Wednesday 27th May 2020

Share Your Snaps #2. 10/51. #LifeThisWeek. 20/2020.

Share Your Snaps #2. 10/51. #LifeThisWeek. 20/2020.

Welcome to the second in the series that comes along every 5th week here. “Sharing Your Snaps” as an optional prompt grew from a need to have some less-wordy posts and more photos to share! This one though is, like me, wordy.

Now: before you start….I am absent from the blog for now. As this is published I am either still on my way to Sydney: specifically Parramatta Eye Hospital and Day Surgery to have the first of my two cataracts removed OR in the place itself. My dear husband is the kind chauffeur, picker-upper from after surgery and the one charged with caring for me on our overnight stay. No idea of how I will be but know I am a good recoverer…because after Tuesday, we have a night at home, then back down the M1 on Wednesday for the left eye to be done. We go home that evening as my opthalmologist/ surgeon is happy for me to present to the Morriset rooms for check up on Thursday. This surgery has been coming for a couple of years and now, sigh, it is necessary. I will be back here when I can and am ready to do so in a semblance of being able to read still as my eyes will be a bit sore I am told. 

When I was in Sydney, specifically the suburb of Camperdown, I decided it might be a good idea to do a “day of cancer check” post.

“Sharing the Snaps and The Words!”

Missenden Road (just off the Great Western Hwy) is where the main arm of this major Sydney teaching Public Hospital is and it’s called R.P.A. or Royal Prince Alfred Hospital. On one side of the road too, is Sydney University with its residential colleges and more. “MY” hospital, as regular readers know is called Chris O’Brien Lifehouse, and is just 6 years old. The building replaced an older part of the R.P.A. complex I believe. It is opposite a part of R.P.A., St Andrew’s Residential College and just down the inner road,  is Gloucester House, where my 96 year old Dad had a ‘melanoma’ removed…not a melanoma so good news!

Here’s my day: Tuesday 3 March 2020.

Left home around 2 hours prior to appointment. Drove myself. This has been the case since early 2018 for me. Happy to do so.

The trip is via the M1 or Motorway 1 which is a dual lane highway with speed limits of up to 110 kmh but two sections which are 80 kmh because of continued road works. I usually do not need a loo stop these days…go me…and wait till here for that.

I generally enjoy the drive via the M2 then over the Harbour Bridge (been driving over it since 1967 as a licence holder)  and along the Western Distributor until I turn left at the Sydney Fish Markets and up via Pyrmont Bridge Road and across the highway into Missenden Road. When we first visited Chris O’Brien Lifehouse, my husband drove (I was way too caught up with my day-old cancer diagnosis) and then as we came down for surgeries and then checks after surgeries he came too. We stayed twice in apartments shown here, and at 6.00. a.m. meandered up Missenden Road in winter-morning light for one surgery and daylight for another.

And, then here’s why I am here! Chris O’Brien Lifehouse is named for the visionary person, who died far too young, Professor Chris O’Brien. It was his vision, and drive which eventually saw the Federal Govt and State come together to fund this place. He did not see it happen. His wife, Gail has been there for every part of the journey. Every. Day.

Do come in. Take care first and welcome. This is why I love this place….it does not have the cold feel of any hospital I have visited. Music is heard, people chatting, creating art and just taking time to rest, look around and wonder. I still do.

Here’s my favourite sweet treat and great coffee. People watching too. Some medical and surgical people catching up. Patients brought down by a friend or family from their room and those of course, who are maybe waiting and wondering. It IS a cancer hospital I need to remember…..I have only just started being comfortable with enjoying this time for a snack since October 2018..teeth were in by then.

Oh, is that the time? Almost 1 p.m. Time for taking myself to the Clinic on Level 2.

I do prepare for a bit of a wait but last week it was around 10 minutes. Glad to have a 1 p.m. appointment booked always so I have a good trip home.

Kisses, hugs, smiles and gifts of little cakes and brownies. Oh, yes, and a cancer check up too. I can never forget that. I know once I tried to vanish it as a thought and my Prof said “Denyse I am a cancer doctor”. Yes. I know. After a great (but short as I try not to over step my time) catch up, proper examination by viewing and feeling – the glands around my neck and chest, he declared “see you in 6 months”. Wow. So good to hear. Delighted. Will be having a CT scan before that visit. Photos, please! Time for an updated one or two.

My Professor is the Chairman of Beyond Five, the organisation where I am a head and neck cancer community Ambassador and he and his surgical nurse assistant Cate were delighted to hear of the event on Saturday 7 March held on the Central Coast where I will speak and all funds will go to Beyond Five.

The drive home was good. In fact I was home without a stop in under 2 hours. I found it a challenge (but I was good) not to use my phone at all in the car as NSW is now having random cameras catching drivers (and I heard passengers..cannot confirm) using their phones. 5 points and a heavy fine. My phone, once I started its audiobook, sits inside the console where no-one can see it.

I hope you found My Day of interest. I hope to be back to comment when and if I can…and to read but I shall have to ‘see’ how I go.

Denyse.

Link Up #179.

Life This Week. Link Up #179.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

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Next Week’s weekly optional prompt is: 11/51 My Neighbourhood 16.3.2020

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Women of Courage Series. #30. Jayde.19/2020.

Women of Courage Series. #30. Jayde. 19/2020.

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week until the series concludes in 2020.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

Jayde, now 40 (she will probably hate me for that as she was 39 when she completed her information) is The Jayde Universe from Little Paper Lane I love that we have met in real life….how much fun is it catching up with someone you know on-line. However, we did not really connect even on-line until 2018 when Jayde too had done what we did in 2015, move from Sydney to the Central Coast. I knew of Little Paper Lane shop at Mona Vale and visited once from memory. Sadly, Jayde had to leave the shop and does what she can selling on-line AND amusing (or is it educating?) many of her Instagram followers. Jayde’s social media info is below. Here is more from her. Pink-haired, kindness personified and all round awesome human: Jayde.

 

 

 

What have you faced in your life where you have had to be courageous?

Actually now I am presented with this question it’s quite a fair bit. As of recent, it’s probably been the closing of my shop and moving up the coast with my 2 kids and animals and going online with the business only. I have separated from my husband and we moved from our home to a completely new area. So it’s only been the last year and it’s fresh and new, but honestly with mental health issues for like 22 years and chronic pain, every day’s a party in my Universe hehe

 

How did this change you in any way? Please outline further if this has been the case.

I think I have had to learn to be an adult. That sounds funny as a 39  40 year old woman with 2 kids and 7 animals, that I haven’t been an adult my whole adult life, but when you have a partner to help with life, it’s very confronting to have to take it all on alone when you already have a bunch of other issues with your brain and body. I think the support of my family, friends and online community and talking it out always has been the thing that helped. It’s so simple, but I have been saved by the humans in my life. And normally kids would make you more intense with your feelings, but my kids seem to be a safety net for my brain. Even though it’s exhausting doing everything alone because their dad lives quire far from them and he is 100% away the entire winter, I don’t get time off, but my kids don’t make it harder for me. The work around the house is hard, but the kids themselves really help me physically and more importantly mentally without even knowing it. It’s just their happy energy that uplifts me always. For someone with social anxiety it’s super weird that people are the ones that help me so much. Well MY people do.  

Is there something you learned from this that you could recommend to help others who need courage?

I think just that you CAN. Even when you feel like its the end of the earth and you are hitting the bottom of the ocean, you can tread water, or you can swim?! It’s heavy in that water, its better to swim and lift yourself up on that boat and if someone has a hand to help you, take it. There is absolutely no shame in being supported. You can help them up on their boats too then you all get to have an awesome boat party together and it’s so much more fun when you are supporting and boat partying with each other. 

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Absolutely. We all have to. If you don’t take leaps sometimes and be brave, you just stay still and never move.  I am right in this low at the minute where my anxiety took over in a gripping way, and the only way to fix it was to fix it. So I chatted to my dr and I changed meds, and then the withdrawal from the first antidepressant was HELL FIRE for my body and mind, and because I have been down the dark deep holes before, I knew that to help myself I had to reach out to the places of light, like my family and online community and friends, and its helping me through in HUGE ways. If I did this alone I would be a mess more than I am. So I make sure I follow my my ‘c’s. Community, chatting, courage, coca-cola and cheese. Always 😉

 

Is there any message you would give to others facing a situation where courage could be needed?

Sometimes courage is just breathing through each day. I think everyone mistakes courage for climbing huge mountains. It doesn’t have to be some Everest act.  Sometimes getting out of bed for me is like climbing Everest but I chose to be proud of myself for doing the hard things. They may not seem ‘hard’ to others but thats not what courage means. It’s about you and your own depths of bravery. No matter the level courage it is. Courage is Courage.

 

Thank you lovely Jayde. I know I was a bit cheeky about changing your age, but heck, we November babies can do that, right?

Denyse

 

Blog/Website: www.littlepaperlane.com.au

Twitter: https://twitter.com/LittlePaperLane

Facebook Page https://www.facebook.com/LittlePaperLane/

Instagram: https://www.instagram.com/thejaydeuniverse/

 

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

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Taking Stock #1 9/51. Life This Week.18/2020.

Taking Stock #1 9/51. Life This Week.18/2020.

Here we are, if you also follow the optional prompts: Taking Stock #1 for 2020. These prompts come in roughly every nine weeks. Let’s go: first one this year.

I wanted to be different this time round so added photos first, then the prompt that I thought suited best. Hope you enjoyed the pictorial version.

Happy first week of Autumn (Southern Hemisphere) and I know Northern Hemisphere people wait till equinox: 21/22 March for first day of Spring!

Denyse.

This is the list of optional prompts I use for my taking stock posts. Feel free to copy them from here if you wish.

Making
Cooking
Drinking
Reading
Wanting
Looking
Playing
Wasting
Wishing
Enjoying
Waiting
Liking
Wondering
Loving 
Hoping

Marvelling
Needing
Smelling
Wearing
Following
Noticing
Knowing
Thinking
Feeling
Bookmarking
Opening
Smiling

Link Up #178.

Life This Week. Link Up #178.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 10/51 Share Your Snaps #2. 9.3.2020

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Women of Courage Series. #29. Lorna Gordon.17/2020.

Women of Courage Series. #29. Lorna Gordon.17/2020.

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week until the series concludes in 2020.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

Lorna Gordon, aged 47, and I met in a cafe that probably does not even exist now in Sydney’s Dee Why. Her services as a blog newsletter writer and more had been recommended by a mutual friend. We hit it off from the start and back in those days my blog DID have a regular newsletter that I eventually could put together. We remain friends more on-line these days but we know similar areas of Sydney’s west, where she and her husband and children now live. This year is a big one for Lorna. Her ‘baby’ started big school. Let’s get on to find out more of this woman’s story.

 

 

 

What have you faced in your life where you have had to be courageous?

I moved from Scotland to Sydney in 2005 with my husband, knowing no-one and having nothing but the suitcases we could carry. That was a huge adventure and we never went back.

Publishing my first book took a lot of courage because you are exposing yourself in a very personal way, and once it’s out there you have no control over it. My next book is out this month (September 2019) and while I’m nervous, I’m really happy with it so I’m glad it will be out in the world for people to hopefully enjoy.

I think my most courageous thing was having my daughter. I had undiagnosed PTSD and PND from the birth of my son and I fell pregnant when he was only 9 months old. The fear I faced with that pregnancy was extreme, but I was lucky that the hospital recognized my mental health was an issue, and I was referred to an excellent facility who helped my through my distress.

I went on to give birth on my own, as the hospital didn’t tell my husband I was in labour when they contacted him, so he brought our son with him! What had begun as a thing that scared the life out of me, turned into a very empowering, healing moment.

 

How did this change you in any way? Please outline further if this has been the case.

The birth of my son left physical and mental scars, both of which are healing. People may try to dismiss how you feel, but your feelings are valid, even if they don’t agree with them. Over six years on I still have triggers, but I cope much better these days.

 

Is there something you learned from this that you could recommend to help others who need courage?

Find others who have gone through the same experience as you. If you have had an illness, or difficult experience, speak to others who have had it too, while everyone is different, shared experiences can normalise it for you.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

I don’t let anything hold me back, I’m quite fearless! I’m not sure if that is my age or just me, but if I want to do something I go for it. What’s the worst that can happen? You fail at a project? Someone says no? If it doesn’t work you pick yourself up and try again.

 

Is there any message you would give to others facing a situation where courage could be needed?

If it’s a project or job then go for it, what’s the worst that could happen? If you are facing an illness or health problem, get external support. Your energy is best channeled into getting better or coping with treatment.

Adding: Lorna recommends seeing your G.P., Hospital Midwife and Community Health Nurse for any issues you may have post-birth and when pregnant if there are any questions or when something is not going as it might. I agree and thank you so much for your sharing this too.

Thank you my friend. I hope the year 2020 treats you well.

Denyse.

Social Media:

Blog/Website: www.legordonwriter.com

Facebook Page: www.facebook.com/legordonwriter

Instagram: @legordonwriter

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends .

Copyright © 2020 denysewhelan.com.au – All rights reserved.

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8/51 #LifeThisWeek. Telling My Story. Chapter Fourteen. 2001-2002. 16/2020.

Dear Bloggers: I have made some changes to the link-up rules based on some recent experiences. For most of my regular linkers, this is not an issue but as I am getting some newer people come on board, I have added some rules. Thank you. Denyse Whelan.

8/51 #LifeThisWeek. Telling My Story. Chapter Fourteen. 2001-2002.  16/2020.

The story behind Telling My Story is this: I began in May 2017 and then was diagnosed with cancer. I had a lengthy break and returned to the plan to keep on documenting my life, one blog post at a time. Here is the link to the page where they all are now. This too, like the post 2 weeks ago has been a mix of what I wrote back in 2018 over 4 weeks about the challenges and more of being a principal from 1998 – 2003. Today’s post has much of the second two years in it, and the next one, in a few weeks, will outline how challenging (read: hard and stressful) it was to leave the role I had loved. I also shared this as My Woman of Courage story here.

Onward: New Decade and Century. 2001.

This year started in a wonderful way. After one of the hottest, awful January days in Sydney in 2001 this young man became our 3rd grandchild and our first grandson. I wrote something about his birth here and this is a recent photo of US.

My year as a grandmother was very full-on and combined with my role as a principal somewhat precariously – only because I wanted to do both well. Sometime into 2001 I took leave every Wednesday to do a “grandma-daycare” at our place for this young man and his older sister because “I” felt like I needed to help with this kind of care as I had with granddaughter number one. I was trying “not to let school” into my life on those days but it was inevitable with phone calls and catching up the next day with the assistant principal that I acknowledged I could not do both well. Lucky for me my family understood and as already explained they had a great family day care setting to go to.

We were living at Glenwood. My husband was reasonably well but still faced health challenges after his second neck surgery to fuse his spine. He was now working in a high school full-time. Our adult son was living at home. Life was BUSY and my life was full-on. I do recall some minor socialisation happened for me when I might meet a friend for coffee. My educational leadership role was, for a conscientious and practical person like me, all consuming. Very hard to switch off.

We did try, when we could to attend events at school or pre-school for our grandchildren. I recall, taking a day’s half long service leave to attend this young one’s first Athletics Carnival.

My Day as a Principal Started and Ended Like This. Mostly.

I attempted to have a relaxed morning at home, eating my breakfast along with reading the front page of the paper before setting off for school. It was about 30-40 minutes drive and I had a ‘cut off’ point where I could ‘leave home’ behind and the reverse happened on my way home! I was usually the 2nd to arrive at school and generally the last to leave. I did try to leave before the cleaners locked up at 5.30 as much as I could.

I admit I did not self-care well. Sometimes because of the day itself I would not have eaten anything until on my way home. That is the way to ill-health so I took myself in hand, and with the office staff, we had lunch before the school lunch times and that ensured I “ate” better.

I cannot recall specifics of this year at the school as I guess one change lead to another. I do know I dealt with some major difficulties in terms of one parent who berated and threatened me because (I found out later) he hated women and teachers. He was going through a difficult separation from his teacher wife. Sadly my office and the school became the butt of his anger and I had to get an order for him not to enter school grounds. These things are not great for anyone.

As the only non-teaching executive staff member I often had to do much alone in terms of policy making and decisions based on the current school’s needs and demands. This does not mean I was not a team player! However, I was conscious of the fact that teaching executive had dual roles. Therefore I made fewer meeting times and hoped that would suffice for my care of their needs. It did not always play out that way and by the time I got to 2002 the challenges I faced to lead the school well increased.

What Was Different in 2002 School Year?

It was my fourth year as principal. There were many changes within the education system, via the NSW government policies of the day, and in schools themselves. Families may move on due to work changes, sometimes those families are not replaced by new ones so a school population can begin heading downwards.

School staff (teacher and executive staff) may need to take leave for reasons of: family needs, maternity and long service leave as well as sick leave.

The other change heralding 2002 was the need to upgrades of maintenance (big cost jobs) to the school as it was one that was first occupied in the 1940s. Back in 2002 it was up to the principal to make the contacts with contracted companies to get in suppliers who could quote for major works. Then the principal, with enough funds in the school account, could give a project a green light.

I was trained to teach but there I was, like all principals still, being a site manager and a financial manager as well as HR manager. Sigh.

Systemic Changes.

More and more, I noted, as did my principal colleagues that schools were being expected (rightly too) to ensure that Codes of Conduct for staff were not only understood and agreed upon by them but if behavioural issues arose, then the principal would be the first person to begin making an action plan when the code was violated.

There always had been the mandatory notification to the Department back then called Family and Community Services where if a child was deemed by a mandatory reporter (all school staff are) to be ‘at risk’ then a first notification was to be made by telephone. This saw me, often waiting for a person to answer, locked into a phone call because of issues which may look trivial on the outside but may be clues to more.

One such event could be repeatedly coming to school with no food. Other times it could be the child letting her/his teacher know that a parent may be unwell or even violent and it was never our role to investigate but we did need to reassure the child, then make the reports. Over the years I have sat in with a child in my role as a support person (if the child requested that from me) and it is heart-aching to be witness.

Our system, the N.S.W. Department of Education, was updating its role in terms of staff compliance and behaviour. This was nothing new and in fact teachers have had annual reviews in a conversation form for decades. Since I left teaching, this has become a joint venture between the schools and the overseeing body of school governance.

Returning to my principal days.

IF there was a reported incident told to me by a student, parent or staff member where a staff member’s behaviour (spoken, actions or in written form) was not within the Code of Conduct (signed off annually as part of mandatory training) then the principal had to act upon it.

I dealt with the Officers from the Conduct Unit first who listened to what had been reported to me and then I was given advice that it could be managed at school level (guess by whom?) or it could be escalated, with the staff member’s knowledge to a higher authority.

I had to do this on one occasion and the fallout for me came later. The temporary staff member who brought along a permanent staff member as a support person as the complaint was told to her from my account given to me was aghast at the inference.

In fact, there was nothing I had done wrong at all….but remember way back “your role will be to bring this school into the next century” comment by MY boss…this matter was a prime example of how staff thought they could still behave but it was not compliant with the Code of Conduct.

Executive Members of Staff  Were All On Leave.

Not at all related to the above in were two instances where my school staff allocation of experienced executive became diminished’. Apart from me, there were 3 other executive staff at the school by 2002: 2 Assistant Principals and 1 Executive Teacher. They all taught classes too.

The executive teacher was to have a baby and so went on maternity leave, the other, an assistant principal took extended long service leave both for the remainder of 2002 from early in the year.

But wait, there was one more. Yes, this one person who was an assistant principal ‘broke me’ in so many subtle then obvious ways.

And whilst I cannot say much, the continued leave based on medical certificates over and over did cause alarm for the parents of that class as it did me because the year had started well. As it was expected of him by me, this Assistant Principal would perform other executive duties (as do all teaching executive) this person refused and did not return after many months.

Oh, yes, one day there was a return, after hours to access my office and computer telling the only person on site, the cleaner, that “I” had given him permission. Following that, he was disciplined and placed in a different school.

How Did That Affect Me?

In some ways it was a relief but in many more, as we geared up for the mid-year reports, parent-teacher interviews and then Education  Week along with concerts and fund raisers, it was the beginning of my end.

Sadly I did not see it for some time.

I kept on working even harder.

Yes. I was doing the roles of the appointed executive who were on leave.

I know that I did have three teachers put their hands up to do the relieving roles but without the experience and knowledge beyond their classroom teaching, I was giving more and more of myself to duties that were not mine.

I was even writing reports for a class teacher with little experience. I will say now that I know I was over-doing things but I could see no way out. I was under pressure to perform well for the school’s sake and also to answer to my ‘bosses.’

My lovely boss actually retired at the end of Term One (sadly) and he was replaced by someone I knew well but was nothing like the people-person my old boss was.

 

Schools have a culture of their own.

I can now walk into a school and get a feeling of how things are. In my school, as Winter took hold I know that my mood was also one of worry and concern. That was for the school and its staffing into the next year.

When school populations decrease in the NSW public system, the principal will be asked to nominate a teacher to leave. In the majority of cases, teachers are very comfortable in their current school and rarely does anyone volunteer. So then it becomes a matter of ‘asking’ and ‘hoping’.

The staff were getting the idea that with the school’s drop in population, which occurred when the Special Needs unit was disbanded and there was a reduction of families moving to the area, that “I” had something to do with the reduction.

I was told this by telephone on the night (4th September 2002) I heard staff were arranging a delegation to my office the next day. They were going to tell me it was my manner with parents that was the cause.

This may have had one essence of truth after I was threatened by a violent father who I had to get removed from the grounds, but generally I had a supportive P&C and was a principal who was active and even did playground duty. But people like someone to blame. Of course, and that was me.

The Night Which Wounded My Career.

Before I go on, I was feeling emotions of overwhelm from the role. I remember with clarity coming back from yet another principals’ meeting where they was MORE that we needed to take responsibility for. I wondered how I could possibly manage more.

In the meantime, I became probably hyper vigilant after another meeting about my responsibilities for Work Health and Safety.

The school was OLD in many parts and I knew that there was much that did not comply, so I contacted my properties’ manager (the centralised one, not a personal one!) and for a fee, he came out and condemned or ok-ed parts I was concerned about. One such area was deemed so risky I had to tape it off before demolition and in doing so, incurred the wrath of the teachers who had been there forever. I could not take a trick.

I stood for what was right because that is who I am. I knew I needed to have a timeout but it happened to be an official one to attend a meeting for a day and then a personal one to accompany my husband to a vital medical appointment.

Schools: I love them. But I Could Not Return To Mine.

Two days away from school…..then I was rung the night before I was to return. Wednesday 4th September. One of my relieving Executive who I always thought was both compassionate and brave to rang to tell me that some staff were getting a delegation ready along with a Teachers Federation Organiser to meet with me to discuss their issues.

Initially I listened with interest and then with surprise/shock at what was apparently my fault: declining numbers, meaning one of them would be asked to transfer. Once I had talked (and been upset a bit) with her, I had successive phone calls from the remaining two relieving executive and it was then I said “I will be speaking to…(my boss) in the morning and will not be returning to school until I have”. They implored me not to but I had the sense not to act upon a threat like this.

I broke.

I broke down. I was ill. I couldn’t contact my boss: left a message that I would be going to my GP in the morning.

That would be the start of pretty horrible days but also some days of relief and release. Yet, nothing ever has helped me get over the fact that I loved being a principal but one day I never went back.

There was so much shame in me for that and it has almost all faded now some 17 years later. Lifeline: 13 11 14

It’s been hard to learn THIS….

Thank you for reading. At least I hope you did.

Denyse.

 

Next Chapter Will Be About The Outcome for Me Personally and Us Financially.

Life This Week #177

Link Up #177. Life This Week.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

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Changes For The Good: Head & Neck Cancer & Me: Eating. 15/2020.

Changes For The Good: Head & Neck Cancer & Me: Eating. 15/2020.

Next week, I have been asked to be a patient-participant in a video being made for Beyond Five on nutrition. As many of you know I have been a Community Ambassador for Beyond Five – the Face of Head and Neck Cancer – since late 2018.

Announcement of My Ambassador Role.

I was enthusiastic to take part in this video initially…then had a small crisis of confidence (for the want of a better expression) and began doubting my relevance. I was, and still am, firmly encouraged by both the CEO of Beyond Five and my husband that I do have that quality! Thank you.

There is a back-story to this and I am going to share it briefly before making my points about the GOOD that has come for me in terms of changes from a diagnosis of Head and Neck Cancer.

Denyse and eating…before Head and Neck Cancer. 

From early days in my teens and twenties I would self-soothe with lollies, chocolate and whilst I did not over-eat significantly, I did establish a pattern of eating for comfort. None of this was ever really a secret (certainly I did not have any kind of eating disorder, for which I am grateful) but it still was something I would not admit to doing (except me) and then over time, it probably began the life-time (decades rather than all of my life!) of eating for reasons other than hunger or to nourish myself. The bigger picture (pun intended) was first written about here and then, as I became more accountable for my past behaviours around eating, I updated here. Blogging is so good for this!

The above posts show that I acknowledged my eating and what it was doing to my appearance, general well-being and health. Yet, the ‘same amount of weight’ that would come off over a few decades (3 times at least) would also go back on.

What was I missing?

  1. Probably other ways in which to see food.
  2. Or maybe the maturity (even though I was mature in years) to see through the hard yards.
  3. But maybe none of this.
  4. I think as a serial dieter/eater/non exerciser and one who ate emotionally I just did what I did.

A Breakthrough of Sorts: Not Great Though.

From 2013 onwards, I acknowledge how serious my weight had become as a result of eating and less movement when my GP challenged me to try to reduced weight or she would be sending me for a Glucose Tolerance Test as I was becoming pre-Diabetic 2 in my test results. I managed to do as asked and my weight reduced enough to see progress. Yay.

Then from 2014, my anxiety ramped up (we were about to sell our house to pay out the mortgage as I needed to stop work at almost 65), and Irritable Bowel Syndrome re-entered my life after a few decades absence. From then I found I literally could not eat as I did before without the effects of mostly explosive diarrhoea. Yes. Unpleasant and socially restrictive.

Over the time of our move to the Central Coast, and some of my emotionally challenging times to adapt to life’s transitions, this continued to be a pattern and without ‘any real effort’ my weight slowly reduced.

I did, however, raise with my doctors, that I might have had cancer. I did look pretty gaunt. No, they said. OK. I did feel anxious almost all the time.

My Diagnosis of a Rare Oral Cancer: 17 May 2017, and How That Changed Me.

My story is told here on this page: Head and Neck Cancer.

This is a little reminder for me of what I went through back then. I was told on 18 May 2017 that where my cancer was located (upper gums and under top lip) I would require a compete removal of the top half of my mouth. THAT took a while for me to get over, in terms of the shock. Then I went home with my husband and thoughts raced in my mind. One was, if this is making me stressed, then how can I self-soothe or calm if my well-ingrained practices had been to eat something sweet, salty, crunchy or whatever. It was a rhetorical question. I had 7 weeks to wait for surgery and I was so anxious, eating was not high on my list.

Early Days And Getting Hangry! 

Following my 11 hour surgery, 3 days in ICU I was transferred to a room at Chris O’Brien Lifehouse and added to the regime of drips was, via my naso-gastric tube,  some nutrition. The liquid kind. It was, for me, yucky but in one way that was my aversion to milk-type drinks. However, as each feed slowly dripped into my very, very empty stomach I had to change my attitude towards this feed. I started by telling myself “it is healing me and nourishing me” as I get well. I know I was going well as each time my professional team dropped by, they told me so. BUT…even when I finally got to try to oh so good nectar of WATER orally, I began to feel hangry (cranky when hungry!). By Day 8 I was allowed some clear fluids. Hallelujah. Broth, jelly, and then over time until my day of departure: Day 10 a few more soft food choices. No teeth, except for 8 bottom ones AND a very stitch-filled mouth!

And then I Came Home. Lots of Eating Ahead? Maybe.

Before I left hospital I was visited by the dietitian who was incredibly helpful with guidelines for me, and offers of samples of food-in-a-bottle and that she would follow up my progress at home via phone calls. I remember her words “now, you need to put on weight”. WHAT? No-one ever had told me that. It was a complete revolution in terms of instruction. I now know that yes, head and neck cancer patients need to keep weight on but no-one has ever really revealed why. Note to self: ask at next visit to my team.

My return to eating caused a great deal of distress in me because diarrhoea came back with fury as my emptied stomach  rebelled with a strong anti-biotic inside. I did not, as I thought I had to do, follow the dietitian’s advice but that of my local GP who had already seen me through diagnosis and now post-operatively. His words were “eat what you are up to and can keep you going.” Drink water as much as you can. With that, I did share the news with the dietitian when she called and I appreciated her services on offer but has to do this ‘my way.’

What I Did Then. 

My mouth did restrict my intake of food but I learned to adapt and seek foods that were both nourishing and pleasurable in texture/ taste. Mind you, my reconstructed mouth was quite a barrier to a variety of tastes but it was important for me psychologically to eat normal food. But also the words from the dietitian echoed and to “add value to food”. This meant a tiny lemon cupcake would have some dairy added to it: yoghurt, custard, ice cream. I became well-versed in the inner conversations re “fun to eat but also eat to heal”.

None of this food preparation or meal decisions came really easily and it required patience on my behalf as I was normally the meal-maker and my right leg’s giving up of its fibula, skin and flesh for my mouth, meant I could not stand for long…nor did I have much energy. But, my patient husband (and then full-time carer including grocery shopper) would help me as he could. I might not have been able to bite into some vegemite toast but I could savour the flavour and add some slices of avocado for nourishment. There are posts here, and  here about eating in those days.

Before I became affected by the anti-biotic, this was what I ‘could’ eat. Soft, slippery and full fat foods.

And Over Time, I Made Changes as My Mouth Healed. 

From July 2017 until August 2018 I had only 8 teeth in my mouth. It is amazing however, that humans can adapt! Mind you, I also add, THIS human had to become creative in her eating as boredom set in quickly and a sense of resentment about what head and neck cancer brought to my now lifestyle. I did make the effort to feel more grateful and appreciative of all that had been done for me. There were 3 more surgeries too, inside my mouth, to prepare it for an upper prosthesis of teeth.

Creativity included:

  • value adding to sweet foods like small cakes which were easy to swallow AND made me feel less deprived
  • making up some small plates of foods that would have me feeling like I was not missing out
  • inventing dishes for me: crustless pies, taco-less tacos
  • finding more and more ways with mince. Thank you to my A/Prof who advised mince would be a good food and my iron levels did slightly improve
  • allowing foods like small pieces of milk chocolate to melt on my tongue
  • iceblocks and paddlepops eaten with a spoon – my mouth did and still does love cold

Weight Was Good  Healthy…. Then I Got Teeth!

Notice my crossing out of good.

This is a judgement I have made like many over many years about eating. I now see, and have learned to see that my weight can be HEALTHY even if the numbers have increased. I was incredibly excited to get the upper prosthesis attached permanently to the abutments in my jaw. I remember fantasising about crunching food, chewing food and more. Well….that is what it was… a fantasy.

A reconstructed mouth is a blessing alright in terms of appearance and function for sure. But it does not do all that my mouth could do, so again, I have needed to adapt.

Adaptation took some tearful routes where my disappointment in not being able to eat something was palpable. I know I tried various foods including crunchy chips and they were/are a huge disappointment as they sting inside my newly re-skinned mouth and I could not swallow them. Onward to crunching into a piece of apple. Actually no. But I can eat small pieces or even better if I grate it.

I could add many more adaptations and they will form a new post in the future.

What I want to write about now is my weight, self-images and stories that can be untrue.

Changes in Me For the Good. Health and Head and Neck Cancer.

From August 2018 until February 2019 my weight from the rather steady figure of around 69kg increased by around 5 kg. I could feel it but I also LOVED feeling well and having more food choices. I was somewhat disappointed for a bit that some of my clothes were more snug…then I said to myself “that was because you could not eat much nor as well as you can now”. It was to be an on-going inner conversation (of self-judgement) for a while.

When I realised what I looked like (one aspect of me) was HEALTHY I began to accept that this was a good thing.

  • In fact, I knew it was. I did however let the old weight-centred thoughts creep back.
  • I started to believe I might get back to the much more heavy person I had been in 2013-14.
  • I was scared but the clothes and the scales did not lie. I stayed around the same.
  • For many months, and now it’s a year. It has not happened.
  • In fact, I am a little less on the scales than a year ago.
  • I use my clothes now as a measure of how I am going.
  • Very steadily and the scales are used rarely but they are telling me what I feel it true. So, no more stories!

My Appearance on the Beyond Five Video on Nutrition.

I now look forward to helping present the patient’s perspective on what I have learned personally about nutrition and how to nourish my soul as well as my stomach and mouth. I can honestly say I eat for both pleasure and health yet in a different way from any other time in my life.

This is why I am grateful for my diagnosis of head and neck cancer.

I have learned to sooth myself through meditation, talking with my husband, using my journal, art and going out for coffee. This is one important strategy in my every day self care. In fact, the more I self care, the less I even think of a need to soothe with food. How grateful I am for that.

Each time I go out, or plan a meal or snack at home I often have to re-think from the old familiar paths of pre- head and neck cancer.

  • Quantities are very different. That’s fine.
  • I make mall dishes I can freeze.
  • I carry small packs of biscuits in my bag to have with a coffee.
  • I know too that I can manage certain soft sweet foods with my coffee and will often ask for a bag to take half home.
  • I have still not ventured out for a ‘real meal’ but neither of us are that interested.
  • We had had lunch with family and entertained here.
  • I am less self-conscious of my eating these days.
  • I do always have a small bottle of water nearby.

 

I Am Going Well! 

This is my stock standard answer when I am asked how I am. It’s true. I am indeed. I am glad to have seen the good that head and neck cancer has been for me and my eating. This is me on Thursday 20 February enjoying being back near the water after attending the Central Coast Head and Neck Cancer Group Meeting..and catching a treat of a small iced cupcake with a coffee on the way home.

There will be some updates after the making of this video but already, just writing out what was making me feel less than my normal confident has done me good.

Onward!

Denyse.

 

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Women of Courage Series. #28. Beth Macdonald. 14/2020.

Women of Courage Series. #28 Beth Macdonald. 14/2020.

 

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week until the series concludes in 2020.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

 

Introducing Beth Macdonald age 41 is such a joy and a privilege. I met Beth so many years ago via blogging and when I “think” her middle girl, was not even at school…and certainly her Baby (not the first one, the blog is named after) Maggie took many of us down paths of wonder and love when we saw her arrival and years that followed. Now, Miss Maggie is at school! Go figure. But, Beth, a most generous and “heart on her sleeve: gal took time out of her BIZ she has with her sister, the millions of other things she does including a podcast about the Royals too…and shares the best of her recipes (and good reality checks too) on her blog! Welcome Beth!

 

 

What have you faced in your life where you have had to be courageous?

Leaving a long term relationship/engagement

Having children

Being online and in social media every day – putting yourself out there, pitching work to clients etc

Starting my own business

 

How did this change you in any way? Please outline further if this has been the case.

The growth and learning (both good and bad) can only help you grow and change as a person, each new step and challenge in life starts a new layer of armour and sheds an old layer of who we used to be

 

 

Is there something you learned from this that you could recommend to help others who need courage?

Only to ever listen to your gut and instinct: it knows ALL, you already know ALL your mind will try and trick you into thinking otherwise, but deep down you already know the answer – try to be quiet and listen to it

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Age, wisdom and experience helps. Learning from your mistakes and knowing if you even get it wrong it will be OK. Being courageous is about having the belief in yourself to get it done, backing yourself and like anything, the more you flex this muscle, the stronger it gets!

 

Is there any message you would give to others facing a situation where courage could be needed?

Just to dig deep, trust yourself and don’t compare yourself or your experience to anyone else. You’ve got this, you REALLY do.

 

You do too Beth!

Thank you so much for sharing.

Denyse.

 

Blog/Website: www.baby-mac.com

Twitter: @BabyMacBeth

Facebook Page: BabyMacBeth

Instagram: BabyMacBeth

This is the on-line business mentioned in the introduction by me. I can highly recommend their attention to customer service and details. And the website itself is so pretty…and interesting..oh look for yourself; it’s HERE! Add To Cart. 

 

 

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends .

Copyright © 2020 denysewhelan.com.au – All rights reserved.

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Self-Care Stories. #1. 7/51 #LifeThisWeek. 13/2020.

Self-Care Stories. #1. 7/51 #LifeThisWeek. 13/2020.

 

Welcome to the first in the series for 2020.

This optional prompt pops up every 7 weeks or so.

Today here’s mine!

Before kicking off: I have made two changes to my daily routine which is helping me:

One is to consider what I am grateful for each day. I tend to think about something or someone through the day and by even thinking that way I notice a change within. I blogged about it here. I am doing an instagram post each day here: @denysewhelan_blogs and no longer have my account private. I still have @denysewhelan going and no longer private...look at me taking a risk

Two is I am listening to Calm meditation app twice a day. One session, the Daily Calm, before I get up from bed and last thing at night a session of whatever I need at the moment. I have just listened to 10 or so day of “relationship with self.”. Calm is free initially and then you can decided to buy. I got a lifetime price as a bargain in 2018 and am never sick of it. Sleep stories are ace too on nights when I am less than sleep-ready.

What Have I Been Doing?

  1. remembering to follow my daily routine: get up, have breakfast, get dressed and go somewhere for a coffee….come home, blog, read, relax, cook, sleep…
  2. this was, for the most part, pretty well kept.
  3. however and it may have been something that affected others too, I became more anxious than usual when we had extremes of threats:
  • Bushfires
  • More fires
  • High temperatures
  • Continued fires
  • And then it rained.
  • Rainfall was excessive in some places and caused:
  • Flooding
  • Electricity to be cut
  • And NONE of this directly affected me.
  • Mmmmmm.
  • so I was most fortunate to have an in-house counsellor (aka my husband) but also that my previous years of learning how to self-care via means at my disposal actually helped..a great deal.
  • but being an avid follower of social media there were signs that my emotional health was being impacted when I stayed on news and updates for fires/disaster sites for long periods.
  • I realised even before I was “told” by my husband to stop. That was a good self-care measure in itself.

 

Why Have I Needed to Do This?

  1. I know I thrive on being informed and also caring about and for others….BUT there has to be a limit placed.
  2. I do this now by asking myself “what is it I can do that will help this person/those people etc?” If there is nothing really, I do send out a message of empathy where it’s appropriate and I might even do this.
  3. The loving kindness messages are always a way for me to feel a greater connection with others.
  4. I recalled with some hyped and stressed memories of the 5 days of the 2015 East Coast Low when we first moved to the Central Coast and I needed to talk a few of those memories through.
  5. Once I had done that I also knew I am in (and still am in) a much better headspace some 5 years later thanks to all the work I have done to achieve greater emotional health.

Loving Kindness (Metta) can be said silently for yourself, for another or for many. These words above are just one group.

How Do I Integrate This Into My Life?

  1. I continue to follow my routine as much as possible allowing for days (there were a couple!) where to go out of the house meant to be on unsafe roads in flooding rains so I stayed home
  2. I managed to fill in those particular days with little and varied projects of mine.
  3. I automatically come to my art desk when I need to zone out and concentrate on ONE thing and that worked well. In fact it has been something I have done before as well.
  4. I love the variety of activities I now have at my disposal and made use of exploring more of the media too.
  5. My husband was well-occupied with his in-house hobbies and some cabinet making in the garage so with no power lost, we really did well!

 

Afterwards. Onwards.

  1. Self-care is on-going and it can change in its focus for me, depending on how I am.
  2. This week (in fact today!) I am at Westmead seeing my prosthodontist for an update on my upper mouth. I used to get quite stressed about these visits “what will he see that I cannot” and last week I said “STOP”.
  3. I had been living in fear that had no justification.
  4. It was shifting the relaxed mood in our house (and relationship) to tense because I was experiencing some mouth pain (it IS always there, it just seemed worse)
  5. I changed how I approached the pain. I stopped focussing on it by not mentioning it. I also took panadol as instructed.
  6. Self-care is pretty well an on-going matter and recently on Bev Aisbett’s Facebook page (Living with “IT” Anxiety) she posted this, with permission to share:

Recently I took this selfie looking back to  Norah Head Lighthouse in the background, the huge seas reaching the shore…to remind me of how well I am, grateful for all in my life and how far I have come. More to come too, of course!

How is your self-care going?

What do you notice if you are not keeping up your self-care practices?

I look forward to catching up with the comments after I am back from Westmead!

Denyse.

Link Up 176.

Link Up #176. Life This Week.

You can link up something old or new, just come on in.

* Please add just ONE post each week!

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

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* Check out what others are up to by leaving a comment because we all love our comments, right!

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*Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice.

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Next Week’s weekly optional prompt is: 8/51 Unusual 23/2/2020

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