Tuesday 11th May 2021

Knowing.19/51. #LifeThisWeek. 58/2021.

Knowing.19/51. #LifeThisWeek. 58/2021.

From time to time, bloggers will invite a guest to write a post for their blog. I have done just that. I asked the man I married if he would  like to be the one who wrote on this optional prompt of ‘knowing’…his response was a resounding yes and so I emailed him (we do that, do you?) the questions.

Now, he is a considered and very well-read person with impeccable manners. He took his time to write this post and I said, the only thing I will do is ‘spell-check’. And that is exactly what happened.

Oh and he got to OK the photos I chose to use.

One thing before I hand over, living with and loving the man for over 50 years is a comfort and a challenge. And between us, we continue to learn about ourselves too. Not bored. Ever.

Thank you B.

 

Knowing. A blog post with Bernard responding to questions about his work, life and counselling.

 

What would you like the readers to know about you?

  • I am white, male, middle-class and therefore, harbour biases that I need to be alert to when interacting with others.
  • I am a contemporary phenomenon coming from a rare and unique background as the fifth child in a family of 13 children! Yes, that’s correct, THIRTEEN kids all sired by the same good Catholic parents! I have no doubt there are many other males who could lay claim to having fathered more than thirteen children. They probably are just not aware of many of them!
  • I have been married to the same super woman for more than fifty years and have never felt any desire to change that status; nor have I ever done anything that may threaten it.
  • The accomplishment that swells my soul with the greatest pride and joy has been to contribute to the reproduction of two excellent children and eight glorious grandchildren. These ten human beings, I am very proud to boast, are all examples of mum nature’s finest achievements. While they sometimes bring tears of despair to their humble parents/grandparents, the joy they return is incalculable!

 

How did you know that you would like to help others?

 Given my DNA, I think it may have been a pre-determined role that I was locked into from the moment I crashed to earth. Growing up with so many siblings provided very limited opportunity for putting self first. So, it was incumbent on each member to be a good listener and ‘helper’ or suffer the consequences! So, I acquired the answer to that question at a very early age.

 

What specific knowledge was required for your training?

  • Teaching: Combined College and University training. The prime value of this “time to join the real world” came from the exciting discoveries that socialising brings to the young and naïve adult. The ‘how to effectively teach and manage a school’ began the moment I first set foot in the playground of my first appointment. At the ripe old age of 18 I found myself as Teacher- in-Charge of a one-teacher school out of Narrabri. The school had an enrolment of 41, 10 of whom were secondary students. Fortunately, the kids loved music almost as much as I did!

Wow! What a steep – almost perpendicular – learning curve!!

But, I loved the challenge and managed to survive!!!

  • Cabinet-making: On-the-job training. Cabinet-making was the outcome of medical retirement from teaching as a result of chronic pain from spinal disease. It was good therapy!
  • Counselling: Combined university and Lifeline training. I found working with clients to help them become unstuck and return to greater contentment in their lives, greatly rewarding, it was marred by incompetent supervision. What a shame!

 

 Were there skills that you needed to learn?

 There was a myriad of skills that needed to be learned in all three of these pursuits.

  • Firstly, it should be said, there must be a willingness and openness to learning whatever skills are needed to fully enhance delivery of the service. Some of these already existed as a result of previous life experience and some were mutually beneficial between services. I refer to basic social skills built out of desirable human values such as kindness and compassion, empathy, tolerance, understanding, generosity of spirit, etc. Many more needed to be learned, especially manual skills relevant to building.

 

  • So, all three services rely heavily on the development of effective oracy (especially active listening) and literacy skills. Obviously, the ability to communicate effectively is a skill that is of paramount relevance to all, especially counselling and teaching. Contemporary society would also demand a desirable level of knowledge and skill in the new world of Information Technology. Fortunately, I was largely untouched by this beast!

 

  • Then, there are the many skills that are of specific relevance. For example, apart from being able to communicate well, running a cabinet-making business requires a broad range of business and management skills, to say nothing of the manual skills, that underpin the effective delivery of such a service.

 

  • All these skills I am very grateful for, as they have contributed greatly to the quality of life that I now enjoy.

 

 How has being a counsellor impacted your life?

 

Of all the above career pursuits, counselling has had the greatest impact on my life – a strange outcome when it was the pursuit that I spent least time pursuing.

  • However, counselling, through its skills, provided the opportunity to offer other human beings the love of listening and of taking them seriously – a rarity for some, especially women. It was a real honour to be permitted to engage in an intimate experience in which I was given open access to the secrets of clients’ tortured souls as we worked together to free them from the manacles that had them chained to an unpleasant time in their lives.

 

  • Relationship dysfunction demands the most attention. This might include a cry for help to improve emotional regulation that may have expressed itself as an inability to manage anger that is violently disrupting domestic equanimity or dysfunction resulting from the loss of loved ones. Complex trauma emanating from abuse or exposure to traumatic experience needs help to resolve as does the very broad problems associated with depression and anxiety.

 

  • The needs range is extensive but rarely does the dysfunction not affect relationships, especially the relationship we have with ourselves. Whatever the reason for seeking help, the initial offering of a loving ear and non-judgmental acceptance coupled with empathetic treatment are critical to effective outcomes.

 

  • I’m happy to award counselling the prize for greatest impact as the purpose and meaning it offered has contributed most to my feeling of inner peace and contentment.

If readers wanted to know more about how to help themselves to learn more about ‘life, living and all that’ what would you suggest?

 

Well, my immediate question to that question is, “how long have you got”?

But, as I think you would like something a little more practical and hopefully helpful, here are a few suggestions.

 

  • Give yourself a break! Our most severe judgy-judgy (my wife assures me that this is the contemporary version of judgmental) critics are ourselves. We’ve got that voice or voices in our heads telling us what not to do, how not to do it, what we should be doing, etc. Whatever the thought bubble, try not to empower it by reacting emotionally. Don’t resist it for whatever we resist, persists, remembering that it is very temporary and will pass. Allow it in let your mind move from inside the thought bubble to an observer position. Then thank it but suggest you’d like to proceed the way you want to. Remember, this voice is only trying to protect us. Practise offering yourself kindness and compassion rather than harsh criticism!

 

  • Be grateful and feel it. When we genuinely feel gratitude our bodies experience a chemical release that enhances feelings of well-being. Each day practise asking, “What am I grateful for?”

 

  • Live mindfully in the present. Give the right hemisphere of the brain the opportunity to be as active as the left. We human beings, especially in Western Society where we are constantly striving for materialistic gain, are very left brain oriented. This has us flat out DOING and solving related problems. We really need to give the more reserved, quietly-spoken right hemisphere a chance to become more active and JUST BE. Right brain loves us when we live in the present with curiosity and creativity. Music that we get lost in is a great BEING activity. It’s like slumping into your favourite chair after a hard day on your feet! Practise eating your next meal mindfully, i.e. with the curiosity of a scientist allowing your sense to actively engage with the process. Observe what you smell, taste, touch, hear, etc. No digital devices permitted at the dining table!

 

  • As difficult as it is, times of hardship and pain such as illness, relationship dysfunction, etc. need to be thought about as wonderful opportunities to learn about life and enhance one’s quality of it. The more difficult and/or painful the experience the more opportunity for learning about ourselves. Practise writing about these times.

 

  • Be a good listener. How many times have you heard, “you’re not listening to me!”? If you’re like most of us when having a conversation with your partner or a friend or involved in a group talk interaction, you’re probably mentally preparing what you want to say rather than listening intently. Practise being an active listener.

 

  • Be careful not to become a digital addict. This is a very real problem for some people. It impacts our sociability as we retreat further and further into the world of social media coming to see this world as the real world. While social media is a valuable asset giving people a sense of connection that they may not have otherwise had, that connection lacks a personal dimension that nourishes our souls. It’s like the unique value breast milk has for an infant. Certainly, use your device/s as tool/s or learning aids only. Practise going out without your phone – like we used to do only a few years back!

These provide just a snapshot of possibilities

 

How did you find writing these responses?

 Refreshing, heartening and stimulating. I miss all three of my life’s career choices, especially the last!

 

Thank you Bernard. I appreciate your skills,  talents and considerably well-used active listening skills… Always! Going out without your phone? Sorry, probably can’t do that. But I hear you!! My tribute in images here.

Thank you B, for your thoughtful words in response.

I know I have benefitted from your wisdom over the years and maybe there are some pieces of information shared here for readers and bloggers to find helpful.

Denyse.

Link Up #239

Life This Week. Link Up #239

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: Share Your Snaps #4. 17 May 2021

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Reflections On Mother’s Day 2021. 56.1/2021.

Reflections On Mother’s Day 2021. 56.1/2021.

 

Content Warning: Should any post about Mother’s Day be a concern for you, please don’t read…I am sorry for your situation whatever it is.

 

After a long period of reflection (years) I chose to write about Mother’s Day to be published on Mother’s Day, 2021.

My mother told me Mother’s Day flowers were chrysanthemums and were always white. She recalls her mother being given a white flower at church on Mother’s Day. I remember these things. But cannot find any pics of chrysanthemums.

Here it IS Mother’s Day 2021.

I cannot help but do a trip down memory lane to try to understand my mother and my mothering…OK. Not all of it, because much cannot be put into words.

Reflections.

  • I grew up in a 1950s-60s  household where Mother’s Day was remembered….by my father whose domineering and controlling manner meant I have had his words about this occasion rattling around my head since I could remember. Maybe 6 till my recent old(er) age.
  • It was a day where of course we gave Mum a card, probably some flowers and may be a gift. But I never thought of the occasion without ‘obligation’. This is who I am. Long memory.
  • Mum was a kind, sharing and shy woman whose care of her husband and us two kids was exemplary. She loved that she could care for us that way. In fact, it carried on to the ways in which our kids and my brother’s would remember “Noreen” for, and her three great-grandchildren who knew her before her death in 2007.
  • Dad….where will I start? Here at the point of the conversation I had with him only 3 weeks ago when I spoke of the courage his mother had coming to Australia to marry her fiance. His comments? “She was alway cranky and complaining and wanted to know, when we arrived to visit, when we were returning” OK. I understand but as I said, Gran having been widowed with 4 kids probably had a lot of grief.
  • So why did I begin to resent the forced nature of Mother’s Day? Probably for that reason. It did not come from my heart and then, as I had kids (strange but true) I believe I began to feel the old family history repeating itself.
  • Sigh.
  • I became entangled in the “event” that should be happening as I am a mother. Oh how embarrassed I am now about that. I did not demand anything (not my Dad) but I felt sad and disappointed if I was forgotten on Mother’s Day.
  • Cringe.

What Has Changed?

  • My mature thinking, a big dose of cancer and an obligation-free mindset
  • I honour MY adult kids as they make me so proud to be their Mum.
  • I actually asked my kids, a few years back,  to allow for my imperfections (there are many) as their Mum as I was, at the time, doing the best I knew.
  • I expect nothing back. At long last. Not anything. Thanks Dad…by the way, I have told him this but his memory is…dim.
  • I know that I am loved but I do not need to see evidence or whatever based on the ‘have to’ mindset we see far too often.

Two Posts: 1971 and 1979.

These two posts are about my mothering years, in particular giving birth to our daughter, and then after a long gap where we thought that we could not have any more children, we had our son.

My Mother’s Day 2021.

  • It’s a Sunday.
  • We will be cleaning the house on our fortnightly roster.
  • I will go out for my Sunday coffee.
  • I will reflect on my gratitude for a change of mind and heart and send my love to our kids and their kids…and Dad.
  • Forgiveness is powerful as is My Loving Kindness practice.

Take care of yourselves and each other.

Denyse.

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Taking Stock #2.18/51 #LifeThisWeek. 55/2021.

Taking Stock #2.18/51 #LifeThisWeek. 55/2021.

I wrote about the changes I have made to how I will blog when it’s time for Taking Stock. You are, of course, welcome to use my new version of the prompts or ones initially devised by Pip Lincolne. This optional prompt occurs every 9 week.

 

This time round, I am going to respond to these prompts relating to my head and neck cancer, diagnosis, surgeries, treatments and continued wellness. It will be marking the 4th anniversary of diagnosis on 17 May 2017. May will always remind me of this!

Admiring:  the skills of all those who helped to do my upper mouth reconstruction

Becoming:  such an advocate for spreading the awareness of head and neck cancer because it IS rare but it is also growing in numbers of people diagnosed in Australia and around the world

Curious:  about how I ‘got’ this cancer …at times

Delighted:  to be well in my recovery at almost 4 years down the track

Excited:  that my world is opening back up again for me personally as I take steps towards getting out there to share the awareness news

Feeling:  proud that I have come so far in my emotional health recovery that was at an all time low before my diagnosis in May 2017

Going: out each day as part of my health recovery

Helping: other head and neck cancer patients, families and carers where it may be appropriate

Imploring: everyone to “get your dentist to do a mouth check at your regular 6 months check” please

Joking: not. About the importance of knowing how to check your mouth yourself too

Keeping: up with my 2x daily practice of water pik use and caring for my upper prosthesis

Loving: that I have my smile

Making: changes which are working better for me as I adapt how I eat, e.g. using smaller utensils and remembering my mouth is a smaller space inside

Next: no longer waiting for what is ‘next’ in my treatment, seems all good at present

Observing: that I am a changed person inside thanks to this life-altering event in 2017…

Pleasing: …to note that the change is for the better

Reading: fiction, well, listening to it as I could not concentrate much on anything in recent years

Staying: well

Trying: to be more mindful and in the moment as much as I can….

Understanding:…that is not always possible but forgiving myself when I retreat to old habits

Viewing: my progress in terms of head and neck cancer with awe….still!

Welcoming: the ways I am learning to s l o w myself down to take notice of what I see, feel, hear and smell

X- You Choose! Xtra kind support from my blog followers and social media friends makes my recovery and wellness easier because I do not feel alone

Yes: to letting go of my past thoughts about appearance and….

Z – You Choose! …speaking kindly to and about myself. Always. Almost Always

And some more…

Gratitude to these people including me!

And finally:

Thank you for being part of Life This Week today.

Next week, I WILL be here but the words will not be mine.

The clue is at the bottom of the Link Up instructions.

Denyse.

Link Up #238

 

Life This Week. Link Up #238

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: Knowing. 10 May 2021. Guest Poster: My Husband!

You are invited to the Inlinkz link party!

Click here to enter


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Note To Denyse Before Head & Neck Cancer From Denyse Now. 53/2021.

Note To Denyse Before Head & Neck Cancer From Denyse Now. 53/2021.
Dear Denyse of 4 years ago,
It sure was a worrying time. I know you had to be very courageous & have the teeth & upper bridge removed 3 weeks ago.
.
You sure needed to know WHAT lurked under there to cause that pain & overgrowth.
.
But still you don’t know and this is your face trying best self-care you knew then.
.
Being kind but also very worried… what WAS the issue because it sure was still growing & this new temporary denture was very uncomfortable….
.
It will still be another couple of weeks before you show your former GP what it looks like under that denture & you will be shocked that she threw her hands to her face in reaction to what she saw.
.
You know then, it IS serious & thank goodness your dentist is finally back from holidays & he sees the gums – the smelly, flappy, sore gums & says:
.
The oral surgeon needs to biopsy this & you get that done: despite your intense anxiety & IBS because you are also getting CT of face & OPG done then too….
.
And then the results are initially OK but you ARE puzzled on how on earth your gums can heal/improve.
.
And on Wed 17 May 2017 at 9.25 a.m. your oral surgeon rings to say further testing shows it’s Squamous Cell Carcinoma….and you cry but with a sense of knowing what IT is.
.
And four years from this photo, you will know as I tell you, you are WELL & you can overcome more than you EVER thought possible.
❤️from 4 years on Denyse.
May be an image of 1 person and text that says "This is.... ON THIS DAY 28 Apr 2017 Anxiety, fear what if..."
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Nature Is Pretty In Bright Pink. 52.1/2021.

Nature Is Pretty In Bright Pink. 52.1/2021.

Now I am back! Again. Loving BRIGHT as a Squares Challenge!

Becky encouraged me to do this too, after I saw the challenge elsewhere  and it didn’t have to be every day…so here I am.

https://beckybofwinchester.com/2021/04/01/bright-square/

Being Square is Fun!

Join in this lovely challenge and post a photographic square daily for one month every quarter. The theme changes every quarter and is announced on this blog a few weeks, occasionally days, in advance of the challenge month. The challenge months are January, April, July and October.

I am going to admit something here. I love using my Iphone ProMax and its camera gives me soooo many great shots, that I have started finding nurseries to visit just to photograph flowers. Oh, and I did buy a few of these pretty in bright pinks for adding to a place outside to brighten our mornings.

I also stopped the car in a street with many beautiful camellias this week as I was visiting my Dad.

So, Bright is it. Pretty in BRIGHT Pink.

Thank you Becky for this challenge which I found got me right in. I will be back in July to see what you have in store. Oh, and I also learned how easy it was to add my name and copyright.

Cheers from Australia.

Denyse.

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Telling My Story. Chapter 24. June 2018-2019. Pt 1/2. 52/2021.

Telling My Story. Chapter 24. June 2018-2019. Pt 1/2. 52/2021.

The backstory first:

FOUR years ago now ….I thought it was time, seeing I had a blog, to start writing my story. It was on advice from a blogging friend, now published author that I did. Then, for a long time I did not. Because cancer was diagnosed.

Nevertheless, I eventually returned to the story and now I am at Chapter Twenty Four. Telling the story in two parts. Today is Part 1.

So, in keeping with my ethical approach to all things, I am making the chapters about MY recollections to various changes in life for me, and us, and life as we knew it. I hope I can continue sharing the story without any intentionally negative or hurtful references to others who are in my life as friends and family members. All of the stories to date found here.

And with this chapter, a recent photo…taken overlooking the harbour at Dobroyd near where I grew up close to Manly N.S.W.

THIS post is the second last in the series. Part Two is in a week’s time. Thank you to all who have been reading and commenting on my recent posts about my life since head and neck cancer. I appreciate each and every one of you and your kindness. It helps me understand my need for connection and blogging does that for me. Warmest wishes to you all. Denyse.

 

June into July 2018.

About my mouth.

This is the month after what I hoped would be the final reconstructive surgery…(still is)….and it was winter, busy and I spent even more time, alone (happily) in my red car, driving BACK and FORTH to Westmead Oral Sciences…because…. T E E T H!

Obviously healing has to take place, and the work of this next stent, the one to push my top lip out more needed lots of T I M E.

You know, that thing you have to be P A T I E N T about when you are one!

During the visits to the prosthodontist, which could vary in time ‘in the chair’ from 2 to 4 hours, I listened to audio books at the boring times of having 2 lots of hands in my mouth…and used to ‘fiddle with’ my bracelets, or even a small crystal. I was not ever nervous but my boredom could lead to anxiety and so it was best I used strategies of distraction and relaxation. I was always very tired after my day spent at Westmead and soon learned to give myself a day off afterwards.

Nevertheless, I knew that my prosthodontist was working at all he could to get my new upper prosthesis prepared for when my mouth was.

Daily Routine Helped.

As I had started with photo taking in late 2017 for a daily outfit shot, and then going somewhere for coffee, this became a given as part of my routine to see me dress well, and engage with the wider world outside home. I still do this, no longer with daily photos but it is embedded in my self-care strategies.

Life went on.

In between times, I did not sit around.

Actually I do not doing sitting around very well.

I still had my daily routine of an outfit photo and usually went out for coffee. I went to view nature and I became increasingly interested in helping with spreading the word of head and neck cancer. I also found The Big Hug Box and offered to make bookmarks and loved using my art for good. I ventured an idea to the local library – can’t recall which month but it was with a view to me running a mindful mandala making course.

I even put a ‘how to’ on the blog. Teacher me was re-emerging.

School Holidays. Visitors. 

It was a treat to see our grandchildren when their parents could arrange a visit and on one occasion we had a late birthday celebration. I made sure I had some art and craft for the four of them to do and we spent a very pleasant day in the winter sunshine.

I continued to be out and taking photos and it was good for me to re-visit places where I held special memories of seeking solace and comfort.

 

Head and Neck Cancer: Sharing The News.

As I was someone who had no idea of this rare cancer when diagnosed, I wanted to make others aware, but I also know my Professor Jonathan Clark and others had begun Beyond Five to do just that. Finally, as July approached and with it, World Head and Neck Cancer Day on 27 July I swung into action. Beyond Five sent me some ribbons and brochures and I made contact with my local federal M.P. Emma McBride and she visited us at home to find out more. Emma remains interested in sharing. I also approached our doctors and dentist with a view to sharing my “wellness” and asking them to display information. It seemed like I wanted to give back.

I did.

Thank You: No Words Are Enough.

 In the year since I had been diagnosed, after my dentist has removed the bridge in April 2017, and I had the biopsy done by the oral surgeon in May 2017, I really wanted to share with them how I was. So, I did. In two personal visits. I have done this once more to the Oral Surgeon’s since and of course I see my Dentist each 6 months.

World Head and Neck Cancer Day and Meeting The Central Coast HNC Support Group.

My M.P. had written an article about me and head and neck cancer and it was within days of that, I was contacted by Lisa Shailer, from Central Coast Cancer Centre, who looks after newly diagnosed head and neck cancer patients. She invited me to the first Soup for the Soul event at Gosford hospital’s Cancer Centre and that was where my involvement with the local group commenced. It was also the first time I had met anyone else with a head and neck cancer.

August 2018. How LONG?

On 6th August, as my patience was really, really wearing thin …to get this upper prosthesis, I celebrated our daughter’s birthday with a S M I L E.…and the race for this to be ready and in my mouth began. I was so over it. I thought this would be such a change for me when it happened, I even made up a list of what crunchy foods I would try again. (Dear reader…it was not how she thought it would be)

After more trips up and down the M1, I sensed that 21 August was to be THE day and dressed up  a little bit more. It was. The day. It felt weird and good.

I smiled for a LOOOOONNNNNGGGG time.

First time I smiled….

 

After an adjustment from my prosthodontist.

September into October 2018.

I Could Not Stop SMILING.

Even though I had “teeth” screwed into my upper jaw in August, there were still quite a lot of adjustments to be made to the prosthesis by my prosthodontist at Westmead so that meant more trips to him. He was also making a bottom partial denture of a molar on each side, to clip onto my remaining 8 natural teeth to have better biting and chewing.

I sent a photo of me to my head and neck surgeon and he was amazed at the outcome too. So cool. I had my check up and he was so happy for me as were the other people who were part of my surgeries and healing times. I met with Nadia, CEO of Beyond Five as a potential Ambassador, and on the same day said hello and thank you to Gail O’Brien, wife of the late Professor Chris O’Brien, for her husband’s vision for his one-stop Cancer Care Centre, Lifehouse.

What it was not.

No way does it replicate my own teeth. However, I took some time to get used to that as well as speaking because my mouth was now more full of ‘hardware’. Eating was tricky – and still can be – as different foods required more chewing than expected and others were just too sharp or crusty for me to be able to manage. I also found (and find) I need something slippery to help the food go down.

BUT I had my SMILE back. And that was so good.

I was invited to share my story  at the Central Coast Head and Neck Cancer Support Group and used my long lost power point and Uni tutor skills to do so. It was well-received.

I visited family with greater confidence. Trips to Sydney were ones where I once only had emotional capacity to deal with the treatments but now I was getting more brave and doing hard things.

I met people for a long awaited catch up. I saw Dad more. I visited places where I had grown up. It was GOOD to be out and about and not all about head and neck cancer. I went to a Look Good Feel Good self care workshop but was a little disappointed that its relevance to me was little. Understandably my cancer it rare, but the 90% effort on the day was placed with those with hair loss from chemo and in general were for breast cancer survivors. I appreciate that my cancer is not visible either.

November into December 2018.

Invited to become an Ambassador for then Beyond Five, now Head and Neck Cancer Australia. This was a huge honour and so good to know I could be helpful using my education background and my personal experience of being a head and neck cancer patient. I met with the CEO, Nadia and Inaugural Ambassador Julie McCrossin at Chris O’Brien Lifehouse.

Back to schools!

I was invited to my granddaughter’s grandparents’ day and I went. I would not have envisaged doing this in the previous few years but handling my head and neck cancer recovery encourage me to use my new skills of confidence and greater resilience. It was great. I loved being back in a school. Then I visited my daughter at her school. Very proud to see the library she started from Day One of that new school.

Because of a blunder made in 2003 on my Service Medal, by the NSW Dept of Education at my retirement (when I had to due to work place issues and no chance for medical retirement) I tweeted about it once and my principal friend John Goh noticed and he retweeted it and the NSW Dept of Education Deputy Secretary saw it, and emailed me “we can fix this Denyse”….and the story of that is told here. So good to have my career recognised properly for me.

We hosted Christmas.

We had not had our family gather with us for Christmas for quite some years. Then for 2018 our daughter and her kids suggested coming to our place as they were mid house move. Again, bravely, I said YES and we were delighted to do so. I also had another Santa photo taken and when asked what did I want for Christmas I said “I already have it, I am cancer free and well.”

What Would 2019 Bring?

January 2019.

Birthdays!

Always birthdays first…my Dad…95

Then our son 40

And our grandson 18.

I didn’t see Dad on the day but had photos sent. Our son and his four kids came for a lunch and we made sure there was cake and candles. Our daughter had an 18th Birthday family lunch for her boy at her new place and we were delighted to attend.

We had not driven down the way – north western Sydney – since we last lived there and the changes are extreme. Former paddocks and dairy farms are cheek by jowl housing and that is the way these days I guess. Also is a reason traffic wise, why my husband was glad to be out of Sydney.

February 2019.

Busy month to begin with the first meeting in 2019 for Central Coast Head and Neck Cancer Support Group where M.P. Liesl Tesch, former Paralympian addressed us, sharing her story.

I continued to have check ups at Westmead for my mouth. In January of 2019 the upper prosthesis was removed – it is attached by 5 abutments (tiny screws) that are in my reconstructed jaw, for minor adjustments. As you may imagine, it is a challenge for something to fit well (and perfectly) so it meant trips to Westmead for this. As time went on though, my physical care of the prosthesis with waterpik and micro brushes – getting debris away from the abutments and gums, it has not needed removal since then. In fact, I can barely believe how well I have been able to maintain this because it’s something quite new.

I also found out, that the pain I often have in various parts of my mouth inside is all part of the body getting used to what is in there. After all, it’s got my leg bits inside. My team and being published as a story on Beyond Five.

My husband turned 70. He is the original no fuss man. However, we had hoped for a small family lunch. His body has different plans and we could not go ahead as he was unwell. Nevertheless he received family love and best wishes and we caught up with family later.

A wee tribute to him…..HE got me through so many of those really hard days early in my diagnosis. His counselling skills were very much needed along with the loving and caring man he is. The night before my surgery on 6 July 2017, it was him sorting out where he would stay rather than the awful (for us) place where we had been recommended that helped calm me as I was concerned about his welfare while I was ‘unaware’ in I.C.U. Then when he visited me from home on the Central Coast, his very presence on the balcony of my room was so reassuring….love him, lots.

March into April 2019. 

Re-reading this post as I go, I am aware that it sounds like I was on the go, doing, doing and recovering and doing even more. In some ways I was. It felt SO good to be getting better after almost 2 years. It was though one of those situations with me where I.B.S. would return when I was feeling particularly stressed. And that its pattern would be more likely after any stress event. Even the good ones. I had to learn to pace myself better.

I had to learn to add in time outside.

In nature.

Taking walks.

Being a fun photographer…and then also using my creative senses to enjoy art of some kind to fill my visual and kinaesthetic senses.

Remembering my late Mum’s death anniversary here.

Learning where to STOP..is here. Next time, will be Part Two: April – December 2019.

Reality of my reconstructed mouth….

And in the next part of Chapter 24, “this” concept changes into a plan for a blog series.

Thank you so much if you made it this far.

I appreciate that!

Denyse.

Joining with Natalie here for Weekend Coffee Share.

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My Head & Neck Cancer Patient Update. Been A While! 51.1/2021.

My Head & Neck Cancer Patient Update. Been A While! 51.1/2021.

I am coming up to four years since my head and neck cancer diagnosis on 17.5.2017.

I wrote a great deal over the years about my head and neck cancer to both help myself process it all, over the many times I faced challenges including surgeries and long recovery times and I wrote for others. This is why my blog has a head and neck page to be found here.

Then in late November I wrote this.…and was very pleased to put my head and neck cancer posts away. Even though, I have included parts of this in various posts such as Life This Week and Telling My Story since, today is the first time I am writing an update.

What Happened When I Was Issued With My Upper Prosthesis.

  • I smiled A LOT.
  • I had an expectation to be able to eat foods I had missed.
  • I was told, I now know was a feeble attempt at a joke, by one of the prosthodontists, that I had to bite into an apple before I could leave the day I got those teeth.
  • I am so annoyed  disappointed, even over two years later, that I was misled with some kind of joke because life WITH an upper prosthesis is nothing like having my own teeth or even an upper denture.
  • I have no feeling in my upper lip as it too had cancer and was partially reconstructed.
  • I could eat some foods I had missed initially: missing crunchy foods….but I have to guide whatever I am eating towards my mouth and use my tongue to sense what is coming, and then the food is put in my mouth by me
  • I still have challenges.
  • I still, after all this time, cannot always guess the right amounts of a food and suffer with mouth spillage at the sides.
  • I often put too much on a fork or spoon…because I am hungry…because the food is warm…because that is life time habit

These are lessons I am continuing to learn each day…and it’s my third year of living with the reconstruction in my mouth.

My inner mouth – gums at the front and behind the upper prosthesis are skin that was harvested from my thigh. My palate is the same. My wonderfully kind and knowledgable prosthodontist (not the ‘joker’) tells me skin from the leg was never meant to be in our mouths so it will always be a challenge in terms of my management to keep it healthy as I can and for me to put up with the level of daily discomfort.

What Life Is Like For Me Now As a Recovered and Well Head & Neck Cancer Patient.

  • There is no sign of cancer within me. My head and neck surgeon does not need to see me until September 2021 – a full year since last visit
  • I am seeing my prosthodontist in mid May to have a 6 month check and CT scan for bone changes.
  • I am self-caring well for the upkeep of cleanliness inside my mouth using a water pik daily, a micro brush around the abutments I can reach and cleaning my upper prosthesis, partial denture and remaining 8 teeth with care.
  • There has been no addition gum overgrowth and for that I am incredibly grateful.
  • I keep smiling.
  • I love to share my story.
  • I continue to be an Ambassador for Head and Neck Cancer Australia
  • I will reduce my local head and neck cancer group attendance
  • I will help raise funds in the Soup for the Soul event locally where I have sourced some great help from a cafe.
  • I will share the stories of others along with my updates on social media.

BUT…here is some more:

  • I continue to learn that I have to live with restrictions.
  • I can no longer eat anywhere other than home unless it’s a manageable ‘cake’ and ‘coffee’ somewhere.
  • It makes travelling overnight anywhere a bit challenging. Mostly I can take my own foods and utensils.
  • I cannot go to someone’s place for a meal and I think…even though I do not make any fuss of it…most people really do not even think to perhaps ask what may be suitable. To offend no-one, I have to say, it’s a morning tea or afternoon tea or very light lunch that I can probably eat.
  • I feel, even though I look normal, that to understand what is happening for me inside my mouth it is better that I admit to what are my limits and stick to them as I do not want to offend….
  • It is messy when I eat.
  • I often have food spill from the sides of my mouth (particularly if I have put a bit much in) and I constantly wipe the sides of my mouth needing paper towels and tissues nearby.
  • I always have water close to me.
  • I often eat alone…not because I want to but because I take so long and I can no longer really eat and talk…my husband has kindly told me, of the ‘look’ of food at the front of my mouth.

Why Update Now?

  • I was sore eating yesterday. Stinging sore inside my mouth.
  • I know I have to expect a certain level of this.
  • My mouth is much smaller inside than I remember …because of the hardware that’s been placed inside.
  • I knew I had to change somethings about my eating habits to help.
  • I did this initially by using a large teaspoon for cereal instead of a dessert spoon. It was better.
  • I have now cut up foods into small pieces and resist putting larger (as I was) amounts inside.

I am admitting my self-care and knowledge of how to help myself needed to be written and spoken about. For too long, I have looked and sounded right…and that is good…but for many of us (and now I include me) we are never the same post- head and neck cancer.

I am forever grateful for my professional team who have ensured my wellness to this day!

I used to think I couldn’t admit to having some issues because I have had such an awesome and great recovery. I now know that in being human…and a vulnerable one at that, I had to ‘out myself’.

This is why I posted today.

Update: got some largeish teaspoons. And, have cut up food into smaller pieces. Winning at changing habits!

Take care everyone,

Denyse.

 

 

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Joyful. 17/51. #LifeThisWeek. 51/2021.

Joyful. 17/51. #LifeThisWeek. 51/2021.

The last Aussie-based link up is HERE!

I started this 5 years ago this coming September picking up Mondays when my friend Kirsty stopped blogging. There was a link up on Wednesdays until last year with Sue and Leanne called MidLife Share The Love and one on Thursdays for a long time called Lovin Life with Leanne.

Now, it’s me. This one. I remain committed to keeping the link up happening FOR sure until the end of 2021. After all, I have done the 51 optional prompts!

But for me this link up is MORE than a place for bloggers to share their posts. It’s a space for connecting with others. The one reason I began blogging in late 2010 was the same. So, I appreciate you:

who link up, and

those who also read,

and comment because that  is the way to connect.

The link up is not too much hard work at all for me. I thrive on it. I am hopeful that bloggers from Australia, the U.S.A. and Canada along with further flung places will continue to find a place which care about them, their posts and how they are going.

Let me know your thoughts in the comments!

Thank you all. Denyse.

Today’s post is about fewer words and more photos.

It’s the date of my late grandmother’s birthday. She was a war bride  from World War 1, leaving her home in England to sail to Australia to marry her Andy. My Dad’s dad. It’s a sad tale. I have shared it here. However I like to think she was joyful in her early years of love for him and their first two children. Pity I cannot find the image. In the meantime, maybe she was a little bit joyful at my Christening in 1950.

Off to see Dad at Dee Why today, so will be commenting later when I am home

Gran is on the left

“Sometimes your joy is the source of your smile, but sometimes your smile can be the source of your joy.” ― Thich Nhat Hanh

So pleased I have my smile back and it’s a joy to help others.

I believe as I am ageing, now 71, that I take more time to notice what makes me feel joyful. Sometimes I do not seek it, but there it is and I will say WOW. Julia Baird’s book Phosphoresence talks of finding moments of awe and wonder. I see these for me as joyful moments too. I remember them and I smile as I recall.

The look of joy on my face on receiving this amazing gift for my 70th

I cannot ever forget the joy I felt when I saw the image I captured….

This too is what I see when I am out: joy in nature, shapes, colours and more.

I was very joyful to get my smile back on 21 August 2018 after my cancer surgeries and reconstruction. I never take that joyful feeling for granted.

The Before and After of “Teeth Day” 21 Aug

I am also joyful that the Women of Courage series is making a comeback with some very interested & interesting women volunteering to share their stories. If you did not get a chance to do that in 2019 and 2020, let me know in the comments and I will share the information with you.

And the man who tells me his life is filled with one joyful moment after another…this is why he is my hero and star. He has taught me all I need to know about living in the moment. I call him my husband.

The man who said “Smile” is your word

Where do you find joy?

What or who makes you feel joyful?

Denyse.

Link Up #237

Life This Week. Link Up #237

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! Next Week’s Optional Prompt: Taking Stock. #2 3 May 2021.

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