Sunday 18th August 2019

Share Your Snaps #6. 30/51*. #LifeThisWeek. 81/2019.

Share Your Snaps #6. 30/51*. #LifeThisWeek. 81/2019.

*The World Head & Neck Cancer Day and Soup For the Soul Version 2019.

Every 5 weeks here, there is a photo-based post called “Share Your Snaps.” I sometimes need to add words…that’s me. This time around I am letting the photos tell the story of World Head and Neck Cancer Day and Beyond Five’s Fundraiser: Soup for the Soul.

July 2019.

July has been chosen internationally (since 2015 I believe) to have one date noted as “World Head and Neck Cancer Day” 27.7.19. Like most ‘events’ health-wise, this one has an origin in the U.S. and the colours for Head and Neck cancer internationally are maroon (burgundy) and cream. In Australia those who follow Queensland in State of Origin would be impressed. Moving on.

The only charity devoted to Head and Neck cancer awareness in Australia is Beyond Five. Regular readers will know as a head and neck cancer patient I was keen to help share information about this little-known cancer and late in 2018 I was invited to become a volunteer Ambassador. I have written more here.

How did this July go?

I held a virtual Soup for the Soul event which raised $355. $385 as of time of publication! Thank you all.

My Soup for the Soul

I promoted Soup for the Soul via social media and there was also a ‘real event’ at the Central Coast Cancer Centre: hosted by the centre and the head and neck support group with donations of soup, rolls, the space in which to hold the event, prizes we got as donations for a raffle and my tiny cupcakes were sold. There were quite a few of our group there and here we are. FYI, in this photo there are 7 of us with head and neck cancer.

Some snaps from the day.

Beyond Five Information Sharing.

Promotion of WHNCD and Soup for The Soul via My Local M.P.

Last year, the Federal M.P. for Dobell, our area, Emma McBride kindly came to our place to meet with me to hear more about head and neck cancer and to support Soup for the Soul.

July 2018.

From time to time, I have kept Emma apprised on my progress, and recently wrote to her about this year’s event. She was able to meet with me, on the ACTUAL World Head and Neck Cancer Day to both offer her support and then share via social media. Emma and I also discussed the importance of carers and she is now the shadow minister for carers and mental health. Thank you Emma and also Jacqui for organising this!

July 2019.

What Next?

I admit I need a little break from all things head and neck cancer but then again, how I would do that when it is part of me, I am not sure!!

I am making a walk each day my focus and I am getting back to noticing nature and of course, the dressing with purpose and going for a coffee EVERY day remains essential to my wellbeing.

How do you go looking after yourself after an intense time of busy-ness?

Denyse.

 

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next week’s link up: 31/51 Gratitude 5/8/19

 

You are invited to the Inlinkz link party!

Click here to enter


FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Share Your Snaps #5. #LTW25/51. My Head & Neck Cancer Photos 2017-2019. 71/2019.

Share Your Snaps #5. #LTW25/51. My Head & Neck Cancer Photos 2017-2019. 71/2019.

I am choosing to celebrate my two years + since head and neck cancer diagnosis in images that mean much to me as a patient who is using this medium to show:

Surgeries,

Healing,

Gratitude,

Waiting, 

Becoming Well.

Some images may be confronting to you. The nature of having a head and neck cancer is that it is brutal in its ways of eradicating it. Be it surgery (my sole treatments), radiation, chemotherapy or a combination of all. Please consider using my experience to get your mouth checked and to follow up any pain, lumps & bumps in the head, neck, under ear areas….And please think about a donation to my Virtual Fundraiser for BeyondFive where I am a volunteer Ambassador. Link at the end. Thank you. 

 

1. Where recovery began. Chris O’Brien Lifehouse in July 2017 and realities of being home and what my body was doing to heal.

2. My ‘mouth’ reconstructed…and lots of waiting for more surgeries and needing to adapt to changes in my mouth. Surgery in Feb 2018 too.

3. And a 4th surgery…gets me closer to upper teeth but such a long wait with a stent attached inside. Getting my #HNC awareness happening & supporting the first Soup for the Soul event telling my local MP about it.

 

4. Many trips to Westmead as my mouth needed measurements, cleaning of abutments area and so on. I had 2 more surgeries to make my mouth ‘teeth ready.’ My first meeting with Central Coast HNC patients. I had not met another HNC patient till almost a year after my first surgery. And....S M I L E.

 

5. So many reasons to smile, show appreciation & help support the works of HNC groups, meet with Beyond Five, smile at my surgeon and see the realities of inside my mouth, with my prosthodontist telling me all about how this is screwed into the cheekbone and more. Yikes. No wonder it hurts at times.

6. With my recovery continuing my confidence improved.It was great to have some special occasions including a belated retirement medal presentation, meet-ups in December & Christmas at our place & to celebrate my 69th birthday at the the end of November.

7. In early Jan 2019 a quick trip to COBLH to see my surgeon where he confirmed ‘extra skin’ was just that, not cancer…and that threw me for a bit (cancer as a possibility). It was good to think about it and consider gratitude and we celebrated an 18th Bday & our Feb meeting of CC HNC support group had a special guest.

 

8. And the memories of the 2 years before were strong but I gave myself credit for getting through tough times then and now. Meeting up with friends AND authors who are friends was fab! My mouth reality is here too. Bit graphic: Before Cancer diagnosed.

 

9. Celebrated my 2 years since diagnosis with my husband on 17 May and he said ” time for the Apple Watch you’ve wanted”. Recently I’ve helped share another HNC patient’s story for Beyond Five, met my daughter for Mother’s Day, had another CC HNC group meeting at the Cancer Council, saw my prosthodontist, my dentist too…and at the special celebration of Chris O’Brien’s legacy for Head and Neck cancer in early June at COBLH loved seeing my surgeon, Prof Jonathan Clark (who became AM from Queen’s Bday honours the next weekend!) and my HNC Nurse Practitioner Justine. I am so fortunate!!

 

10. My friend updated my image for the blog after it had been showing my way before cancer image for 4 years. Now, that feels more like me!

 

Denyse Whelan Head and Neck Cancer Patient now Ambassador.

Consider a donation of $5 or more to my Virtual Event

For Head and Neck cancer patients, family and friends. This is a website and offers lots to help. It continues to grow and change but with no government funding, some donations by companies in related fields and one part-time business manager, a fund-raiser was initiated in 2018 called Soup for the Soul. Soup is often a food that patients with head and neck cancer can manage and it is comforting.

Soup for the Soul is already live and I have a Virtual Soup for the Soul page here.  World Head and Neck Cancer Day is on 27 July.

Have you shared your snaps today?

Denyse.

Kell also has a Monday linkup here. Join in!

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

You are invited to the Inlinkz link party!

Click here to enter


FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Share Your Snaps 4. 20/51 #LifeThisWeek. 53/2019.

Share Your Snaps 4. 20/51 #LifeThisWeek. 53/2019.

Every 4th week for #lifethisweek the optional prompt is about sharing your photos. Less wordy….more visual is the intent. See how I go this time!

It was a momentous week in Australian politics.

The new prime minister of Australia is the one who was there before the election. Nothing else to add.

Australia’s legendary PM from 1983 and for 4 terms was Bob Hawke and he died 2 days out from the 2019 election. I honour Bob here for the good he did (and I know some remember differently) and that he took time to answer my then 7 year old son’s letter when he wrote to him about ‘not wanting a war to happen’. I have since found more people got letters back from Bob Hawke, written in his own time and signed. No PM has done that since I have heard. Thank you!

But it has been a pretty big week for me…actually an anniversary of 2 years since my cancer was diagnosed. I am very grateful to be as well as I am. I have a visit to my head and neck cancer surgeon tomorrow and “hope” all being well, the next visit will be in 6 months.

Marking the occasion was by making a HUGE mandala which I started a month or so ago to literally remember by a space on this and a photo of me from every month.

I also made these photo collages. I find it really helpful and motivating for me to “look back and see how far I have come”. Here they are:

Before May 2017 diagnosis, I was ‘trying’ to be smiling and well but something was lurking….from 2016 onwards

 

Recovery & surgery times: July 2017 onto Nov then into Feb 2018

 

Surgeries x 2 recovery and then…many trips to Westmead for upper prosthesis. Teeth added: 21 Aug 2018

 

Smiles for day…months and more!

 

Taking this up to recent weeks. Of course, I still have to be wary of eating and it takes a LONG time to eat small amounts requiring chewing but very happy indeed.

For about 6 months I toyed with the idea of getting an Apple Watch. Those who have read some of my Instagram posts know I now have this but I shall share more. I wanted to have “something” to mark the 2 years of cancer done but it seemed extravagant for us on a tight budget to get one. I had this idea I would sell some books and CDs towards a saving plan and actually that brought in $100 net! Thanks friends here. Then on Friday, 17 May 2019, I was taken on our morning tea date and when it was over, asked did I want to go get this Apple Watch now!? Apparently my face showed it all. SURPRISED! So, it is never “that” easy because one shop did not have the colour and size in stock but another did and off I drove happily that afternoon. And what I totally love about an Apple Product is…unwrapping. One day with the watch already and I will be, at some stage, changing the band. No blue tooth earbuds yet either. I shall wait and see.

Denyse.

Kell also has a Monday linkup here. Join in!

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next Weeks’ Optional Prompt: 21/51 Self-Care: Share Your Story #3 27/5/19

You are invited to the Inlinkz link party!

Click here to enter


FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

My Zen Is Found In The Garden. Part Two. 42/2019.

My Zen Is Found In The Garden. Part Two. 42/2019.

Recently I wrote about how I find having a garden is good for my mental (and physical!) health.

However, I must now add, that looking at flowers en masse, individually and observing their colours and textures takes me on an artist’s journey.

I see:

  • patterns
  • tones
  • colours
  • shapes
  • textures

I have tried to replicate some via my drawings and mandalas but nothing quite tops Mother Nature.

I am glad to recognise the peaceful, relaxing and health-filled responses I have when I visit not only my meagre garden but in parks and others’ gardens.

Here’s my collection of favourites. Some were grown where we live now and in pots, others were at the last house. The sweet peas at the bottom were from the last time I grew them. Two years ago. I love sweet peas so I have given them another go this year. Fingers crossed!

Do you find going into the garden relaxing?

Do you notice your breathing slows when you are immersed in nature?

I believe that nature is a healing space and place and I love that!

It cetainly is a place I can re-capture my ‘zen’.

Thanks to Min for her Tuesday link up #zentipstuesday here.

Denyse.

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Share Your Snaps 3. 15/51. #LifeThisWeek. 38/2019.

Share Your Snaps 3. 15/51. #LifeThisWeek. 38/2019.

Manly: New South Wales. Australia.

When we moved to live in Sydney in 1959, we were pleased, in retrospect, that Mum and Dad chose to live on the Northern Beaches where Manly was the nearest beach, shopping centre, and starting place for the Manly Ferry to take us to the city. However, this “is” meant to be a sharing the snaps post, so here are many of mine….and I hope you enjoy the selection.

The family home. Not looking like this any more

Manly lies on the land of the Guringai people, the traditional owners of the land. It was given its name by Captain Arthur Phillip in 1788 when he travelled north of Botany Bay after finding it ‘unsuitable for settlement’.

He initially named the area to the north of the harbor Manly Cove after spotting a group of Aborigines in the area, about who he stated, “their confidence and manly behaviour made me give the name of Manly Cove to this place”.

The men he encountered were from the Kay-ye-my clan – of the Guringai people. As he scouted for fresh water in the area, Phillip met members of this clan and, following a misunderstanding, he was speared in the shoulder. He ordered his men not to retaliate preventing further bloodshed.

People gradually began settling in the Manly area around 1820 and by the 1850s Henry Gilbert Smith, the founder and developer of Manly, had the vision of Manly as a seaside resort.

https://www.coveredsummer.com.au/history-of-manly

This information is of interest in terms of Manly’s place in the white settlement of Australia. Always remembering the Aboriginal people who own this land.

Some smaller versions of these pavilions remain at the South Steyne end of Manly Beach.

 

One of the ferries on its way back from Manly

There was a ditty a long time ago, “7 miles from Sydney and 100 1000 miles from Care” or words to that effect, about a ferry trip to Manly!

Manly itself is a suburb of Sydney and the beach’s long stretch is made up of South Steyne – southern end and on the walkway to Shelly Beach and Fairy Bower, North Steyne is in the middle (where I used to go as a teen) and Queenscliff is at the northern end and where a certain ex Australian prime minister appears in his budgie smugglers far too often for my liking!!

Recently I re-visited Manly itself after being to see my 95 year old Dad in his unit at Dee Why. When I went the next time to Dad’s I showed him the photos and he lingered over them. He told me “in retirement, any morning I was not at golf, I’d come down here. Walk in the surf and the sand from South Steyne to Queenscliff and back. Some days it would be around to Fairy Bower”. I know he would always finish with a coffee!

I will always have a place for Manly in my heart. I now know, of course, how fortunate I was to live near here aged 10 to 20. We had access to it all as day visitors and holiday makers staying at my parents’ house as did our children. Many great memories of Manly.

 

Have you been to Manly?

I loved sharing these snaps here this week.

Denyse.

Linking here on Mondays with Kell for Mummy Mondays.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next week’s optional prompt: 16/51 Easter Time Means This. 22/4/19.

You are invited to the Inlinkz link party!

Click here to enter

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

My Zen Is Found In The Garden. Part One. 37/2019.

My Zen Is Found In The Garden. Part One. 37/2019.

I really did not ever enjoy gardening. I think it was the labour of it and also I liked the ‘look’ of a garden but not so much the hard work. This changed for me once I was well and truly retired from all work.

We still lived in Sydney then and had a lovely pool area which incorporated garden beds around the perimeter. Over time, we (ok, my husband) laboured more intensively and made some delightful screening areas as well as adding plants and shrubs.

The pool area in its early stages, but the time the house was sold late 2014 it was more filled with greenery and colour.

I liked tending to some of the new plants, helped with cutting back the fast-growing vines and also put some plants in seasonally e.g. sweet peas. They went against the pool fence far left and it was something I enjoyed doing with my little grandkids who we cared for 3 days a week. Oh, and for anyone worried, the pool gates were always locked and an adult would accompany a child into the pool area at all times.  Very strict on that!

Then we sold our family home and moved to the Central Coast to rent. The first house we rented was a waterfront and, by the way, we would not choose waterfront again because the salty air does affect computers and other appliances. This place had some native trees but not much else.

After wanting to get away to an easier house to live in and be more comfortable, we chose an established home that had one owner and was in the northern area of the Central Coast N.S.W. And those people planted a LOT…..of palm trees, and tropical plants….and I sure got some frustrations out chopping them back. The HUGE frangipani in the back yard needed some cutting back but the beauty each Spring to Summer was worth the mess of the fallen petals!

Now where was I?

Zen in the garden.

As I really needed to become more mindful and calm down my  nervous system (IBS and anxiety) my plants and flowers helped me manage myself and emotions on some days. Mind you, I sometimes needed some digging help, but generally I could manage with potting mix, barrel-type planters and a range of colourful flowers in season.

These gave me joy as I tended them, photographed them and sometimes tried to capture their beauty by a sketch or a painting.

These colourful plants and flowers were a joy to tend, to water and to care for as they were almost all located on the back verandah and I could reach them easily. Over time, some would die back and others would take their place.

As I became more unwell into 2017 – before I knew I had cancer – being outside, in this garden was one place where I could:

  • meditate via my app then which was Headspace
  • take notice of the changing skies above
  • listen to the birdsong of the local native birds and those who are just nuisance value
  • water the flowers and clean up the frangipani debris
  • cut back the palms: they can be quite dangerous and these, according to those who know, should never have been planted. They were overwhelming in size but….the new owners (our landlords) did not give approval for culling…so we did it. And the local council took the big and fallen fronds away at green pick up times.

Next time, more about the ways in which being in a garden is good for my heart and soul!

Do you find zen in the garden?

Denyse.

Linking up with Min on Tuesdays for Zen Tips Tuesday here. 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Memories I’d Like To Re-Capture. 12/51 #LifeThisWeek. 29/2019.

Memories I’d Like To Re-Capture. 12/51 #LifeThisWeek. 29/2019.

I have just been talking to my husband about some of my memories and have realised that re-visiting can be harmful to my emotional health.

With that in mind, I have decided to be light-hearted as I think about these memories and the why I’d like to re-capture them.

 

How are you with memories? Can some be triggering too?

I know I like having a good memory but in some instances it is not a good thing!

Denyse.

Linking here on Mondays with Kell for Mummy Mondays.

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next week’s optional prompt: 13/51 April Is About 1/4/19

You are invited to the Inlinkz link party!

Click here to enter

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest

Share Your Snaps #2. 10/51.#LifeThisWeek. 24/2019.

Share Your Snaps #2. 10/51.#LifeThisWeek.  24/2019.

A week of being out and near water……from the past 10 days…here on N.S.W. Central Coast and a bit further north. Hairstyles on me courtesy of the wind conditions. I love being by the water and when it can capture my full attention like this!

Saturday at Canton Beach: Tuggerah Lake.

 

Tuesday after a stressful morning…..ahhhhh a Beach Walk at Lakes Beach! 

Wednesday at The Entrance. Look carefully at the little shapes…fishies! 

Thursday a big change swept through…but it did not stop me. Love the beach to myself.

Friday I drove about 45 minutes up the coast to a part of Lake Macquarie: Toronto. Magical spot.

My face when I am near the water! Oh and the seagull who was NOT camera-shy!

The water and its surrounds is a healing space for me. Is it for you?

Denyse.

Looking forward to seeing your snaps if you are joining in and to read your posts.

Kell is running her link up here on Mondays.

Alicia has moved hers here to Fridays.

Do join in!

You can link up something old or new, just come on in. * Please add just ONE post each week! * Feel free to go with the prompt for the week to add your ‘take’ on the prompt. Or not. * Please do stay to comment on my post as I always reply and it’s a bloggy thing to do! * Check out what others are up to by leaving a comment because we all love our comments, right! * Add a link back to this blog in your post somewhere. I don’t have a ‘button’ so a link in text is fine! *Posts deemed by me, the owner of the blog and the link-up, to be unsuitable for my audience will be deleted without notice. * THANK you for linking up today!

Next Week’s Optional Prompt: 11/51 It’s MY Favourite….18/3/19

You are invited to the Inlinkz link party!

Click here to enter

 

 

FacebooktwitterpinterestFacebooktwitterpinterest
FacebooktwitterpinterestFacebooktwitterpinterest