Monday 25th March 2019

Learning To Deal With Uncertainty Via Cancer. 2018.28.

Learning to Deal With Uncertainty Via Cancer . 2018.28.

In the past four years I have been on such a long and hard learning experience.

Perhaps I am short-changing that time frame.

Possibly it has been since 2003 when I had to resign, for medical reasons, from my substantive role as a K-6 Principal.

However, in May 2004  I was deemed well enough to return to teaching duties only and that was fine by me because I actually missed schools!

In my working life in N.S.W. public schools from 1970 until 2010 I liked the certainty:

  • of the school day,
  • the rhythm of schools
  • and the fact that my work life was timetabled
  • and I could work knowing I had familiarity and knowledge.

I now modify the above by adding: no school day was ever the same and of course there were many uncertain times and experiences but they were all familiar and I understood them well.

In the years following my retirement from teaching in 2010 up to 2014 I decided that helping families learn more about transitioning to school would be good and set up a solo education consultancy. There was some certainty in this once I found a group of early childhood centres who were not only interested in my work, but would pay me a fee too. Win!

In 2013 I was fortunate to meet then Prime Minister Julia Gillard who thanked me for my work in education.

What changed for me and how did I HAVE to learn to deal with uncertainty?

Three major triggers during 2014 and into 2015.

  1. Deciding to sell our Sydney home of over 18 years, pay off the mortgage and other debts and move to rent a place on the Central Coast.
  2. Resign or down-grading my employment status in education: teaching at Uni, having my business and remaining as an observer for (then) NSW Teachers’ Institute.
  3. Leaving the families of our adult children and their children with whom we have loved and connected from 1996 to the present including daily child-care before they started school.

I have written about them before, but the memories of those times appear in my ‘on this day’ in Facebook and in ‘time hop’ so I see and recall them usually with a sickening thud to my gut. But then because it is NOW in 2018 and I am learning much more about how to manage uncertainty I am able to counter it!

Sign Above Where I Blog. B.Be Brave O.Optimistic L.Learning & Loving. D. Determined Denyse.

Where were we?

The rational and thinking brain does not  know why because it was logical back in 2014 and KNEW the decisions we were making to commence what felt like a proper retirement for us both were right. We needed to have no more debt. We wanted to live away from Sydney. We had been told my our family that childcare was no longer required.

The thing is, I found out in many hard ways that I had created a situation (or actually more than one) where my inner soul and feelings were in conflict with my brain choices. I spent all of 2015 trying to make sense of it and until a psychologist told me: Denyse, feelings take a lot longer to catch up with decisions and change, I felt I was doing it all wrong!

And in some ways I was.

I was ignorant of so much. I finally accepted the sadness and grief that enveloped me for that year. I actually thought things would improve for me when we moved house at the end of 2015 but it was short-lived. My brain was now on super alert setting and affected my decisions and my life. I tried medications (no, none helped) and meditation (a little bit helped) and walking and art too.

But it was not until I started learning more about the Buddhist way of living in the now, as it is all the certainty we know from teachers Pema Chodron, Jack Kornfield, Tara Brach, and Anne Lamott  more that I clicked:

OH. I cannot control anything really.

At all. I can control my responses.

A big gap was closing in my learning. My husband had been doing his level best to enlighten me but I was not ready. Or, I was obstinate and wanted proof!

So for all of 2016 I continued to ‘try’ to accept things but then I would revert to the default in my brain and work on all the ways “I” could control life. This did not make a happy Denyse even though I felt I needed to look like I had things under control. Ha! My Irritable Bowel Syndrome told me in its very special way “no you do not!”.

Into 2017 we (my brain and my feelings) went… and matters worsened. And I hated how reclusive I became. I rejected ideas of trying exposure therapy because ….no control!  It was a to and fro between head and heart (with the gut in the chorus) until matters changed dramatically.

Late March – early April 2017.

I HAD to follow through with using graded exposure therapy to get my awfully sore gums and teeth sorted. I did.

It felt a bit better and when my new local GP met me and suggested a small dose of an evening anti-depressant from the ‘old school’ which would help ‘firm up’ my IBS issues, I trusted him and gave things a go.

THEN. May 2017.

I had a biopsy, I thought something serious was wrong in my mouth post teeth/bridge extraction and I was right. Squamous Cell Carcinoma in my upper gums and away I went on the cancer journey.

WHAT DOES HAVING CANCER HAVE TO DO WITH UNCERTAINTY?

Everything for me. I had to change so much in terms of my ill-founded beliefs that I could control my life.

Nope. That was a BIG lesson.

What I did learn, and have  learned every.single.day. since May 2017 is that I need to trust those who care for me and provide their services as they know more about this cancer of mine than I ever will.

This does not mean I surrender because no-one does that without thinking. What I learned about myself is that I can get through some very tough times (I did and have) because I can let time pass, let my body heal in its way and take the advice of those who are experts in the field where I am not.

Of course I ask questions! In fact, I sent off about 20 before my huge initial surgery in July 2017 but I had a much greater sense of security in having met the Professor and Associate Professor, the Prosthodontist and the Practice Manager. No-one seemed to mind my questions and it was clear to me, that by asking I was helping myself be better prepared for not only cancer surgery but for the relative uncertainty in the life ahead.

On Thursday last…waiting for the next part of the treatment. Selfies rule, right?

And now, into almost the fourth month of 2018 I am now driving myself to the prosthodontist appointments in Westmead and managing my physical and emotional health whilst doing so…and in between visits and surgeries I am doing the best I can to stay well and do as is required for my continued health.

I am letting uncertainty into my life as a gift for what it teaches me:

patience

courage

confidence

trust

I have said, more than a few times, that this cancer diagnosis (and subsequent surgeries and treatments) has helped me get back a Denyse I really like being and a person who is more out-going (as I used to be many years ago) and one who is more loving and giving to others.

What lesson(s) in life have you learned about yourself?

Do you have any issues with surrendering control?

Tell me more in the comments if you are prepared to share!

Denyse.

Joining with three generous and sharing bloggers who host link ups:

Kylie Purtell here for the I Blog On Tuesdays link up.

Sue L and Leanne L  here who host the Midlife Share the Love Linky Party on Wednesdays.

Leanne who is the sweetest hostess here on Thursdays for Lovin’ Life.

 

 

 

 

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Uncertainty Updated. 2017.57.

Uncertainty Updated. 2017.57.

This post was updated on Sat 10 June 2017.

Did this headline make you a bit wary?

I do not like uncertainty.

However, I am learning that there is no such thing as certainty. Except for death. Apparently!

It makes me nervous and curious and I know how I must remember  that somehow I need to accept uncertainty.

Why?

I would have to say because I have grown very weary of trying to control what I cannot control…but thought I was! Is that familiar?

My journey (yep, I like the word and it stays!) has taken me on a number of learning paths as I seek help to understand life as I don’t know it!

One such person is Buddhist nun, Pema Chodron, and her many books and teachings are in my library now.

I have this book beside my bed and read one chapter a night. Most nights anyway!

This excerpt is from chapter 14.

According to the Buddha, the lives of all beings are marked by three characteristics: impermanence, egolessness, and suffering or dissatisfaction. Recognising these qualities to be real and true in our own experience helps us to relax with things as they are.

The first mark is impermanence. That nothing is static or fixed, that all is fleeting and changing, is the first mark of existence. We don’t have to be mystics or physicists to know this. Yet at the level of personal experience, we resist this basic fact.

It means life isn’t always going to go our way. It means there’s loss as well as gain. And we don’t like that.

We know that all is impermanent; we know that everything wears out. Although we can buy this truth intellectually, emotionally we have a deep-rooted aversion to it.

We want permanence; we expect permanence. Our natural tendency is to seek security; we believe we can find it. We experience impermanence at the everyday level as frustration. We use our daily activity as a shield against the fundamental ambiguity of our situation. expending tremendous energy trying to ward off impermance and death.

We don’t like it that we age. We are afraid of wrinkles and sagging skin. We use health products as if we actually believe our skin, our hair, our eyes and teeth, might somehow miraculously escape the truth of impermance.

The Buddhist teachings aspire to set us free from this limited way of relating to impermanence. They encourage us to relax gradually and wholeheartedly into the ordinary and obvious truth of change.

Acknowledging this truth doesnt mean we are looking on the dark side. What is means is that begin to  understand that we’re not the only one who can’t keep it all together.

We no longer believed that there are people who have managed to avoid uncertainty.

Comfortable with Uncertainty. Pema Chodron. 2003. Shambhala Publications.

I am a life-long learner and I have been learning more lessons about life and me in the past few years than I ever felt possible. I have great respect for the words of Brene Brown and have signed up for this combo of courses on-line called Daring Greatly and Rising Strong. If you are interested in knowing more, here is the link.

Have you given much thought to what it is to be uncertain?

Do you struggle with the notion that we are not really in charge of many aspects of our lives as we might prefer to be?

I’d love to hear your comments.

Next week I am finally owning up to the vulnerability of telling my story. It won’t be confined to one post!

Denyse.

Less than one month after writing this post, I was diagnosed with cancer. More about that here. and here 

If ever there is/was a reason to feel even more uncertainty then this is now. I am doing my utmost to stay present and appreciate now but for someone like me, who thinks ahead, plans what she can and wants to know what’s coming, cancer has been sent to test me on many levels. This weekend, I know that within one month from now, my surgery will have happened. But it’s yet to come. I am grateful for support and care from many of course, but in the end there is one person who must do this and that is me.

Sharing especially today with Sammie who has been the most kind and understanding person as she has faced her cancer and dealt with it all incredibly well. I thank her for her presence in my life. Joining here for the Ultimate Rabbit Hole.

Oh and by the way, I am still reading the above book and am about to commence the second part of the course: Rising Strong.

Joining with Leanne and friends  here who are part of the inclusive and lovely link up Lovin’ Life.

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