Sunday 17th February 2019

Share Your Snaps #1. 5/51. #LifeThisWeek 12/2019.

Share Your Snaps #1. 5/51. #LifeThisWeek 12/2019.

Welcome to the fifth optional prompt for #LifeThisWeek:

Share Your Snaps

Every 5th week is is photo-centred post. Not wordless for me, however, because….just because!

Let’s meander down January’s memories:

Oh MY goodness it is great to eat real food again. This took a LOT longer to eat than before I had cancer but it was wonderful.

 

My 6th grandchild & 4th granddaughter at ‘her’ dressing table which was mine as a teen, then stayed at home for Mum to use till 2007 and then given to my daughter’s family. It “still” has the Sydney Uni transfer on mirror I put there in 1969. because that was where my boyfriend at the time went.

 

And Pennant Hills Road Sydney…I missed you (not)…on my way to M2 to get to Westmead for a January mouth check.

 

Blogger, Author and Appearance Activist Carly Findlay’s book is here. Launches are occurring all around Australia. I first heard and met Carly at the Inaugural Aussie Bloggers’ Conference in 2011. My copy, on pre-order, is being read by me now. An excellent memoir.

 

On our way to see the family for our grandson’s 18th we drove through roads and streets not seen before: with buildings and shops and houses and apartments and this: a new school! Wow we thought.

 

And a week later we got some pleasing news. Our daughter, teacher-librarian, has been appointed to this brand new school and her youngest has started there too now. Here is the library (only one part!).

 

What an amazing courtyard, and space! It’s a brand new Public School at North Kellyville. We once lived in Kellyville and the land on which the school is built was grazing and acre blocks. So much has happened development-wise since we left north-west Sydney 4 years ago.

 

I miss the white/ pale pink frangipanis we had at the previous rental house but am definitely attracted to the colourful ones these days so when I saw these on a drive through The Entrance I HAD to stop and capture their beauty.

 

This map of Australia caught my attention and that of many when it was re-published by me on Australia Day. Each coloured section represents a country for the original custodians of the land. The Aboriginal people we lived with and taught helped us to learn far more than we might have any other way.

 

Toothless again. It was temporary and of course, on a break from the prosthodontist chair I took a selfie. Just goes to show how much upper teeth make my smile.

 

An unusual spot for me on this trip to Sydney for our grandson’s 18th Birthday lunch. I am in the passenger seat and got to film crossing the Hawkesbury River bridge. It is a marker of sorts for me of leaving the coast and heading to the big smoke.

 

Dad: I came to share some food goodies and meals for his freezer just a few days after his 95th birthday. He is on his balcony pointing to the BIG complex that Dee Why RSL is building on the border of the Independent Retirement Complex where he has lived contentedly for almost 8 years.

 

After buying Dad’s house in 2011 we knew the architect owners would eventually renovate it. It still has come to a shock to all of the family how different it looks already. That is progress of course. Dad is not keen on seeing the updates.

 

Early January I had an unexpected visit to Chris O’Brien Lifehouse (image of the late Prof here) to have some extra skin growth check by my Professor. It is all OK but that day was a wake-up to reality for me. Anytime something “is” different it will be checked to see if it is “cancer”.

Today, Monday 4 February 2019, is World Cancer Day.

Catch up on more here. 

I hope that if  you or anyone you know  does have a cancer diagnosis you would be aware of the many more successful treatments and prognoses these days. It does, of course, depend on the type and stage of cancer when diagnosed. It doesn’t detract from the seriousness of course but to someone who has been through my recent cancer experiences I have found out more than I ever thought possible about a cancer diagnosis.

Best wishes to you all this coming month.

Denyse.

 

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Joining Alicia here for Open Slather and Kell here for Mummy Mondays.

Next Week’s Optional Prompt: 6/51. My Worst Purchase. 11/2/19.


FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

But It IS Still About Cancer. 2018.103.

But It IS Still About Cancer. 2018.103.

Since spending much of last Tuesday, 2nd October, at Chris O’Brien Lifehouse (my cancer hospital) in Sydney, I have been affected by the fact that the reason I am in need of regular visits is because I have cancer. Specifically a Head and Neck cancer that was removed from my maxilla and upper lip named:

“Hybrid squamous cell carcinoma showing features of both verrucous squamous cell carcinoma & conventional squamous cell carcinoma”

On Tuesday I got a copy of the Histopathology report from 6 July 2017 surgery. It was ‘less confronting’ to read from this distance of time but it did have words in it I found hard to read.

With no risks per se, other than age, it seems my cancer took hold. I reckon it was there for many months before it was discovered after having my bridge/teeth removed when the gums were so sore and growing over the teeth (my request to do so in January 2017 was not heeded until April 2017). Diagnosis came in mid May 2017.

Why am I writing this now?

Because after all the surgeries (4 in less than one year), and many, many visits back to Westmead for my prosthodontist to make my mouth ready to accept the upper prosthesis of teeth, I thought I was almost done.

I am not.

Cancer is and will always ‘be there’ and in fact, my Professor and lovely Cate, reminded me “It IS about cancer” and that is why I come back for check ups and need to be vigilant myself about any changes.

My day of catching up, meeting people and doing my trip to Sydney independently was wonderful and I am so grateful that all of these people care about me and helping others with cancer. But it came home, forcefully, and is affecting me today with some sadness;

Cancer is always there. I had let it hide for a while behind everything else I was doing. I appreciate you reading this far! It is important, always, once I have something impact me as this has, that I share.

My husband is a wonderful person I can chat with always and I saw my GP to update him as a de-brief.

But before I go on, I had a TREMENDOUS day on Tuesday, noteworthy too because it was the first time I had driven myself to Chris O’Brien Lifehouse.

Asking Others For Their Thoughts.

I asked around  facebook friends who I know are through the active stage of treatments for their thoughts and some kindly replied with these words.

From S.:

“I’m past the ‘active’ part of my treatment, I’ve had surgery and radiation. Now I take a once a day tablet to prevent recurrence and I got 12 months all clear. But some days I feel just awful with fatigue and other side effects. I spend whole afternoons sleeping on the couch. I don’t feel like myself and it’s really hard when people say ‘oh you must be back to normal now’. I’m not back to normal and I don’t know if I ever will be. The weight of expectation (my own and others) feels so heavy and overwhelming sometimes. Depression, anxiety and feeling down even though you survived cancer feels inevitable and like I am lacking gratitude for my recovery. I’m not, it’s just hard”

From V.:

For me post cancer treatment is a mixed bag. I’m so grateful for my recovery but the fear and uncertainty for the future is still there. It’s a monkey on your back forever and you have to find a way to live with that monkey. The monkey is very loud and cheeky at times. Other times I give my monkey a time out and she sulks in the corner. At my recent follow up appointment I sat in a waiting room full of women ( I had early stage breast cancer).   They all had that haunted ‘how in the hell did I end up here’ look on their face and you just bravely smile at each other without any need for words.

From S.:

It’s my cancerversary on Tuesday so I’ll be blogging about it too! I don’t think the cancer shadow ever goes away but I try not to let the worry of it steal my joy of today.

From M:

 The elation of hearing the words “all clear” faded more quickly than I imagined and in its place was anxiety. Having been so closely under the microscope for so long,  I felt anxious that the cancer might return and it wouldn’t be spotted. Over time, this does ease and I look forward to my six-monthly check ups for continued reassurance that all is ok.

From M in N.Z.:

It’s normal to have a slump in mood after treatment ends. I availed myself of the Cancer Society psychologists who are trained to help us deal with the transition from treatment to the new normal.

I also went to the NSW Cancer Council website and found this article about ‘after the cancer treatment stage’.

Can cancer be a positive experience?

  • Many people find there are positive aspects to having cancer. Some even refer to the disease as a life-changing experience.
  • Cancer may cause you to re-examine your life choices, and may motivate you to travel, take up new activities or make lifestyle changes (e.g. starting exercise or quitting smoking). This shift is often gradual, as even positive change can take getting used to.
  • After treatment, some people want to help improve the cancer experience for others through advocacy or volunteer work.

Read more at https://www.cancercouncil.com.au/15289/b1000/living-well-after-cancer-45/living-well-after-cancer-back-to-normal/#sUFxCMjbDj1ZGQz4.99

New friend to me, and known to many is journalist and M.C.  Julie McCrossin, who is now 5 years down the track from her Head and Neck cancer diagnosis and she sent me here, to her podcasts for the Cancer Council, and this one of fear I listened to again.

Liverpool Hospital Head and Neck Patient Support Group listening to Dr Ben Smith, Ingham Institute on cancer recurrence anxiety. Learn more about managing anxiety. Listen to The Thing About Cancer Managing Fear podcast cancercouncil.com.au/podcasts/episo… @beyondfiveorg @CCNewSouthWales http://feeds.soundcloud.com/users/soundcloud:users:314217701/sounds.rss

Julie said “I find the fear catches me unawares, like on my recent birthday”

Thank you friends for sharing.

So, I am not unique.

Always good to know.

And I can share my worries and fears with others who ‘get it’.

Having cancer never really ends, but I am always grateful for the friendships and new experiences I am having as a result of cancer.

Thank you one and all.

Denyse.

Joining with Kylie for I Blog on Tuesdays here and with Sue and Leanne here on Wednesdays.

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest