Friday 13th December 2019

Five Years Ago.116/2019.

Five Years Ago.116/2019.

In late 2014 so much happened to me: as an individual, a partner, mother and grandmother.

It’s timely to remember it and note parts of it.

You see, dear reader, I am an emotional person but also a very practical and organised one too. So when we decided mid 2014 that it was time for me to be able to quit all paid work as I was stressed and weary, and to finish up grandchild caring (we had been doing this lovingly since 2008) and that meant:

selling the house

paying out the mortgage

finding a place to rent on the Central Coast

buy a new vehicle each (the two we had were very much on their last legs so to speak)

and “then all would be better”.

True from one perspective: the practical but not from the emotional one for me and as regular readers know things did not go well for me. For quite some time.

Posts about the years 2015-early 2017 and how my life was affected may be found here (2015) and here (2016) and here (early 2017)

 

To give me some perspective now and to provide a photographic account of “this time 5 years ago” I offer:

 

House went on market & we accepted best offer on same day. Waiting for this sign to go up took a bit longer.

 

In the meantime, it was summer and as Papa tended the pool these grandkids made the most of what would no longer be ours in a few weeks.

 

We found a house to rent (unsuitable as we found later!) before Christmas that worked in with our settlement of mid Jan 2015 so we enlisted the family and up we travelled with some of our ‘stuff’. We had removalists on the day though.

 

 

The ‘last’ NSW Dept of Education School Spec for us (at the Entertainment Centre) made more special by our Yr 12 Drama Ensemble Member and Granddaughter playing the Nurse in a re-enactment based on the commemoration of WW1 A.N.Z.A.C. Centenary. I was in the audience watching with 2 of her siblings and her cousin.

 

And here she is, our dear GD, who was awarded top 10% in Drama for the HSC and is now, 5 years down the track, a graduate in Film Making from Australian Film Television and Radio School. She has her own film-making biz, so ask me if you want to know more!

 

 

 

I cannot leave this one out of my memories. Australian cricketer lost his life in a game when a ball hit him as he batted. In a tribute to Philip Hughes, we “put out our bats”. This is my husband’s from the 1960s. At the School Spectacular 2014 above, there was a segment added about his death as he was a public high school graduate and there was not a dry eye in the house as we sang “Come on Aussie Come on” in tribute to Philip.

 

 

I took a break from packing to drive to Mona Vale one evening and hear the funny and modest William McInnes talk about his (then) latest book Holidays. It was a joy to meet him and he is a very laidback and generous author. I used to listen to his A Man’s Got To Have a Hobby as a ‘comfort’ listen when I was stressed in those years. Lovely man with great family life stories to share.

 

It was hard, but I did it. Christmas decorating for the last time WITH the grandchildren. Practical me did not put a tree up nor did we do much inside the house but for the last time at Glenwood, the wooden decorations were up and some lights. Knowing it was last was hard but like I have said, I am still practical. This advent calendar was always filled with little chocolates for visiting grandchildren. We also had a tradition of “grandkids” only helping me do the tree sometime near the end of November. The older ones tell me they remember it well, so that makes me happy!

 

Then I was 65. Our daughter and her kids hosted us for a little afternoon tea with our son and his family. It was special of course and we took some pics to remember the occasion. We had Christmas Day together with both our kids and their kids for the last time hosted by our daughter and that was a little tinged with sadness but also knowing what was ahead was for us now.

That’s it for me.

Except for this: This photo (from instagram yesterday)  representing ‘then’ and ‘now’ of me visually but more words which helped make sense for the long and hard transition this has been for me. As transitions often are: getting married, moving from home,  becoming parents, starting new jobs, and so on. Mine happened to have three pretty big items: retirement, leaving Sydney, and moving from our family and all that was known.

 

What was life like for you 5 years ago?

Denyse.

Joining each Wednesday with Sue and Leanne here for Mid Life Share the Love Linky.

On Thursdays I link here for Lovin Life with Leanne and friends and on Fridays, it’s Open Slather here with Alicia.

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My ‘Head & Neck Cancer’ Spring Story. 39/51 #LifeThisWeek. 99/2019.

My ‘Head & Neck Cancer’ Spring Story. 39/51 #LifeThisWeek. 99/2019.

Spring is here.

In Australia and the rest of the Southern Hemisphere. I am glad to have cool-ish evenings and lovely days but, I know from experience, the lengthening of days will bring more heat and then I will be complaining a bit as I can when the heat is on!

True to my word of needing AND wanting to get out and about I ventured to the local beach nearest to us on Friday only to find it closed off due to sand erosion (climate change, anyone??) so I took another way, up the hill then  down to arrive at the sand and gentle waves. Cold water but worth it for the paddle.

Head and Neck Cancer Check.

When head and neck cancer arrives in your life, you are taken into new and different worlds. Fortunately my ventures have been to improve my life’s quality, living with a rare cancer, and meeting many professionals who have contributed to my well-being since my diagnosis on 17 May 2017.

On Tuesday 17 September, a very rainy day, I drove to Westmead Oral Sciences for my 38th treatment with my prosthodontist and he could not have been more pleased with how well I am maintaining the skin (grafted) around the abutments (added implants to my ‘jaw from my leg’) and we both cheered when I told him I am for the most part pain free in the area that had been bothering me for months. Yay.

On Tuesday 24 September, this time on a sunny day, I arrived at Chris O’Brien Lifehouse carrying cards of appreciation and little cupcake packs for my professional team. These people have cared for and about me for over 2 years now and my relationship is close and warm as they are when they note my progress. I enjoyed a catch-up with Nadia from Beyond Five with a coffee as well, and then to Clinic on 2nd level for my cancer check. First seen by Cate, and then Jonathan and the consensus was I am doing so well, no return till early March 2020. As I finished up, I asked Jonathan how I was going in recovery and his words made me smile:  “Denyse, you are our poster girl in recovery”. I left feeling very well indeed. And the cupcakes and cards were appreciated.

There’s More To Life Than Cancer.

I could not be more appreciative of how well my cancer recovery is going and as a result, I am expanding my world and re-connecting where I could not before as recovery, treatments, resting, driving to and from Sydney took their toll.

On Tuesday, after being to my head and neck check up, I drove out to North Kellyville P.S. to see the granddaughter’s school’s inaugural Art Exhibition. What a joy it was to be there and I couldn’t resist this photo. It actually summed up just how well I felt that day!

Gratitude – for my connections found through having head and neck cancer.

And then this happened.

Those of you who have been reading my head and neck cancer posts (see here for access) will know I have NEVER found another person with cancer “like mine”. My professor had told me I was “rare of rare” in terms of risk factors and so I kind of learned to understand that was it. Until I was contacted, firstly by a mother, then by her son. This man is another head and neck cancer patient. They had found my story on the Beyond Five site after his diagnosis in 2018. It turned out, once I was contacted, he was not only living in Sydney but we shared the same professional surgical team, the same comprehensive cancer hospital and he also attended Westmead Oral Sciences.

This person, who is quite happy to be found on instagram here, has a more complex and serious version of head and neck cancer than mine. He and I connected via social media and then personally when we got together for a coffee at a place a bit up the coast for him, and down the coast for me.

Our talking and sharing was so good. I know for me, re-telling some of my story was good but I think, for him listening to the ways in which recovery occurred for me may have helped. Nevertheless he has a way to go right now and I am full of admiration for his attitude and his patience. We are both very keen to continue to spread the head and neck cancer message.

Thank you Fergus!

Time for change. Transitions. 

I’ve written before about the transitions in my life (retirement, leaving Sydney, family etc) before and I am now, 2 years 4 months post head and neck cancer diagnosis recognising a shift in my emotions, signalling change. Even good change has its downside. I am a little more emotional as I consider how far I have come. I am also feeling the feels about ageing…and turning 70 in 2 months. Our twosome relationship in our marriage continues to be strong as we navigate life at ‘this end’ together. Family is less connected to us now as caring is no longer required and they are all just about grown up.

It’s of great interest to me to know how quickly the changes occur. Sometimes we may blink and miss them. On the weekend, our daughter and 3 of her children came for Saturday lunch. We even managed some fun games outside. I admit “we” the oldies got tired very quickly. We also did a a bit of a nostalgic look at one’s growing up years. She will be 23 later this year Yikes! Where is that time thing going? Nevertheless, my afternoon’s phone call from my 96-next-January-Dad reminded me we are all going OK.

How is Spring going for you?

Had you heard about head and neck cancer before my diagnosis?

Denyse.

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