Monday 20th September 2021

Unusual*. Here’s Time Part 2* Instead. 38/51. #LifeThisWeek. 115/2021.

Unusual*. Here’s Time Part 2* Instead. 38/51. #LifeThisWeek. 115/2021.

Rather than go with the word ‘unusual’ for the optional prompt, it’s Part Two: Time…and this is a post from my husband Bernard who recently wrote ‘on prompt’ Time here. 

For those who may need a refresher about Bernard, his first post for the blog is found here. 

Thank you Bernard for offering more of your thoughts, experiences and wisdom.

Can you believe how much TIME had passed since we did this trip back to Tamworth? No, me neither. Enough chit-chat.

Bit early…Celebrating 50 years since we met: October 2020.

 

Part 2: The Time Is NOW

 Thanks for re-joining me in this moment of time.

Time has many metaphors. Lydia talked about the very interesting wheel of time. I like the metaphor that sees time as a never-ending and continual flow of water such as the surf. At any point, by dipping your hand in the water, you experience the drops of water at that time. Those drops represent the moments that you have available to you at that time; the only moments. You notice that they can be very difficult to hold onto and how quickly the water flows on never to be experienced again. They symbolise the ‘ah-hah’ moments in our lives.

 

This experience sets of a “ah-hah’ moment as you realise just how precious and limited your time is.

This really impresses you. It is a lightning strike moment. It is the NOW effect (Goldstein)!

 

Well-known holocaust survivor and psychiatrist Dr Victor Frankl  talked of the space that exists between stimulus and response.

In that space you have the power to choose your response. This enables our personal growth and freedom.

Elisha Goldstein, PhD., talks of this as our NOW time, sometimes described as ‘ah-hah’ moments that can change our lives.

For example, you may hear of a friend’s death.

At this time you are reminded of the love you feel for family.

Or hear that your part of the world is to be shut down because of nasty viral pandemic.

Whatever the stimulus, the NOW space turns our minds and hearts to what we really value in life.

There’s the argument that, in the fullness of time, we will come to realise how it has had the Now Effect of re-focussing us on what we really value.

 

So, what are the possible outcomes of this ‘ah-hah’ moment. Hopefully that:

 

  • You understand your life is a constant stream of stimuli and responses.
  • You realise that, by attending to the present you can take full advantage of the space to change what is not currently working for you in your life.
  • You understand that the significance of your life is not tied to the acquisition of material things and social status. That it is totally about the quality of the relationships you have with other human beings, especially those closest to you.
  • You realise that attending too much to past events is detracting from the present with the added deficit of possibly sending you down those old rabbit holes and causing distress.
  • You realise that, what is now history, is NOW, no longer within your control.
  • You are aware that worrying about what’s going to happen in the future sucks as you cannot control it either.
  • You understand the only moments you can control, albeit, with varying degrees of difficulty, are those that you are living in right NOW.

 

Views on time.

William Penn (founder of Pennsylvania) believed that “ time was what we most want and yet, use worst”.

While I tend to agree, I also believe that it doesn’t have to be that way.

In fact, it’s fair to say that there are many people who would feel a little offended by the statement.

People, such as those who have taken the conscious decision to organise their present moments with a view to living their lives most efficiently and effectively. In so doing, they maximise their feeling of contentment.

 

In all likelihood, these people will tick most of the following boxes:

 

  • They understand and welcome full ownership of their allocation of time.
  • They accept that those moments will contain ups and downs but are happy to take what’s on offer.
  • They also understand that that time is THEIRS to control as they see fit.
  • They look forward to the opportunity to spend more time in the NOW space.
  • When triggers occur they take advantage of that space to respond thoughtfully with generosity of spirit and kindness of heart, rather that react with negative emotion.
  • They understand that the pressure time can create is minimised commensurately by their level of efficiency in the use of their time.
  • They understand the need to take time away from their ‘doing selves’ to just ‘be’. After all, we are, first and foremost, human beings!
  • They understand that their quality of life is enhanced by paying attention to every moment with curiosity, openness and flexibility.
  • They understand that living mindfully in the present is key to enhancing quality of life.

These realisations – ‘ah-hah’ moments – emanate from being present and engaged. They come from seeing ‘doing’ and ‘being’ as mutually important in their lives. Living mindfully in the present is not difficult. However, like learning to play a musical instrument, it requires practice!  Try the exercises below. They just may help.

Being present and engaged exercise …

 

  1. Take thirty seconds to sit back, relax and simply notice all that you can hear. Firstly, focus on your own breathing and any of your movements. Then, expand your awareness to sounds around you appreciating them as a musician appreciates music noticing differences in volume, pitch, rhythms, harmonies, diminuendos and crescendos.

 

  1. Now, take thirty seconds to look around and notice five things that you can see. Notice each image’s shape, colour, texture, shading, shadows, reflections and highlights. Look at each with the curiosity of never having seen it before.

 

  1. Now, sit up straight and notice the position of your body. Push down firmly on the floor, straighten your spine and relax your shoulders. Take thirty seconds to scan your body from head to toe noticing the feeling in each part. Do this with curiosity of a radiologist looking at an x-ray.

 

  1. Finally, take another thirty seconds to flexibly focus your attention, moving from your body to what you can see and then to what you can hear.

 

 Reflect: What did you notice happen? Did you become more present; more aware of your body and surroundings?

 

Some Simple Ways to Be Present

Strategies to practise daily that centre you and connect you with the world around you; especially when you find yourself hooked by thoughts and feelings.

  1. Take Ten Breaths
  • Take ten slow, deep breaths. Focus on completely emptying your lungs as slowly as possible. The, allow them to refill by themselves.
  • Notice the emptying and refilling sensations of your lungs. Notice what happens with your rib cage and shoulders.
  • Try to allow any thoughts to float down the stream or come and go as passing cars.
  • Expand your awareness to simultaneously noticing your breathing and body movements. The, observe all that you can hear, see, smell, touch and feel.
  1. Dropping Anchor
  • Plant your feet into the floor.
  • Push them down noticing the feel of the supportive floor beneath you.
  • Notice the muscle tension in your legs as you push down.
  • Notice what is happening in your whole body.
  • Look around and take in what you can see, hear, where you are and what you’re doing.
  1. Notice Five Things
  • Pause for a moment
  • Look around and note five things you can see.
  • Listen carefully to hear five
  • Note five things that you can feel in contact with your body, e.g. watch against your wrist, trousers against your legs, air touching your face, back against the chair, feet on the floor, etc.
  • Now, do all the above simultaneously.

 

A final offering from one of the very wise Buddhas.

‘Do not dwell in the past, nor to dream of the future but, to concentrate the mind on the present moment’.

What better way to illustrate this than an image from Bernard’s daily practice of adding to a challenging jigsaw puzzle.

Thank you once again for a post which is of great interest to us all. I know I needed that refresher and I promise fewer questions and sharing from my social media while you are mindfully engaged in your jigsaw.

Denyse.

Link Up #258.

Life This Week. Link Up #258.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, or multiple posts. Thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply. It’s a kind connection I value as a blogger! 

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

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Women Of Courage Series. #72. Alice Leung. 113/2021.

Women Of Courage Series. #72. Alice Leung. 113/2021.

 

Two years ago… I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday into September 2021 when it will conclude.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

Trigger warning: miscarriage and infant death. Information may be found at the end of the post.

 

 

To introduce Alice Leung properly I will say she is someone I admire greatly professionally and personally. We have met, so many years back now , at a Teach Meet when I was living in Sydney. Being on twitter, as a supporter of all matters education,  I see Alice’s tweets and know how much she puts into her education thoughts, and actions. In her late 30s now, when I asked Alice to share her story, I was not surprised when I read her response. I do, like many of her friends and family remember these experiences well. Alice and I determined that we include a trigger warning for this post, and information at the end of the story. Thank you Alice.

 

 

 

 

What have you faced in your life where you have had to be courageous?

There has been two times when I had to be particularly courageous. The first time was when I lost my second child due to a miscarriage and the second time was when I gave birth to my third child at home (I didn’t plan for her to be born at home; she came too quickly!).

 

The miscarriage was a very early miscarriage. As a science teacher, I am very aware of embryo growth and understood that the baby was lost a very early stage when he/she was a bundle of cells.

I didn’t expect to feel the great sense of loss that I ended up feeling for “a bundle of cells”.

It was hard to deal with the internal dialogue of what felt like logic versus emotions.

I chose not to take leave from work and pushed through it.

It was not an easy time and my first experience of living through what I felt as a tragic loss while the world just kept going and I had to eventually also just keep going.

 

The birth at home was a very different courageous experience.

I didn’t plan for my third child to be born at home.

I just couldn’t make it to the hospital in time.

An ambulance was called and paramedics came right at the moment she was born.

Birthing a child away from a hospital setting and without health professionals carries high risk and that went through my head throughout the birth.

However, I carried on remembering everything the midwives told me with my first child, the advice that was over the phone from the triple 0 operator and just do what needed to be done.

 

How did this change you in any way? Please outline further if this has been the case.

I think both experiences have made me stronger as a person.

Whenever I have to do things that make me nervous like presenting to a large audience, I often joke that I’m not nervous because this is nothing compared to birthing a child at home yourself.

If I’ve done that, I can do anything.

 

Is there something you learned from this that you could recommend to help others who need courage?

Courage comes in many forms.

Courage doesn’t have to be a highly visible and theatrical event.

It can be something that is very personal, private and simple like continuing to carry on when it seems to be impossible.

 

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Yes, because I’ve done it before and know that I can get past challenges.

So even though the situations that require courage may now be different and will be different in the future, I have more confidence and belief that I can get through it.

 

Is there any message you would give to others facing a situation where courage could be needed?

One step at a time. And there will be steps back. But just keep moving forward and eventually it becomes easier.

 

Oh yes I remember the events you describe Alice and I am so sorry for your  the loss of your second baby. I do remember, like many who are your friends…and via twitter, hearing the news about your third child. It was an amazing feat for sure. Thank you so much for sharing. I like the way you compare what you did back then to when you are speaking in public, and via media. You are doing an exceedingly good job in your role supporting the NSW  Teaching Profession. Thank you for all you do there too.

 

Denyse.

 

 

 

These sites are Australian-based. 

https://www.panda.org.au/

https://www.sands.org.au/stillbirth-and-newborn-death

Lifeline Australia – 13 11 14 – Crisis Support and Suicide …

 

 

Alice’s social media.

Blog/Website:  aliceleung.net

 Twitter: https://twitter.com/aliceleung

 

Joining with Natalie here for Weekend Coffee Share.

Copyright © 2021 denysewhelan.com.au – All rights reserved.

 

 

 

 

 

 

 

 

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Women of Courage Series. #71 Joanne. 110/2021.

Women of Courage Series. #71 Joanne. 110/2021.

Two years ago… I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday into September 2021 when it will conclude.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

 

Joanne, in her mid 40’s, is a blogger from the United States. I have not met her but as in blogging communities we tend to get to know more about each other through reading blog posts over time and connecting via our comments. Joanne has been quite a regular visitor here to Life This Week, my Monday Link Up, and after getting more interested in her words and photos (brilliant ones they are!) I asked if she would consider sharing her story as a woman of courage. And like some who have gone before her in the series, her initial “no thank you” turned into a “yes, I do have a story”. This is my introduction to Joanne and I am thankful for her change of mind.

 


 

What have you faced in your life where you have had to be courageous?

I have had a generalized anxiety disorder most of my life.

When I was in grade school and even up through high school, I can remember getting sick nearly every day over school (whether at home, on the bus, or just arriving at school, sometimes something might trigger me to panic during my normal school day).

I struggled with a bunch of fears that I often couldn’t even name or pin point.

Things like field trips, assemblies, and any break from the normal routine made me anxious.

It was never formally diagnosed and I never saw anyone beyond our elementary school counsellor as these things weren’t really known about back then.

As I got older and my confidence grew my anxiety began to subside.  I knew that my upset stomach was caused by my head and began to be able to talk myself out of getting sick to where I would just feel nauseous.

It still rears up now and then but years and years of learning coping mechanisms have helped me manage it really well without the use of medication or therapy.

 

Nothing has ever made me face my fears more than parenthood though. 

Sick and injured boys have forced me to be courageous in ways I honestly didn’t think I could be.

I always knew I had to hold it together and reassure them that all was going to be OK no matter how sick or injured they were.

When my oldest son was just a toddler, we were referred to a neurologist because he had had a series of febrile seizures.

Fast forward to kindergarten when he was undergoing an MRI to find out if there were other underlying issues and weeks upon weeks of waiting for results.

Our paediatrician tried to help out because our neurologist was on vacation and all he could tell us was that there was something that showed up on the test but since that wasn’t his field of expertise, he couldn’t tell me more than that.

He felt so bad; he had been trying to relieve my fears and assumed that all would be normal with the MRI results.  Instead, I stood there in my yard on the phone with the doctor with a smile on my face and my sunglasses hiding my tears, hoping and praying that whatever this was would be no big deal.

I knew I couldn’t fall to pieces in front of my boys.

Thankfully, once we got hold of our neurologist, he explained that it was most likely scar tissue deep in the brain from something that must have happened in utero during development and he assured us that our son’s brain had compensated and that no further anything needed to be done—ever.

 

We also had our youngest son hospitalized when he was just a few months old and was suffering from RSV lung infection.

He was put on oxygen and fluids and thankfully recovered well; though we did end up in the ER at least once a winter for the next few years with him fighting off pneumonia.

There is nothing quite like watching your little babies’ lips turn blue and hearing him gasping for breath.  We had been proactive though and sought treatment out early before he had to be intubated or put into ICU.

We’ve had fractured wrists, “standard” procedures like tonsillectomy & adenoid removal (which seem like anything but when you’re waiting outside the OR to hear how the surgery went), and more than a few ER visits and ambulance rides.

 

It seemed like after all that I had endured with my boys through the years, I was more than prepared to face my own mini health crisis.

In just the past two years alone I have had several ultrasounds, an x ray, a D&C, and a hysterectomy.

Normally any kind of medical appointment or procedure would have made me so anxious but I was pretty surprised over just how calm I was through the whole ordeal.

 

Is there something you learned from this that you could recommend to help others who need courage?

I think we are all a lot stronger than we give ourselves credit for.

It’s not easy to think of being courageous but often when the need arises those stores of courage are there.

Even when it feels like that courage is deserting us somehow the human spirit seems to keep pushing us onward.

I find that looking to family, friends, and beyond the current moment helps remind me what I’m fighting for.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Maybe?! That’s a hard one to answer as I almost always think that there are so many things I could never handle, or do, or walk through and yet deep down I know that I probably could.

Even if I would never want to know just how courageous I could be.

I think I’m at a point in my life where I just know that I would battle anything for my family and my boys.

 

Is there any message you would give to others facing a situation where courage could be needed?

First and foremost—breathe.  Just breathe.

Then take that one next step.

Often, we get overwhelmed when we’re looking at the big picture or we start worry about all the what if scenarios.

I do that all the time and have never once found it to be all that helpful.

Deep, mindful, almost meditative breathing, and focusing only on that one next small step helps.

Also don’t be afraid to ask for help; even if it’s just a should to learn or cry on.

We all need help from time to time, it doesn’t make us weak; it makes us human.

 

Thank you so much Joanne for your frank and honest story where I was in awe of how you could manage your own anxieties and worries to be able to help your sons through their illnesses. And your advice to breathe…yes, and to breathe again. Little steps that keep us going and helps reduce some of inner feelings that are stirring. I remember that well from my days of anxiety and fear. Your words are very true and oh so helpful.

Denyse.

Joanne’s blog can be found here:  https://www.myslicesoflife.com/

Joining with Natalie here for Weekend Coffee Share.

Copyright © 2021 denysewhelan.com.au – All rights reserved.

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Women of Courage Series. #70. Anonymous.107/2021.

Women of Courage Series. #70. Anonymous.107/2021.

 

Two years ago… I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday into September 2021 when it will conclude.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

Trigger Warning: Abuse, Children, Mental Health.
There are websites at the conclusion of this post recommended by Anonymous in conjunction with my intention for this blog’s policies.

 

 

 

Woman of Courage #70  has chosen to be anonymous. There will be no replies from this poster.

She will, however, be reading and I will be responding as I always do to readers’ comments.

Thank you for your understanding.

What have you faced in your life where you have had to be courageous?

 

Growing up as a child I was faced with a lot of obstacles and situations when courage would have been best used but unfortunately it wasn’t.

I was a victim of a certain abuse by a close family member (like some victims unfortunately are).

Though I like to call myself a ‘survivor’ now instead.

I was quite young at the time and was put in a very vulnerable situation.

Sadly I did not have the courage to speak up about what had happened at the time.

A few years on, I started to see that if courage didn’t show its face soon more pain was to be brought.

So I found a small voice inside of me and told ‘Parent A’.

It was a shock to everyone and had some people unsure of what or who to believe.

The breaking of this news would be the end of something not so great and the start of something a little better.

But I began to understand the value of being courageous because as soon as I told someone, I wasn’t alone anymore.

 

 

How did this change you in any way?

 

Speaking up about what had occurred even just for the first time to Parent A, was a huge life changing moment for me.

I was never one to speak up as a kid.

Always felt the expectation to be the good girl and to just do what I am told.

To have found this voice and still be only just blooming into my teens was a stun to me.

I experienced a lot of character building from using my voice in times of need.

I was, and still kind of am to this day, one to hide away when things get hard.

But that moment, that day, would be the first of many courageous moments.

I feel that if I never spoke up then, I wouldn’t be able to use my voice as strongly as I do now.

The more I let myself be courageous when I needed to be most, in both positive and negative situations, it became easier as time went on.

 

 

Is there something you learned from this that you could recommend to help others who need courage? 

 

I have definitely learnt from this situation as soon as you tell someone what’s going on, whether they don’t listen/respond or in any way care, you’ve told that person, they now know that information as well.

So you’re no longer alone.

Yes it would be best for them to listen intently and help you out to show they care but sometimes that’s not always the case.

And I learnt that  when I spoke up for the first time, Parent A technically didn’t believe what I had confessed.

And as much as that was a kick in the gut it still felt so good to finally say something.

So in recommendation, I guess I would say, as scary as having courage is and particularly in a situation of confession, just speak.

Even if the words don’t make sense at first just keep talking!

Just keep fuelling your courage and take care of it by standing up for what’s best in times that need it.

The hardest thing to learn is to accept that it’s a process, unfortunately gaining courage doesn’t happen overnight.

But it will come to you and continue to grow when you take care of yourself and wellbeing.

 

 

Do you think you are able to be more courageous now if the life situation calls for it? Why’s that?

 

As previously stated, I definitely believe I could be courageous, and maybe even more so, in the moments that call for it.

I learnt a lot of huge life lessons as a kid and it helped me surround myself with the right people as I grew up.

I still struggle daily to use courage but I am way less afraid of it.

I have an extremely supportive partner who constantly teaches me that it is okay to speak up, that it is okay to have an opinion, that it is okay not to like something and say that aloud.

Every time I allow myself to be courageous, I can feel less of the weight on my shoulders.

I’ve also learnt that each time you use your courage you definitely become less fearful of the world and what’s around you.

 

 

Is there any message you would give to others facing a situation where courage could be needed? 

 

If you ever find yourself in a situation and a burst of courage is needed, take a deep breath and close your eyes and visualize the bigger picture.

Courage obviously does not have to be used only in negative situations.

But when faced with a negative circumstance and you need that bit of courage to keep yourself safe and content, a quick breather to analyse the situation before responding has helped me.

I always, and will admit sometimes I still do, think that the worse outcome is the only outcome possible.

But I’ve learnt over the years that if you choose to use courage in those particular situations you can have a better outcome.

And to just remember at the end of the day to be courageous is a choice, it just takes that little bit of faith.

 

Don’t ever be afraid to speak up, someone will always be there for you. And sometimes there’s even more people there for you than you think.

Thank you Anonymous for having the courage also to share your story. The readers and I would agree, I think,  that you are indeed a woman of courage. This poster is safe and well and in a secure relationship with a long term partner.

Sending all the best to you.

 

Denyse.

 

 

 

Recommended Sites: these are Australian sites.

 

Joining with Natalie here for Weekend Coffee Share.

Copyright © 2021 denysewhelan.com.au – All rights reserved.

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Women of Courage Series. #69 Bianca Hewes. 104/2021.

Women of Courage Series. #69 Bianca Hewes. 104/2021.

Two years ago… I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday into September 2021 when it will conclude.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

 

Thanks to the world of school education being big as well as small in New South Wales, where I used to be employed, I am fortunate to say I have met Bianca Hewes, who is 41 on a couple of occasions at Teach Meets! In fact, one of them was in August 2015, held at where “I” attended high school in the 1960s, and also where Bianca did….much, much later!  She, was at the time of meeting, working locally at a selective High School and introducing new and exciting subjects, along with her philosophy of education I found very refreshing. She and her husband impress me greatly and education is richer for their presence. But today, it’s Bianca’s story, and I am delighted to share because saying “yes” was not initially Bianca’s response! Thank you, B.

 

 

 

What have you faced in your life where you have had to be courageous?

 

I find this question very hard to answer, as I’ve never really viewed myself as a courageous person.

In fact, since I have anxiety (the diagnosed sort stemming from childhood trauma, not the trendy kind) I’d say that I’m almost the opposite of courageous.

But, after some prompting from Denyse and a bit of reflection, I think something that could be classified by others as being courageous was my decision to continue with my university studies whilst I had a newborn son.

Luckily he was born in mid-semester break so I had a few weeks to give birth and learn how to be a mum before I strapped him to my chest and headed back into the lecture hall.

 

How did this change you in any way? Please outline further if this has been the case.

 

I suppose it just made me more determined to work hard and prove everyone wrong.

I got used to people staring at me on the bus and around campus – even though I was 21 I looked like I was 15 – and this defiance of judgement is something I have cultivated as a key personality trait and a value I’ve passed onto my sons.

I learnt quickly to stand up for myself when I needed to and to assert my rights as a woman and a mother. It also made me realise that I can do anything I want to – which sounds really cliche but has proven (mostly) true.

 

Is there something you learned from this that you could recommend to help others who need courage?

 

I think the biggest thing is to not listen to the negative opinions of others and to embrace those who support and celebrate you for who you are and the decisions you make.

I remember that second semester with my tiny two week old son I was doing two philosophy courses.

One lecturer was so supportive of me, but the other came up to me after class once and told me he didn’t agree with me being at university with a child.

It hurt being confronted that way, but I knew my rights and I stood my ground.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

 

Like I said at the start, I don’t think I’m a particularly courageous person, but having my children when I was also studying and then later working meant that I developed resilience and determination.

I definitely draw on both of those qualities a lot in life.

 

Is there any message you would give to others facing a situation where courage could be needed?

 

Just don’t listen to society.

Be true to yourself.

Trust your own judgement and your own capacity.

I knew I could care for a baby whilst completing my studies even if other people lacked faith in me – and I was right.

So, I suppose just trusting yourself and enjoy proving others wrong is my message.

 

Thank you Bianca, I “knew” you would share a great story of courage and that it would help others to see what can be done despite the ‘judgements’ of some. How awful was that comment from a Uni so-called professional!

Bianca has some social media sites where she shares about education and more.

She has written and co-authored many texts and other books for teachers and schools.

Denyse.

 

 

Social Media:

Blog/Website biancahewes.wordpress.com

Twitter @biancah80

Facebook Page:  Australian Project Based Learning Network

Instagram: @jimmy_reads_books

Joining with Natalie here for Weekend Coffee Share.

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Women of Courage Series. #68 Gloria Hill. 101/2021.

Women of Courage Series. #68 Gloria Hill. 101/2021.

Two years ago….around this time of year, I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

 

I may not have (yet) met Gloria Hill, aged 48, but I already am very aware of her role and input as a parent into the very newest public school which opened in 2019. This is North Kellyville Public School, and I am a proud retired principal who continues to support public education in N.S.W. Our daughter is the teacher/librarian there, becoming foundation year staff member, and I recall seeing the many positive and amazing projects which the foundation year Parents and Citizens group (P&C) initiated. To that end, Gloria, as the 2019 P&C Secretary and later as the 2020 P&C President was nominated for the 2020 NSW P&C Federation Volunteer of the Year Award, and was one of 16 Finalists after winning the North West Sydney Electorate. Thank you Gloria for sharing your story with us. At the foot of this post is information from Gloria.

 

What have you faced in your life where you have had to be courageous?

In 2012, my son Sean was diagnosed with a genetic disease at the age of 12 months.

  • The disease is called Severe Combined Immunodeficiency (SCID) and people born with this disease are effectively born without an immune system.
  • Most undiagnosed cases do not survive infancy.
  • I was not aware I was a carrier of this glitchy gene, nor that I had passed it on to my son.

As a first-time mum, I did not know why my little man would take weeks to get over a cold, or why a small nappy rash would leave his entire bottom a red raw open weeping wound for days on end.

That first year was spent advocating for my son with various medical professionals – we got to know our GP and our early childhood nurses very well, to the point where one medical professional noted the frequency with which we were visiting the doctors’ surgery and flippantly told us we should be earning frequent flyer points for all of our visits.

For his many ailments, Sean was prescribed every potion and lotion available from our local pharmacy, but there would still be extended periods of ill health between the bright and happy days.

After many months of bashing down the doors of various doctors, a chance meeting with an early childhood nurse fast tracked the diagnosis when she insisted that Sean be seen by a paediatrician immediately.

  • In the space of 2 hours, we went from being just a number in a queue to Patient #1 at the Sydney Children’s Hospital Randwick.
  • The diagnosis came quickly, and the treatment plan followed – we would have to consent to chemotherapy and a bone marrow/stem cells transplant to save Sean’s life.
  •  He was 13 months old, my first and only child, and my husband and I sat through all the medical scenarios and diseases Sean may develop post transplant, all of the scenarios ended with “if this disease developed, then Sean may die”.
  • The bone crunching, soul destroying scenario was presented last – if we did not consent to the transplant, then Sean will die.

 

On 27 March 2012, a specialist team performed a miracle by transfusing 30mL of precious stem cells into Sean’s little body.

  • Over the next 5 weeks, we watched Sean’s condition worsen before he got better.
  • In a comparatively short period of time time, Sean’s body recovered from the treatments as the stem cells grafted in his body and he grew stronger by the day.
  • We were discharged from the hospital in May 2012 when the real fun awaited: a lengthy period of self-isolation with an inquisitive toddler quarantined in a small house while trying to manage weekly hospital check ups, the complicated medication schedule, the new diet (both liquid and solid), and the upkeep of his medical accessories (nasogastric tube and central line) tested my patience.

 

By the end of 2012, all the hard work paid off.

Sean was weaned off all medication, and all of his medical accessories were removed.  Sean’s appetite returned and he was thriving again hitting all of the growth milestones with ease.  The weekly clinics at hospital turned into monthly visits, and by the end of 2013, the visits would become an annual check up.

Today, 9 years since the transplant, Sean is a healthy 10 year old who loves to swim, ride his bike, and read, with a healthy appetite and an even brighter outlook on life.

 

How did this change you in any way? Please outline further if this has been the case.

I learned to trust my gut instincts and not back down, especially when I am advocating for my family and my loved ones.

I learned to look for silver linings, because the alternative was too sad.

I learned to show my vulnerability and accept help in all the different ways that were offered to us.

I learned to take a deep breath and push on – sometimes, it just IS what it is, and I have to get on with it, because there is no other option available.

 

Is there something you learned from this that you could recommend to help others who need courage?

Lean on those you trust.

Some friendships will grow and transform to the next level.

Expect to lose friends and see friendships shift – you may be surprised by who “slip away” and bow out of your life, but don’t begrudge their departure.

They are not bad people; they just don’t know how to support you.

You are not alone.

AND you don’t have to do this alone.

There is help and support available, everywhere.

Never be afraid to reach out for help.

And if help comes to you, accept it.

You are not weaker by seeking or accepting help – in fact, you are the stronger and more courageous one for seeking or accepting help.

Specifically to a medical condition: listen to the professionals – if they tell you not to Google the disease, then don’t Google the disease, especially at 3am when you can’t sleep.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

I don’t think I could be more courageous now than I was then.

In 2012, just after diagnosis, we found ourselves “shedding friends” – people who called to check in on us, but then picked fights with us over trivial matters.

The drama that some of these former friends created at the time distracted us from the real focus at hand – the life and health of our critically ill little boy.

In hindsight, I came to realise that these people may not have been strong enough to support us, nor knew how to support, nor knew how to react to the news.

Whilst it was disappointing at the time, the loss of these relationships was actually to our benefit.

At the same time, our true friends stepped up and found innovative ways to support us.

Financial donations flooded in from well meaning friends who wanted to make sure my husband and I were fed during our hospital stay and we had money for petrol to get to and from the hospital.

Friends cooked us meals, took us out for quick meals (just so we would leave the hospital room and get some fresh air), and called and messaged us to get up to date news on Sean.

We still have the same loving network of family and friends who rallied around me then, so if I had to face the situation now, I know I have the support and love to get through it.

 

Is there any message you would give to others facing a situation where courage could be needed?

You are not alone.

You don’t have to do this alone.

And asking for help is not a failure.

To ask for help is a sign of strength, so reach out to family and friends, and lean on them.

 

Thank you Gloria. I feel it is such an hnour for people like, and all the women who decide to share their stories, that this is a place here on my blog to do so. I am in awe of your strength as you were learning to be a mum too. I do hope all continues to go well for you and your family.

Denyse.

 

Social Media:

Twitter: https://twitter.com/Oh_Glorious_One

Instagram:  https://www.instagram.com/oh_glorious_one/

Information supplied by Gloria which I am very pleased to be able to share…awareness is always an important factor in any health conditions. Thank you.

Since Sean’s diagnosis, I have discovered the Immune Deficiency Foundation Australia’s Facebook page (https://www.facebook.com/ImmuneDeficiencyFoundationAustralia/) and their private group (https://www.facebook.com/groups/217875418231666).  IDFA have provided a fantastic platform for people with Primary Immune Diseases to share knowledge and information and to provide support to each other.
As a point of interest – if anyone is keen to find out more about our involvement with Inner Wheel Australia.  The treatment plan devised by our Oncology and Immunology teams at the Sydney Children’s Hospital involved a stem cell transplant.  Sean received the transplant using stem cells extracted from cord blood, and in the ensuing years, we have been involved with Inner Wheel Australia as Ambassadors for their National Project in Cord Blood Research (https://www.innerwheelaustralia.org.au/national-project).  I have been a keynote speaker at various conferences, and Sean is the face of their national fundraising campaign called “Sean’s Two For Ten”.  The annual campaign was launched this year, and we have agreed to be the face of the campaign for the next 6 years (until Sean is 16).

 

Joining with Natalie here for Weekend Coffee Share.

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Women of Courage Series. #66 Jacqui. 95/2021.

Women of Courage Series. #66 Jacqui. 95/2021.

 

Content/Trigger Warning: I have been requested to add this. Information for readers is at the end of this post. Thank you.

 

Two years ago….I tentatively courageously launched Women of Courage series on my blog and here was what I said then:

I got this idea from attending the Newcastle Writers Festival in April 2019 and hearing the wonderful Jane Caro speak about her book Accidental Feminists. IF you ever get a chance to listen to or read Jane’s works they are very good.

What I considered after that day and in the days to come is how we women have a tendency to underplay our achievements and whatever else we are doing in our lives. I know this is changing.

This third series of blog posts on Denyse Whelan Blogs to be found here will continue to be published each Thursday.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda

Welcome to Jacqui’s story as a woman of courage. Jacqui and I have similar career background and have met via twitter..often! I was so pleased when she put her hand up pretty fast to say “yes” and got her story back to me. We have chatted about her story more, and in keeping with others’ privacy have kept some identifiers deliberately hidden.

Thanks so much Jacqui. Oh, and Jacqui has included some great links for us at the end of her story.

 

Introduction from Jacqui.

It’s taken me a while to think about the times when I’ve most needed courage and decide which story to focus on.

Throughout my career or 20+ years of teaching I have pushed myself to show courage- to stand up for what’s right, challenge pedagogy, take on new experiences and chase promotion.

There was even a time where I was so broken I thought I would quit teaching altogether.

I had to work very hard to find my passion again.

As it turns out I have shown  enormous amounts of courage in my professional life.

So, instead, I am going to focus on courage in my personal life. And, it’s happening now.

 

What have you faced in your life where you have had to be courageous?

6 months ago my life stood still for a moment.

  • My 11yr old daughter was having suicidal thoughts.
  • How can this be possible? She’s only 11.
  • I can’t ever remember being aware of death/suicide at that age, let alone thinking that I didn’t fit in this world.

My heart was breaking.

Her psychologist urgently needed to meet with me and of course I went.

She was tangled in a web of depression and anxiety.

To move forward, I need to go back a bit.

This is my third child, my husband’s sixth. Our last.

She had complications after delivery and spent the first 3 weeks in the neonatal clinic.

At 5-6 years old she was showing signs of puberty.

I insisted on investigations and at about 7yrs we found out that she has a genetic condition known as non-classical congenital adrenal hyperplasia (NCCAH).

This was a whole bundle of changes including 3x daily medication and an emergency action plan for the rest of her life.

You would think that was enough to deal with, but there’s more.

  • It was around about this time that I discovered I was no longer in love with my husband.
  • After lots of fighting, tears and deep discussions we agreed to stay together without being intimate.
  • We thought this was the best option as our eldest was sitting the HSC.
  • Little did we know that our astute little girl picked up on all of this, causing her great confusion and a deep worry about me.
  • She pushed her father away and became extremely clingy and attached to me.
  • It was suffocating but I was unaware of the damage it was causing her.
  • She could not work out the ‘reality’ of our family or where she fit in (her closest sibling is 8 years older). So it was at this psychologist appointment that I found the courage to do what I needed to do for me. For her. I went home and told my husband that I needed to move out.

 

How did this change you in any way? Please outline further if this has been the case.

I released all of the pain anger hurt and disappointment from the last 4 years and slipped into my own silent world of depression.

I needed to find the deepest courage to be vulnerable, be honest, be real.

I needed to be strong enough to share this with my daughter to a certain extent so she can see that  it is possible to make changes and heal ourselves (with support).

I started seeing a psychologist of my own.

I spoke up and stood up to my husband for the first time – I bought a house and moved in with my 2 daughters.

I also started to discover myself. I’d lost so much of who I was throughout my almost 30yrs relationship.

 

 

Is there something you learned from this that you could recommend to help others who need courage?

That the comfortable or easiest pathway isn’t always the one we are meant to travel.

That sometimes even the best intentions cause the most pain to ourselves and to others.

That it’s ok to ask others for help.

That it’s ok to put yourself first.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Absolutely.

I have had 6mths of ongoing courage.

It’s been the hardest thing I’ve ever had to do.

Courage has got me through all the other parts that come with separation- financial separation, setting up a new house, co-parenting plans and decision making.

It’s still hard.

The grief and sorrow is enormous.

Making my own decisions is a strange novelty.

The regret and guilt of the impact on my daughter is always there.

But, I know that I have the skills, the strength, the determination, the love and the courage to get through it all and to help my daughter find her courage.

 

Is there any message you would give to others facing a situation where courage could be needed?

Even the highest mountain can be climbed if you take that first step.

We are stronger than we think.

And Brene Brown’s book Dare to Lead and her TED talks were very helpful for me. I was reading it for professional purposes but I found it was helpful in my personal life also.
Thank you so much for your story Jacqui. Courage requires vulnerability and more and you have, in the sharing, as well as the living of this, demonstrated the qualities you have in so many areas. One day, it would be good to finally catch up. As always, we wait for those times and areas around N.S.W.  to open once we are declared “covid-safe”…if there is such a declaration!
Denyse.
For those who may need to reach out to organisations based on this story’s content these are Australian-based sources for help.
Your Family G.P. can be a helpful person to listen and make referrals.

Lifeline on 13 11 14

Beyond Blue on 1300 22 4636

Phone 13 HEALTH (13 43 25 84) for 24 hour assessment, referral, advice, and hospital and community health centre contact details

Qualified Psychologists can be found by visiting https://www.psychology.org.au/FindaPsychologist/

Australian Counselling Association is on 1300 784 333 to find a counsellor

Joining with Natalie here for Weekend Coffee Share.

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Questions. 31/51. #LifeThisWeek 94/2021.

Questions. 31/51. #LifeThisWeek 94/2021.

I am a question-asker.

I tend to ask a lot.

I am also an answer giver too.

However, I remain naturally curious and so, as a result have asked a LOT of questions over my 71 years on earth.

When I was seen by my head and neck cancer surgeons on 18 May 2017 I may not have had many questions because to be honest I was in shock as I had only learned of the diagnosis,the day before.

So, in the weeks that followed I found I did have specific questions, that I did not want to try to navigate on-line and my husband and GP did not have knowledge, so one of the kind surgeons answered them for me after I sent an enquiry to my head and neck surgeon’s office. His words helped me so much and reduced my worries.

I also found out then:

Do NOT be afraid to ask questions. There are no SILLY questions.

It’s now over 4 years since I was that very worried woman in a clinic room at Chris O’Brien Lifehouse, where the head and neck team met us: me the patient with B my (now) carer.

August 2017

I have, over the years, also had the help of a psychologist to get my somewhat faulty  thinking and ideas sorted. I was not a 100% emotionally well in the years 2014 into early 2017 but I am also a problem solver. However this was one problem I could not solve by thinking my way through. I needed to both accept the emotional upsets I had and why along with the BIG life transitions I was coming to terms with. I have written about some of those experiences in past posts.

Before I continue. Last year, this head and neck surgeon from Adelaide tweeted his explanation for cancer. I have always felt there is an element of ‘blame’ attached to some cancers. These words resonated. Thank you @guylrees.

 

This year I was sent a copy of a book which I said I would review. There was a throwaway line by me when I saw its title via social media when I said to the publisher, send me a copy and I will review it. Exisle Publications were serious. They did.

I have read the book by Dr Toni Lindsay and it answered even more questions for me.

  • Questions I did not know I even wanted answers for.
  • That is the thing about a cancer diagnosis, sometimes it takes a long time to determine what you need or want to know next.
  • This then is my summing up of the book: from a Head and Neck Cancer Patient At Chris O’Brien Lifehouse.

I have never met Dr Toni Lindsay but I do know of the many other professional services that are offered where I had my surgeries.

 

The Cancer Companion: How to navigate your way from diagnosis to treatment and beyond by Dr Toni Lindsay.

My Views As a Cancer Patient.

  • This is a well-written and set out guide, and its name suggests it can accompany a person (cancer patient, family member, carer) throughout the cancer experience.
  • It’s easy to read, and divided into sections:

Part One: On Treatment.

  • And then it was cancer
  • Normal
  • Finding your purpose and meaning. Part 1.
  • Preparing the treatment and having a plan
  • Chemotherapy
  • Radiotherapy
  • Surgery

I identified strongly with ‘hearing you have cancer’ as it still comes as a shock even though I had guessed. Of course, for me, like all, there were fears and worries. Lots of days when I know I would be doing something, and then it would hit me like a punch. “I have cancer”.

So, what I got from this part, as someone who remembers how it was, is that all is perfectly within an expectation as a newly- diagnosed patient.

Having a plan helped me but the plan often came in the form of a check list from me, to prepare for trips to Sydney where I would need to have surgeries, treatments at the prosthodontist and for the first year, my husband would need to drive me and stay somewhere close by while I was in hospital.

Even though we no longer lived in Sydney where everything I needed for my on-going treatment, we felt fine with the drive, and sometimes a stay overnight. My husband bore the brunt of times waiting…sometimes visiting our family, other times going for long drives until he heard he could pick me up.

We are also fully retired (aged over 70) and so making a plan was relatively easy as we did not have to take work and family priorities into account. There is quite a bit in this part for carers too.

Part Two: Off Treatment.

  • Finishing treatment
  • What if it comes back?
  • Finding your purpose and meaning. Part 2.
  • Why is everyone behaving like I am back to normal?

My reactions to what I read here were as if Dr Lindsay was in my head!

It did help ‘normalise’ my thinking and my progress.

For that I was grateful to have confirmation from someone professional.

I have a husband who is a trained counsellor and his help was good in that he could sometimes ‘calm my farm’ as they say when my emotions when a bit awry.

I am now, almost 100% able to do this for myself.

Ah. The advantages of time passing and experience as well as cancer free results at surveillance visits.

 

Part Three: Living With Advanced Cancer.

  • Living with advanced cancer
  • Finding your purpose and meaning. Part 3.
  • Planning and decision-making (even if you don’t need it!)

I read this section with feelings of sadness because I know of friends with head and neck cancer, and other cancers, who are living with advanced cancer.

I do know, however, that if there can be others support systems for example, psychologists and/or palliative care team with experience of helping people through, the prospect of what MAY lie ahead could feel less fear-based.

I would highly recommend not only reading this section but acting upon the help offered too. 

 

Part Four: The Psychology Part: How Can I Manage All of this.

  • Mood vs treatment
  • Anxiety
  • Sleep
  • Appetite
  • Fatigue and exercise
  • Body Image
  • Relationships and sexuality
  • Working
  • Being present
  • Being grateful
  • Managing other people
  • Pain

I have a great G.P. He started being my G.P. about 6 weeks before my diagnosis in May 2017.

Like my husband, he has been what I call a ‘cheerleader’.

Someone in my life who helps, encourages and supports me.

In the various times when I have been worried and scared, and this was prevalent a LOT in the first year, he was a voice of reason and reassurance.

I also have a professional team in Chris O’Brien Lifehouse and at Westmead Oral Sciences who I can call or email. Their help, at the other end of the phone after I have sent a photo or text has been exemplary.

In turn, all of the above has helped me see my way through.

Having a rare cancer: both statistically and type, I often found “I” became and still am, the expert in my mouth and its care. I

have learned a lot from those who helped reconstruct my mouth, along with my local dentist, but from my 4th year of recovery (about this time in 2020) I became the ‘one who knew’ most about my cancer and my recovery.

Some Final Thoughts.

This is a section in the book…

and I will add mine.

Knowing how I felt at the beginning of my diagnosis and how hard it was to concentrate with the spectre of an 11 hour surgery ahead of me, I could not have contemplated picking this book up and reading it.

I did ask my husband though and he says it would have been ok for him to have it at that stage.

Now, as I review my reactions and responses to my cancer in over 4 years, I would have been ready by about a year in.

That was for me.

Oh, and about the red balloon on the cover. It took me a while to find out about its significance. Dr Lindsay uses the balloon the illustrate how when holding a balloon on a string, it may occasionally pop back onto you, just like the occasional anxious thinking about cancer. In other words, the thoughts do come and go but they are not there forever. Or indeed they can be batted away. No longer controlling us. 

Others may see it differently.

Thank you to Dr Lindsay and those at Chris O’Brien Lifehouse who support patients and families and carers on the psychological path of a cancer diagnosis.

Thanks too, to Exisle Publishing for the book. No payment was made to me for this review, it was the gift of the book only. I am a truth teller and this is my review.

I give my permission for Exisle Publishing and Dr Lindsay to use my words within this post.

Denyse Whelan.

Blog Disclaimer:

My stories and photos along with suggested links and websites must not be seen as medical advice.

I write this blog from my experience as a head and neck cancer patient.  Denyse Whelan. 2021.

Link Up #251

Life This Week. Link Up #251

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