Tuesday 24th November 2020

One Year Ago. Head & Neck Cancer. October 2019. 87/2020.

One Year Ago. Head & Neck Cancer. October 2019. 87/2020.

For the past two weeks, and now concluding this week, on a  Wednesday I am posting a ‘review’ blog post mostly to remind ME of how far I have come in terms of the changes brought about in my life thanks to the diagnosis of head and neck cancer on 17 May 2017. The whole story is here. 

Using some photos I am adding my memories from the time.

Here I go:

October 2019.

 

 

I was very well by this time one year ago. I did have a cancer check in September 2019 and all was good and I was told, see you in 6 months. That brought me to the early March 2020 appointment which was held in “just before COVID times locked down”.

 

 

I was getting myself ready to celebrate my 70th Birthday at the end of November 2019, and had a little look at young Denyse who began loving cake…waaaay back. Mum would have made this. She did not really enjoy eating sweet things but she knew how to bake them for the rest of us.

 

 

 

Just before October 2019 I found out about two other patients with head and neck cancers who also had the privilege of sharing the care and treatment of “my” Professor too. These people found me via formerly Beyond Five..now Head and Neck Cancer Australia, and then read my blog posts here. They reached out to me. One I got to meet in person. The other, another teacher, and I will catch up once we are on some kind of holidays at the same time. Head and Neck Cancer, is as I read recently a lonely disease. It is always good though to meet up with others who understand. The health professionals too as they get to see progress within us.

 

 

 

 

I did have a special and kind friend from my world of art die in early October 2019 and on the day of her funeral, I went to a favourite place of mine that she also loved me sharing, the ocean and thought of her and her family.

 

 

 

 

My gratitude for having an open space by the ocean is well-known. I have, since moving nearer the coast, found solace and a great sense of peace walking on the beach and in the water. The beach I loved doing this has, thanks to the ways of the ocean, become almost inaccessible to people who are older and with a compromised right leg (fibula-less) I won’t go there unless I can access it with ease.

 

I drove to Sydney’s Dee Why to visit Dad in his independent retirement unit in October. He must not have wanted a photo that day. Here I am before leaving home.

 

Later, I drove as I often do, past South Curl Curl beach and stopped to have a little walk. It was a magnificent day. And when I did see Dad in October 2020 he agreed to this photo! He turns 97 early next year.

 

What have I learned in doing this series?

That for me, things got better and better.

They also were very hard on some days to tolerate. Many of those days were long, boring, painful and challenging as so much depends on T I M E to heal.

Yes, that old adage is true…time heals all wounds.

So, as of NOW: October 2020, I am a very well person. Go me.

Actually, also ‘go my husband’ who has had to listen to ALLLL  of the stories from me.

On Saturday 17th October it was 50 years since we met. As this post goes live, we will have travelled to the north west of N.S.W. to the city of Tamworth where we met. We plan to have a couple of days going to towns that were of great significance in our early single, then married lives. There WILL be a post about that you can guarantee it. 

 

I have had a very challenging year in some respects in 2020 with – as for everyone:  COVID 19 and its various means of changing our lives….

  • specifically for me it has been a year of ‘getting more medical and surgical things’ done. I had to concentrate on head and neck cancer until late 2019 so in 2020 there are no more excuses.

 

  • In March 2020 I had both eyes cataracts removed and no longer need glasses for distance or driving. Still for reading but at a lower prescription and I need sunglasses out in the sun.

 

  • In July, and then into August 2020 I had a rectal prolapse surgery (planned) and hernia repair (unplanned). There was a wound healing complication after 5 weeks and I needed further surgery to debride the wound and then  T I M E and a VAC machine and wound changes till all finally healed by October 6. BEST news ever!

 

  • Well, there was more too! Early September, when I was still attached the the VAC machine, my husband drove me to my Cancer Check with my surgeon and nurse, and all was so darned good, I got the news that floored me…”see you in a year.” And….

 

  • On 15 October my prosthodontist checked out my upper prosthesis and declared I am maintaining the area very well indeed! I don’t need to return to see him till April 2021.

I love these images…me with my health professionals. I love that they agree to having their photos taken too.

Check Up with ColoRectal Surgeon

Head and Neck Cancer Surgeon & Me.

With My Prosthodontist

This is why I blog. It is so helpful to share with others and it is a great record for me and my progress.

Thank you for your interest, I appreciate it.

Denyse.

Joining Leanne and friends for Lovin Life Linky here. 

 

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Two Years Ago. Head & Neck Cancer. October 2018. 85/2020.

Two Years Ago. Head & Neck Cancer.  October 2018. 85/2020.

For this week, one week ago, and the next week on Wednesday I am posting a ‘review’ blog post mostly to remind ME of how far I have come in terms of the changes brought about in my life thanks to the diagnosis of head and neck cancer on 17 May 2017. The whole story is here. 

Using some photos I am adding my memories from the time.

Here I go:

October 2018.

 

Early October 2018 and I was off to Chris O’Brien Lifehouse with a LOT to smile about. I received the long-anticipated upper prosthesis of teeth on 21 August 2018 – some 14 months after surgery.

  • It was a cancer check day but also a chance to meet with Nadia from then Beyond Five – now Head & Neck Australia to discuss my prospective Ambassadorship as a volunteer.
  • Photo – top left. Then briefly caught up with then then Specialist Head and Neck Cancer Nurse (top right)  who had last seen me as a very raw new-to-head and neck cancer patient in July 2017. She was stoked! My cancer check went very well indeed (bottom left) with smiles and congratulations all-round.
  • How good it must be for the Professor (Jonathan Clark AM) and his Nurse Surgical Assistant and Consultant (Cate) to see a patient post surgeries…yes, all 4 they were part of…and my much anticipated S M I L E.
  • Last photo is me with Gail O’Brien, the late Professor Chris O’Brien’s wife whose vision it was to have this wonderful comprehensive cancer centre built and to tell her how much I appreciated the work and vision of her late husband…he was a head and neck surgeon too and my surgeon trained with him.

 

 

School holidays in October 2018 saw two visits from our Sydney-based family.

  • Much appreciated as always.
  • We entertain casually for lunch with their favourite snacks and foods and much chatter is heard.
  • Often we go outside for a play even though our yard is very small.
  • On this occasion the four younger kids (left pic) took home a special pot with some items planted and some crystals along with a few old fave toys from our Sydney house…and their younger days.
  • With the older group there is often some reminiscing and music too, particularly as the older grandson is a DJ.
  • I felt so much more at ease now I had the teeth in my mouth. It still took quite a bit of getting used to for eating but it was much better than before!

 

 

I was interested in attending a Look Good Feel Better Cancer Patient Workshop and once my ‘teeth’ were in I happily took part in a local event.

  • I did get some good advice and took away a swag of amazing free products.
  • What left me feeling somewhat disappointed was the fact that my cancer is so rare and not known.
  • These workshops were pitched at breast cancer patients more than anyone.
  • Some needed help with using wigs and scarves, others with how chemotherapy had changed their skin/hair.
  • I guess I need(ed) to be more grateful because I was/am doing well.
  • I wonder as I write this if these activities have now been stopped because of COVID and that is a shame because it was psychologically very helpful to us to be ‘seen as a woman, not a patient.’

 

 

It was, and still is, important for my mental health to have something creative to do most days.

  • I liked the idea of holding a mindfulness colouring class at the local library. I did get to have it, but it took so much box-ticking, I left it as a one-off.
  • However, I know I enjoyed being ‘teacher’ again.
  • My months of making bookmarks for the charity The Big Hug Box were always enjoyable and I must have contributed well over 500.
  • They were individually constructed by me and sent in batches to Lisa for adding to the boxes.
  • In November 2018 I took part in a packing boxes day at her house and met other cancer patients.
  • One got me to design some mandalas for a colouring-card idea she had. I was pleased to share my creations.

 

 

 

About eating. And drinking. I remember pre-upper prosthesis having all kinds of thoughts about what foods I might try with teeth in my top gums.

  1. I admit now, 2 years on, that some of those foods were just not a success.
  2. You see, as it was explained to me by my lovely Nurse, Cate, my mouth has more inside it than a ‘normal mouth’ and it cannot do all that it did.
  3. My prosthodontist had added a partial denture of a tooth on each side to hook into my remaining natural teeth on the bottom and this helps hugely.
  4. Some meals I tried and could eat (and still do) are  above, even though the hot meals are likely to be over 2 nights.

 

 

Keeping up appearances…was very important.

  • This trend went right into 2019.
  • In 2020 I do this occasionally.
  • But in between treatments, visits to Sydney for cancer checks and more, dressing well and with purpose was/is very important.
  • More important than everything was I was finally able to (and definitely wanting to) meet up with friends again. Yay.

There it is. Snapshots to help me remember what life as a head and neck cancer patient was like in October 2018.

Denyse.

Linking up with Leanne (whose image appears in this post!)  here for Lovin Life Linky.

 

 

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Self-Care Stories #6. 42/51. #LifeThisWeek. 84/2020.

Self-Care Stories #6. 42/51. #LifeThisWeek. 84/2020.

Last time I wrote about self-care, I was about to have some more surgery. It was a success and it was wound debridement then application of a VAC system to help health both faster and cleaner. More about this as the post goes on.

Self Care: the Mental Story.

I cannot lie. Knowing that I needed more surgery on August 24th to fix the wound from the first abdominal surgery some 5 weeks before did not make me a happy camper.

It also was a messy situation. Literally. I had no idea that a wound could ‘dehisce’. I had also never heard of the word. My GP mentioned it as I anxiously awaited the result of her examination of my very messy & leaking wound area the Wednesday before. I literally could not see it as it was at the junction underneath my tummy where the upside-down T incisions met.

To better explain: from my search:

Dehiscence is a partial or total separation of previously approximated wound edges, due to a failure of proper wound healing. This scenario typically occurs 5 to 8 days following surgery when healing is still in the early stages.

Wound dehiscence is a distressing but common occurrence among patients who have received sutures. The condition involves the wound opening up either partially or completely along the sutures – basically, the wound reopens to create a new wound.

 

Our urgent appointment to my colorectal surgeon the next day confirmed that whilst the wound (stitched internally) was opening up, it was NOT exposing the inside of my abdomen nor impacting on the surgeries I had just had. Phew. I guess.

Trust. I had to have trust in both the surgeon and his work (along with the support of the specialist wound nurse) to come through this second surgery. I had to have an additional surgery post head and neck cancer and I remembered the disappointment very strongly. I also remembered that “if it had to be done, I needed to accept that”.

Relieved patient and doctor!

This time, it was a shorter surgery where he cleaned out the wound area (debridement) as I was under a general anaesthetic, leaving an area of 8cm long x 3cm deep and 3cm wide to be covered with the VAC system dressing, tube and ‘me attached’ to the VAC machine itself. I woke with all that done and by the next day, had the lessons in how to care for it before I would have my first ‘at home’ nursing. This was new to me and I was incredibly grateful. Our private health insurance paid for the equipment (each wound change used a new section of the VAC and was approx $80 each in value). Her travel and services for 7 visits (as was needed  by me) were paid by Teachers Health who would have paid for 10 but by 7 my wound did not need the VAC system anymore.

About the VAC system: Mine was on me, next to me as I slept, 24/7 from 24 August until 17 September. No showers but I could wash myself in a limited way.

Negative pressure wound therapy (NPWT), also called vacuum-assisted wound closure, refers to wound dressing systems that continuously or intermittently apply subatmospheric pressure to the system, which provides a positive pressure to the surface of a wound.Jul 22, 2020

Negative pressure wound therapy (NPWT) is a method of drawing out fluid and infection from a wound to help it heal. A special dressing (bandage) is sealed over the wound and a gentle vacuum pump is attached.

I Found It Quite Confronting. 

I admit all of this physical attention by professionals for a part of my body rarely shared with anyone other than my spouse, was hard on me. I knew the ‘why’ and the ‘what’ of the reasons. The confrontation I guess for me was about not only the wound itself – not good with them at the best of times – but that my husband or the nurse took photos of me. My body, there, where it is fat and bits of it have weathered a lot – big surgeries for example AND child-bearing. The photos were valuable because they were the proof everything was healing. I just found it hard to ‘see myself’ from this angle. I still have the photos as do my doctors as it is an important record. I have shown a couple of progress shots to family but they are not something I can nor would share publically.

 

Self-Care: the Physical Story.

In the normal scheme of things I can say that I should have been well on my way to full recovery at about the 6-8 weeks mark post first surgery. This would not be the case with the second surgery. It put me back another 4-6 weeks. I had to learn (again!) to live with:

  • physical restrictions with a tube attached to my wound, which was then wound around the bag, which I had to wear on my shoulder. It was quite heavy too, so I could leave it on the desk while I blogged or did some art. I did have to remember to take it with me though…I did have a couple of times over the 3+ weeks where I almost forgot but the dragging of the tube on my wound soon let me know
  • pain. Not much from the wound itself as it was covered and pretty numb from 2x surgeries. The skin around the wound – and some hair in the area – got itchy and a bit painful but managed with cream. Interestingly I was warned I might have needed a very strong pain killer for dressing changes initially but fortunately panadol was enough
  • recovery from wounds from surgery #1 inside and outside made for (and still does as I write) so stinging, aching and pulling sensations from my belly button area and down and across
  • I need to get some help via an arm from my husband or nurse to easily rise from lying down (when wound was being changed) as stomach area feels like I have overdone sit ups. I haven’t. Apparently it can take another 4 months for this to be better after all the cutting and stitching that went on inside
  • less resilience for staying on my feet and walking. I turned down my Apple Watch walking goals initially and over the past 4 weeks have been increasing them slowly
  • being able to drive again took about 3 weeks post first surgery…and I had just become used to that independence when the 2nd surgery happened. By 2-3 weeks post that one I had the OK to drive again. My husband has been and continues to be the main grocery shopper now and I am loving that!
  • getting more distracted by art, some reading, magazine browsing has helped while away the time during a COVID recovery
  • still doing my best to dress with purpose each day and going out for a walk somewhere or a coffee.
  • now that I have NO MORE visits to the GP for wound care – that ended last week as the wound healed fully, I have been able to drive to Sydney to see my Dad.

Self-Care Lessons.

  • I can do this
  • I have done this before
  • I have strategies I can draw on
  • I have a loving and supportive husband
  • I know this is temporary
  • I will learn more about myself by coming through this.

That’s it. A much longer self-care post than usual, but I did think it worth sharing.

Getting over anything health-wise always brings up more than we are perhaps prepared for.

I hope you are doing well.

Denyse.

And a lovely P.S. from me!

On Saturday 17th October it was 50 years since we met. As this post goes live, we will be travelling to the north west of N.S.W. to the city of Tamworth where we met, and then to have a couple of days going to towns that were of great significance in our early single, then married lives. There WILL be a post about that you can guarantee it. I may not be on-line to comment or write on your blog until I am back home. 

 

Link Up 211

Life This Week. Link Up #211

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt: 43/51 Inside. 26.10.2020

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Share Your Snaps #8. 40/51 #LifeThisWeek. 80/2020.

Share Your Snaps #8. 40/51 #LifeThisWeek. 80/2020.

Dear Bloggers and Readers,

Please note: “this post” is letting us know there are only 11 more weeks in 2020 for #LifeThisWeek.

Yikes.

But also, many of us will be glad to be saying “bye bye” to 2020 too.

This version of #shareyoursnaps is a photo from every day in September. Remember the rhyme? 30 Days Hath September, April, June and November.

In September 2020, I have been pleased to be back on recovery trail after a second surgery as my abdominal wound had opened up in one spot. I had the nurse visit twice a week to change the VAC system and mid-September, the wound was good enough to be dressed by the local GP’s nurse. “This” however is still on-going and it will likely be well into October before I will be free of this. It’s been a long, long haul. However, the alternative would have been worse. I loved having time to appreciate Spring in my garden as a result of being at home more than ever and most mornings awoke to a new bulb opening its beauty. I finally got my independence back and went for a couple of bush-area drives where nature does so well in Spring, I had a coffee out after many weeks of not being able to. We celebrated birthdays and Father’s Day in low key ways, and my husband has been the most patient of carers ever. Some of the pics are self-explanatory.

I hope your September 2020 has been kind to you.

From today: 86 days left till 31.12.2020.

OK, I will stop now.

Enjoy.

Denyse.

 

Link Up 209

Life This Week. Link Up #209

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt: 41/51 I Have Never. 12.10.2020

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Healthy. 39/51. #LifeThisWeek. 78/2020.

Healthy. 39/51. #LifeThisWeek. 78/2020.

When I was blogging more frequently, health and mindfulness were a category for blog posts. These days, like many, my posts are limited to twice a week.

This is good for my health in some ways as I am not feeling too much pressure to perform, aka write posts, and can enjoy the writing of the two I do more.

About Me.

  • Being healthy is a relatively new idea for me…I was raised to be healthy and was…I am talking about lifestyle & choices
  • For many years I balanced my life …in a not so good way…with eating for comfort and doing less as I was quite worn out by life
  • I knew limited ways in which to care for myself because…as many do…I was too busy caring for others: at work, and in my family life.
  • I do much much better now in the self-care and health stakes as I have learned much in my years living following head and neck cancer.

Then I Was Diagnosed With Cancer.

Those who have followed me before and since this diagnosis know that I found out I had a head and neck cancer, specifically squamous cell carcinoma of the top gums (maxilla) and under the top lip. All about that, and many more posts outlining the years of surgeries and more are here: Head and Neck Cancer.

But Before Then.

My emotional health was at an all time low from 2013 into early 2017 for a number of reasons:

  • ageing and becoming somewhat disenchanted by some of its effects
  • retirement from all of my meaningful and paid work over this time
  • my weight was the highest it had been and with encouragement from my GP and my own determination, I lost some kilos over a year with greater awareness of why I ate, and ensuring I moved more
  • finishing up grandparent care at our house and actually being glad because I was finally tiring and becoming worn out by it
  • making a move from all I knew: Sydney, our family, friends….to the Central Coast
  • this move was one I thought I wanted (and still agree it was the right move) but my emotional health brought me down into spirals of anxiety and fear along with the dreaded Irritable Bowel Syndrome
  • the health professionals I saw then all said it was reactive depression and anxiety was part of the transitioning. Not a diagnosis of either. I do take a low dose anti-depressant now to help with IBS more than anything and getting off to sleep
  • I admit I am one of what is known as the “worried well”.

SO….in some ways I was not surprised that I had cancer diagnosed in May 2017 …I can see that others may have felt stress was a cause. That it is not a direct link, but from what I know about cancer, it is random.  Some people thought my immune system was down due to the appearance of my mouth. THAT,  was actually the beginning of cancer…but no-one thought that till April 2017 when I insister my dentist remove the bridge from my upper gums.

This quote sums cancer up. From an Australian surgeon:

Head and Neck Cancer Requires Frequent Checks.

From the diagnosis on May 18 2017, to the big reconstruction surgery on July 6 2017, through to further surgeries for skin grafts and checking inside my mouth, glands in neck area and many visits to the prosthodontist, I had:

  • post-surgery checks after a few days to a few weeks to see my head and neck surgeon and his surgical assistant, nurse specialist
  • three monthly checks for the first year
  • any time where I may have seen/felt an issue, such as additional skin forming, and my surgeon saw me within weeks
  • four monthly checks for the next year
  • weekly and fortnightly visits to the prosthodontist as he continued to work on the making of the upper prosthesis
  • then monthly to two monthly visits to him, until COVID. Last time I saw him was February 2020 and I am returning in mid October as he is now doing regular checks again
  • this year, the visits to Sydney’s Chris O’Brien Lifehouse were at 6 month intervals.
  • THEN, at my recent early September visit, after clear CT scans of my head, neck and chest, and after visual examination and more, I am now on:
  • a 12 month check up..so will not be back until September 2021.

“MY” Prof…as I call him, Professor Jonathan Clark AM recently became chair of a new program at Chris O’Brien Lifehouse and Sydney University where this grant will enable him and his team create software and 3D models for head and neck surgery on the spot. My surgery, over 3 years ago, meant a delay as my team here in Australia  and the software developers in Europe made the program for my surgery and the model for my  mouth which had to be flown in from Belgium. Here’s the announcement of the donation for the funding so this program goes ahead.

ALWAYS happy to have a photo….

How I Manage My Health Now.

Interestingly with greater ease, thanks to a limited ability to eat a lot and to a better attitude to moving more.

Photos tell that story too. It is a way of keeping myself accountable too.

However, I never feel that I am missing out either. I have a better understanding of my need to nourish this body and to also enjoy the treats when I can.

And Then I Had to Do These Things.

Have both of my eyes’ cataracts removed and lens replaced. This happened on the cusp of COVID restrictions and I was glad to be done. In Sydney, over 3 days. Then of course, I had recovery but my opthalmologist has rooms up here so visits for checks were OK. I was quite shocked that from one annual visit to the next, it was cataracts time. This turning 70 was not quite what I thought. Now 6 months on, I use readers of a lower strength and no glasses for driving. Love the clearer views everywhere.

Left Eye Cataract Done

After hiding FROM myself and my problems with rectal prolapse* and the ways in which it impacted my day to day life, in May 2020, I was forced to face the matter as I could no longer live in pretend land. I look at it this way though, in managing my recoveries – physical and emotional – from those years of head and neck cancer I could not face more investigations into what is wrong. But dear readers, there was a lot wrong. Google rectal prolapse and what it means. Let’s just say, I paid a small fortune for incontinence aids, and suffered a great deal from shame about this condition.

Grateful to be ‘out of’ another surgery.

Getting One of the Things* Above Fixed…and Added Complications. 

Again COVID changed a few things but from my GP’s referral to a colorectal surgeon who insisted on a colonoscopy “no cancer or polyps but def need rectal prolapse repair”…and then needed surgery I became resigned to what needed to be done. From early May to late July I waited for the  surgery called rectopexi. The surgeon did a great job, especially complicated by my inners where he also found (surprise) a hernia needing repair. This necessitated a horizontal incision AND, the best (not) news, a vertical incision. Meeting in an upside down T at the bottom of my abdomen. The surgery, has worked. He took the slack inner workings of my rectum and has stitched them to a bone low in my back. I have no prolapse and normal (for me) bowel movements for the….first time in perhaps a decade…and…

My recovery in hospital and at home was slow as expected but at my first post-op appointment he told me I was a star for recovering in exactly the way it was best. I liked that. Especially as I did not quite hit it off with him at my initial consult…I was scared.

Three weeks into post-surgery recovery I noticed a section of the upside T section of the wound was kind of not staying together. I showed my GP and he thought it would be OK. But take this anti-biotic and apply this cream…and let’s hope it resolves.

It did not.

Within 2 weeks of seeing my GP, I was ‘astonished to see and feel liquid forming over my nightie as I got up out of my chair. Eeek. Got an urgent appointment to the GP, who was ‘so sorry, Denyse’ but…It was called wound dehiscence and sometimes a wound will not stay together. My colorectal surgeon saw me the next day, and pronounced “can fix, back into hospital for wound debridement and we will put a VAC system on to help heal the wound over less time.”

Wound Debridement and the VAC. 

One month post first surgery for rectopexi I was back in the same hospital and cared for very well. Surgery was less than an hour. I stayed overnight so the surgeon and wound nurse could see I understood how to live with the VAC system. The best part of having paid for our private health insurance since the late 1960s it means either of us can get the best care, when and where we can. I know this is a two-part health system in Australia but I am very grateful.

Each week I was visited two days a week by the Wound Nurse. This was all covered under ‘Hospital at Home” care from our Teachers Health Program. A machine was supplied, each of the changes of dressings and the costs of visits from the Wound Nurse. This lasted just over 3 weeks.

Since then, our GP and his practice nurse is taking care of my wound dressing. The progress is amazing on the wound. I have so many photos, none of which I will add here but they give me and my husband (the photographer) updates. The medical and surgical teams appreciate my dated photo collages.

Is that IT?

I don’t know but I sure would like to be free of appointments for  the above. This is likely to occur in the next two weeks or so. At least I have no VAC on me and have full independence.

I am back to my prosthodontist in October but I am pretty sure my mouth care will be praised.

Emotionally I am getting there. I know I have gained a great deal of resilience through much of these past 3+ years but am looking forward to a some respite from health professionals for a while,

THANK you…if you got this far.

I hope you are healthy and well.

Stay that way!

Denyse.

Link Up 208

Life This Week. Link Up #208

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt: Share Your Snaps. 40/51. 5 October 2020.

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Self-Care Stories #5. Gratitude. 34/51. #LifeThisWeek. 68/2020.

Self-Care Stories #5. Gratitude. 34/51. #LifeThisWeek. 68/2020.

An update from Denyse: today I am having more surgery to manage some infection that has taken hold in an area of my abdominal wound from 21 July surgery. Sigh. However, I will be glad to get it done, and unlikely to pop back to comment until I am home. I should only be in overnight. Send all good healing wishes, please!! 

Writing about self-care is a regular optional prompt.

I wrote last time here about self-care in COVID-19 times.

The COVID-19 times are not going away any time soon, so this time I have broadened my view to remembering my word for 2020:

G R A T I T U D E

This blog post: so hopeful, and giving me (and readers) guidance on how I was going to find gratitude each day for:

3 6 6 D A Y S of 2 0 2 0.

Then mid-way through the year, quite a reality check! Here is what I wrote then…..

A word (or more) from me:

 

How did I, or have I, tried to find gratitude in each and every day to fulfil my goal of an instagram post every day?

I did, and have but on some days it was much harder than others.

These are but some of my gratitude-based photos (not all were shared on instagram) that remind me:

EVERY

SINGLE

DAY

of what I am grateful for.

So, my self-care remains in good form as long as I am also doing my utmost to find gratitude. It can be obscure but I am a determined person and like to think I see things through!

Now, how about a little self-care from me to you…via a short video taken last week at my favourite spot: Soldiers Beach carpark. Looking north to Norah Head Lighthouse.

Take care everyone one…self-care always first.

Denyse.

Link Up #203

Life This Week. Link Up #203

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt: 35/51 Share Your Snaps #7 31.8.2020

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I Want. 33/51 #LifeThisWeek. 66/2020.

I Want. 33/51 #LifeThisWeek. 66/2020.

Last week I wrote this post: Why Did I Start A Blog?

Today I conclude the ‘Why I Blog” series with ‘I Want’ because that is essentially the ‘why’ of blogging for me.

I want:

  1. to connect with readers who visit this blog
  2. to stay relevant as a blogger 
  3. to post topics of interest with a range of my expertise and interest
  4. to contribute to conversations about a range of topics
  5. to be able to learn from others who blog
  6. to know that I am a blogger who is inclusive
  7. to be a blogging friend to those who link up often
  8. to see that my posts on all topics have relevance to my audience
  9. to visit others’ blogs and connect via commenting and support
  10. to continue writing, posting, commenting and sharing my blog posts with others for as long as my work is of interest to others and I am not feeling stale nor bored

It’s been a very big learning curve to be a blogger.

I say that because, for me, it was quite foreign to my world of work in education. Yet, as  determined person who does not eschew hard work, I did my best to blog for what I had found was my way:

Conversational

Informational – based on experience

Photo-centred

Stories shared

Difficult Topics Which May Be Helpful

Creativity and Art

Health & Mindfulness

After a huge move (literally) in our lives, from Sydney to the Central Coast at the beginning of 2015 I set myself a goal. To keep me focussed on “doing this one thing EVERY day”…. I wrote a blog post Every.Single.Day. of 2015. No-one read the posts bar me, until, I re-visited the best way to connect more broadly and that was:

L I N K  U P S.

Hosted by fellow bloggers.

Yay for that. I linked up posts for some time on the Annoyed Thyroid’s link up each weekend , Kylie Purtell’s on a Tuesday and Kirsty Russell on a Monday. Great news! I was meeting up with old friends and new. Right into 2016 and I continued…slightly decreasing my posts and relieved to do so.

I found I needed a good refresher of how this blog looked and made contact with an old Sydney friend, Tanya, who enriched the look and settings of the blog already set by my techie guy and that meant 2016 was even better. I made a commitment to blog almost every day under these topics:

I was having a good time, connecting and meeting new bloggers. Lots had just started blogging, others had left and there was talk of a linky being retired and I asked if I could, perhaps, with permission take over the Mondays with Life This Week. I got a lovely approval from my friend and in September this LINK UP kicked off….and is now #202!

I was also delighted to know there were link ups happening here (co-hosted) on Wednesdays  (sadly for me, this one is finishing up soon) and here on Thursdays. Thank you for your link ups! They are great places of connection.

I Want: to write my memoir.

I had been postponing the idea of writing a memoir of my life until a friend and blogger encouraged me to try writing the chapters in blog-type posts. I did this. Here is the first one. I was not to know it would be a while before the next one!!

I Want: to share awareness of head and neck cancer.

Those who have been here since then and before will know that things changed very fast for my life and priorities when I got a head and neck cancer diagnosis in May 2017. I did think long and hard before pressing publish on this but the love and support which came back to me proved why I love to blog and love my community. The post is here.

I Want: to promote and encourage education- self and others always.

I also told the story of how I like to learn…this was because as a life-long educator I was placed in the role of student at an adult crochet class and because of how poorly my needs were understood I never went back!

I Want: to feel well within myself and portray that confidently.

As an anti-dote to cancer treatments and letting myself be positively impact each day, I began a daily routine some 4 months into my cancer and started to ‘dress with purpose’. This became a photo on instagram each day…and then over time one big boost to my self-confidence when I had no upper teeth and was still in cancer-treatment mode. Here’s what this was about. 

I Want: to have women share their stories of courage.

From May 2019 I introduced a series to the blog for women I invited (or who self-invited) to share their stories: answering 5 questions. This series, Women of Courage continues….I am so pleased this has been a success. Many women have told me what it meant to share.

I Want: to show my appreciation to you, my readers, bloggers and friends. Some even joined me for my 70th birthday morning tea late in 2019. Many of you I may never met but already feel you are good friends. This blogging business is a great way for me, a relatively isolated retiree, to connect.

I Want: to continue blogging. Writing a post up to 2 times a week is good for my health and for my connections. Over time, I expect with fewer Women of Courage stories, my Wednesday posts will be a way to make some changes of direction if that’s what I choose.

This Is Why I Blog!

Thank you all. You have made a difference in my life.

Denyse.

Link Up #202

Life This Week. Link Up #202

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt: 34/51 Self-Care Stories. #5. 24.8.2020

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Share Your Snaps #6 #WHNCD. 30/51#LifeThisWeek. 60/2020.

Share Your Snaps #6 #WHNCD. 30/51#LifeThisWeek. 60/2020.

Devoting today’s Share Your Snaps to: World Head and Neck Cancer Day 2020. It’s today.

Sharing the stories is part of what I am able to do here on the blog and in other social media but they are not all “my” stories. Some of course, belong to others.

The photos here cover a range of people who have been given a head and neck cancer diagnosis. Some may have had surgery, others radiation and chemo. Some a mix of all. I had surgery only.

 

Head and Neck cancer not well-known as a cancer, even by G.P.s and some specialists. The work of Beyond Five continues to offer up to date information for patients, families, carers and professionals. My work as a Community Ambassador is to share awareness of the role of Beyond Five.

Today: WHNCD,  I pay tribute to the head and neck cancer community around me and further afield.

I admit I did my first year of HNC (as it’s also known) alone until I was invited to be part of the Central Coast Head and Neck Cancer Support Group.

 

  • Sharing the stories…in pictures and some words, this World Head and Neck Cancer Day.

 

  • Women of Courage Who Are Head & Neck Cancer Survivors Shared Their Stories Here:
  • Maureen Jensen from New Zealand. Story Here.
  • Tara Flannery from Australia. Story Here.
  • Julie McCrossin from Australia. Story Here.

 

  • May there be greater funding for research into HNC AND supportive grants to Beyond Five so that more information can be shared via the website, webinars and “in real life” events if COVID ever lets that happen again.

 

  • Last week’s post was more detailed about head and neck cancer and its signs and more. In the coming weeks, as of today, Julie McCrossin AM and professional leaders in the field relating to head and neck cancer will be sharing on-line here. This on-line event replaces the Forum to be held last June which was cancelled due to COVID.

 

  • I am particularly grateful to be part of a New Zealand-based Head and Neck Cancer Support Group on Facebook. Started a while back, it is a friendly, reassuring place to be to ask some questions, find some support and to know you ‘are not the only one’ with head and neck cancer…even if it is still pretty rare. Find the group here. You will need to answer some questions first before acceptance.

 

  • To you, my blogging community, I say thank you over and over for your interest and support in this ‘hnc’ thing of mine from when I was diagnosed. I am incredibly grateful to be well…but also to be well-supported here. The link to my Head and Neck cancer posts is here. I am told this has been useful for some patients and families to read. Makes me grateful to use my blog for this purpose too.

I still have another 2 years of cancer checks to go …the next is in September. I never take it for granted that my version of head and neck cancer has gone forever.

Denyse.

Link Up #199.

Life This Week. Link Up #199.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next week’s optional prompt: 31/51 Food. 3.8.2020

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