Thursday 2nd July 2020

Archives for May 2020

Women Of Courage Series. #41 Johanna Castro. 43/2020.

Women Of Courage Series. #41 Johanna Castro. 43/2020.

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week until the series concludes in 2020.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

So good to welcome Johanna (I know her as Jo!)  to share her story here this week. Jo, who is 62, is a regular blogger and writer who has been part of the international and Australian travel and writing scene for a long time. I am pretty sure Jo and I met (or at least saw each other in passing!) at Digital Parents Conference for Bloggers in Melbourne in 2012. So many people at that one and so many are no longer blogging but I have made many on-line and off-line friends thanks to occasions such as those – sadly none like them anymore- conferences and am always grateful for those connections made. Now it’s Jo who is sharing her story today.

What have you faced in your life where you have had to be courageous?

 

Courage is a funny thing.

  • As the ability to do something that frightens you, I think it presents itself in both big life changing ways and in small everyday incidents.
  • For some people it’s finding the courage to face life in the most warrior-like way when halted by heartbreaking or frightening setbacks.
  • For others it’s being able to summon up courage at points in their lives when if they didn’t they would surely spiral downwards and not recover from the problem.

And for some, courage has to be summonsed every day just to keep living.

 

Have I been courageous?  I would say no, not really.

Although in the overall scheme of things perhaps some people might disagree.

  • Was I courageous when I set off from England for the Continent aged 18 with a rucksack on my back and a guitar slung over my shoulder, waving the White Cliffs of Dover goodbye knowing not what to expect as I headed off to be a groom for a showjumping family in Belgium?

Was this in itself courageous?

  • Well, yes because I was young and shy and emotionally insecure and I was acting out of character and defying the status quo of what was expected of me.
  • But also, no not really, because many young people have set off on similar Dick Whittington quests to travel and see the world.
  • I was also deep down reaching for a new life to escape a situation that was beyond my control because domestic abuse tainted an otherwise idyllic childhood.
  • And this leap of faith into the unknown leaving privilege and fear behind, set the course for the rest of my life when moving countries became the status quo, through necessity rather than choice.

 

 

Some years later I met a geologist from South Africa when we were both backpacking in South East Asia.

When we married I half expected to always be adorned with pretty and priceless pieces of rock that he picked up during the course of his geological hammerings, and that we would be safely settled in England by the age of 40.

How wrong I was. The reality was that we would always be on the move. Project to project. Internationally. And geologists often go in at ground zero level when nothing, not even the houses to live in, have been built.

We’ve lived in the most remote situations.

  • A tiny caravan trawled to a spot high in the Maluti Mountains of Lesotho next to a river which soon came down in flood. Here the mountain road was termed as ‘the road to hell and back’, the big wigs were helicoptered in, we drove.
  • I almost got away with swapping the outdoor Porta Loo they gave us for a palomino pony that a Basutho horseman brought by one day. At least until Dave and the village chief intervened.
  • On another occasion we went from the wide open spaces of South Africa, and a house with a large garden, to a flat the size of a postage stamp on the 22d floor of a high rise building in Hong Kong where I home schooled our children for a year because there were there was a two year waiting list for a place in schools on Lantau Island where we lived.
  • My wild African toddlers were not impressed with the tiny balcony or our tiny flat, but we learnt to love Hong Kong with a vengeance.

In the very early years of our marriage Dave was offered a job as a geologist in the foothills of the Himalayas and I was pregnant with our first child. Six months pregnant and we had an auction on the lawn. All our worldly possessions and furniture went up for sale – bar what we could fit in our suitcases.

Sam was just 5 weeks old when we set off to live at a remote project site between Kathmandu and Pokhara, reached along treacherous roads, where we were without a phone, 3 hours from the nearest Doctor, and where food supplies were scarce. We had to put water through a 5 point purification process in our tiny kitchen before it was drinkable, and our diet consisted mostly of dhal, bhat, tarkari (lentil, rice and vegetable curry.)

I ended up breastfeeding Sam for 21 months, Dave became very sick from combined dysentery and hepatitis, and I was desperately tired, worried and home sick most of the time – though baby Sam thankfully survived in a robust way!

So I guess I have been courageous, and although people might say I’m lucky (of course) I have also had to sacrifice geographical safety and family stability for a life of constant change. We’ve moved 21 times, 11 times internationally. A rolling stone gathers no moss, and I can definitely vouch for that.

 

How did this change you in any way? Please outline further if this has been the case.

Having the courage to leave your roots, your family and friends and continuously jump off a proverbial cliff into the unknown has changed me because in time I realised that I didn’t have to live constrained by the limitations of other people’s expectations, or the chains that society places on us.

I also learnt that leaping into the unknown with courage and energy will always throw up fantastic opportunities and exciting new horizons along with lovely new friendships.

 

Is there something you learned from this that you could recommend to help others who need courage?

Don’t be afraid to change direction.

There is no wrong direction.

Go boldly and you will find pots of gold that you never even expected.

You have to remember that your heart and your head can put up all sorts of obstructions if you dare to reach beyond your comfort zone, but sometimes you just can’t look at the possible problems that lie ahead, you just have to go for it – don’t question – just go with it.

“I can do this. I’ve got this. Let’s do it.”

It might be a fleeting thought, you might not even believe it when it first appears, but you have to hang onto it, expand it, and nurture it without putting up tons of obstacles.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Yes, definitely. And I hope so! But I guess it also depends on the sort of courage that’s required in the future.

When I had a melanoma on my back I fainted before the surgeon had even made his first cut, and blood tests of any sort always send my heart straight to my boots, and my head longing to reach down between my knees!

 

Is there any message you would give to others facing a situation where courage could be needed?

You are stronger and more resourceful than you imagine.

 

Wow. What a traveller and story-teller from real life living you are Jo! I thought we had lived in some remote teaching spots in New South Wales but your experiences are winners “hands down”. What a ride you have had…and come up for air and can see the courage within too. As for procedures involving nasties like melanomas…you are entitled to deal with that in the way you did. Thank you so much for sharing an amazing story of LIFE lived by you.

Jo has a number of social media connections and they are all listed below for your investigation and following.

Denyse.

Social Media:

Blog/Website: https://lifestylefifty.com and https://zigazag.com

Twitter: https://twitter.com/johannaAcastro

Facebook Page (not personal account): https://facebook.com/lifestylefifty and https://facebook.com/thezigazagmag

Instagram: https://instagram.com/lifestylefifty

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

 

 

 

 

 

 

 

 

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

21/51.#LifeThisWeek. Telling My Story. Chapter Fifteen. 2003. 42/2020.

21/51.#LifeThisWeek. Telling My Story. Chapter Fifteen. 2003. 42/2020.

 

Background…from Telling My Story: Chapter Fourteen published in February 2020.

The story behind Telling My Story is this: I began in May 2017 and then was diagnosed with cancer. I had a lengthy break and returned to the plan to keep on documenting my life, one blog post at a time. Here is the link to the page where they all are now. I also shared this as My Woman of Courage story here.

Where was I?

OK. I know. I was a K-6  school principal.

It was in September 2002 when I could not return to my school.

I was sad, ashamed and very tired as there were different outcomes for me personally and us financially.

But I also had some good things happening in my personal life. I will get to them too.

Life is LIKE that!

Cancer. Leaving My Role as a Principal.

Doctors, Psychologists, WorkCover, Staff Welfare, Dept of Education, Psychiatrists…..

When the school principal is told by her G.P. “you are not to return to that school, nor to be in that role again”, it felt both comforting and helpful.

I had been a patient of my G.P. for decades and she had been doctor to our growing family including my husband and me so knew what else had probably impacted my life as well as school and its responsibilities.

But even before that…the night before, I was left to try to tell my acting boss – who was known then as a District Superintendent, that I would not be going into school the next day…and for sometime after that but he did not understand.

Eventually I must have made inroads into his understanding, after seeing my G.P. who immediately saw this as a work overload matter making me both depressed and anxious. The employer had not taken steps to see me better supported in my school. I told that story in the last chapter.

 

Days into Weeks into Months.

What started as ‘sick leave’ did become workers compensation leave over the next month as I took myself to appointments and interviews.

I had to share my story (see the recent two chapters here & here) and my employer’s representative agreed that yes, there was a case for me to be compensated under Work Cover. In other words, I was paid via that scheme and did not lose sick leave.

But….

I could not and would not attend a school.

It was suggested at meetings that I could transition back to schools but did nothing to improve my mental wellbeing. In fact they made me even more anxious. Then I was offered, later in the year, the chance to ‘work in district office.’ Noooo. I felt such shame and was so anxious about seeing any of my colleagues that I could not envisage any kind of “return to work.”

And…it did not let up.

My mental illness, as it was defined later by a treating psychiatrist, was a reactionary one based on my personality and my role in the school.

It would, over time, resolve but there was medical agreement with my G.P., the employer’s rep and that of work cover, that I could return to “a school” for some days a week but never in the role of a school executive.

In 2003 all that felt like for me was:

F A I L U R E.

 

How I Was Affected By Schools.

Before I continue.

I lived about (then) 40 minutes from the school. I love schools! It had been my life…as a kid and then becoming a teacher and of course, having our children and grandchildren attend schools.

But, I was so scared, worried, ashamed and threatened by “schools” I could not even drive on the road (Windsor Road) that would have been my way to my school without feeling ill.

I was a proud (still am) Grandma but my first foray into the grounds of the school where our daughter was a teacher and our granddaughter in an Infants’ class made me highly alert.

I still felt I was the principal within that school, watching children running everywhere and wanting to tell them to stop. It was not fun. At all.

But, I was also not a victim….and I refuse to play that role any time.

I did know though that I was ill from the stress of my role in a school and so I took the chance to get the help of professionals and did a lot of work for myself. This involved seeing a friend each week for a coffee and over time, driving on the road that went to my school…and one holiday time, I went back and drove around the perimeter. I was sad and it felt wrong that I had to leave it as I did but I also know my health was paramount.

3 amazing grandkids who love me unconditionally and their presence in my lives helped me in this awful time.

 

Giving Up The Role For the Greater Good. 

Despite the urging of my bosses, the meetings with the work cover people and my professionals who agreed I would choose to do what I had to, I could not return to school. Or any school.

What then?

To ensure the school was able to progress into 2003 from my day of departure in September 2002 I relinquished my role.

It could then be advertised for a replacement principal. I was visited at home sometime after that by my then school office assistant who had brought me any personal items from my office and some cards and I recall getting flowers.

I was a sad but relieved person that not everyone ‘hated me’ there.

Photos remind me of my literal ups and downs re weight. Far right, 2003,I was ‘looking good’ but feeling awful inside.

 

But, How Will We Survive Financially?

At this stage of our lives as a couple, we had a mortgage on the house, my husband was in part-time work and I brought in a good salary as a school principal. Work cover continued to pay that but over time, as I stood my ground about not returning to the Department of Education  because of my health things got tricky for us financially.

 

Don’t Give Up Your Superannuation People!

I married my husband (teacher in NSW Dept of Education) in 1971 and in 1972, as I returned to work after maternity leave we made a short-term financial decision that would (still does!) affect us negatively. Back then as both of us was paying into the then BEST ever Super Fund “I” could opt out and save us some much needed dollars. We spoke to my accountant father about this who, it seems, saw this as a win….and over time, agrees “NOT right”.

The reason is this. None of us knew then that  by 1980 my husband’s health would deteriorate to the point that he was medically retired and was placed on a pension from the Super Fund. I was working then and continued to do so, but still had no super. At all.

It was in around 1985 again, my father who advised I try to get back into superannuation. Made sense but nope, I could not.

Once opted out, I was not allowed in….but wait “we have a new fund and you can join that”.

I did. The new fund was different but I did pay into it. I had a sizeable lump sum there in 2003 when I was making up my mind how to access it. Aged 52.

 

Getting Paid Out. Not Easy. At All.

By the beginning of 2003 and into the first few months, I was being harrassed strongly encouraged by my employer and work cover to ‘get back to work’.

Let me tell you now, it was worse in some ways than how I had to leave my job.

Phone calls, meetings…doctors’ appointments, psychological testing…so, with the agreement of my G.P. I decided to “medically retire”.

Um. No. There is no such thing now.

The new and subsequent super funds that took the money from  NSW Dept of Education teaching staff only ever paid out a lump sum IF you were declared NOT FIT TO WORK and you have to RESIGN first.

No pension…and YOU need to prove you are not fit for work.

  1. For someone like me, a dedicated and loyal employee from 27.1.1970 to HAVE to resign was C for crazy but we were P for poor when my salary was being slowly stopped
  2. I filled out the form. It was awful. I also added, though, that I wanted “approval to teach”. I did not want any issues in case I wanted to ever have a day as a casual teacher. I would be pleased I did.
  3. It was accepted. Leave paid out.
  4. I was now free of the dreaded work cover requirements
  5. Got all the forms from the State Super People and completed them…along with the documentation from my G.P. and others.
  6. Attended one of the most stressful appointments ever with a psychologist from State Super and was obliged to complete a 500 question survey to assess my mental health and ability to work.
  7. Found out my application to access my funds  was “Rejected” after that horrid experience.
  8. You are still fit to work according to our rules.
  9. “Dejected” and now time, finally, for me to get some legal help.
  10. My union, N.S.W. Teachers Federation, were wonderful once I got to outline to a welfare officer what had happened.
  11. She arranged a meeting (free) with their lawyers and they heard the rejection story and saw the documentation from the State Super Board.
  12. The lawyer took my information, along with the State Super letters and my reports and so on and sent off the missives that….eventually allowed me to:
  13. Access all of the funds as a lump sum
  14. And retain my right to return to part-time teaching work if I chose.

We paid off this house….

 

Relieved. Getting Better. Breaking My Ankle. Retirement Means This. 

From paying out the mortgage there was a big sigh of relief.

There was also a relatively good amount of money from leave entitlements and by June we decided to “splurge” on a Far North Queensland holiday for 2. We even got a car to drive us to the airport. That was cool. But I must say, for my poor husband whose spine is very damaged from surgeries and more, the flight in economy for over 3 hours was not a good one at all. I was OK but he was not. We picked up the hire car and I drove via the Captain Cook Highway on that most beautiful trip: from Cairns to Port Douglass. Disappointingly though the apartment was accessed by a series of flights of stairs and by the time we got inside, my husband admitted “I cannot fly back like that”. My pain is too much. I agreed. So, the luxury of a return trip by business class meant comfort but took a huge amount of money to obtain so the holiday’s effect was negated! His health was worsening from the load of high school teaching which he took on after the business was liquidated in 1996 so, retirement was his plan too.

We were OK financially without a mortgage but by the time I had a few months at home I sought an art class (it was great) and became a volunteer with the Smith Family. It was around November after I had been answering the phones for them for people requesting Christmas Hampers that I had an accident. At home.

It was a rainy afternoon, I parked on the sloping driveway and as I got out of the car, one foot slipped, and the rest of me came with it, twisting my right ankle badly. I tried to call to my husband – from the letterbox…on the driveway and he did not hear, so I crawled up and made it inside.

Not wanting to over-dramatise it..but I should have actually…I waited for my husband to have a cuppa and we drove to the local medical centre.

Rooky error. I literally had to hop from the car with my good foot as the very sore foot could not weight bear. Oh. The G.P. agreed that X-rays were needed and they had that facility there. After the X-ray showed broken bones, it was “off to local private hospital” because this needs specialist attention.

Long story short: back slab applied, in-hospital stay, saw preferred orthopaedic specialist, “we will operate tomorrow and pin the fibula and tibia”. He did. I came home needing a wheelchair around the house as I couldn’t use crutches (hands needed surgeries for carpal tunnel etc) and I was stuck. The best part was shortly before Christmas at a check up I got a fibreglass cast and then could shower and even get in our pool but getting out was too hard.

Oh, and about that fibula of mine…I did get the screws out sometime in 2004 and in 2017…guess where that fibula went….HERE: The upside down U shape. My fibula cut into 3 with abutments added.

New Jaw is seen here

This sure was a year, 2003.

We did have a lot on our plate between us. But we also had a great family supporting us with care and love and three grandchildren to bring joy. The next year 2004 would prove to be significant too but with some great stories that helped re-build me in many ways.

Grandkids helping me, newly without plaster, to stand up!

Just after my cast came off, a celebration for my Dad’s 80th birthday.

Let’s see what Chapter Sixteen will bring!

Thank you for reading my story started over 3 years ago.

I do print the blog pages out and have them in a folder for future readers.

What were you doing in 2003?

It seems not that long ago, but of course it is 17 years ago!

Denyse.

 

Link Up #190.

Life This Week. Link Up #190.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 22/51 I Saw 1.6.2020

You are invited to the Inlinkz link party!

Click here to enter


 

 

 

 

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Head & Neck Cancer: My Life Now: 3 Years On. 41.1/2020.

Head & Neck Cancer: My Life Now: 3 Years On. 41.1/2020.

In April 2017, after much searching for “why” my upper gums and palate were so sore, swollen and inflamed, I insisted that my dentist “take the bridge and teeth out, please as…I need to know what is under it.” That was done after almost 3 years of “wondering why” and being told many different reasons by dentists that it was most likely candida and “you are not keeping under the bridge clean enough. Sigh. This story can be found here along with many as I have journaled the Head and Neck Cancer story here on the blog.

On 17 May 2017, after the removal of bridge and teeth, with worsening gum conditions, I received what was, in many ways, the answer I feared or at least had considered over the past year or  more before. Yes, it is CANCER and it is called Squamous Cell Carcinoma and off I was sent to the BEST place and people ever for more diagnosis, subsequent surgeries and much much more.

 

Summing up each year as a head and neck cancer patient with a rare diagnosis. 

2017.

May & June: Meeting my surgeons at Chris O’Brien Lifehouse. Examinations, testing and discussion on maxillectomy and using part of my leg. Visits to Westmead Oral Sciences for future mouth reconstruction preparation. Waiting. Testing. Being very concerned but at least I had the answer!

July: 7 weeks after diagnosis the major surgery of 11 hours. ICU and then recovery in single room at Chris O’Brien Lifehouse. This was for 10 days. Learned that I recover well and that I could speak (hallelujah) and eventually swallow water with no problems. Home. Learning to live much differently. Back for checkups: particularly of my leg which had donated skin and flesh.

August: September: October: at home recovery, lots of community nurse visits, learning how for eat differently and prepare food for myself. Independent walking then became driving the car again Back for a post-op check and to hear what was next.

November: On the day the same sex marriage result was announced I went into surgery for more skin to be added inside my mouth: taken from my thigh. It was all part of hopefully allowing my mouth to eventually settle to take a prosthesis of teeth.

It was announced I would become a Community Ambassador for Beyond Five.

December: watching progress of mouth and sending photos of the inside to my lovely Professor Clark for him to see it was going OK. Always relieved to hear back ‘yes.’

2018.

January: continue as for December.

February: third surgery. Adding a stent into the top part of my mouth to allow skin to stretch and eventually be able to fit in the prosthesis of teeth. Alas, this failed as the stent was removed too fast by my prosthodontic team much to my professor’s dismay and…..

March: I got the news a fourth surgery would be happening. Initially not happy at all, but realised it was inevitable…and my mouth was particularly challenging as they try so hard to work with ‘what is’ to have me look as much as possible as I did post any head and neck surgeries.

April: more time for me to see the prosthodontist to check the healing mouth and for my team to consider what would be next.

May: almost 12 months from diagnosis, back to COBLH as I call it for short….and a much bigger stent added in another 2+ hour surgery. Wow. Thigh gave up more skin for inside my upper lip.

June. July: So many drives back and forth to Sydney for prosthodontic work: measuring, practising with models of prosthesis with the eventual promise of teeth up top…..

World Head & Neck Cancer Day: July 2018. Held a virtual Soup for the Soul a fundraiser for Beyond Five and met the Central Coast Head and Neck Cancer Support Group at Gosford and became a member of this group.

21 August; Yes. Upper prosthesis fixed into the abutments and I had a smile back (a good one too, thank you team) after 14 months.

From then until next year, 2019, I had a considerable number of visits back to Westmead with adjustments and I learned ‘how to eat’ with teeth that were nothing like how my mouth had been post-cancer. More on the page as linked before.

2019.

January. An unexpected visit to COBLH for my head and neck surgeon to examine ‘extra skin’ which had begin to grow near the abutments on one side. This visit, as I found out directly was to ensure “cancer had not returned”. OH. It had not but it threw me a bit because I had not even given that a thought. This was when I realised CANCER is never far away from our thoughts.

February, March, April: some visits to both professionals in my team. Making adjustments and checking progress of skin inside my mouth. I admit I was often nervous of outcomes as my mouth was pretty sore most of the time. No-one could tell me ‘how long’ that would last but I continued to be reassured by my prosthodontist in particular “everything looks OK” “you are doing a good job keeping the area clean.”

May: 2 years since diagnosis and I was proud to have made it. I was incredibly grateful to my body for healing well and to all who cared for me and in particular to my patient and good listener husband.

End May: CT scan showed “all clear”

June: Visits became more spread out to the surgeon and prosthodontist and I navigated using these teeth to eat. It was and is a challenge. My right leg had some changes from the loss of the fibula as my right foot became affected with gait. But all OK really.

July: Continued visits to Westmead and put my energies into blogging about Head and Neck Cancer, interviewing a patient for Beyond Five and being part of World Head and Neck Cancer Day at Gosford Cancer Centre.

August, September, October, November, December. Regular check ups and visits to COBLH and Westmead but longer intervals. In October it was raised by my surgeon that a possible fifth surgery could be planned if mouth needed it but he had no real plans for it at that stage. Continuing to help raise awareness of head and neck cancer in various forms via social media. In November I celebrated my 70th Birthday!

 

2020.

January: continuing own care and progress at home.

February: visit to the prosthodontist where he was pleased with how upper gums were looking. I admitted to him my concern there may be need for further surgery as outlined by my surgeon and he took photos and would confer with him as needed. Took part in filming for Beyond Five series of nutrition videos for head and neck patients, carers and professionals.

Early March: Saw my head and neck surgeon who was delighted with my progress, no surgery needed and I remain “his poster girl for recovery”…see you in 6 months!! I was a guest speaker at a Charity Ball held by 4 doctors at Avoca to raise awareness of head and neck cancer and aid the work of Beyond Five with a generous donation.

And then COVID-19 stopped us all in our tracks for quite some time.

End May: as I write. My prosthodontist should have seen me for a check this coming week but Westmead is not open for regular visits yet. I am not concerned as my mouth is OK. I am not due to see my head and neck surgeon till September. I am going to my dentist here (the one where we got the diagnosis sorted!) in early June as he ensures the 8 teeth I have remain in good order.

Record Keeping: For Me!
Visits to Prof Jonathan Clark: Chris O’Brien Lifehouse. 2 hours each way by car. M1.
2017
Diagnosis: 17.5.17.
18.5.17 (diagnosis: surgery plan w A/Prof too)
6.7.17 (surgery #1 in COBLH)
27.717 (post op: A/Prof)

10.10.17 (cancer check)
15.11.17 (surgery #2: day. Down & home same day)
20.11.17 (post op)
5.12.17 (post op St George)

2018
7.2.18 (surgery #3: day. Stayed night before)
14.2.18 (post op St George)
1.5.18 (pre surgery #4)
16.5.18 (surgery #4 day. Stayed n/b)
2.10.18 (cancer check & upper prosthesis)
– long time between checks as I was seeing Prosthodontist a lot!

2019
8.1.19 extra cancer check: skin growing ok
19.2.19 cancer check
21.5.19 cancer check & CT done. All clear.
24.9.19 cancer check

2020
3.3.20 cancer check.

17 total to date.

Next due: September 2020.

Visits to Westmead Prosthodontist. 2 hours each way by car. M1.

2017  24.5.17 (pre surgery #1)30.5.17 6.11.17 (pre surgery #2)

2018  23.2.18 (post surgery #3) 1.3.18  7.3.18  15.3.18

22.3.18 28.3.18 12.4.18  28.5.18 (post surgery #4) 31.5.18

12.6.18  15.6.18  18.6.18  25.6.1  3.7.18   10.7.18   16.7.18

23.7.18   6.8.18   9.8.18

21.8.18: Upper Prosthesis Issued

28.8.18  10.9.18   25.9.18 8.10.18 (lower denture prep)  25.10.18

5.11.18  15.11.18  19.11.18  27.11.18   11.12.18

2019  21.1.19 (unscrewed UP)  4.3.19

13.5.19  16.7.19  5.8.19

17.9.19    25.11.19

2020 17.2.20  41 to date  Due: 25.5.20 (postponed due to COVID

What is life like for me now as a head and neck cancer patient…over 3 years later?

  • I think about my cancer less
  • I maintain my cleaning of the mouth more willingly and never miss it because I would hate the spoil all that hard work!
  • I accept that whilst I have ‘teeth’ on top that look fine, they do not function nearly as well as natural teeth.
  • I know how to allow for that more these days in terms of food choices.
  • I am more grateful than ever to have had such a cancer experience so that I can share, help and be part of a community which may need assistance from a patient like me
  • I am less fearful of cancer’s return but I am never complacent
  • I do my best to help others who may find my story helpful
  • I blog less than those initial 2 years but maintain the updates about head and neck cancer as it is for me
  • I connect with others on-line to encourage, share and offer support where it may be needed
  • I like to help where I can to keep the messages of head and neck cancer current
  • I do this via my social media and re-sharing words, links and information from Beyond Five
  • I maintain social media connections via a facebook group from New Zealand for head and neck cancer patients, carers and families
  • I am willing to share my story for others: meeting them, making a speech and connecting via emails and on-line

However, I am less the ‘head and neck cancer patient’ these days.

I am more Denyse, who is a retired K-6 principal and teacher, wife to B, mother to K & M, and Grandma to eight wonderful grandchildren. I remain passionate about education: of the self, and of kids…and support on-going education at any age. I love to connect via my blog, meet up for a coffee and cake, take photos to share on instagram, make art in all kinds of ways….and get outside to be “oh so thankful” to be here…to be well….and to share!

Denyse.

23 May 2020.

Written, in part,  in readiness for World Head and Neck Cancer Day in July 2020. Events this year will be virtual and I am sure, I will be sharing more as time goes on. For now:

 

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Women Of Courage Series. #40 Anonymous. 41/2020.

Women of Courage Series.

How did it start? Read here!

Who was the first Woman of Courage to share her story? It was Sam.

Thank you all…today might be an anonymous post, as have several others been, to protect the identities of those whose stories form part of the post.

ONE YEAR ON…here we are…..in May 2020 with the fortieth person to share her story.

2020 Image For the Series.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

 

Trigger warning: Family Breakdown, Grief, Terminal Illness.

 

Women Of Courage Series. #40 Anonymous. 41/2020.

“THEY SAY WE WALKED AWAY”

When Denyse asked me to join this incredible group of women in her Women of Courage series I wondered where to focus.

How do I do my spot on your screen justice?

How should I make this worth your while?

 

Today I am going to hold my husband’s hand and tell you about the day we had to find more courage than we ever thought we’d have to find in our lifetime.

Today I’m going to talk about the day we chose to walk away.

 

The Back Story

Once upon a time two people met and fell in love. They got married with his young daughter standing beside them.

His daughter was ingrained in their marriage and became the much-loved big sister to the children born from their union.

Fast forward to when his daughter got married, fell pregnant and moved interstate.

The daughter and her husband needed financial assistance to buy a home which the two people offered as guarantors.

Then the daughter got cancer.

Her husband walked out of the family home leaving her, their child, the cancer and the debt.

The two people don’t know why he did this.

They never asked.

Instead, the two people and the extended village supported the daughter as best they could and fell deeply in love with their grandchild.

Over the next five years the daughter cried often. As she fought the cancer she was also fighting for custody of her child.

She gratefully won the second battle.  She could not beat the first.

 

The cancer was aggressive.  The husband returned.

All money, court cases and his hurtful emails were forgotten as a united front was created for peace in her final year.

The daughter passed away surrounded by love.

 

The two people reached out to the husband offering meals, cleaning, baby sitting and support for the mini-me born from their daughter’s womb.

Then one day the husband declared the two people were no longer grandparent worthy.

Despite their best efforts in trying to understand his aggression, access to their daughter’s mini-me was taken from them via a text message.

Just like her mamma who’d passed away 6 months prior, they would not see their grandchild again.

 

The Pursuit For Peace

The above story is a very quick and overly simplified look at the twenty-five years I personally had the pleasure of being a stepmother and the 6 years I got to be a step-grandmother.

Of course, we didn’t just walk away then and there.

We chose to seek peace.

This was a very weird turn of events given the unity and open-door policy we’d extended.

We waited.

 

Then we gently texted, called and visited the house of the husband awaiting the day it would be business as usual.

We assumed he was going through a phase that required distance and fewer interactions in his life.

Alas, he ignored all contact and rejected all visits.

As a peace-loving family, we’ve never been involved in this sort of animosity.

My husband and I have backgrounds which are in synch.

We don’t do drama.

Our families don’t do war.

As an extended bunch, we choose to accept people for who they are and focus on strengths.

We choose peace and we choose happiness.

We don’t know why he rejected us so firmly and completely.

The people around us suggest it was his own guilt driving the decisions rather than anything we had personally done.

Counsellors advised likewise.

 

My husband – father and maternal grandfather – he knew.

He knew the day his daughter passed away it was only a matter of time he’d lose his granddaughter.

He knew the husband well enough to predict the future. He was just waiting for whatever excuse the husband would use to “justify” it.

 

When it became clear the husband was serious about taking our grandchild away, we sought the advice of lawyers and organized mediation.

 

We sat and listened to all the things he hated about us.  I personally spent the entire session in tears. I so badly wanted to explode. I so badly wanted to speak my truth.  I so badly just wanted to remind him of his cowardly departure from our daughter five years prior. His cowardly departure from her cancer and the $500,000 mortgage he left us with in a town where industry has disappeared, and houses have halved in value.

 

Do you know how hard it was to welcome someone into our home after wiping away our daughter’s chemo tainted tears caused by her husband’s emails, texts and profanities from the other end of a phone? Words I can’t utter because they are too disgusting to repeat.

 

Do you know how hard it was to watch him spend his newly found wealth gained from her death?

But my husband and I didn’t shout.  We didn’t say the things we wanted to say.  Why? Because we choose peace.

That afternoon the husband told us if ever our granddaughter asked to see us, he would consider it.

Then he said, “but quite frankly, she’s never mentioned your names”.

Then he walked out the door.

 

When you love someone, truly love someone, all you want for them is peace.

So, for the sake of our daughter’s memory and the sake of our granddaughter, we made the ultimate decision when he left that mediation session.

As I pressed my face into my husband’s tear soaked suit, we both agreed to walk away in the belief that when she’s old enough and no longer under the influence of her father, our granddaughter will come looking for her Mamma’s other family.

 

Is there something you learned from this that you could recommend helping others who need courage?

In all honesty, I would never wish this heartbreak on anyone.

The feeling is so overwhelming it’s unfathomable.

Since that day in the mediator’s office we’ve had to dig deep just to go about our daily activities.

But there is always a lesson worth sharing:

 

  1. When you love something, set it free: The greatest courage comes from being selfless. To continue fighting may have put our granddaughter under stress.  While our hearts will be broken forever, her heart will mend.
  2. Nobody can take away our true selves, unless we let them: I am still a stepmother. I am still a grandmother.  I can’t see either of our girls anymore, but they are still in my heart, in my head and in my soul.  They remain ingrained in who I am as a person, who we are as a couple and who we are as a family.  I continue to talk to our daughter every day, and I write letters to our granddaughter which I keep in a box for the day she comes back to us.  Plus, I have her mother’s voice recordings to give her when she’s of age and a book her mamma half wrote for her in her final days.  I will finish that book and put it in her box of “we love you”.  Nobody can take away the person I became when I married into that father/daughter dynamic.
  3. Behind every challenge is an opportunity: Walking away that day with our hearts heavy and our souls severely damaged, gave us the opportunity to reinvent ourselves and try new things. I had given myself to be available as a caregiver for several years.  I was offered long-term contracts but never took them so I could be available for our daughter and then our granddaughter.  Finding myself in a new career has been an amazing up-side. And yes, there is an upside. Nothing will replace what we had, but without it we can still thrive.  Lie in a heap in a corner or get up and bloody well get on with life.  That’s the decision we must make in these situations.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

Absolutely. In this uncertain world filled with bushfires, hailstorms, floods and pandemics, my resilience is high.

My courage is at an all time high.

We have gone through stuff and experienced such loss and not only survived it but walked away from it hand in hand.

The most courageous thing we ever had to do was turn and walk away.  Everything else is a piece of cake to be honest.

 

Is there any message you would give to others facing a situation where courage could be needed?

Believe.

  • Believe in your ability to get through the challenges
  • Believe that while ever you are being the best version of yourself, your courage will far outshine the rubbish that surrounds you.
  • Believe in the fact this too shall pass.
  • Believe that with each new situation you are faced you will come out wiser, stronger, braver and more resilient.
  • Believe in who you are and the value you add to this world.

 

Was it hard to tell this story?

Yes, it’s hard.  It’s hard because by putting it out there I am opening the wounds.  I am also potentially opening a door for more explosive behaviour from the husband and his extended village.  But you know what? This series is about courage.  For years I tip toed around being the diplomatic corps for the sake of my stepdaughter.  Always the insurer of peace in the blended family dynamic.  My post today … these words you are reading … are coming from a place of courage.

 

Any final words?

If anybody reads my story and feels lost in a similar situation, please do reach out to Denyse.  I am a strong believer that the power within us, extends beyond us.  I am lucky that I have a hand to hold.  Not everybody has that.  I can be that hand for you if you need it.

A powerful story and one of which some has been shared with me personally. I thank this person for her literal courage to share.

While the author of this post would like to reveal herself, for the sake of her daughter’s memory and her grandchild’s privacy she has chosen to remain anonymous. 

There will be no replies from this poster.

She will, however, be reading and I will be responding to readers’ comments.

Thank you for your understanding.

Denyse.

 

The following information may be helpful to you or another. These are Australian-based.

  • Your Family G.P. can be a helpful person to listen and make referrals.
  • Lifeline on 13 11 14
  • Beyond Blue on 1300 22 4636
  • Phone 13 HEALTH (13 43 25 84) for 24 hour assessment, referral, advice, and hospital and community health centre contact details
  • Qualified Psychologists can be found by visiting https://www.psychology.org.au/FindaPsychologist/
  • Australian Counselling Association is on 1300 784 333 to find a counsellor

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

 

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Share Your Snaps. #4. 20/51 #LifeThisWeek. 40/2020.

Share Your Snaps. #4. 20/51 #LifeThisWeek. 40/2020.

Every 5th Week, We Share Our Snaps!

My recent weeks in photos and one retro photo too.

Three collages from examples of my ‘draw’ something every day challenge: 2nd lot of 30 days under COVID-19 life restriction. Started 9 March with  30 flowers (1 a day from 9 March) and began this one: inside same sized circles each day till 8 May)

Out into nature somewhere is my goal most days.

Then there is this….

Celebrating via facetime….Happy 21st to our second granddaughter…

What is next?

I wanted more colour in pots so spent a bit of time at Bunnings and now have this vista outside the back door.

 

Our street: night after supermoon. Just opened up my iphone 11 Max pro and it did the work.

 

LONGING….to be back at a table, enjoying a coffee, writing in my art journal...Come on Gladys… Hopefully I will have found a fave cafe open by the time this post is live! YES…I had my first double shot small latte in a glass in a cafe I had not visited for 8 week. I was so welcomed back!

 

Autumn arrived

Good News…on the eyes. 

It’s well over 2 months since I had both eyes’ cataracts removed and I got the go-ahead to get some reading glasses. I admit I am still getting used to ‘no glasses’ outside, driving etc (sunglasses back on my head as they used to be in my teens and 20s!) ….reading glasses to keep in my bag $5 at the cheap shop, but I am getting prescription ones for computer use and general reading. Glad OPSM opened up and should be good by end of May. Got them: one pair for the computer and one for general reading..so far OK!

Then this is an important one for me.

My way of marking 2 years of cancer diagnosis, surgeries x 4, treatments x 30+ at the prosthodontist and a LOT of driving up and down the M1 and time…patience required for healing.

3 years since my cancer diagnosis 17 May...wrote more last week…..and on Mother’s Day 2020, with the kind co-operation of my daughter and granddaughters, I got to re-create this:

Mother’s Day 2017: waiting for results from gum biopsy

Mother’s Day 2020: I am well…and relieved to be!

And then there was this. I drove to Dee Why to see Dad after almost 3 months. He is well but missing some of his usual routines which are slowly returning such as scoring at darts. He was happy for a hug on arrival….and asked for another before I left. Touch is what someone misses out on when they are left solo after many years of marriage. He was 94 in top pic: taken when I had just had 4th surgery inside my mouth. The stent pushing my lips out stayed for another 3 months. Dad is 96 and I am 70 now in bottom pic!

Onward….thanking my favourite nurses on International Nurse Appreciation Day.

Left: Lisa: head and neck & lung nurse & friend: Central Coast.

Right: Cate my head and neck surgery’s assistant & all-round awesome woman

Now counting the days till Index Card a Day (I.C.A.D.) starts on 1 June. This is my 7th year as a participant. Details here: 

How is your week shaping up?

Are you out and about more?

Is there a favourite place where you hope to sit for a meal/coffee/chat?

Tell me more!

Denyse.

Link Up #189.

Life This Week. Link Up #189.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today! 21/51 Self-Care Stories. #3. 25.5.2020. 

I will be sharing another chapter in Telling My Story instead of self-care this coming week.

You are invited to the Inlinkz link party!

Click here to enter


 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Women of Courage Series.#39 Natalie. 39/2020.

Women of Courage Series.#39 Natalie. 39/2020.

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week until the series concludes in 2020.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

I welcome Natalie to share her story here this week. Natalie is a regular and very keen blogger who joins up on my Monday Link Up called Life This Week. Her presence is valued for her continued support of the world of blogging both here and elsewhere in this world of ours. Over to you Natalie.

 

 

What have you faced in your life where you have had to be courageous?

I’m sharing three of my life experiences where I have had to be courageous:

  • My first experience with courage came when I was in elementary school. Two students who were older and bigger than me had been bullying my younger sister. One day I caught them doing it in the playground. I felt scared but stood up for my sister and told them to stop. I didn’t know what the outcomes would be but felt I had to say something right at that moment. Fortunately, whatever I said worked and those students never bothered us again.

 

  • I had a near death health-related experience when I was about nine years old. I was misdiagnosed at first. By the time I was taken to the hospital, I was at a critical stage. I remember the sensation of life leaving my body when I was in the emergency room. I ended up in Intensive Care Unit (ICU) with complications that required an operation, a lengthy hospital stay, a second surgery, and follow-up rehab. I had to be brave to survive the entire ordeal as I was very sick and in a lot of pain.

 

  • On a more positive note, I’ve travelled solo to many foreign countries where I don’t know the language. The first solo trip took more courage than subsequent trips. However, every trip is unique so even now, I still feel some butterflies when I go on my own.

 

How did this change you in any way? Please outline further if this has been the case.

  • From the first experience, I learned to be assertive. Like Maggie Kuhn once said: “Speak your mind even if your voice shakes.”

 

  • From the second experience, I learned life is fragile and one health emergency can quickly end it. I learned to always take good care of my health and to enjoy life as much as I can.

 

  • From the third experience, I learned a lot about world cultures, adapting to changes, and opening myself to new human connections. I’m grateful to have made a few long lasting friendships through my travels.

 

Is there something you learned from this that you could recommend to help others who need courage?

  • I think we all have courage within ourselves and just need to dig deep when we need it

 

  • What’s important is for the person to choose an action for a better future or to accomplish something personal.

 

  • Inaction or inertia would lead to regrets.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

  • Yes, I think my life experiences and resilience will help me overcome any new crisis.

 

  • Once I survived a near death experience and thrive, everything else seems less critical.

 

Is there any message you would give to others facing a situation where courage could be needed?

  • Do self-care and practice positive thinking every day so you feel strong mentally and physically.

 

  • Follow your heart and use your head to get you there.

 

  • Ask for help as needed.

 

Thank you Natalie  for taking the opportunity to share your story of courage, containing three and incredible examples from your life. I sure can understand that you are living a life now that is full and rich based on your experiences and that in itself is testament to your courage.

Denyse.

Social Media: 

Blog/Website:  https://natalietheexplorer.home.blog/

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Special Anniversaries.19/51.#LifeThisWeek. 38/2020.

Special Anniversaries.19/51.#LifeThisWeek. 38/2020.

May is a month of memories for me and that is the theme for my ‘special anniversaries’.

In my life, and my family, I have tended to be the one who remembers. Dates, places, weather, occasions and more. Sometimes not perfectly well. I give my age as an excuse now, but I tend to be pretty much sensitive to time of year, weather and place. So, this is my reason for picking May….because:

May, in my instagram feed, is a time I am using memories of people, occasions and time for mark the occasion. For example, without giving years away, 3 women who are very special in my life have their birthdays in May. My 2nd granddaughter on 6th, my niece on the 22nd and my late and cherished Aunty, on 31st. It was in May 2006 we celebrated what we did not know was my mother’s last Mother’s Day. Mother’s Day was an occasion for her but as the years have passed, we (the family) do not make a fuss…because, I found it was a bit of a pressure to be honest..on me! So, that my friends is how I feel. Further on I explain more.

More about May. THIS is probably the reason I chose May for this as my post. It was in early May 2017 that the investigations began in earnest for ‘what the heck was happening in my mouth’….and yes, this has been recorded here in detail. However, just before I made the news of my cancer diagnosis public, I was honoured to have my story published in Celebrating Women. It was a great distraction too. I blogged about it here.

And then I knew what was under those teeth and the bridge that covered them…squamous cell carcinoma AND it had spread to under my top lip too. That knowledge –  shocking that it was cancer but not surprising either – given how long I had been putting up such pain, aggravation and limited ways to eat for over a year!  And I got this news via the phone call from the oral surgeon, at home, alone on Wednesday 17 May. Read more here if you would like to.

The biggest challenge though for scared me (of IBS and travelling not cancer!) was that I would have to be driven by my husband to Sydney’s Chris OBrien Lifehouse on Thursday 18 May 2017 where I would have my first (very long as it turned out) consultation re my head and neck cancer and what would happen to eradicate it. All, we hoped! I have written about the courage it took for me to test my exposure therapy is a big, big way in other place, here for example. And, we set off and became better informed – BIG time – about what was next.

What on earth did I do then? Oh, I was OK…after some time to gather myself emotionally, and my husband and I drove the long drive home in the dark with a feeling of confidence that where I was to be treated and by whom meant the confidence of knowing it was right for my cancer. Both of the head and neck cancer surgeons – the A/Prof Ebrahimi and then Prof Clark ‘felt’ then after the pretty rigorous examination that surgery only would be required but until that time, and lymph nodes’ samples etc were taken for pathology they could hope for no radiation.

But wait, there is more. Always more it seemed to test me that May!

24 May and 30 May were “back to Sydney” appointments but this time to Westmead in Sydney’s west. We knew this area well as we had lived in the region for many years. It was, however, the first visit to Oral Sciences…aka the dental hospital where I/we would meet the man and his assistant we got to know very, very well over the ensuing years. I admit I needed my husband there with me and the tears on that first visit came pretty frequently as I did not compute/understand well as all what would be happening but when chatting with my husband he was very confident of the prosthodontist’s role and skill in the area where I was to have surgery. He also accompanied us to radiography to get exacting scans done and to test blood flow in my legs. It was later that I found as I had better blood flow in my right leg, then that would be where the fibula and flesh/skin would be harvested not the left as originally planned.

Other May Memories!

In my recollections of May, I found Mother’s Day to be more of a day of obligation rather than a day to celebrate mothers. My mother in particular. I have often thought it a sad thing though because it is my father’s voice of judgement I hear re mother’s day not Mum’s. Ever.

It’s a complicated thing this life and traditions isn’t it! He (Dad, now 96) was brought up in a single parent childhood following his Dad’s untimely death in 1935 and Dad’s mother grieved her whole life after that and I am pretty sure nothing that was ever said nor done for her was appreciated wholly.

For whatever reason, then Dad made sure “we” celebrated our Mum. I have memories of breakfast in bed for her.,…and she did not enjoy that! I do recall her appreciation of cards and flowers. We, as then grown up children, might try to combine a mother’s day morning or lunch or even dinner.

To me, also a mother, it felt like “I” missed out. And I dislike that I even thought that.

So, despite my now-knowledge of where all this probably emanated…I still thought similarly in ‘shoulds’ around Mother’s day. So, I often got disappointed…and I am embarrassed about that. I vowed sometime back never to do ‘that’ to my adult kids so celebrated without any fanfare at all nor expectation until we left Sydney.

The first year I heard from no-one.

Yes, I was sad…and on subsequent Mother’s Day I may have had a card or a phone call or both from one or either of our adult offspring. In 2017 not knowing of my cancer investigations I had a visit to our place. Nice. We put on lunch. See photo above.

Then in 2019 I met my daughter and we had morning tea out together. No kids. Just us.

This year, as this is posted, we will have had our first visit in COVID-19 back to her house for a mother’s day morning tea.

Making New May Memories. 

  • Mum taught me quite a bit about cooking and often have her in my mind as I try to replicate her recipes. To that end, as I am visiting Dad this week I have made Mum’s recipe of lemon butter just for him. Food is such a powerful memory!
  • Mum also advised me about colours and planting of colourful flowers and I use this knowledge in picking and placing plants.
  • Mum’s smile was one I inherited….and a liking for brightly coloured clothes.
  • I make May a time for reminiscing but also for celebrating…..how far I have come, post head and neck cancer!

ONE Year ago in May I got my “end of two years” of cancer surgeries and treatment Apple Watch and it is worn with pride every day and continues to motivate me to move more!

My reward for 2 years post cancer: apple watch

TWO Years ago in May I became more resilient than I knew I could be as I faced a 4th (the last, I hope) reconstuctive surgery because my mouth and skin had not recovered well enough for the upper prosthesis to be fitted.

Post surgery #4 was a shock!

THREE Years ago in May I found how many people in my life cared for and about me and it was humbling. Many of those are reading this post now. Thank you all so much for being who you are.

That’s my special anniversary….May!

What special anniversaries are part of your life?

Did you celebrate Mother’s Day yesterday?

Thanks also for your kind words last week AND 100% of bloggers who linked up, commented on my post.

That IS a win/win!

Denyse.

Link Up #188.

Life This Week. Link Up #188.

You can link up something old or new, just come on in.

* Please add just ONE post each week! NOT a link-up series of posts, thank you.

* Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not.

* Please do stay to comment on my post as I always reply and it’s a bloggy thing to do!

* Check out what others are up to: Leave a comment on a few posts, because we all love our comments, right!

* Add a link back to this blog in your post somewhere, or on your sidebar or let others know somewhere you are linking up to this blog’s Life This Week.

*Posts deemed by me, the owner of the blog & the link-up, to be unsuitable for my audience will be deleted without notice. These may include promotions, advertorials and any that are overly religious or political or in any way offensive  in nature.

* THANK you for linking up today!

Next Week’s weekly optional prompt is: 20/51 Share Your Snaps #4 18.5.2020

You are invited to the Inlinkz link party!

Click here to enter


 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Women of Courage Series. #38 Tara Flannery. 37/2020.

Women of Courage Series. #38 Tara Flannery. 37/2020.

Trigger warning: domestic abuse, cancer, psychological help.

 

 

A series of blog posts on Denyse Whelan Blogs to be found here from mid-May 2019: Wednesdays: each week until the series concludes in 2020.

Here is the introduction to the series.

Courage is strength in the face of pain or grief. It’s doing something that frightens you. We face situations that demand courage every day. These situations provide us with choices, and the way we respond to those choices determines our future. Dayne Shuda.

Tara Flannery, aged 48, and I have never met but we have much in common. Firstly we are teachers. Secondly we share a similar team caring for us as head and neck cancer patients. Thirdly, we want to help others  and this is why I was delighted with Tara agreed to share her story as a Woman of Courage. We are planning to meet for a coffee and a chat as soon as we can post-COVID-19. It will be a long and much needed catch up for us both. Welcome to the blog Tara and thank you again!

 

 

 

What have you faced in your life where you have had to be courageous?

I have had a couple of moments where I have had to dig deep.

Becoming a single mum with a 18 months old and finding studying full-time, no home, no family support

Discovering I had cancer and the treatment that followed.

 

How did this change you in any way? Please outline further if this has been the case.

I learnt I could do anything I set my heart too.

I learnt that that there are a lot of generous people out there.

I learnt that there are a lot of judgmental people out there.

I learnt that it is not easy to walk away from domestic abuse. It is easy to tell someone to get out but to actually do it is another thing completely.

I learnt that the love I have with my husband is unconditional.

I learnt that others take on your cancer as their problem and can turn against you.

I learnt that I have amazing friends who still loved me even though my anxiety turned me a tad neurotic.

I learnt having a cancer diagnosis will not make family who have turned their backs come back.

I learnt that not many people have the ability to empathise or self-reflect and that is OK.

That is their personality not mine.

I learnt to appreciate every moment I have with my friends, husband and children.

 

Is there something you learned from this that you could recommend to help others who need courage?

Don’t let other peoples perception of your reality be yours.

You don’t need to be strong – if you need to cry, scream, throw something. Do it!!! Of course without hurting others 😉

Go talk to a psychologist. It is nothing to be ashamed of. You need a safe place to vent and sort through your emotions.

I didn’t realise how deeply I was depressed and filled with anxiety until I had a year of therapy.

If you are prescribed medication to keep you calm. Take it. Again – nothing to be ashamed of.

Your mind will be racing – you need sleep and rest. These medications are not forever. I took valium and antidepressants for 18 months.

I am off the valium (except for procedures where I need to be awake) and am on minimal dose of antidepressants for most likely the rest of my life.

I suffer Generalised Anxiety Disorder.

Trust your medical team. They have helped numerous people before and will continue helping people like you.

Trust their judgment and advice.

Don’t make major decisions – you may come to regret it later.

Eat well – try to evaluate your nutrition. Fresh whole foods.

Try alternative therapies – it can’t hurt (research them thoroughly before you do – there are a lot of con artists out there!)

Learn about self-reflecting. Try to be aware of how you are acting.

Try not to take other peoples behaviours personally.

 

Do you think you are able to be more courageous now if the life situation calls for it? Why is that?

I think I would probably handle it the same way I did.

I consider myself a resilient person. But having a cancer diagnosis is traumatic and I don’t think I would be calm if diagnosed again.

If I had to go through a divorce again. I would be mentally prepared and I know I could support myself and get through it.

 

Is there any message you would give to others facing a situation where courage could be needed?

Try to choose a reason why you need to be here – or set a goal.

My goal is to be a Grandma. My girls are only 21 and 15 but setting that goal and having that as my focus helped.

I also had a family holiday booked that I was keen to participate in.

I worked hard at rehab and was assured by my medical team I could do it.

Do not set unrealistic goals.

Accept help. Any help. Try not to be a martyr.

 

What an amazing and heart-felt story of courage from Tara. So grateful we ‘found’ each other on-line and thanks for sharing the ups & downs of head and neck cancer surgeries and mouth prostheses so I know I am not alone either!

Denyse.

 

 

For readers of this blog post: 

The following information may be helpful to you or another. These are Australian-based.

Your Family G.P. can be a helpful person to listen and make referrals.

Lifeline on 13 11 14

Beyond Blue on 1300 22 4636

Phone 13 HEALTH (13 43 25 84) for 24 hour assessment, referral, advice, and hospital and community health centre contact details

Qualified Psychologists can be found by visiting https://www.psychology.org.au/FindaPsychologist/

Australian Counselling Association is on 1300 784 333 to find a counsellor

Cancer Council Australia https://www.cancer.org.au/

Beyond Five. Head and Neck Cancer Organisation. https://beyondfive.org.au

 

 

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends.

Copyright © 2020 denysewhelan.com.au – All rights reserved.

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest