Thursday 24th January 2019

Not A Smooth Recovery Path For Me: Head & Neck Cancer. 2018.133.

Not A Smooth Recovery Path For Me: Head & Neck Cancer. 2018.133.

Update One: Monday 24 December, is that whilst it is always disappointing to have changes like this in recovery, I am actually able to manage the issue of pain, when it arises and am feeling better in general.

Update Two: Monday 14 January, the pain comes and goes but the news from my Head & Neck surgeon is that he was looking for cancer when I saw him on 8 January. This made me quite concerned. Whilst there was not cancer there as he could see, I do now know there could be another surgery this year. Sigh.

It’s Friday 21 December 2018 and not a normal blogging day for me at all.

But, head and neck cancer recovery is not ‘normal’ I guess!

My blog has been a great source of comfort to me as I can write down what is happening to me, and often receive support in return.

That is lovely.

Today I just need to share this story.

Since my last blog post here, I have continued to be back and forth to the great team I have at Westmead: my prosthodontist and nurse. Each visit since October – when I last saw my Head and Neck cancer surgeon and nurse – has been about:

  • checking the health of the skin which was added to my upper lip (under it) last May
  • checking I am keeping the metal abutments clean where they are attached to the upper teeth prosthesis
  • and fitting me for a partial lower denture to add to my remaining 8 teeth

Showing my mouth’s flexibility – reduced now.

I have had some pain. It is like a sharp nerve pain and each time I mentioned it I was told it is part of ‘re-modelling’ and I have taken that to mean, this will go on as my new mouth and lip settle into their space. I am pretty good at managing pain but earlier this week I needed to share what had been noted by me after seeing my G.P.

  • the pain, which initially we/I thought was from some abrasion of the new tender inner side of the lip against the prosthesis was not likely to have been only from there…because
  • when I tried to use my small micro brush to clean in between the gaps left at the top of the screwed in prosthesis there was  no gap 
  • where the gap had been was skin, resting and immoveable, onto the top of the acrylic prosthesis

After my G.P. saw it, I sent these photos to my Professor and the Prosthodontist. The prosthodontist rang to say, stop using the microbrushes and use the water pik only to clean. The professor emailed to say “come and see me early January for a closer look”.

Yay to having responsive professionals. Very grateful.

Not so happy for the pain it is causing, the lip tightening even more and the disappointment that things are not going as I had hoped. Probably as my team had hoped too!

On the positive side, I have overcome setbacks before AND I trust my professional team BUT this is not a situation I imagined.

Skin does its thing it seems. My post here is about how the stent being taken out too soon prevented the full healing and I needed a 4th surgery and then over 3 months with a new stent.

I seem to think….more surgery may be on the cards.

Sigh.

I am taking pain medication as advised by my G.P. I am doing all I can to treat myself more gently. I am looking forward to seeing the family on Christmas Day here but my eating may be even more compromised by then. Who knows?

Many I know in the Head and Neck cancer support groups are in quite different stages of healing, acceptance of many aspects of their recovery and managing things well. I am buoyed by them, and already support for me and my update has helped. I also know as an Ambassador for Beyond Five, that those of us with Head and Neck cancers are affected by treatments long after the five years.

I am just over 19 months since diagnosis. I am also less patient than some! I am, always very grateful for my cancer treatments and follow-ups in an Australian setting here:

Chris O’Brien Lifehouse

The late Prof Chris O’Brien. In the hospital named after him.

Westmead Oral Restorative Sciences

Thank you for your support, friends from blogging land and readers!

Denyse.

 

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Christmas.51/52.#LifeThisWeek. 2018.131.

Christmas.51/52.#LifeThisWeek. 2018.131.

My dad used to say I was The Queen of Christmas…and also that I was like a big kid at Christmas…so what he meant was:

I Love Christmas.

From when I was a child, into my teens, Christmas was about:

  • getting excited about Santa coming
  • wondering if I would get what I wanted
  • going to the movies to see “A White Christmas” with my younger brother while our parents entertained friends at home. I liked the movie, but I am not sure about my bro. Could ask him I guess.
  • before we moved to Balgowlah Heights, as residents of Wollongong, it was not too far to drive to one set of grandparents for Christmas lunch and to the other for Christmas tea.
  • once we were in Sydney, however, after a couple of those “all day in the car’ experiences, Mum and Dad began hosting at their place and the family members who could, travelled up for the day.

Then as a young married mum, Christmas was always exciting to have at my parents’ house and occasionally at our place or my brother’s.

  • it was a great Christmas eve at our place, going to mass and then Macca’s was a tradition, and some family singing around the tree till time to put the Santa sacks out and snacks for S.Claus and the reindeer.
  • eventually Mum handed over the Christmas lunch duties to me and that was fine as we no longer did the drive across Sydney. Always a hot baked dinner with some cold seafood and ham on offer. A feast. Mum made the pudding and I made the cake.
  • presents were exchanged after some morning tea. That would often be smoked salmon on toast, cheese straws and dips.
  • over the years, as our kids and their cousins got older, we stopped presents and limited them to our parents and within our family, Santa always brought the kids’ ones and we exchanged gifts.
  • oh, yes..my husband introduced the Mystery Gift to our little family and that was always fun to anticipate.

And then, we became grandparents. And to top it off, the first grandchild arrived 2 days before Christmas and she now shares my love of Christmas. She says she got it from me. Well, I will not deny it!

  • family times at Christmas became more challenging as the family membership changed again with partners of our kids too, so we adapted
  • some years, we would go to the grandkids’ houses the morning OF Christmas to see the fun after Santa had been
  • other years, we celebrated with them before or after the day itself
  • gifts became centred only on the grandkids as we reduced family spending and then there was less financial pressure
  • I admit I got to have my Christmas buying fun and each grandchild was also very involved in the tree decorating at our house when we lived in Sydney
  • Christmas is about creating memories and I feel we did that in spades.
  • when we moved away from the families and they too were changing, we stopped gifts, instead depositing some money in their parents’ accounts for the kids to spend after Christmas
  • we make our place a little festive but do not exchange gifts, we just like to share the spirit of the season

Christmas pics taken for the blog by photographing the photos…I know, bit slack! I have two Christmas scrapbooks too.

I hope you enjoy Christmas in 2018 if you celebrate it.

We will be having lunch by ourselves with our daughter, three adult grandkids & one partner and ONE very excited 6 year old. They are driving up here and we will have a ‘grazing kind of lunch’. Some time after the festive season, we will catch up with our son and his family I am sure. I saw my Dad recently for Christmas. It is a day he will spend with my brother and family who live nearby.

Cheers from Denyse.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Joining Alicia here for Open Slather and Kell here for Mummy Mondays.

Next Week’s Optional Prompt: 52/52. Free Choice. We Made It. 24/12/18.


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Head & Neck Cancer: “Beyond Five” Ambassadorship.2018.130.

Head & Neck Cancer:”Beyond Five” Ambassadorship.2018.130.

Last week I wrote a post called Farewell and Hello. It was pretty long so I stopped at Farewell promising to be back for Hello. Here we go!

Regular followers here know that I was diagnosed with head and neck cancer (squamous cell carcinoma) in my upper gums and under the top lip. The whole story is here, in posts, from the day I was told until the recent post on adjusting my eating requirements when I am out of the house.

Hello, I am now a Beyond Five Ambassador!

How this came about was partly after this day in October 2018 when I was back at ‘my’ hospital Chris O’Brien Lifehouse, but I had offered earlier this year if there was any way I could help spread the news about head and cancer awareness I would like to do so. I had already been sharing the work of Beyond Five here on the blog for World Head and Neck Cancer Day 2018.

Following that day, the Board of Beyond Five met, Sr Froggatt and Professor Clark are board members and Nadia Rosin is Manager, Business & Communications,  and I then received a formal letter of invitation to become a Beyond Five Ambassador.

Role of Community Ambassador

  • • Share your personal head and neck cancer story for use in Beyond Five communication e.g. website, social media portals etc.
  • • Raise awareness of Beyond Five through family, friends, other personal connections.
  • • Where possible, attend events e.g. patient support group meetings, education days to help raise awareness of Beyond Five.
  • • Support Beyond Five grant applications where relevant e.g. as a consumer representative.
  • • Provide feedback to Beyond Five to help us improve and develop the way we work.

About Beyond Five.

Background

Beyond Five was established in December 2014 and is Australia’s only not-for-profit organisation supporting patients with head and neck cancer, caregivers, family and health professionals.

Beyond Five was established to provide evidence based, comprehensive, easy to understand and easy to access information to everyone, regardless of where they live.

Beyond Five is the first organisation in Australia supporting patients and their families through their cancer journey, from diagnosis to treatment and life after cancer.

Mission

Beyond Five’s mission is to improve the quality of life of everyone affected by head and neck cancer through education and access to support and to raise awareness of head and neck cancer nationally. We are committed to working collaboratively with all specialties across Australia to achieve our mission.

 

I have joined the inaugural Ambassador, Julie McCrossin and Marty Doyle too. Their stories and mine, can now be found here on the Beyond Five site. There will be more ‘thinking time’ for my involvement and what form it may take as everyone is going to be on a break soon. We are getting together in February 2019. I look forward to helping where I can especially now I am post almost all of my cancer treatments and now in ‘check-up and check-in’ mode.

I know that I am keen and ready to help others learn more about head and neck cancer as it is not well-known. In fact I had no idea you could get squamous cell carcinoma inside your mouth (and other areas of the skin inside the head & neck region, till my day of diagnosis in May 2017.

And here we are sending Season’s Greetings.

I wish that no-one had cancer of any kind, of course, but the fact of life is we do. I want as many do, to help pay back the time and effort and research that has gone into the amazing surgeries and mouth reconstructions I had. That I can smile and eat well again is testament to the wonderful work of my team and their integration of allied professionals too. I have written posts about how many helped get me well again. Now, it’s onward….and to say I am glad to be an Ambassador for Beyond Five is an understatement. It is an honour and a privilege to be in this new role.

I want to do the role justice, and help others as I too have been helped.

Thank you to the Board of Beyond Five for entrusting me with this role as your Ambassador.

Denyse.

Joining with Sue and Leanne here for Midlife Share the Love and with Leanne here for Lovin Life link up.

 

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Share Your Snaps 10. 50/52. #LifeThisWeek 2018.129.

Share Your Snaps.10.50/52.#LifeThisWeek. 2018.129.

So this week for the last of Share Your Snaps, I have decided on a shot of me and something from each month around the 10th (date of posting today) since January.

Share Your Snaps will continue in 2019 every 5th week. 

January 2018.

February 2018.

March 2018.

April 2018.

May 2018.

June 2018.

July 2018.

August 2018.

September 2018.

October 2018.

November 2018.

December 2018.

 

 

How does your year of snaps look?

I admit there ARE a lot of ‘me’ here but it is to both encourage me and to show me the progress made in my head and neck cancer journey.

I hope you are not too overwhelmed by the end of year tiredness.

I really don’t have an excuse other than I have done a lot of getting better in my health this year! 

See you next week,

It’s the second last #LifeThisWeek: C H R I S T M A S is the optional prompt!

 

Denyse.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Joining Alicia here for Open Slather and Kell here for Mummy Mondays.

Next Week’s Optional Prompt: 51/52 Christmas. 17/12/18.

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Farewell and Hello. 2018.128.

Farewell and Hello. 2018.128.

Farewell.

In around 2011-2012 (memory fades!) I found a blog on line and one where there was a link-up called I.B.O.T. What the? But I was/am a senior blogger (by age!) and I had to find out more. My blog, back then was a hybrid of education posts, personal posts and photo-centred posts. I was led to Jess (or EssentiallyJess as she became known) site and read that

I.

B.

O.

T.

means “I blog on Tuesdays.”

There was more to this story, I thought so I made enquiries. Jess, in her kindness AND wisdom thought Tuesdays back then were a little light on for link-up parties and she thought of a new link-up with RULES! The rule was the post linked up needed to be a NEW one, not posted before anywhere else, and you needed to get in fast as the link up closed within 24 hours.

You see, there were already link ups in Australia on Mondays, Wednesdays (wordless anyone?), Thursdays were about being thankful and Fridays was a round-up first hosted by Al Tait and then taken over by her sister Bron Maxabella and others. The weekend round up last all weekend. In the years after came more linkups and soon we were spoiled for choice. But Tuesdays remained steadfast: only a blog post published that day and new.

Around 2015-2016 Jess had more on her personal plate than many as she had already begun courses and study which would take her in a different direction, and she reluctantly but gratefully took up Kylie’s offer to take on I.B.O.T.

Now, as happens, life changes, as do needs and directions for blogging vs working and this today, is the last link up for

I.B.O.T. ever.

I will miss it personally and as a blogger. I was part of the team for both Jess and Kylie called #teamIBOT. This was to help, initially, with comments as the link up sometimes got over 100 bloggers!! In recent months, it has reduced to 1/10th and is an indication of blogging changes.

So, to those who have continued to blog on Tuesdays, there are still other link ups here with Sue & Leanne for those in midlife and with Leanne here on Thursdays.

My link-up is returning in 2019 and I look forward to continuing what I like to do best, connect with others!

Thank you Jess and thank you Kylie…and to my fellow bloggers and #teamIBOT members.

Hello!

This is going to wait till next week…..because I want it to have its own space!!

Can you wait?

I hope so.

I will add a hint: I looked like this when I announced my news!

Denyse.

Joining with Kylie here for the final time…and with Sue & Leanne here for, what I hope will be a link up which continues into 2019.FacebooktwitterpinterestFacebooktwitterpinterest
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Taking Stock 49/52 #LifeThisWeek. 2018.127.

Thank you dear bloggers who link up! At this time of year, it gets a bit much for some who are busy elsewhere to blog and link up. Keeping this in mind, there are three more optional prompts for Life This Week in 2018.

50/52.  Share Your Snaps 10. 10/12/18.

51/52. Christmas. 17/12/18.

52/52. Free Choice! We Made It! 24/12/18.

Then there will be a blogging break here to return on Monday 7 January 2019 with these optional prompts.

1/51. Hello Again. 7/1/19.

2/51. “Word/Intention/Nothing” 2019.. 14/1/19.

Meanwhile, I will come up with some more optional prompts over the breaks and publish them on the home page. I do hope, as I wish, that you will be back to link up in 2019 because you are in a community-space here and I love our connections! That IS why I blog! Denyse xx

 

Taking Stock 49/52 #LifeThisWeek. 2018.127.

This is (or till today!) an every 9 weeks’ optional prompt for Life This Week and the last one for 2018. I thank the originator Pip Lincoln who blogs here for her words and sharing. I will continue using Taking Stock in 2019.

I always respond to the words with no reference to previous updates as I like to make it “as it is now for me”. I do know, for me, my changes in outlook and health (both for the good) are seen in my years’ of posts called Taking Stock.

Here we go for today!

Making: time to write a post in the days before has helped me feel more in control of my blogging schedule.

Cooking: more meals than I have for quite some time as I now have teeth up top and below.

Drinking: water as much as I remember which is why I tend to have a water bottle in a few places in the house and with me in my bag – bad day recently though when said water-bottle leaked everywhere on my way to Westmead.

Reading: bios/memoirs almost exclusively and it is Mike Carlton’s ‘On Air ‘I am really enjoying as he is only a couple of years older than me so charts a time I remember well growing up before leaving Sydney to teach in the bush.

Wanting: not much..if I leave out the indulgence that was a desire for an iWatch which I could never justify. A house of our own but I am sick of myself on that score…so not much it is! A sign of contentment I believe.

Looking: outside a lot with the kind of weather we have had but lately it is dark when I look outside…to check the solar Christmas lights are on.

Playing: audible books in my car on the way to Sydney for the reasons related, usually, to post-cancer treatments and the like

Wasting: my time mentioning iWatch. Seriously cannot ever justify it. Will cease and desist asking.

Sewing: it is time for me to delete this one from my list of Taking Stock but I sure know why Pip has it because she is a clever seamstress.

Wishing: politicians were well-behaved and provide a good example to their constituents. And the children of the world.

Enjoying: moments walking on the grass outside. It literally is grounding in my barefeet and I enjoy it so.

Waiting: not for much at all these days and that is good!

Liking: that it is now an established routine for my husband and I to enjoy morning tea out once a week.

Wondering: why we waited so long. Oh. I know. Cancer made it hard for me for a while.

Loving: the man I fell in love with over 48 years ago…even more each day. Yes, old people can stay in love!!


Hoping: that said husband continues to remain well after a somewhat ‘average’ winter/spring.

Marvelling: (but not in a good way) that the horrendous fires in Queensland as I write can be seen from outer space.

Needing: rain which we had here in parts of N.S.W. to move quickly north to where it is needed..oh, & to the west as well where it is still a drought.

Smelling: the sea air these days when I arrive at the beach for a look/walk. It takes me back to family holidays with our kids and after leaving our western Sydney home to arrive at the ocean, we would get out of the car and breathe that salty air!

Wearing: tops, bottoms and sandals more these days, even though I have a few dresses, I am still most comfy in the others.

Following: the sagas on-line of…politicians and propriety, bankers and theirs..oh well. They all need lessons on how to use a moral compass I believe.

Noticing: little dots of colour from the growth of weeds on the edge of the road. They make me smile when I drive along and see them. You just can’t keep nature away from growth.

Knowing: that next year will be a slightly different one blogging-wise with the end of an era called I Blog On Tuesdays.

Thinking: that my post for the last I Blog On Tuesdays tomorrow will be about I.B.O.T!

Feeling: nostalgic about the good old days of blogging but very glad there are many more who join in now and we have a great community here in Australia and overseas.

Bookmarking: pages in Lori Deschene’s little book called ‘Tiny Buddha.’ Lots of lessons there.

Opening: my recipe book as I can enjoy more crunchy and chewy foods again and I just might make an old favourite again soon. But not saying, in case I do not!

Giggling: at the cutest little baby at the shops who was prepared to give me a smile. Gosh how I miss that age!

Feeling: grateful beyond belief for an amazing year, with some surgeries, some recoveries, a setback, then some awesome treatments getting me back some teeth for eating and smiling.

What’s been happening in your part of the world?

Denyse.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Joining Alicia here for Open Slather and Kell here for Mummy Mondays.

Next Week’s Optional Prompt: 50/52 Share Your Snaps 10. 10/12/18.


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Two Steps Forward. One Step Back. My Cancer Recovery Update. 2018.126.

I am dedicating this post to the memory of a lovely woman whose life was cut too short by cancer. Chelsea, my friend Leanne’s step-daughter lived life to the max. Cancer may have been ‘in her’ but cancer did not take her spirit nor her love of life…and for her family including her husband and your daughter. My shared experience with Chelsea was that we were both patients of Chris O’Brien Lifehouse and because of that connection I wrote one of the Letters to Chelsea Leanne mentions on her blog.

Thank you for sharing the love and the life of Chelsea dear Leanne.

 

Two Steps Forward. One Step Back. My Cancer Recovery Update. 2018.126.

Update to update: even though I have outlined what was disappointing to me in this post which was an event from last weekend it has also taught me more about my capabilities in eating than I knew. I like many had tended to think eating with new teeth in my gums would be ‘back to what it was’. Not so, and I am now being more realistic and flexible.

Yesterday, 30 November, I turned 69. I had a wonderful and low key birthday celebration at a morning tea for two with my dear husband. We chatted, ate well, had our favourite drinks – small latte with an extra shot for me and English breakfast tea for him. Afterwards we wandered through the grounds of this lovely nursery, bought a plant each and came home to a relaxing afternoon spent at home. It really was just as I would have liked.

Except for this:

  • it has taken me sometime to adapt to some extra teeth added to my own on the lower jaw and I am very conscious of how much ‘saliva’ escapes and am constantly wiping – especially if I am talking…and drinking/eating. But with my husband or by myself I just get on with the ‘tidying up’ and enjoy what I can
  • I know my upper lip is shrinking in. I accept that. But, did you know you cannot ‘blow out the candle on your cake’ unless you get much closer…and I also cannot drink with a straw as there is no vacuum made in my mouth
  • I have a small but significant pain area in my….index left hand finger…the dominant one..the one where I write, draw and play. I have had pain in the tip of it before, as there is significant arthritis in the joint below. But not as bad as this. Our G.P. could not see anything affecting it from the outside, so he advised anti-inflammatories for a few days.
  • both of the above are so small, in the overall scheme of things I know, but I am writing about them (not using the left index finger!) because they have both given me cause for concern today especially.

Out Socially for Lunch.

  • Last Monday I had lunch at Chris O’Brien Lifehouse and was asked what I could eat. I nominated a simple cheese white bread sandwich and a lemon slice I had tried there before. Whilst I did not eat more than half of the cheese sandwich, I managed and did not feel as self-conscious as I thought. I also took my leftovers home! Win.
  • Today, I ventured to a local large club for a Christmas lunch get-t0gether with the Head and Neck Cancer group I am in. It was the first time I have gone out for anything other than coffee and cake. I gave it my best shot. It is a very friendly group and I did get to know people more today in this social setting.
  • What I found though was a reality check for me about my current status in recovery as a Head and Neck cancer patient.
  • Knowing I ‘could’ have taken the easy way out and ordered a safe coffee and cake that I knew I could handle, I decided to join in and actually have lunch! Remember I have only ever eaten a meal at home for over 2 years.
  • At the ordering desk, I asked for a small meal: I could see a baked dinner was on offer and was pretty sure I could manage some meat, potatoes, pumpkin and grave. “No”. Sorry,  we do not do small meals on Saturdays. “Can I have just one slice of meat with a couple of the vegies?” “No”. No offer of a kids’ meal (I think they would have refused that too) so I asked could I have just the potato and pumpkin and gravy. “Yes”.
  • OK. I thought, well this is a lesson. Not everyone ‘gets what they think they can’ and also maybe this establishment does not cater for people with different needs. And, I stayed quiet about it. I was a guest. Everyone else at the table was either way down the cancer recovery trail than me or could find foods to suit them.
  • I could eat one half of each vegetable and then as it takes me a while, it got cold. I had leftovers and asked if I could take them home. “No”.
  • I went and got a coffee later, no cake, chatted some more then drove home and ate….some lunch.

Why Write This?

  • It helps me to process it and maybe others who know what I am talking about can understand
  • The fact that I may have given myself something creative to do over the past 3 days as I needed to has not helped my mood much. I really miss using my finger.
  • I am hopeful, that by being patient and having the meds it will come good. Or I will go back to the G.P.
  • I am concerned I over-expect of myself, so writing this is helping me process
  • Maybe I just needed to ‘get it off my chest’ as they say!
  • It is not a post where I am wanting any sympathy but I did get insight into a world out there today that, in some respects, has no flexibility to meet special needs
  • I also know people face this as a challenge every.single.day
  • I am wondering if my ‘reaction’ was a bit of an over-reaction to a day which I had wanted to go well, and in terms of socialisation it did.
  • But it came up short for me, the head and neck cancer patient getting used to eating again in a regular environment, and so I wonder if I need to be more prepared for the situations I place myself in as I change from ‘no eating’ to ‘limited eating’ to ‘regular eating’.

It feels like two steps forward and one step back….but probably it is more like five steps forward and maybe one step back!

And maybe I will take a little container of my own next time for left-overs!

Thanks for reading!!

Denyse.

P.S. It IS most unusual for me to post on a weekend but for my emotional health I am…and I already feel better for writing it out. THIS is why I blog!!

Linking up with Leanne here for Lovin’ Life on Thursday…sending love to Leanne and her family. xx

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November Notes #5. 2018.125.

November Notes #5. 2018.125.

I went to a million (give or take) in-service courses as a teacher/principal.

I think they are called “professional learning” now and I also know they “count” towards accreditation each year.

I also devised and delivered many as both a teacher and University tutor and Adult Educator.

So what is this about in relation to my final November notes?

It’s how my personal development was & is enhanced by having cancer.

I am aware I have written at some length about the processes I have learned behaviour-wise and they are here, on the page “Denyse and Her Cancer Story”.

What I will do now is write about my changes in behaviour and attitude and how this can be linked to my cancer diagnosis. To make it easier and for me to see the changes, it will be in photos.

  • I gained independence
  • I became much less anxious and fearful following my diagnosis and subsequent BIG surgery
  • I tried new things with greater ease than ever before
  • I knew that to follow the processes and trust in the professionals, I would be OK.
  • I sometimes had to challenge the negative voice inside that wanted it all “done and now”
  • I found calm in more ways than I realised: particularly by going outside, into nature and doing art.

And then more:

  • As I already knew from the experiences of ‘exposure therapy’ the more I did the more I could do with increased confidence
  • Things do not occur linearly nor with ease and of course there were (still are at times) so tears that spill over and some worries
  • What is different now is how quickly I recover and re-group
  • It feels so much better for me to be a calmer person who is less afraid to travel, meet up with friends old and new and see greater times ahead
  • I can also put the “cancer voice” back in its box with relative ease by using my thinking strategies well.
  • I no longer try to ‘case manage’ anyone else’s behaviour.
  • I accept with great assurance that not only am I doing the best I can, so are most people
  • I am much more likely now to reach out a hand in friendship and care rather than recoil because of the anxiety and fear based on social engagements and effects of IBS.

And this is why and how having cancer helped me grow. It is a learning process of course. However, I am loving how my life is now and what I have gained back from this past 18 months living with a cancer diagnosis.

There is such a phenomenon called Post-Traumatic Growth. Article can be found here.

This resonates with me:

Types of personal growth

People may experience different types of change while coping with cancer, including:

  • Improved relations with others. Living with cancer may increase feelings of closeness or intimacy with family or friends. It may make it easier to connect with others who have had a traumatic event.
  • New life experiences. Having cancer may change your priorities, causing you to make different life choices. You may be motivated to make a career change, overcome a fear, or fulfil a life goal.
  • A greater appreciation for life. A cancer survivor may have an increased regard for life’s value or a new sense of vulnerability to death. This awareness may help you appreciate the world in new ways.
  • A sense of personal strength. Living with cancer can help you develop increased mental strength and a sense of empowerment. You can be proud of what you have accomplished.
  • Spiritual development. Some people living with cancer find they gain an increased interest in practicing religion or adding spiritual depth to their daily lives.

Having post-traumatic growth does not mean that you have completely overcome the stress and other feelings about having cancer. Growth and suffering can happen at the same time. In fact, most people who report post-traumatic growth also report having struggles. A person may grow in one area of their life and not another, or in a number of areas at different times.

I have been incredibly fortunate of course to have the surgeries and treatments and I never downplay cancer but as an educator I know what it has taught me and continues to teach me.

Have you had experiences that have changed part of your life and your outlook?

Please share!

Denyse.

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