Tuesday 22nd January 2019

Just For July #4. 2018.66.

Just For July #4. 2018.66.

The last Just for July. Gosh that did go quickly.

I had a few thoughts about ‘the last post’. Not the song. The post.

And this is what I came up with.

Facts About MY July.

  1. It is a month of ‘nothing much’ usually. Except for last year when I had a big cancer surgery.
  2. I never do “dry July: because.. I do not have a tipple. At all. Any more. I don’t mind one glass of champers and the last time I did that was possibly in January 2014 when Dad was 90.
  3. I considered “no buy July” for about a day…but then again, if you know me well, that was NOT going to happen.
  4. What I have bought to date: crystals (from China) because I really like the textures of them and connection to the earth, some lovely Skin Boss body oil from my friend Kirsten, some nail polish – it has been over  a year since I did anything ‘girly’ as paint my finger nails, and two Moleskin art journals
  5. Seems I have become a bit of a star-fundraiser (well, I was when I last looked) for my head and neck cancer charity Beyond Five because I am second in the individual total for funds-raised. Oh..still not too late! LINK HERE. TY
  6. We had a visit from 4 of our grandchildren. Such fun. So exhausted (for a good reason) when they left. Funny things kids say: from Miss 3 “will Papa take me fishing?” and from her to her five year old sister “don’t talk about my pencil grip”…and from Miss 8 looking at our spare room “Oh the bunks are there but you haven’t had time to make them up yet” Sadly Miss 8, we think overnight stays are done. Sorry.
  7. I set a record (for me) of sitting with a couple of 5 minute breaks in a dentist’s chair for 4 HOURS while he accurately, slowly and very very carefully adjusted parts of the inside of my mouth.
  8. I went and asked the local library if they would like me to run a class (as a volunteer of course) for adults to do mindful colouring and mandalas
  9. Getting dressed with purpose each day is still going strong thanks initially to Nikki Parkinson aka Styling You & her #everydaystyle on Instagram. BIG congratulations to Nikki on her 10th Birthday. Amazing lady who I have known since 2011!
  10. And lastly,  my seeking of places for coffee and is something to look forward to every day. Mrs Woog is a great believer of that. Do you listen to hers and Mrs Berry’s podcast “The Hot Flush”?

Now I am likely to keep these Thursday posts going.
Mmmm I do have to think of a catchy name.

Maybe August Thoughts

or Awesome August…

I shall see. No, I have decided I will continue and the title is Appreciation In August!

 Tomorrow is World Head and Neck Cancer Day. 27 July. Thank you to those who have supported my fundraiser for Head and Neck cancer awareness via my “virtual” Soup for the Soul. See above link.

Happy last week in July 2018 people.

Thanks for your kind responses to my new post topics and lightness here as well.

It’s good for me too!

Denyse x

Joining with the lovely Leanne and her crew for Lovin’ Life Linky on Thursdays.

 

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Why I Create Daily. 2018.65.

Why I Create Daily. 2018.65.

The answer to this could be…”to keep me well” or it might be….”to keep me busy” or maybe even….”because I love it”.

I reckon all are appropriate in their own way but the last nails it.

I do love it.

At times I get a bit stuck on ‘what will I create now’ but more often than not, some reflection time spent at my desk helps.

Since 2013 when I embraced the practice of creating an “Index Card a Day” via daisyyellow.com I can rarely have a day spent without something happening for me such as:

  • creating original mandalas
  • pattern making – within defined shapes e.g. square, rectangle, free form
  • painting – freehand or colouring-in my own designs – with watercolours or gouache.
  • cutting and pasting to make cards – thank you cards, best wishes, birthdays and more
  • stamping and printing on home-made cards – to personalise them

A range I did recently.

  • using my art-journalS. Yes plural. I have two sizes on the go. I have one in my bag at all times.
  • A3 books to play and create in – there have been 2 filled since I came home from hospital just over a year ago
  • A4 to do the same – at least 3 filled since hospital last year
  • and now, A5 where I am making 100 mandalas by the end of 2018
  • many of my larger-sized patterns and mandalas are laminated or framed. Member of my family have some in their houses. Others I have made into placemats for our table.

IF I feel slightly blue, a little anxious or a lot worried..it is NOT helpful to ruminate nor over-think. I used to do this a LOT until I found the power of ….the markers, the pencils, the paper and more.

In fact, just last week when I was a wee bit concerned at the drive ahead to Sydney and then a few hours of stillness in the dental prosthetist’s chair….I sat for 15 minutes and created. Instant mindfulness and anxiety dialled down enough to face the day ahead with courage and confidence.

In the past few months where my health has improved to the point of me seeking to do more I have created these for a purpose  and I have  a proposal. This is something I will outline another time, but I have approached my local library to teach a Mindful Colouring and Mandalas class. They are keen and getting back to me soon.

Many of you know how much I enjoy my beach walks and occasionally I bring home some pebbles and shells. I love playing with their textures and shapes and have made a cairn and used them in some flower pots. I also like to decorate them. My grandkids have done this too. It is COOOOOL Grandma! And when there was some greenery around and flowers at our old house, they made a great mandala.

Lastly, and this helps me set the scene sometimes. I am fortunate enough to have made a ‘creative space of my own’. At the last house we rented I had my computer in the shared living room where it was next to my husband’s desk. My art ‘stuff’ was shared in a room where we had two bunk beds for visiting grandkids. In this house, we have not made up a grandkids room in a bedroom, preferring to leave it as storage, and…my second wardrobe.

This space, in an open plan area is where I am located now for both computer and creative activities. Luckily we have lots of portable-type storage, and some on wheels and I have adapted to this space well. It might not have a great view outside as my other one did, but it is good to have everything in one place.

My retirement and then my cancer diagnosis was very much helped by my daily creating. I no longer am concerned about product as I was. I love the process. I did make a commitment as 2018 began to “create daily” and for me this is any kind of venture where I am doing something mindfully for the fun of it.

Do you create anything?
What are your areas of creativity?

Blogging is creative that is for sure!

Denyse.

Joining Kylie for I Blog on Tuesdays here.

Joining Sue and Leanne for MidLife Share The Love Linky here.

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Just For July #3. 2018.63.

Just For July #3. 2018.63.

I am titling this one:

Am I the only one?

  • who thinks television  newsreaders who sit in pairs at the desk and are seen talking to each other as the news intro starts are saying “so, after this, the pub?”…

 

  • who says “did I say that to you or just think it?” Happens soooo much lately… is it my age..

 

  • who goes to the supermarket with a list and comes home with more than what is on the list BUT forgets things from the list…

 

  • who opens a new packet of biscuits and finds at least ONE broken? Do they throw them onto the shelves…

 

  •  who goes to sit on the beach and is relaxing until someone WITH their dog OFF-LEASH comes by and said pooch not only invades my space but frightens the hell out of me too…

 

  • who cannot and will not buy a branded supermarket bag since the one-use plastic bag ban because those BIG chains get enough out of me anyway so I stuff my shoulder bag with old grey bags…

 

  • who surrepticiously checks milk use-by date in ANOTHER person’s fridge and then rejects the cuppa and says water is fine…

 

  • who will not drive to the last 10 kms when the “need petrol” gauge appears because she has filled the car as soon as it appears at around 60 km left..

 

  • who has driven (well)  over the speed limit on a country road and when picked up by the Highway Patrol, she says “the conditions were perfect” and gets let off with a warning after chatting to the cop about teaching in Mt Druitt…

 

  • who has cheated on an exam…I lied here, I haven’t….

 

The beach walk above….so lovely BUT has been spoiled by DOGS (off leash, despite the signs) and OWNERS who just ignore me and the signs.

Tell me yours….Am I the only one??

Denyse.

Joining with Leanne for Lovin’ Life linky here. 

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WHNCDay, Beyond Five, Soup For The Soul & Emma McBride MP. 2018.62.

WHNCDayBeyond Five, Soup for the Soul & Emma McBride MP. 2018.62.

Let me start with this.

I was diagnosed with a head and neck cancer in May 2017.

I had no idea that a cancer could be in my mouth.

Many posts here have charted my journey and it has been ever so helpful for me to post, learn and help others too.

What is WHNC Day?

It is World Head and Neck Cancer Day and is on 27 July each year. Last year, on this date I attended my first post-surgical appointment at Chris O’Brien Lifehouse and there was nothing anywhere to indicate it WAS WHNC Day.

This year IS different. For me, and for more people who are coming on board to spread the word which is AWARENESS.

You see, as I was ignorant of mouth cancer, many who may eventually be diagnosed with a head and neck cancer (not brain cancer, it is a different group and speciality) and sometimes too late for life-saving treatment.

I’ve been wearing a ribbon from Beyond Five for the past weeks and having my photo taken to raise awareness. The ribbons are $3 each and available from Beyond Five (address is below)

Around the world there are organisations of professionals, patients and carers gearing up for this date with meetings, a conference is being held in Melbourne where I know my surgeon, Professor Jonathan Clark is attending along with my Specialist Prosthodontist, Dr Suhas Deshpande and an event, in Australia for the very first time called Soup for The Soul.

Beyond Five 

I first heard about Beyond Five in June 2017 as I was approaching my BIG (as I still call it, because it was!) surgery when A/Professor Ardalan Ebrahimi answered my long email very helpfully and suggested I check out Beyond Five as it was an organisation he and the Professor had started. At the stage I did glance at areas on-line but my mind was not able to take in much.

As I have moved well into recovery mode, my story was added to Beyond Five’s patient experiences in April 2018. As an educator AND blogger as well as head and neck cancer patient I became better acquainted with the organisation. Here is part of their mission.

Beyond Five is Australia’s First Head and Neck Charity supporting patients with head and neck cancer, as well as their families, carers and the healthcare professionals who care for them.

Their Story:

In 2014 a team of passionate people working within the field of head and neck cancer care had a common desire to provide access to information about head and neck cancer to people all over Australia.

Head and neck cancer is incredibly complex and diverse. It includes more than 10 different cancers that can affect a person’s:

  • mouth
  • tongue
  • salivary glands
  • skin
  • voice box

Each type comes with its own causes, symptoms, characteristics, complexities and treatment options.

There was a real need to provide comprehensive information in one place that was easy-to-access.

We spent 24 months gathering the content with the input of:

  • surgeons
  • radiation oncologists
  • medical oncologists
  • nurses
  • speech pathologists
  • dietitians
  • dentists
  • plastic surgeons
  • psychologists
  • health literacy experts
  • patients
  • carers

We included information for all of the stages of the cancer care journey from diagnosis through treatment to life after cancer. This means that patients and carers can easily find the information they need at the right time.

Beyond Five launched in September 2016.

(side note: my diagnosis date, May 2017)

Why Beyond Five?

When we talk of curing cancer, we talk in terms of  five-year survival. However, in patients with head and neck cancer the effects of the cancer and their treatment stay with the patient forever. These effects may be seen as scars on the face that cannot be hidden by clothing or may be difficulties with speech and swallowing.

The name ‘Beyond Five’ refers to the long-term need of patients which they often need more beyond five years after diagnosis. Find Beyond Five here: 

Soup For The Soul.

The sotry above indicates that Beyond Five is a charity that is new to the scene to help patients with cancer. In fact, this year is only their 2nd year in full operation. So, the FIRST every fund-raiser is happening and it is called Soup For The Soul.

Why that name? It IS winter, so it is a great idea to have some soup with friends and ask for a donation towards Beyond Five and their messages needing to get out to more. Another, and even more important reason is the symbol of what soup means for people with head and neck cancer. It is often the life-line food of nourishment and care. I had a lot of soup last winter and more this winter even though I can get some less liquidy foods down now.

For the week 20 July to 27 July (WHNC Day) there are events and meals and gatherings planned around Australia. I am off to one at Gosford on 24 July with a head and neck support group. I am hosting a “virtual” event for my blogging, facebook and other friends and I have opened a fund-raising page here.

Please donate what you can afford. I suggest $5 as that’s a bowl or a cup of soup!

Here is the link to my page, where the donations are sent directly to Beyond Five after the organisation looking after the funds takes a certain amount for their costs. This varies according to the amount donated.

Emma McBride M.P.

Emma is our local Federal Member and I wrote to her asking if she would accept a fund-raising ribbon from Beyond Five from me. A very busy lady as you can imagine, I was surprised and delighted to receive a call from her office in Canberra to say Emma wanted to come to our place, if that was convenient, to find out more and to accept the ribbon. So on Monday 9 July we did have a very pleasant chat and took some photos which went on social media and I am told there may be something happening on 27 July to raise some awareness for head and neck cancer and some funds via Soup For the Soul. I am very grateful!

I know there was a lot to read and get through today but this post has been getting ready to be published in advance of World Head And Neck Cancer Day and I wanted to cover all the information.

Thank you for reading…and I hope, commenting!

Denyse.

Joining with Kylie on Tuesdays here

Joining with Sue and Leanne here on Wednesdays.

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Just For July #1. 2018.57

Just For July #1. 2018.57

What is “Just for July?”

I was reviewing my blog posts recently and there have been some pretty heavy and detailed posts written.

I know they are helpful for me to do and some of the loveliest people in the blogging world comment when I link up with a post I wrote on the Tuesday to cover my linking up for the next two link ups …on Wednesday here and Thursday here.

So, shaking things up a bit and to help me just chat and share about whatever comes up I am going to do this for Leanne’s Lovin’ Life Link Up for the 4 Thursdays in July!

Mandalas. 

They attract me and I am drawn in when I see some in nature and in the man-made world. I cannot help but notice them.

Do you notice mandalas?

I am going to post more about the why sometime later this year but for now, here’s one in my back yard:

I cannot love this flower more. Mandala!

Social Media and Food Posts.

In my quest to be whinge-free (works some days, others not!) I now scroll right through. I used to be envious of those who could eat that food and make a comment of how wonderful that looked but that I could not eat that (yet). Then I realised I do not need to tell anyone that and in fact, that might even make them a bit sad. So, scrolling on….

Do you post food pics or are you someone who looks at food pics…and drools (such a weird word). This meal did not go on Instagram.

I cooked cutlets and the way I could kind of eat the meal, was cut meat added to mash & insides of a tomato over it. Sadly I could not even chew on the bones.

The Beach.

I wish I had better words to describe why I love the beach. In fact I rarely swim anymore (OK, tell the truth, have not been in the surf for over 2 years) but I remain captivated by it. I walk on the sand, I collect shells and pebbles (sometimes) and I dip my feet in the water.

It makes me feel better when I am sad. It helps me focus on a wider world when mine appears to be closing in.

I do know that the smells, the sights and the sounds along with the sensory experiences do something magical to my soul.

Is that what the beach is like for you?

No better place…and this day I was alone. Even better

Driving My Car.

I love my car. It is red. I chose red very happily for this car – the Nissan X-Trail – and I smile when I return to it in the carpark. I want to hug my car because it carries me safely to where I need to go and it is like an extension of my personality.

Is that something that makes me strange? What do you feel about cars?

Off to coffee somewhere!

Blog Roll is BACK.

Recently two bloggers began a facebook group called “Old School Bloggers”. Many of us who started back in the early to mid 2000s and onward had slowly let their blogs go or put in a resting space. My blog, as regular readers know, has had a few changes of direction. So, from this initiative of Caz who blogs here and Jacqui who blogs here, quite a few people linked up on Monday for #lifethisweek which made me a happy linky host! Check out the right hand side of my blog to see “Blog Roll is Back” and if your blog is not (yet) listed, do add your URL and blog name to the comments!

Thank you!

 

That is it for Thursday 5th July.

I am off to the Podiatrist this morning at Budgewoi and we will chat about his newborn daughter while he cares for my feet. After that I will go to a great coffee shop there for my daily fix. I may even take some photos as well.

Thanks for reading …and maybe even commenting with responses to my questions!

Denyse.

Joining with Leanne and crew here for Lovin Life Linky on Thursdays.

 

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Life Lessons. #1.2018.52.

Life Lessons. #1. 2018.52.

This may be a theme for one or more posts. Let’s see where the Life Lessons journey takes us!

The catalyst for this post was something that happened to me a few weeks ago. The story of that was this:

I have been a long-time sufferer (and yes, that IS what it is…suffering!) of Irritable Bowel Syndrome (diarrhoea mostly) for years. It became quite a debilitating condition for me, restricting work-related tasks and social events for some of 2014 and into the years following our move from Sydney to the Central Coast in 2015. I railed against it, I did courses to help me, I took meds, I had tests and in the end, I guess I had to admit it was MIND-GUT connected and my own stressors did seem to be behind it all. This actually did not help me, in fact I probably became more determined to beat it. Not sure how, as will-power had not worked.

So, my now GP first gave me some meds which helped and through the awful times of post cancer surgeries and other stressors in 2017 I know that my gut reacted and no immodium in the world could work against a gut which had not been ‘fed’ for ages. I learned that sometimes the reaction in my gut was normal and over time I accepted that. Kind of. I also made sure that any future anti-biotics were of the type my gut did not react to. Fingers crossed, that has worked so far.

Life Lesson.

Out of the so called blue on the recent long weekend, I had an episode of IBS. I could not ‘think’ of a reason why. In fact, that made me even more cranky with ‘it’. I got sad and had to stay home…close to the ‘loo because of it. Eventually, after immodium it did settle and I was able to drive to Westmead 2 days later to have a much-needed appointment with my prosthodontist.

In the meantime, I had to admit a truth to myself, and herein lieth the Life Lesson.

My week ahead, on the weekend I got an episode of IBS, was actually filled with a couple of items relating to my health that were NOT cancer- recovery related. I had decided two weeks ago that it was TIME I got myself together and did some regular testing that comes ‘at our age’  and my GP agreed. I did not know how much the anticipation of this and some other things I had planned would impact upon me emotionally until:

MY GUT TOLD ME WHAT I DID NOT PAY ATTENTION TO.

You see, I am a bit of an over-achiever…and my GP says I am ‘goal driven’ and I have to agree so I made a ‘rule’ that by now, a year post-cancer diagnosis, that I needed to be back in tune with normal activities. 

I.B.S. told me that I was not ready and in fact, reminded me brilliantly once I accepted it that I had made a promise to work on one thing at a time and that was to continue to recover from cancer.

Yep. I needed that and with  a chat to my GP, after my husband totally agreeing to what this life lesson had told me, I accepted it, cancelled the other things….and guess what, life settled again for me ….and I have learned my lesson.

I have photo on the left as my locked phone screen saver to remind me of my lesson!

What Others Say.

I asked for any Life Lessons via my social media and here are some responses.

Run your own race. It’s a cliche but it’s so important to know yourself, then do what you want to do and not to be swayed by others. The opinions of others are given way too much headspace. Make your own opinion the loudest. When I asked for any background to this conclusion here was the response: Life! Look around – who is happier? The person running after other people’s approval or the person who approves of themselves. “A.H”

Even on the darkest days and the most difficult of times you can always find something to be grateful for. It can be tiny, but there is always something. “D.C.”

Listen to your gut instinct. Other people may have opinions on what you should do within your life or your children’s but your gut instinct actually knows. Listen to it don’t ignore it just because someone else thinks they know best. Gut instinct is usually 100% right. “LofC”

Thank you to those people.

Last week Natalie from BeKind2You.com wrote a timely post which she has been happy for me to share. Thank you!

What Life Lesson(s) have you been taught?

Denyse.

On Tuesday this posts links with Kylie here

On Wednesday this post links with Sue and Leanne here

On Thursday this post links with Leanne here.

 

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Colour T.V. Comes To Australia! 2018.50.

Colour T.V. Comes To Australia! 2018.50.

Australia was late to adopt the television phenomenon compared to many parts of the world including U.S.A. and U.K.

I was born in 1949. No television then. Radio, via a large machine which in our house included a record player, was part of my life as a young kid. Programs were aimed at children were on the A.B.C. including Kindergarten on the Air at 9.30 a.m. daily. We listened to that as kids and then when I was a newbie teacher in 1970 we continued to do so. Loved the interaction between the announcers (including piano, learning a song and stories). It was ‘play school’ for radio and most families and schools had radios!

In 1956 Australia, Melbourne specifically, hosted the Olympics. This was the year, prior to the Olympics in September, that television started in Australia. There were 2 commercial channels at the start – 9 & 7, along with 2, the A.B.C. Black and white T.V. was all we had but we HAD television! Not our family in that year though. Mind you a lady up the street from us in Wollongong had the first T.V. in our street and she invited us kids every Tuesday to come and watch Lassie at 4.00.p.m. How kind.

This image was the first telecast in Australia; Newsreader Bruce Gyngell saying “Welcome to television” on Channel 9.

https://en.wikipedia.org/wiki/Television_in_Australia

Some people went and watched the news on black & white T.V. and the Olympics in the shop windows at retailers in the main street. I remember this in Wollongong, even though we eventually got television and reception was OK. Many regional areas had to wait for infrastructure.

https://goo.gl/images/Y1mXvY

My family got a B&W T.V. in 1957. It was amazing.

So, that’s what it was. Black and white T.V. We saw the Moon Landing and first walk on the Moon in July 1969 at Teacher’s College. We saw the Vietnam war on This Day Tonight, every night, via B&W T.V. That was what we became used to until…..1974 in Australia.

In 1974 we were witness to the change from black and white television reception to colour. Before that happened however, we needed to do something. Buy a television set which would receive colour. Yes, none of the B&W tvs could do that. We young teachers in Merriwagga were determined not to miss this new technology so we got a loan from the bank to buy a colour T.V. Infrastructure, especially with the national channel, the A.B.C. meant we got that signal at least.

Oh my goodness, they were exciting times! I recall it well. We sat and watched the television move from black and white reception to colour. How fortunate that this clip shows exactly as it happened. THIS was the show in which colour was introduced to Australia. At least where we were, about 45 minutes drive from the nearest big town of Griffith, in the N.S.W. Riverina.

Here is how it unfolded for our family back then. From ABC-TV’s Aunty Jack.

So, now we have so much more than Colour T.V. yet I wonder if anything was really as exciting as these two firsts? Maybe there was the introduction of Pay TV where we naively thought paying for television meant fewer ads. No. That did not eventuate over time. Then of course, there was the ability to record a show and watch it later. We still do this but the technology is different and easier. And then there is streaming shows, via Netflix et al.

I am not a huge television fan but I do know I like the local NBN news and some shows on the A.B.C. My husband enjoys Netflix and sport via Foxtel. Oh, and I like the shows about houses on Foxtel. And another thing, television used to stop ar a particular time of night, and an announcer would say ‘goodnight’ and “God Save the Queen” would be played until it was time for the test pattern.

What are your memories of television when you were younger?

Where did you live and was television (black and white or colour) available?

Come clean, how many T.V.s are in your house. In mine: 4! Two in 2 separate living areas and one in each of our bedrooms. It saves very much on ‘who wants to watch what’ occasions!

Denyse.

On Tuesday this posts links with Kylie here

On Wednesday this post links with Sue and Leanne here

On Thursday this post links with Leanne here.

 

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My Head & Neck Cancer 1st Anniversary. Pt 2. 2018.46.

My Head & Neck Cancer 1st Anniversary. Pt 2. 2018.46.

I recently wrote Part One of the Anniversary of my cancer diagnosis here.

The second part is actually a bit harder to write.

I am grateful of course for my cancer being taken via surgery but I seriously had no idea that to recover and be implant-ready would be up to and well over a 12 month period. This is because, as I understand it, bodies heal in different ways and react like that too. I also know that this mouth reconstruction of mine necessitates a lot of work by the multi-disciplinary team of medical, allied health and dental experts.

I am ever-grateful for this team.

With Prof Clark & Cate Froggat, Clinical Nurse Consultant & Surgical Assistant

I know that my Professor Jonathan Clark  leads the Head & Neck team and he is also working with the training of other doctors just as he learned as a resident with the late Professor Chris O’Brien at Royal Prince Alfred (RPA) Hospital. From the Westmead Oral Sciences comes  my Prosthodonist, Dr Suhas Deshpande and his colleagues including Dr David LeinkramDr Matthew McLachlan. Dr Deshpande’s Nurse, Ofelia has seen me through some emotional times and is a very kind person. Norma at the reception desk at Westmead Oral Sciences always has a smile for me and a welcome that’s bright.

Associate Professor Ardalan Ebrahimi was the first person I saw on May 18 2017 and who examined me and put together, along with Professor Clark what would be my BIG surgery in July 2017. A/Prof Ebrahimi was kind enough to respond to my 2 detailed emails pre-surgery and saw me post-surgery in 2017 along with  Justine Oates Head and Neck  Nurse Practitioner who re-dressed my wounds and ensured continuity of care once we were back home on the Central Coast.

In my 10 days post Surgery #1, I was cared for by a number of professional nursing staff firstly in ICU with Dr Tim  then on Level 9 North of Chris O’Brien Lifehouse where Jason was the NUM. I will single out registered nurse Roan as he cared for me most early mornings and made sure I got out of bed to get some sunrise shots!

From the Head and Neck team who were part of my first surgery was a team of doctors including Dr Laura Wang & Dr Rahaul Jayaram who saw me most days in hospital.  Allied professional staff  at Chris O’Brien Lifehouse were physiotherapist Leah ensured I could walk post July surgery after fitting my right leg with the boot, dietitian Jacqueline gave me lots of guidance for eating post mouth surgery and the speech therapist Emma made me drink a cup of water (ahh!) and speak ( not a hard task given my propensity to talking!) to ensure I was going well before leaving Chris O’Brien Lifehouse last July.

I thank the wonderful anaesthetists and anaesthetic nurses who ensured not only that I went to sleep  but that I woke up with no dramas. One was Dr Murray Stoken and another is Dr Paul Goonan. On 16 May I was cared for by Dr Stephanie McInnes. 

Of course I have the excellent and fabulous Cate Froggat, my Clinical Nurse Consultant & Surgical Assistant who is the gentle and smiling person looking out for me in the operating theatre and in post-op consultations.

How could I not mention Julie and Priscilla…a hug and smile each time I see them, those who keep all of us seeing Professor Clark organised with compassion and care.

Once I was home, as I have outlined before, I was also in the care of the Central Coast Public Health Community Nursing Team for around 2 months and Eileen was amazing with her knowledge and advice.

My dentist Dr Alistair Brown saw me for a mouth check last October and to clean the remaining ((and oh so important to me) 8 bottom teeth. He was the person who initially referred me to Dr Stef Calladine, oral surgeon,  who did the biopsy last May and broke the news to me over the phone that I had squamous cell carcinoma. I will always be grateful for her caring manner and more importantly for referring me to a place I had heard of called Chris O’Brien Lifehouse and to a specialist I had not, Prof Clark.

My GP. Dr Owen Greene. What a caring and understanding man he is. I saw him sometimes up to 4 times in a week when I was recovering from BIG surgery #1. He reassured, he checked on me and he continues to do so, letting me know you are doing really well. His office staff and pathology people ask how I am going tooIf I pop into the chemist next door, Tim the pharmacist is always asking how I am going too.

There are those that I cannot mention all by name but have been integral to my diagnosis, surgeries and recovery times:

  • staff at the various Imaging places in Sydney and on the Central Coast
  • staff at the Admissions Desk and Pre-Surgery Desk at Chris O’Brien Lifehouse
  • the nursing staff pre- and post-op in the recovery areas
  • my psychologist from the READ clinic in Erina saw me a couple of times and was most kind in her assertion that I was doing well without any more need for her services.
  • the social media account for Chris O’Brien Lifehouse @chris_obrien_lifehouse & the art programs at COBLH @arterieatlifehouse (Instagram)
  • those lovely people who welcome me to their coffee shops like Randa at Fibonacci Wyong  and ask after me, along with my fabulous hairdresser Tiffany, our great podiatrist Sean who came to the house to treat me when it was easier for me, and our Property Manager, Naomi, who was delighted to see me recently. Kyla who makes the most delicious cupcakes always asks how I am going when we catch up. In fact, I won a generous voucher recently and as cupcakes are something I CAN eat, this is just the best!
  • the Beyond Five Organisation: Nadia for her reaching out for me to help with publication of my story written by Kirsty. Check my photos here to see the fundraising ribbons. World Head and Neck Cancer Day in July 27. I wear my ribbon and blog about Head and Neck cancer because not many people know about this cancer. I do now!

Then definitely NOT last nor least are my friends and family. Those who connect on-line too. My blogging friends, my instagram friends and those from Facebook and Twitter. I love connecting!  To know of so much love, concern and care being out there for me after the diagnosis and through recovery in the year it’s been is marvellous. Thank you for reading my posts, checking out my Instagram pics and ‘liking’ the blog Facebook page.

Each day in 2018 I made a commitment to myself to do at least these three each day:

  • get dressed in an #outfitoftheday and go out – for a coffee, a browse, a shop or just to look at a view
  • go into nature or observe nature and then capture this in a photo
  • make something creative, be it a mandala or a pattern or just so art fun.

I cannot single any one person out from family and friends….other than this person:

My husband. There for everything for me. Always. Love IS what keeps us together…and has done for over 47 years.

Sending everyone my love and gratitude.

Denyse.

On Tuesday this posts links with Kylie here

On Wednesday this post links with Sue and Leanne here

On Thursday this post links with Leanne here.

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