Wednesday 27th March 2019

Head & Neck Cancer: “Beyond Five” Ambassadorship.2018.130.

Head & Neck Cancer:”Beyond Five” Ambassadorship.2018.130.

Last week I wrote a post called Farewell and Hello. It was pretty long so I stopped at Farewell promising to be back for Hello. Here we go!

Regular followers here know that I was diagnosed with head and neck cancer (squamous cell carcinoma) in my upper gums and under the top lip. The whole story is here, in posts, from the day I was told until the recent post on adjusting my eating requirements when I am out of the house.

Hello, I am now a Beyond Five Ambassador!

How this came about was partly after this day in October 2018 when I was back at ‘my’ hospital Chris O’Brien Lifehouse, but I had offered earlier this year if there was any way I could help spread the news about head and cancer awareness I would like to do so. I had already been sharing the work of Beyond Five here on the blog for World Head and Neck Cancer Day 2018.

Following that day, the Board of Beyond Five met, Sr Froggatt and Professor Clark are board members and Nadia Rosin is Manager, Business & Communications,  and I then received a formal letter of invitation to become a Beyond Five Ambassador.

Role of Community Ambassador

  • • Share your personal head and neck cancer story for use in Beyond Five communication e.g. website, social media portals etc.
  • • Raise awareness of Beyond Five through family, friends, other personal connections.
  • • Where possible, attend events e.g. patient support group meetings, education days to help raise awareness of Beyond Five.
  • • Support Beyond Five grant applications where relevant e.g. as a consumer representative.
  • • Provide feedback to Beyond Five to help us improve and develop the way we work.

About Beyond Five.

Background

Beyond Five was established in December 2014 and is Australia’s only not-for-profit organisation supporting patients with head and neck cancer, caregivers, family and health professionals.

Beyond Five was established to provide evidence based, comprehensive, easy to understand and easy to access information to everyone, regardless of where they live.

Beyond Five is the first organisation in Australia supporting patients and their families through their cancer journey, from diagnosis to treatment and life after cancer.

Mission

Beyond Five’s mission is to improve the quality of life of everyone affected by head and neck cancer through education and access to support and to raise awareness of head and neck cancer nationally. We are committed to working collaboratively with all specialties across Australia to achieve our mission.

 

I have joined the inaugural Ambassador, Julie McCrossin and Marty Doyle too. Their stories and mine, can now be found here on the Beyond Five site. There will be more ‘thinking time’ for my involvement and what form it may take as everyone is going to be on a break soon. We are getting together in February 2019. I look forward to helping where I can especially now I am post almost all of my cancer treatments and now in ‘check-up and check-in’ mode.

I know that I am keen and ready to help others learn more about head and neck cancer as it is not well-known. In fact I had no idea you could get squamous cell carcinoma inside your mouth (and other areas of the skin inside the head & neck region, till my day of diagnosis in May 2017.

And here we are sending Season’s Greetings.

I wish that no-one had cancer of any kind, of course, but the fact of life is we do. I want as many do, to help pay back the time and effort and research that has gone into the amazing surgeries and mouth reconstructions I had. That I can smile and eat well again is testament to the wonderful work of my team and their integration of allied professionals too. I have written posts about how many helped get me well again. Now, it’s onward….and to say I am glad to be an Ambassador for Beyond Five is an understatement. It is an honour and a privilege to be in this new role.

I want to do the role justice, and help others as I too have been helped.

Thank you to the Board of Beyond Five for entrusting me with this role as your Ambassador.

Denyse.

Joining with Sue and Leanne here for Midlife Share the Love and with Leanne here for Lovin Life link up.

 

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What Is Friendship? #LifeThisWeek 16/52. 2018.33.

What Is Friendship? #LifeThisWeek 16/52. 2018.33.

When I selected this topic I already knew it may be a challenge to write about.

The challenge though was from my inner meaning of friendship.

I admit that having and keeping friends in the world of teaching has been hard. Why?

It’s because we move around from role to role and school to school. I know as I left work in schools to retire fully, I had hoped to keep connecting with some of the people but over time, the friendship drifted into nothingness. It was also one-sided I found.

Instead of berating myself about this, I looked at my life and why. It WAS about the moving on and about. It WAS also about interests changing too. We had a lot of couple friends as young teachers and enjoyed the company and camraderie, even keeping in touch once we were all back in Sydney. However, family changes and priorities, along with our health and moving away Sydney saw a decline in friendships.

But that was OK. That is life.

Luckily for me, I am social in my outlook and can arrange to meet with people who are on Facebook and that is fun. The friends on Facebook, Instagram and Twitter have made many a lonely time better and I have met so many of these people via blogging I am very grateful.

And, despite the somewhat dated graphic above, when I put out the call on Facebook asking ‘what is friendship?’ I received some lovely and most helpful quotes! Thank you so much, Friends-in-the-Computer!

 

Friendship is surrounding yourself with people who celebrate you, not people who tolerate you. (E.)

Friendship is seeing each other after 18 months and everything is exactly as it was the last time you hung out. (L)

Friendship is comfort and ease, no judgement, just open hearts. (J

 Friendship is never having to be anyone other than yourself. (E)

(And never expecting your friend to be anyone other than themselves!) (E)

Friendship is always having each other’s backs, being each other’s greatest champion and greatest support. (A)

Friendship is everything that’s already been said and also being there through the good and bad, not just a “fair weather friend” if that makes sense. (V.)

Friendship is having the same sense of humour, good discussions (the flippant, the intense, the nonsensical and the hard), reciprocal gestures of support/acceptance of help (if these are imbalanced, the friendship is too), and being the rock of support in there with you without being the rescuer (and again, vice versa!) – give as generously as you receive! (K.)

Friendship is your friend arriving for dinner, and needing a little weep, and that just being part of a great evening together. Ease, love, acceptance, and solidarity. (A)

Friendship is a safe haven for kindred spirits. (V)

I liked these two quotes as well.

What I did love, and miss quite a bit, about friendships back in my working life and semi-retired life was getting together for a lunch, or a coffee date and having a good old catch up. This was fun.

However, I regard myself as fortunate to have married a man I love and who IS my best friend. He and I have seen each other through 47 years of love, triumphs, tragedies, child-rearing, illnesses, house buying and selling, and arguing! Yes, we are opposites in many ways but we are always there for each other!

Having a photo taken is NOT his favourite thing..so this pic is very much about being my best friend AND he has learned so much about photography being my ‘insta husband’ each morning! Thank you, B.

So what are your views on friendships?

Love to hear from you!

Denyse.

Joining with Alicia here – if she is having her link up this week.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next Week’s Optional Prompt: 17/52. School Holidays Memories. 23/4/18


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