out for Dad on this painting of mine and he still has it on display.

I know some of my readers are into Spring right now as we are getting more deeply into Autumn….

What particular memories do you have for the month of April?

Denyse.

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