Saturday 17th November 2018

Look Good Feel Better Workshop. 2018.115.

Look Good Feel Better Workshop. 2018.105.

Look Good Feel Better workshops are open to anyone undergoing treatment for any sort of cancer.

https://lgfb.org.au/workshop/

A few weeks ago I had the opportunity to attend a Look Good Feel Better Workshop in my local area.

It was held in a private room within a community church. It is free and available, on application, to any person with cancer. It started at 10 and ran till 12.30. There was no break nor any refreshments other than water.

There were three women from “Look Good Feel Better” waiting for me and the other people who arrived. Each of us chatted briefly and then we sat around a well-organised table with individual places, products, a bag and mirror. There was help from the ladies as we were given tips on how to make up our faces and things were done in a clean and hygenic manner.

The co-ordinator, Cindy, pictured here with me, ran the event aided by a volunteer and her volunteer co-ordinator Kate.

Cindy, the Co-ordinator with Me…after-shot!

Interested in Being a Volunteer? 

The Look Good Feel Better program relies heavily on our team of 1,300 dedicated and passionate individuals who volunteer their time, knowledge and expertise to help deliver our workshops across Australia.

We ask that our volunteers are over 18 years of age and can commit to a minimum of FOUR workshops per calendar year (where available in your region) to ensure we have sufficient volunteer support for our workshops to run.

The first section (around an hour) was very helpful and I did pick up some tips for my poor ravaged skin on this face that has undergone four surgeries! We learned about the sun protection levels and the fact that those undergoing treatments may be even more damaged by the sun so to take good care. We found out about facial tricks – to hide or minimize ‘flaws’ and I learned more about using the concealing ‘green’ stick on red places.

I seemed to be the only one there who was not affected by hair loss or potential hair loss but not everyone shared what their cancer was so I am surmising.

The second section was not relevant to me and I did think about leaving before it started but to support the lady next to me, I stayed. This section was about losing hair, head coverings, tricks and tips and wigs. I am glad I was there for this lady and I do hope now she has started her chemo she is a little more prepared.

 

Look Good Feel Better is a national free, non-medical, brand-neutral program dedicated to helping you face your cancer with confidence. 

While most changes in your appearance are temporary, we believe that taking control of your appearance is one of the simplest and most effective ways to boost your self-esteem and confidence while going through treatment.

Can’t get to a workshop?

Home-delivered Confidence-Kits are a supplementary service developed to assist cancer patients who are unable to attend a Look Good Feel Better workshop for health, travel or personal reasons.

I came away feeling a bit flat which may have been because “my cancer” is not well-known. The second session in particular geared to those, who through cancer treatments have had hair loss  including eye lashes and eyebrows. I fully understand that more women need this kind of help and support through treatment as do others who have chemo.

There was little to no interest in knowing more or even hearing about my head and neck cancer, but those of us head and neck patients find this is a general response. Now you know why I try to educate and help others as I was ignorant too about head and neck cancers till my diagnosis!!

I would however like to thank those who shared their morning with me, particularly the fellow cancer patients. Some were incredibly kind and generous with their tips to others, like the lady next to me who was scared pre-chemo, and one lady had us all ‘fooled’ when her beautiful head of hair proved to be a wig.

Thanks to those who volunteer with the organisation, Look Good Feel Better, and those who work hard to see it happens. From the time I got my initial email, to the time of attendance the communication was excellent. In fact, I was able to change the day of mine to “when I would have my teeth” and they were happy to do that.

We all got the new products that were on our placemat at our table and each is now in my bathroom and I am using the eye brown pencil, the blusher, the big brush, the mineral foundation and the tinted moisturiser.

Have you attended a workshop?

Do you know someone who might benefit?

Put them in touch via the website and they will be looked after.

Denyse.

Joining with Kylie for I Blog On Tuesdays here and with Sue & Leanne here for Midlife Share The Love on Wednesdays.

 

 

 

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November Notes.#1. 2018.113.

November Notes.#1. 2018.113.

November notes are related to health and mindfulness and in November in Australia we see the jacarandas in bloom. This reminds us of….for some exams are just around the corner, it’s almost the end of the academic year and it’s closer to Christmas than we think.

A year ago, on 30 October to be exact, I began a practice that was going to be for 32 days in length. It was to ‘dare to post’ a photo of myself every day from then until I turned 68 on 30 November 2017.

As regular readers know 2017 brought a significant and blindsiding diagnosis of cancer: head and neck cancer located in my upper gums and under the top lip. If that doesn’t give anyone a shake-up then I don’t know what might.

I have always enjoyed sharing my life via photos on social media, instagram for preference, and as someone who had also, in that ‘life-altering year’, lost even more weight, new clothes and an appreciation of a more physically comfortable body gave me an idea. It was not my original idea as others before me were already snapping themselves with hashtags:

#everydaystyle

#dresswithpurpose

#outfitoftheday

#over60sstyle

and more….and I thought, maybe I could challenge myself to do this. I decided a little matter of not being able to open my mouth to smile would not stop me, so off I went. I wrote about it here in 2017.

Until I was 68. Then it changed. Again. I liked doing this so much I continued. Here are some of the shots back then.

In 2017 I used collages. It was a good chance for me to show the world how my ‘mouth’ was going – post July and then November 2017 ops

 

And, my husband made me smile (most times) for the pics. Finding some backgrounds was interesting.

My ‘telling it as it is” shot. I was in pain in my face from surgery, but we went to the beach to distract me…I also went bare-legged (right leg) to show my surgical scars.

Once I established this great routine, I added another, once I could be sure I could do it. Out for a coffee. Every day.

 

And as the weather warmed, it was clear I needed to shop for new items.

 

Once I was less fatigued, I found shopping for some new clothes (only ever ones on special) was a big distraction from cancer and the surgeries’ effects.

Another significant day: We attended our granddaughter’s 21st in Sydney where I saw family who had not seen me since surgeries and I got another dress for the occasion.

Deciding to go on after my birthday! Christmas Day shot with 3 of our grandkids.

And then into 2018.

 

I like a challenge, so a self-determined one, was that every day the clothes would be different. I kept as accurate a record as I could and it was also, ahem, great getting my shopping gene back. My mum liked to shop for clothes and shoes. As I can not find pretty shoes because of awful feet, I went for the clothes. The ladies in the local Rockmans, Millers and Suzanne Grae got to know me well and bargains were had.

It was a great thing for my mental health as there were days when, like all of us, I just would think, “I cannot be bothered”. They were the days, I recognised were the ones when I need to be bothered the most. So, as someone who keeps to her word, I went on.

I believe that this helped my recovery and in a future post or two in November Notes, I will share more.

  • Do you take part in any daily Instagram challenges?
  • Would you post photos of yourself on social media?
  • If the answer is yes, yay for you! If no, what is stopping you?
  • Can you consider that this is something that may be good for your health too?

Enough from me!

Denyse.

Joining with Leanne here for Lovin Life link up on Thursdays.

 

 

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Observations in October #3. 2018.107.

Observations in October #3. 2018.107.

Regular readers will recall I love mandalas.

I liked making patterns and designs too, but somewhere in mid 2016 mandalas caught my attention, and I was onto them. Firstly I bought a book which helped me design my first few (and I remembered geometry taught in primary school!) and then I took off.

I made a promise to myself to make 100. I exceeded it. Mandalas made by me have gone to others to use as decorations or just to enjoy. I truly love sharing them.

Our dining table, when visitors are here,  is adorned with versions made with laminating tbat have become coasters, table places and mats. My Dad has quite a few in frames at his place.

This week I did something I have been looking forward to for a while. I began teaching a class of adults about the mindfulness of colouring and using mandalas as my examples.

By the time this is posted, it will have happened. I shall report back!

Reporting back! On Tuesday 8 people joined the class and that was awesome. Each told me they came for learning, to have a new thing to do and to chat with others. It went so well they are returning next week!

What I am hoping is that you, my readers, also begin to appreciate and see mandalas where you go.

I noticed these walking down one street in Wyong on Sunday.

Three of my grandchildren were delighted to see that I had left parts of a new mandala for them to colour (using my best markers!) and they did a super job.

From The Mandala Workbook – A Creative Guide for self-exploration, balance & well-being. by Susanne F. Fincher. P1.

What Are Mandalas?

 Mandala is Sanskrit for “magic circle” and in the most basic sense, a mandala is simply a circle. Since ancient times in many cultures the mandala has had a powerful role in depicting, containing and expressing the sacred.

 Mandalas can come in many forms, from stone carvings, to domed cathedrals, ritual dances and calendar cycles.

 No matter their form, mandalas often us a profound way to examine our inner reality, to integrate that understanding with our physical selves and to feel connected to the greater universes. 

 “The circle has been universally accepted as a religious image of perfection, a shape of total symmetry, hermetically closed off from its surroundings. It is the most general shape, possessing the fewest individual features but serving at the same time as the matrix of all possible shapes” Rudolf Arnheim.

 

Mandalas are everywhere and here in each ceiling at Chris O’Brien Lifehouse is one:

I see them in nature. Everywhere I look.

 

Will you look too now?

Denyse.

Joining my friend Leanne and others who link up here for Lovin’ Life each Thursday.

 

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But It IS Still About Cancer. 2018.103.

But It IS Still About Cancer. 2018.103.

Since spending much of last Tuesday, 2nd October, at Chris O’Brien Lifehouse (my cancer hospital) in Sydney, I have been affected by the fact that the reason I am in need of regular visits is because I have cancer. Specifically a Head and Neck cancer that was removed from my maxilla and upper lip named:

“Hybrid squamous cell carcinoma showing features of both verrucous squamous cell carcinoma & conventional squamous cell carcinoma”

On Tuesday I got a copy of the Histopathology report from 6 July 2017 surgery. It was ‘less confronting’ to read from this distance of time but it did have words in it I found hard to read.

With no risks per se, other than age, it seems my cancer took hold. I reckon it was there for many months before it was discovered after having my bridge/teeth removed when the gums were so sore and growing over the teeth (my request to do so in January 2017 was not heeded until April 2017). Diagnosis came in mid May 2017.

Why am I writing this now?

Because after all the surgeries (4 in less than one year), and many, many visits back to Westmead for my prosthodontist to make my mouth ready to accept the upper prosthesis of teeth, I thought I was almost done.

I am not.

Cancer is and will always ‘be there’ and in fact, my Professor and lovely Cate, reminded me “It IS about cancer” and that is why I come back for check ups and need to be vigilant myself about any changes.

My day of catching up, meeting people and doing my trip to Sydney independently was wonderful and I am so grateful that all of these people care about me and helping others with cancer. But it came home, forcefully, and is affecting me today with some sadness;

Cancer is always there. I had let it hide for a while behind everything else I was doing. I appreciate you reading this far! It is important, always, once I have something impact me as this has, that I share.

My husband is a wonderful person I can chat with always and I saw my GP to update him as a de-brief.

But before I go on, I had a TREMENDOUS day on Tuesday, noteworthy too because it was the first time I had driven myself to Chris O’Brien Lifehouse.

Asking Others For Their Thoughts.

I asked around  facebook friends who I know are through the active stage of treatments for their thoughts and some kindly replied with these words.

From S.:

“I’m past the ‘active’ part of my treatment, I’ve had surgery and radiation. Now I take a once a day tablet to prevent recurrence and I got 12 months all clear. But some days I feel just awful with fatigue and other side effects. I spend whole afternoons sleeping on the couch. I don’t feel like myself and it’s really hard when people say ‘oh you must be back to normal now’. I’m not back to normal and I don’t know if I ever will be. The weight of expectation (my own and others) feels so heavy and overwhelming sometimes. Depression, anxiety and feeling down even though you survived cancer feels inevitable and like I am lacking gratitude for my recovery. I’m not, it’s just hard”

From V.:

For me post cancer treatment is a mixed bag. I’m so grateful for my recovery but the fear and uncertainty for the future is still there. It’s a monkey on your back forever and you have to find a way to live with that monkey. The monkey is very loud and cheeky at times. Other times I give my monkey a time out and she sulks in the corner. At my recent follow up appointment I sat in a waiting room full of women ( I had early stage breast cancer).   They all had that haunted ‘how in the hell did I end up here’ look on their face and you just bravely smile at each other without any need for words.

From S.:

It’s my cancerversary on Tuesday so I’ll be blogging about it too! I don’t think the cancer shadow ever goes away but I try not to let the worry of it steal my joy of today.

From M:

 The elation of hearing the words “all clear” faded more quickly than I imagined and in its place was anxiety. Having been so closely under the microscope for so long,  I felt anxious that the cancer might return and it wouldn’t be spotted. Over time, this does ease and I look forward to my six-monthly check ups for continued reassurance that all is ok.

From M in N.Z.:

It’s normal to have a slump in mood after treatment ends. I availed myself of the Cancer Society psychologists who are trained to help us deal with the transition from treatment to the new normal.

I also went to the NSW Cancer Council website and found this article about ‘after the cancer treatment stage’.

Can cancer be a positive experience?

  • Many people find there are positive aspects to having cancer. Some even refer to the disease as a life-changing experience.
  • Cancer may cause you to re-examine your life choices, and may motivate you to travel, take up new activities or make lifestyle changes (e.g. starting exercise or quitting smoking). This shift is often gradual, as even positive change can take getting used to.
  • After treatment, some people want to help improve the cancer experience for others through advocacy or volunteer work.

Read more at https://www.cancercouncil.com.au/15289/b1000/living-well-after-cancer-45/living-well-after-cancer-back-to-normal/#sUFxCMjbDj1ZGQz4.99

New friend to me, and known to many is journalist and M.C.  Julie McCrossin, who is now 5 years down the track from her Head and Neck cancer diagnosis and she sent me here, to her podcasts for the Cancer Council, and this one of fear I listened to again.

Liverpool Hospital Head and Neck Patient Support Group listening to Dr Ben Smith, Ingham Institute on cancer recurrence anxiety. Learn more about managing anxiety. Listen to The Thing About Cancer Managing Fear podcast cancercouncil.com.au/podcasts/episo… @beyondfiveorg @CCNewSouthWales http://feeds.soundcloud.com/users/soundcloud:users:314217701/sounds.rss

Julie said “I find the fear catches me unawares, like on my recent birthday”

Thank you friends for sharing.

So, I am not unique.

Always good to know.

And I can share my worries and fears with others who ‘get it’.

Having cancer never really ends, but I am always grateful for the friendships and new experiences I am having as a result of cancer.

Thank you one and all.

Denyse.

Joining with Kylie for I Blog on Tuesdays here and with Sue and Leanne here on Wednesdays.

 

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Mindfulness, Mandalas & Self-Care!* 2018.97.

Mindfulness,Mandalas & Self-Care!* 2018.97.

This post will eventually make sense…please read on. If you too value self-care.

Things have been pretty serious around this blog lately so with yesterday’s light-hearted post about my last purchase. See what I did and why here, if you want a bit of a laugh at me and my laminator woes.

And as if to give me a reason to relax more was necessary I had a somewhat disconcerting couple of days where my gut rumbled and I refused to listen (as I can do) until, some IBS** (also written about a lot here and here) decided to remind me about:

*WHY I NEED TO PRACTISE BETTER SELF-CARE.

From way back I have been an achiever.

I like to do and see the reward in the finished product or event or whatever it is.

I like to plan and see things through to their end.

In other words, I DO (not the marriage one) almost all of the time and until something stops me** I keep on keeping on.

Self-care of and for me is MY responsibility and coming out of a major life event as having cancer you’d think I would have it sorted. Things like this would be taken into consideration:

  • physical ability to carry out what I am choosing to do
  • physical ability and stamina to keep going with such activities
  • knowing when to take a rest and stop for a while
  • understanding that my ageing body is not quite at all like it used to be as it has also fought cancer
  • remembering that I “am retired” and much of my day is for me to choose how to spend it

And generally I do, until I don’t and that is what happened last week**…

Yes, I am getting to the mandalas & mindfulness soon!

It was not much at first, but for a day or two, I could feel my breathing being more about “sighing” as in things were an effort. I also found myself jumping from one self-determined task to another with a view to getting them done.

 No-one else had set me any tasks but me. At times, I am loving the busy-ness and the physicality of getting out and about, making the bookmarks for The Big Hug Box, getting the shopping done, making some meals for us both and blogging responsibilities along with deciding to learn how to do hand-lettering via a couple of on-line courses.

I loved driving an hour to catch up with a friend for morning tea on Tuesday and driving to the beach on Monday to walk down many steps to the rock platform. I was BUSY. I genuinely loved doing it too.

And by Friday my gut grumbled and sent me to the loo more and more until Saturday morning when it said “ENOUGH” and let me know it with some IBS.

OH. I know why, I silently said and did not get angry but instead I got grateful. For my body’s reminder when my mind would not listen.

I stopped. I calmed me with better breathing techniques. I sat with NO iphone near me and read two papers. I rested. I coloured a magical and big mandala and then I knew what to do …MUCH more mindfully engage with what I love.

One of these is making mandalas and the other is remembering to be mindful more.

I was brought into the present moment (the only one we experience!) and sat and contemplated this design started a week or so ago and how I would colour it. I spent some magical moments here doing so and then selecting the colours to do so.

My breathing returned to normal pace, my gut is quiet, my husband is pleased I have done this of my own volition, and I am chastened by it and know that yes, I can be the saboteur of my own self-care. I sat outside admiring the pansies and was uplifted by their beauty in my mindful state.

What about you?

What do you get as a sign you need to stop and do/be differently?

Since Saturday I have a social media & iphone free hour from 12.30 to 1.30. It’s going well.

Tell me more in the comments.

Denyse.

Joining with Kylie here for I Blog On Tuesdays and with Sue and Leanne for Midlife Share The Love Link here on Wednesdays.

 

 

 

 

 

 

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What Is The Hard* Thing? Part One. 2018.91.

What Is The Hard* Thing? Part One. 2018.91.

Hard* as in challenging. scary, not easy, fearful, anxiety-making…but ultimately will or does help with personal growth, wisdom, satisfaction and sense of accomplishment …no matter how big or small.

The ‘hard thing’ is something I have had to accept and do if I want to move on or forward in my life.

There are times when the hard thing can feel too hard or even unacceptable for me to try to do or be.

Noticing nature helps me focus on “just one thing”

Here’s an example.

Last week I had an elevated feeling of anxiety/worry about my irritable bowel syndrome (IBS) ramping up to let ME know what my thinking self was not aware of. That is, as I understand the mind vs the gut thing, that my IBS was ramping up because it sensed a fear situation happening.

If you have read here for a while, you will recall that I have really had to work via exposure therapy based messages and activities to make changes to be able to do ordinary, every day activities. This is the first part of the story and here is the second one.

I had ticked a pretty major (for me) life experience challenge box when I drove to Sydney on Monday especially to meet a friend for coffee and a catch up. Awesome and planned by me and I was so glad to be doing it. However, my gut rumbled and let me know:

 “ah ha you are about to get in the car and go down the M1. This is something that you have been scared to do because of IBS”

I refused to play the old IBS, crying, fearful game and instead, took some preventative action and had a successful drive, a wonderful catch up and came home with no ill-effects.

Go me. Right? Right! Until this…

The next day. I had found I was pretty tired from the physical and emotional effects of yesterday’s much wanted success and when I had my IBS back again AND needed to leave the house to go to the hairdresser, I did similarly to the day before, and gave myself the meds, the talk and set off. I was OK. Mind you, I remained somewhat on high alert and that bothered me because:

In the past, I would have had  the haircut, gone to the loo (again, to see I was OK) then driven straight back home. The place of security and comfort.

But something stopped me. These words:

Do The Hard Thing

Why did I listen? Well, based on my past experiences, I have often regretted being beaten  by the fear once I am home. On this occasion this was the conversation in my head:

Do you want to go straight home and then regret not going for a coffee which is your daily treat?

No, I don’t

Then stay, and sit down for the coffee and do something in your art journal so your mind & body  know who is in charge.

And that was how I did the first hard thing that day.

Next one was this. As I usually drive home from The Entrance, I stop somewhere close to the water and take photos as I notice nature for that day. Instead, I told myself to do another hard thing. I drove in a different direction, to Long Jetty, got out of the car, walked and took photos and a little vid without rushing at all.

This is now my locked screen saver.

These two instances might sound small to some readers but I know that I valued myself more highly for doing something that was out of my comfort zone on two different days as I know how much that helps my inner confidence and ways in which I manage IBS.

It is not the end.

It is never the end.

As long as there are things within me that are scary (to me) and may heighten my gut’s reactions, I am going to need to continue to do the hard things.

For too long, I have avoided hard things and that made me even sicker emotionally than ever. I do not want to go back to that space again.

Next week will be about the why of this strategy and how important it is not only to me, but those readers who let me know about their hard things in the comments.

What is the hard thing for you?

Is there more than one?

Do share in the comments.

Thank you.

Denyse.

Joining with Kylie for I Blog On Tuesdays here and with Sue and Leanne here for Midlife Share the Love.

 

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Appreciation In August. #5. 2018.85.

Appreciation In August. #5. 2018.85.

Five weeks of Appreciation posts are concluding today with a list of people and businesses I wanted to share my appreciation for in my life and to spread the word to my readers and fellow bloggers. I have not been, as they say, sponsored nor paid for my post, I just tell things as they are. Enjoy!

The Big Hug Box

I first heard of the Big Hug Box and its founder, Lisa, via social media. Lisa tells her story on the website here and as a cancer survivor (from a rare cancer) she wanted to raise funds to give back to research. Lisa is a wife and an energetic Mum of 2 from Newcastle , who admired my hand-made book marks when she saw them.  I offered a suggestion of these as an inclusion in the gifts especially for those newly diagnosed with cancer & Lisa said “yes, please”. I love that my art can be made into bookmarks by me for others to use.

Thank you Lisa. I know we are yet to meet but I do know how kind and supportive you are. Lisa’s blog post about me recently.

https://thebighugbox.com/

Colour Me Well

Social media, specifically Instagram, was where I first saw the development of a colouring calendar from Sharon, at Colour Me Well. This is based on her experience as a cancer survivor where during her treatment she started making boxes on a page representing the treatment days, and colouring them to remind herself of how far she had come.

The calendar comes in a presentation box with a tin of quality pencils. Here’s my little story of becoming involved. Sharon was considering a new product, a greeting card/small gift with a message of kindness, connection and hope and she saw that a mandala would be an ideal mindful colouring pattern on the front.

I liked the idea, of course…mandalas..and set about designing specific once for Cards. Of the 6 designs available, four have been drawn by me. I have no payment for these. I did these out of love for helping others and again, of giving back!

https://www.colourmewell.com.au/

 

Fight Cancer Water Bottle

This is another venture by a cancer survivor who is Sharon too. As I watched the Instagram posts of @fightcancerwaterbottle I soon realised we lived in a similar area. When we met one day by “happy accident” this snap was taken and since then we have been out for a coffee. To read the story of this special water bottle and where the funds from one purchased ends up, it is all on the website.

https://www.fightcancerwaterbottle.com.au/

 

My Blogging Friend and C0-Owner of Skin Boss Australia is Kirsten.

Around the same time she and her husband started this unique business, I was in hospital recovering from my first BIG surgery. Via the kindness of many on a social networking group & this new business I was sent, among other items, Skin Boss Get Up and Glow and Skin Boss Sleep On It. (aren’t the names great?). To read more of the Skin Boss story…and to order some oils of your own as I have (the Body Oils were added recently ) go to the website. I did have to wait a while (some months actually) before I could regularly use the oils on my face as my skin was numb and tender. But now, it is a routine: day and night.

https://www.skinboss.com.au/

Little Blue Wren

I first heard of Jen (little blue wren) as she is a local Newcastle person helping develop products which help skin, specifically the lips. This product is part of the Big Hug Box. I also bought two of her lip balms and one sits on the desk where I am typing, the other on the desk where I create. They are lovely.

1 x Citrus and Peppermint Lip Balm – made locally here in Newcastle by Little Blue Wren. It’s blend of Citrus and Peppermint has been made with the highest quality “Young Living” Oils. (from The Big Hug Box site)

Find her products on Instagram.

https://www.instagram.com/little.blue.wren_/

 

Reading This. Listening to This Book.

I was drawn to this book by Megan Devine after following her Facebook page called Refuge in Grief. Her story as both a counsellor and someone who had the love of her life die in front of her is compelling.

I know that having a cancer diagnosis can feel like a death. Of the life that was an is no more. It is not something I dwell on much as I would rather not be consumed but I do know that listening to Megan read her book (I am a car listener) had me throwing out what were my beliefs about grief.

 

Kindness of “Strangers” ….the people in my Instagram Feed...you know what I mean!

I have followed a delightful and generous woman who I will call Linda…because THAT is her name! I really cannot recall exactly “when” we started to know each other via the usual social media channels but I do know I lucked in with her as a friend. She is one of my “cheerleaders” and I love her for this more. Recently after arriving home from yet another trip to Westmead a LARGE and somewhat weighty packed was on the kitchen bench. I smiled, when I saw the sender…and then I laughed and laugh/cried when I saw the contents. An amazing and beautifully hand crafted crocheted blanket that almost covers my king-size bed…in MY favourite combination of colours AND with a mandala in the middle. Swoon. It is the BEST. As is she!

 

 

Now, as you already know, if you have come this far, that my skin has been problematic for more than a year. My lips especially. I needed something very very dense and something well-known as a salve for skin.

Lanolips was it. I messaged them and told them of my situation and within a week or so, I got some mail! I was sent three types of their product and the bigger one is used just before I go to sleep. It really really helps.

Here is where to find them: http://lanolips.com They are a wholly Australia product. On Instagram: @lanolips

Mindfulness and Meditation.

I have had more than 3 years taking time each day (or night) for some specific meditation activities. For 3 years I paid for a Headspace subscription  and with a 30 days of Cancer program found that really helpful in my early months after diagnosis. Mid year, I changed tack and now have the Calm App as my meditation (and sleep stories) as a great find. Then just last week I became a founding member of Buddhify (they have a free app too) because I wanted to have more variation and one to listening to during the day.

I have found of course, just going outside and being in nature helps as does creating but if you are looking at apps for yourself, there are 0nes I have appreciated and enjoy.

Beyond Five.

I have known about Beyond Five since my cancer diagnosis in May 2017 but I was not really in a ‘space’ to take on much of its important information about Head and Neck Cancer until I was further into my understanding of “my cancer’. Squamous cell carcinoma. More about all of that here in my page.

Back to Beyond Five, which is a charity wanting to spread the message of early and timely diagnosis of all Head and Neck Cancers. From May this year until World Head and Neck Cancer Day on 27 July 2018 Beyond Five ran its first fundraising venture called; Soup for the Soul. I joined in with a Virtual Soup for the Soul event and over $400 was raised just by that. In total, $28,000 was raised. Most work and spreading of messages is via Head and Neck cancer support groups of which I am a member as well as on social media.

Some ways in which I appreciate the work is to tell more people of its purpose, including meeting my Federal MP to let her know more. Find Beyond Five here: 

My Dressing With Purpose, Art Journalling and Coffee.

Long time readers and followers know that I dress, with purpose, each day (and have done, with few exceptions) for almost 10 months now. Every. Single. Day. I generally go out by myself to have a coffee somewhere locally (I am up to 17 places now!) and I take time to reflect in my art journal. I find if I do not, for any reason, get to do this on one day, I am really, really ready for it the next day. The wonderful and sharing Styling You, Nikki Parkinson, has an amazing website and blog here, recently celebrating 10 years of helping women make the most of themselves….well, that has worked for me as I often share my daily photo on the facebook group and have won a weekly prize of Nikki’s book called Unlock Your Style.

 

The best is saved for last. This person. With me.

Words are inadequate for the depth of love and appreciation I have for the man, my husband, who had held me, comforted me and told me to use my skills in re-framing my thoughts and oh-so-much more…and who kind of forgives me for not measuring up to his cleaning standards…especially in the kitchen! 

This is the first photo of us…for a LONG while…where I can smile fully and it was taken by our 6 year old granddaughter on Sunday. Thank you Miss E.

Who or what are you appreciating today?

Denyse.

Joining here with Leanne for Lovin’ Life Linky.

 

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Appreciation In August. #4. 2018.80.

Appreciation in August. #4. 2018.80.

This post is short on words…but long on gratitude and appreciation.

This collage represents much of my cancer story: from diagnosis in mid May 2017 through to adjusting to the notion I had cancer …then surgeries…four in all…and recoveries…and 21 visits (and more to come) to the prosthodontist at Westmead as of Tuesday 21 August 2018..

 

But it’s been a BIG news week for me and I wanted to share (via two little vids) how I was on the day before my new upper teeth were added to my gums/jaw (remember, they came from my right leg) and then the day after….

It is for me as much as anyone as we cannot always notice our own progress which is why I made these.

 

And then….my set of upper teeth (prosthesis) was attached (screwed in) to the abutments in my jaw (thank you fibula) on Tuesday 21 August 2018. For 412 days I had no upper teeth!  Here I am talking….cannot stop me…24 hours later!

 

Thank you to all who have commented, read my posts and supported me in so many ways that I cannot count.

I appreciate each and every one of you.

You are my cheerleaders!

Denyse.

Thank YOU Each & Every One of YOU.

Joining with Leanne for Lovin’ Life Linky and Leanne knows all about the value of cheerleaders!

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