Sunday 15th December 2019

Colours I Love. 44/51 #LifeThisWeek. 109/2019.

Colours I Love. 44/51 #LifeThisWeek. 109/2019.

So, dear readers, it would seem that “I LOVE a lot of COLOURS” and this is why my blog emblem/avatar looks as it does.

I even colour-coded my initial categories from the start of 2016.

Life      Education       Health        Stories       Photos        Creativity      More

and for this person, it really helps to have such a visual reminder.

Colours I Love.

The list is shorter if I write colours I don’t love. Brown & beige would be tops and some tones of green, orange and yellow. BUT Yellow is my friend now in art, gardening and clothes because I now understand it helps lift the colours it is near. 

I know that colour affects my mood and outlook. I learned over the past few years that making something creatively using colour was a huge game-changer for my recovery from anxiety, IBS and then head and neck cancer. In fact, only recently, I have learned to keep a large colourful sheet of art I am creating to access to I can embellish it with patterns or just add more colour as it centres my mind on just that one thing. Brilliant for a mood or feeling shift for me.

Wearing Colours.

No matter what size I have been (and there have been a few!) colours have always been part of my wardrobe. Back in the days of work and being very overweight black would often be part of my outfit, usually as pants and/or jacket. Since my body shape and weight changed after head and neck cancer it’s been fun to explore more colourful pants and shorts. I find I am more confident to do this now. It still took (and can take) time for me to adjust my thinking.

Surrounding My World With Colour.

Whilst we are renting we make do with the blank canvas we have as a house that needs to remain so, but we have added (my choice) two very colourful rugs and I display photos in colour as well as some of my art. Furnishings which are 0ne colour/dark (chairs etc) have cushions as brighteners too. My car is red. I make no apologies. I love it. No it doesn’t go faster but I sure feel confident driving it. Just need to be more careful not to hurt it again as I did in distracted moment last year.

Why Colours?

The last thing I am is science-oriented but I did feel it would be helpful to find some research and interesting facts about colour. Here we go. Yes, US spelling.

https://psych-neuro.com/2015/03/13/why-do-we-prefer-certain-colors/

Everyone has a difference preference for colors, which is interesting and unique. We choose colors when we choose clothes, a car, a notebook, and a water bottle; basically color is taken into consideration for almost everything we buy! We pick most things based on colors we like so why is this? There isn’t really a rational influence to our decisions other than the color evokes an emotional and physiological response in us. Ultimately we decide what colors we like because of what we associate them with and the meaning that accompanies them.

Interestingly for me, I actually store my pencils and markers into groups called Warm and Cool Colours! Yes there can be some overlap for instance a yellowy green or a pinky purple but the system works for me. NB: markers sorted into warm and cool. 

Planning the colours for one of the 100s of mandalas I have created

Warm Colors

Cool Colors

•Warm colors include red, orange, and yellow, and variations of those three colors.

•Red and yellow are both primary colors, with orange falling in the middle.

•Warm colors appear closer to the observer.

•Cool colors include green, blue, and purple, and variations of those three colors.

•Blue is the only primary color within the cool spectrum.

•Greens take on some of the attributes of yellow, and purple takes on some of the attributes of red.

•They are often more subdued than warm colors.

•Cool colors appear farther from the observer.

https://www.usability.gov/how-to-and-tools/methods/color-basics.html

https://www.colormatters.com/color-and-vision/how-the-eye-sees-color

One Favourite to Wear is:

Red is the color of extremes. It’s the color of passionate love, seduction, violence, danger, anger, and adventure. Our prehistoric ancestors saw red as the color of fire and blood – energy and primal life forces – and most of red’s symbolism today arises from its powerful associations in the past.

Red is also a magical and religious color. It symbolized super-human heroism to the Greeks and is the color of the Christian crucifixion. Red was almost as rare and as expensive as purple in ancient days – a fact that may explain its magic and power. Paradoxically, today’s intense red dyes come from crushed insects (the lac beetle and the cochineal).

https://www.colormatters.com/color-symbolism/the-meanings-of-colors

I love colours.

Simple as that.

Tell me what colours you love!

Denyse.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next Week’s optional prompt is: 45/51 Share Your Snaps #9 11/11/19

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Self-Care: Share Your Story #5. 34/51 #LifeThisWeek. 89/2019.

Self-Care: Share Your Story #5. 34/51 #LifeThisWeek. 89/2019.

The past few weeks have been less about self-care and more about caring what others think and say.

I “know” that is not the ideal way to live my life going forward but in some ways I think it’s connected with a major life-experience which was about to occur at this time of year in 2002. I wrote about it here. I get to this time of year and ask myself ‘what’s wrong?’ when I have nothing much happening to make me feel a little less confident and emotional. Then I look at the date. So, knowing this helps and it reminds me to accept that I still have sad feelings about how I had to walk away from my principal’s role but that I also got on with my life as best as I could once the first 12 months of being treated for the effects had helped.

I have written about this in a series of posts last September if you would like to read them.

September Stories 1. September Stories 2. September Stories 3. September Stories 4.

I also used my story for my Women of Courage post, here.

Self-Care and What It Looks Like Now For Me.

Appreciation For The Support & Love. Moving On.

 

Doing this more. Getting Outside.

 

If I do not care for my mouth and prosthesis properly then I am not self-caring for my physical health. My daily routine.

 

This was something different. Very small pizza, takeaway. Two meals! Worth it? Not really but I gave it go.

 

Using some of my me-time for creating and liking the results.

 

My daily coffee, treat and using my mini art journal. Getting out every.single.day. whether I feel like it or not IS the best self-care I have.

 

Letting others know of my appreciation for them. Self-care is shared.

 

This was important to me from a self-care and love viewpoint. Top images this year, bottom ones a year ago. I was so pleased, despite some weight gain (with teeth!) I could still wear the clothes.

So I found some examples in the end. Thank goodness. I haven’t really lost the ability to self-care, it’s just a blip in the progress I am making and I am honest enough to share the reasons as I see why.

How is your self-care going?

What’s your best tip for when you are least feeling like being self-caring?

Denyse.

 

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

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What Is The Hard* Thing? Part Two. 2018.94.

What Is The Hard* Thing? Part Two. 2018.94.

Last week I began this topic here and had a number of commenters who added their own hard things to the discussion.

What was common to many was the fact that even though they did not want to really do “their hard thing” they were prepared to give it a go and in most cases were pleased to have done so.

That mirrors my own experiences.

Thank you for sharing, everyone.

I found a couple of websites here for those who want to learn more, here and here.

Remember this is not an advice post, merely my story. Wikipedia has also provided a quote.

Exposure therapy is a technique in behaviour therapy thought to help treat anxiety disorders. Exposure therapy involves exposing the target patient to the anxiety source or its context without the intention to cause any danger. Doing so is thought to help them overcome their anxiety or distress.

About (My) Exposure Therapy.

I am not a trained psychologist nor therapist but I am someone who has been taught what exposure therapy is and whilst I did not like its title (I called it my challenges!) I can outline how it was explained for me.

My psychologist brought up exposure therapy as part of her helping me learn what I had to do next after getting myself more confident about some social things I had previously resisted. These included driving to Sydney and going to the Dentist. However, I was resistant to learning how it could help me conquer my fear about IBS and getting ‘caught’ short.

She outlined a list of 1 -10 and then asked me to tell her hardest (the 10 end) and easiest (the 1 end) activities I would be prepared to try and then to do them before the next session and report back. Exposure therapy continued to be resisted by me even though I had the knowledge, and a counselling-trained husband encouraging me. What to do? Nothing was improving, so I did some of the challenges at the easier end:

  • go out in the car about 15 minutes and not go to the toilet just to check I am ok,
  • go out again and not take an immodium in my bag just in case
  • go out for a longer time and not race home because it is too hard not to be sure about my IBS.

And then I HAD to face my worst fear and do a trip to Sydney to Lifehouse, see surgeons about my newly (24 hours previously) diagnosed cancer and be a passenger in the car. Three things! My G.P. said “take the valium, take the immodium” and my husband stopped at any loo along the way. I DID it all. Yes, with some drug help but no IBS.

That changed things a LOT. It did not happen just from that ONE experience…I had many more drives like that to face and surgeries but it was the beginning of getting better acquainted with of what I COULD manage by my thinking and doing.

In fact by early March 2018 I decided I could now drive myself to Sydney for the many treatments at Westmead Hospital. Yes, I still do get some IBS in the days leading up but I manage it. No, I do not scold myself any more nor cry about it. I get on with it. It will never be easy-peasy but I will continue to have my mind “do the hard things” and not be beaten by the anxiety of having IBS. By the way, this photo below is me having finished my 23rd session of measuring, treating and fitting at Westmead Oral Sciences. I drove myself to 18 of these!

Monday 10 September with my prosthodontist and nurse. No more visits for 4 weeks!

My Added Story.

Way before cancer and me learning about exposure therapy but when IBS was robbing me of experiences such as visitign the family in Sydney or going there for a social reason, I used to push myself to do some to these as it was “too hard” not to do them if that makes sense. One was (and still is) a family-duty visit to see my elderly father. I say duty because I really do not enjoy these visits much yet I also want to ensure he is OK and leave some meals and snacks I make for him. A long time ago, he tried to understand my IBS and made adjustments to my visits so we just stay in his apartment and talk. The times he insisted on going out for a meal or snack…well, they ended badly for me so he compromised.

With Dad – early 2018.

When I drove back home up to the Central Coast from the Northern Beaches  in the years preceding my cancer diagnosis I always stopped here. Sometimes I still do. In this space of nature, just off the busy and noisy M1, I get a sense of calm and success at having met that challenge of the journey and the reason. When I was there last week, I made this little video.

That’s not quite it from me in terms of the hard things.

What I have realised since even thinking about this post, is how much I do need to continue to encourage myself to take part in life’s changes. You see, I thought getting my teeth would be awesome and it is, but it added another layer of thinking to my concerns…so, if I can eat what I want to eat after so long, what will it be like if I become very overweight again and cannot fit into the clothes I bought in the last 12 months? I tells ya, it never goes away does it…this hard thing!

Comfort Zones.

No such thing really. Well, in my opinion, sitting or staying in your comfort zone helps you stay stuck.  was in mine for a while when I would go nowhere but when I think more of it is was a DIScomfort zone. I did not like the me that could not get herself motivated* to go again.

*I have not been diagnosed with clinical depression nor anxiety. I have been affected by reactive depression (sadness and tears) but that often resolves within a day. My ‘anxiety’ is more of a worry thing and has been part of me since I was a teen. My doctors and psychologists believe I am managing well. The very low dose, old fashioned anti-depressant I am on each evening is to help me sleep and it s l o w s  down my inner gut workings. If you have been diagnosed with either or both: depression and anxiety, then you should speak to your health professional about the types of things related to exposure therapy.

Moving On. My Next Challenge!! 

I am going to be OK as long as I eat well and mindfully because when I was very overweight I ate mindlessly most of the time and to stuff down feelings. See here, if you have not read my story. So, I AM different to the Denyse I was then and I have new and better skills to manage my emotions and life since cancer.

Wish me luck!

Hope you are all doing well too.

Denyse.

Joining with Kylie here for I Blog On Tuesdays and with Sue and Leanne here for Midlife Share The Love link up.

 

 

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What Is The Hard* Thing? Part One. 2018.91.

What Is The Hard* Thing? Part One. 2018.91.

Hard* as in challenging. scary, not easy, fearful, anxiety-making…but ultimately will or does help with personal growth, wisdom, satisfaction and sense of accomplishment …no matter how big or small.

The ‘hard thing’ is something I have had to accept and do if I want to move on or forward in my life.

There are times when the hard thing can feel too hard or even unacceptable for me to try to do or be.

Noticing nature helps me focus on “just one thing”

Here’s an example.

Last week I had an elevated feeling of anxiety/worry about my irritable bowel syndrome (IBS) ramping up to let ME know what my thinking self was not aware of. That is, as I understand the mind vs the gut thing, that my IBS was ramping up because it sensed a fear situation happening.

If you have read here for a while, you will recall that I have really had to work via exposure therapy based messages and activities to make changes to be able to do ordinary, every day activities. This is the first part of the story and here is the second one.

I had ticked a pretty major (for me) life experience challenge box when I drove to Sydney on Monday especially to meet a friend for coffee and a catch up. Awesome and planned by me and I was so glad to be doing it. However, my gut rumbled and let me know:

 “ah ha you are about to get in the car and go down the M1. This is something that you have been scared to do because of IBS”

I refused to play the old IBS, crying, fearful game and instead, took some preventative action and had a successful drive, a wonderful catch up and came home with no ill-effects.

Go me. Right? Right! Until this…

The next day. I had found I was pretty tired from the physical and emotional effects of yesterday’s much wanted success and when I had my IBS back again AND needed to leave the house to go to the hairdresser, I did similarly to the day before, and gave myself the meds, the talk and set off. I was OK. Mind you, I remained somewhat on high alert and that bothered me because:

In the past, I would have had  the haircut, gone to the loo (again, to see I was OK) then driven straight back home. The place of security and comfort.

But something stopped me. These words:

Do The Hard Thing

Why did I listen? Well, based on my past experiences, I have often regretted being beaten  by the fear once I am home. On this occasion this was the conversation in my head:

Do you want to go straight home and then regret not going for a coffee which is your daily treat?

No, I don’t

Then stay, and sit down for the coffee and do something in your art journal so your mind & body  know who is in charge.

And that was how I did the first hard thing that day.

Next one was this. As I usually drive home from The Entrance, I stop somewhere close to the water and take photos as I notice nature for that day. Instead, I told myself to do another hard thing. I drove in a different direction, to Long Jetty, got out of the car, walked and took photos and a little vid without rushing at all.

This is now my locked screen saver.

These two instances might sound small to some readers but I know that I valued myself more highly for doing something that was out of my comfort zone on two different days as I know how much that helps my inner confidence and ways in which I manage IBS.

It is not the end.

It is never the end.

As long as there are things within me that are scary (to me) and may heighten my gut’s reactions, I am going to need to continue to do the hard things.

For too long, I have avoided hard things and that made me even sicker emotionally than ever. I do not want to go back to that space again.

Next week will be about the why of this strategy and how important it is not only to me, but those readers who let me know about their hard things in the comments.

What is the hard thing for you?

Is there more than one?

Do share in the comments.

Thank you.

Denyse.

Joining with Kylie for I Blog On Tuesdays here and with Sue and Leanne here for Midlife Share the Love.

 

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Reality Bites. Part One. 2017.96.

Reality Bites.Part One. 2017.96.

Today, 6 August 2017, as I write, it is exactly ONE month since my cancer surgery on 6 July 2017.

I am calling this post ‘Reality Bites’ as the consequences of the diagnosis of cancer, the pre-op visits and treatments and then the ultimate ‘reality’…. the complex and major surgery in my mouth and on my right leg have truly ‘bitten’.

I am writing it out so I can honestly tell you, my readers, that I am NOT doing so well in that emotional sphere at the moment.

This is despite my previous posts where I appeared to be going so well. I was/am in a physical sense.

Readers who want to read more about what this surgery was about can go here:

my diagnosis….my updatesmy grateful post #1my grateful post #2.

Reality has bitten in the form of a heightened emotional response (and IBS frequency) to what has happened to me…my feelings are catching up with what I have been through – from date of diagnosis 17.5.17 till now. (less than 3 months!)

Here is how it is for me NOW as I recall memories that are not great and are affecting me somewhat even though I know things will get better over time.

  • Wow, it’s been one month since the huge operation which I  knew was going to (hopefully) take all of the cancer out of my mouth and leave me with a reconstructed mouth using tissue and bone from my right leg.
  • I recall my feelings of being totally overwhelmed when the surgeons began to describe how they would ‘fix’ this cancer in my mouth only one day after I found out I HAVE cancer.
  • I got through the drive home after that with my hub on my least favourite road (M1) as I tried to wrestle the past 24-48 hours into some sort of sense for me. It was surreal.
  • At home I ‘tried’ to go on with ‘normal life’ but that is impossible when the word C A N C E R shone like a red light in my mind constantly.

“last smiles” were/are treasured but under those false teeth it’s cancer

  • I made  plans and prepared for hospital,  making meals for later,  and making sure I had sufficient clothes and activities ready to take to the hospital but it was surreal. I was doing this BECAUSE I have cancer. It still did not make sense to me.
  • I know that I saw my GP and psychologist about the surgery and what is meant to have cancer and yes, I cried sometimes but other times I was just numb. THIS could not be happening to me!?
  • My mouth and its discomfort and smell were the source of the cancer and I began to ‘hate’ it.
  • I also knew this surgery was going to take away 3 things that were and are precious to me: smiling, communicating and eating. Made me sad and quite stressed.
  • I was resigned to what the operation was but I truly had no idea of how it would impact me because it was like I was somewhat detached.
  • I knew that the surgery would be within 4-6 weeks of our consultation with the surgeons but oh how those weeks dragged on as I wanted to surgery to be over…but I also did not want to have it. So horrible. It  ended up being 7 weeks after diagnosis.
  • It took me weeks to finally get out the hospital forms and complete them. I just couldn’t before. I had to make myself do them. Filling them out meant, of course, I HAVE cancer and HAVE to do something about it. 
  • I made a decision to stay in a ‘cheap place’ the night before surgery and I so regret this as we were uncomfortable and I spent some of the time ‘feeling guilty and responsible’ because I have cancer. 
  • On the day of surgery, at 6.00 a.m. we  presented yourselves at Chris O’Brien Lifehouse, and then once ‘checked in’  I undressed and got into the paper gown which meant THIS is about to happen. O.M.G. 
  • I said goodbye to my husband and was off….the journey into the unknown…the operating theatre.

I’ve written two posts (see above) which described how things went for me in hospital so I will not outline any more here today.

The next post will outline what happened emotionally in hospital and then my homecoming. I have chosen to write about it all from an emotional perspective as life as a cancer patient post-surgery is affecting me and writing it out is to help me.

At home in my first weeks.

Have you had cancer?

Do you have an experience of having a life-changing event for you where things caught up with you later on?

I appreciate your comments and support. I am not looking to ‘get advice’ as I think that in recognising what is happening to me and letting it happen is probably the healthiest way I know how.

Thank you for your support!

Denyse.

Joining with Kylie and friends here for I Blog On Tuesdays and here with Leanne and friends on Thursday for Lovin’ Life linky.

 

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What’s in a word? Cancer. 2017.82.

What’s in a word? Cancer. 2017.82.

Since I heard the word, cancer, to describe what had been found via pathology from the biopsied tissue from my gums, I have seen it and heard it everywhere. However, I think, it’s like when I  first become pregnant, I saw other pregnant women everywhere.

It’s more noticeable because it affects ME. So, whilst there is still no word (ha!) on the exact  date for my cancer surgery, I thought it timely to write a post.

I have been incredibly well-supported already by those in my friendship realm here in the blogging world and elsewhere.

Each has been from someone who has had cancer, knows someone with cancer, and is currently being treated for cancer.

I read recently  that 1 in 2 of us will have cancer. Wow!

My family of course have expressed their concern and care for me. I have been visited by almost all of the immediate family and that has been lovely. What I have found too is the outstretching of hands (figuratively) of so many is helpful and reassuring which is why I blog about it.

Here’s what I wanted to share briefly:

I had been on a roller-coaster of emotions ANYWAY before I was diagnosed with cancer, so to add cancer to the mix has raised those anxious thoughts of mine to greater levels. But, I am thankful that I was already doing much to help myself with anxiety and adjusting to our new way of life. Meditation, being more mindful, walking, being outdoors, blogging, enjoying some Netflix with my husband, going to the beach, taking photos, supportive health professionals  and generally engaging on social media are already integrated into my life. So, they have become tools for managing my thoughts about cancer too. 

Thank you to the many people who have sent me messages, cards and let me know that I am in their prayers, thoughts and hearts.

“We are all just walking each other home” Ram Dass.

It is very humbling to have such a lovely group of you with me.

Most of all, I thank my husband who is already my finest supporter and rock! He will be with me as much as he can within the first days in hospital and I know, not matter what state of grogginess I may be in, he will be within arms reach for me. That IS love. I am so lucky.

Thank you everyone. I hope that if the word ‘cancer’ is part of your world by association or for you that you too will be cared for and about like I have been. I am blessed. This image is one I am using when I need to take myself to a more enjoyable mindful place. Enjoy!

I am grateful every day.

UPDATED: About my present state of health. 

When I wrote this post I thought I was managing myself quite well. Since then, I have had some pretty horrid days (and nights) where I have become fearful, panicked, and so vulnerable I wanted to go into a corner and hide and never come out.

I am shit-scared right now.

I am worried about losing what I valued: my mouth where I speak, eat, share my emotions and smile. It has been days of crying uncontrollably, being held until I calm down (thank you dear B) and taking some valium (which I don’t really want to) and letting out the fears  in words between the sobs. 

I fear: the loss of ability to use my mouth for at least 7-10 days, have a naso-gastric feeding tube down my throat for those days, having the skin/flesh/bone from my right leg inside my mouth after 3/4 of my upper jaw/palate as been removed. Dealing with the not being in control.

I am, as I write, unable to really express what it means to be facing this loss of control of my body. I will be in ICU to start and may even have a tracheostomy to start if the mouth is too swollen. This is very scary to me, and I am admitting it now.

For me to admit how vulnerable I feel right now is to say “I cannot do this without help”. My husband reassures me he will be there as much as possible, and given how I will look and be, he will be my only visitor until I give any indication I can see others. I am facing the unknown and that as we know is the scariest place to be. I will be losing my smile….for more than a while. Possible 3-4 months until my upper jaw recovers.

Have you faced major surgery of any kind for cancer and other reasons?

How did you deal with it?

I am so wanting some answers that help me know – in the pre-surgery phase that I am not alone in my fears. 

Thank you for reading this far! I appreciate that very much.

Denyse.

Joining Kylie Purtell here for I Blog On Tuesdays link up.

Linking here on Thursday with Leanne and friends for Lovin’ Life.

 

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